Would you still have kids if you could?

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burgher90

If you had gotten Peyronie's before you were married and had children, knowing that there could be a genetic component to this disease, would you still consider having kids?

nemo

It's a good question, and there is no "right" answer, of course. But it's one I've thought about.

I'm 45, still single, and at this point am probably not going to be fathering my own children (if anything it's more likely I'd married a girl who already has kids). But I honestly don't think I'd want to have a boy, knowing this could be something I'd pass on to him. I also have some other auto-immune problems like Vitiligo (a skin condition) and Ulcerative Colitis. I feel like my immune system is a train wreck, and I wouldn't want to subject a child and future adult to that if it could be avoided.

So, as for me, I think the answer is "no, I wouldn't want to risk passing these problems on to my child." But that's my opinion only - everyone is entitled to their own. And it feels like we're getting closer to an ultimate cure for Peyronies Disease, so it's entirely possible that in my hypothetical child's lifetime, there may be a cure or truly effective treatment. Another point to consider.

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

LWillisjr

I absolutely would. Being genetically disposed still doesn't mean he will get it. If I am explained it to him at a young age he might be more careful. If my son did get it, I would be there for him and help him deal with it same as I did.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

mischa

Yes I would. Being genetically disposed to a condition is no guarantee and since a great number of guys overcome it any way why not. I'm thinking if dick size is hereditary (small) or if it's just a pecker lotery would the thought of not having kids be the same?
Mischa😕

james1947

Yes. But have something in what Nemo said

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Richard Hertz

Seriously?! Not having kids because of Peyronies?!

Sorry to sound unsympathetic, but some people clearly need to get a grip.

This is a mild disorder that's very treatable. It's not a terminal disease, it's very common and it's nothing to be ashamed of. My urologist says he has ten doses in his refrigerator for patients at any given time.

As in another thread, I don't want to be insensitive. But it looks to me like people need to be told to stop feeling sorry for themselves. It doesn't do any good, and it's out of proportion.

nemo

Richard, I realize you're pleased with your results from Xiaflex and you clearly think Peyronies Disease is easily treatable because of your positive, albeit limited experience with Peyronies Disease and Xiaflex. I'm happy that you've had good results, I really am. But two points:

First, everyone has not shared your positive experience/outcome with Xiaflex, and some (such as myself) don't qualify for the treatment because of the positioning of our plaque or for other reasons. Peyronies Disease runs the gamut from mild curvature to complete inability to achieve a usable erection. Not every case is as easy-peasy as you imply.

Secondly, I'd watch being so preachy to other men who are walking a different path than you, especially as a new member of the forum. It's not your place to judge who's "feeling sorry for themself" of needs to "get a grip." The only person you're qualified to psychoanalyze is yourself. I think you'll find this forum is known for men sharing their experiences in an open and helpful way, and a relative absence of judgemental swagger. It'd be great to keep it this way.  

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

james1947

Richard Hertz

I will put it more blunt than Nemo.
This forum is for people that want to help each other, not to put each other down.
So maybe this forum is not for you!!!

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Sta

There is no any substantial prove that Peyronies Disease is likely to be genetically passed on desorder
Born 1985, Peyronie's since 2011/12. Lost approximately 3 cm of length and seriously bottlenecked.

Lester7

Sure, I would. Hell, you may just have daughters like I did.  

james1947

Have a big chance that Peyronies have genetic aspects.
We had a debate on the forum some time ago.
Any case, my father had it, I have it. It is not an indication, but I know other cases of father and son having Peyronies

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

KAC

Yes, absolutely.  Part of life is having some medical problems and learning to deal with them.  That doesn't take any bit of the value out of life.

nemo

Yes, James, I was 31 when I got Peyronies Disease, but a few years later, my then-69 or 70-year old father told me he had suddenly developed it too (he realized it because he discovered his nocturnal erections were bent.) He wouldn't have even known what it was called had I not had it and talked to him about it before. I suspect a genetic aspect.

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

NeoV

My father has it too, got it in his late twenties. He also his Dupytren's.

I would still have children if the circumstances were right, but It's extremely unlikely that I will simply due to preference, Peyronie's or not.
Adoption is always a good option as well. Peyronie's has taught us how to overcome something extremely deep and painful to our core. It's made us very sensitive and strong.
Kids need father's like that, and there are many children without parents.