Implant as early Step to avoid more trouble....

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kovasis

I have just joint this community a couple of days ago - i have done my introducement at the appropriate area (so you can read if you want to).

i have done a lot of reading in the past 2  weeks at this Forum and of course elsewhere and all i can see is that it's finally in most of all circomstances comes to no really positive (in the most part of any cases) results at least many compromises have to be done.

The deeper i went to this Desease (by reading all the Stuff here ) the deeper i'm depressed...

So i ask myself why not shortening the whole prozess ?
Why took hours and hours of thinking - suffering and fighting against this Desease every single day with little or no positive result - spent a fortune concerning money and time to it?

So far as i can judge it there will be no medical treatment within the next 20 Years or even never at all that finaly fix it  - everything is just Frustrating and life (at least for me ) is almost not possible any more since there is no day even not an hour this stuff is not harm / bothering me .

I will loose my job for sure (I try to quit in january - i'am freelancer so i can decide on my own) because i cannot concentrate on Work anymore.
I will loose my new Partner because of my depression ( that is really heavy developing actually).
I've already lost the pleasure to be alive and cant see how to bear this nightmare for the rest of my life...

I frequently thought of sucide and still do - but i have a little daughter she is only  10 Years so i can't just go until she is grown up....

The Only thing i can see as a possible maybe bearable solution is the Implantation.
Yes it's risky and yes it may end also unsatisfying but it seemd at least any kind of solution all the other stuff dont really offer (except you spent the whole day - to the rest of your life - with treating a Desease that actually is not really treatable with any really success and there is no gurantee that it will even get worser or comes back after a while).

OK every case is individually but from what i've read here most of the cases end up worse or even unsatisfied and compromises that had have  done are not to bear for everyone - at least not me.

This time for me its not that worse (not many shortening / nor mentionable girth lost - even the curve is actually not really bad (i didnt measuere cause i simply dont know how and didnt go for it right now))

I've  already had ED Problems that i'am able to manage with Cialis and Sildenfail currently - but i dont know how long this will be a solution...

So what really gets me is this uncertainty what may comes next ? More Scarve/Plaque or other crap ? More Curve - More shrinking or something?

Thats why i think about shortening the whole crap and bring it down to a single of course not reversible solution - Again this seemed the only way to maybe get some quality of live back and maybe let things go again and just live without beeing confrontrated every single day with a Desease that is not cureable by any known treatment nowadays...

any Thoughts?  - Maybe someone here with the same or at least kind of this opinion?

mG
kovasis





Age 51
First onset of Pyronnies  June 2016
Indurations under the glans and at the base.
4 Years Stable
Daily use of 5 mg Cialis and 300 mg Pentox

Paolo

Kovasis, you are obviously in a bad place  :(

Erectile dysfunction can damage your sex life and your self-esteem. Whether depression or erectile dysfunction comes first, they often occur together. The good news is that they can both be treated.

Start by being honest about your sex life and your feelings with your partner and your doctor and ask for help.

Losing your job or partner is not going to help at all, do you have a hobby or other interest.

Try herbal alternative for stress and anxiety, I use Avena Sativa 2-3 times a day and it definitely relaxes me.

I wish you all the best in overcoming this condition (I am 54 and suffering for 4-5 Years although don't have pain or worsening curvature).
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

kovasis

Paolo:
Thank You for your Reply.

Yes it may can be treated but i'am tired to search for the right Dr. all of them i saw are kind of the same behavoir - no one really cares and no one even diagnose it properly - My last hope for now is that the Clinic appointment next week will be more Effektive than the other consultans i have done. But i do not exepect that much since there i will be nothing but another case that they maybe wanted to get quickly rid of because this Desease well they not able to traet it as we all know.

I have had Hobbys but due to other circomstances i cannot tell i already was kind of depressed just bevor Peyronies Disease cross my way and did not much to maintain them.

I've also searched for  Pyschological help - but you have Appointments that take more than 5 Weeks bevore you can see any Dr.
Then (after Weeks) i had three Sessions with an Psycholgie specialist for behaviorismus - well i was disapointed and even the Dr. didn't want to proceed with any more sessions.

Inbetween 8 Weeks were gone for another appointment with psychology specialist . I just had one Session and the next session will be next week -- all in all not very helpful and the time effort is also getting me more and more tired  . because besides of all this i have to do a Fulltime Job with many Kilometres driving in my car - traffic jam - to shorten it - pure stress...

I know to complain is also not a solution but i'am currently going to despair on all that because everything i did currently changed simply nothing.

Your condition sounds positive  - this is something that i dont read often here - wish you also the best and that it at least stay like that and never get worsen.

mG
kovasis


Age 51
First onset of Pyronnies  June 2016
Indurations under the glans and at the base.
4 Years Stable
Daily use of 5 mg Cialis and 300 mg Pentox

Jonbinspain

Kovasis;

If you have the financial resources, and you are not reliant on a public health care system, I would suggest that you contact Dr Franklin Kuehhas in either Vienna or London.

He is Austrian, so speaks your language. He understands this disease and can maybe help you with a way forward.  

kovasis

Jonbinspain:
Thank you for your Reply .

I do have a public health care system not private and i know some (maybe really specialist here in Germany ) Prof. Dr Lahme (Pforzheim)
Prof. Porst (Hamburg) and so on - But i dont think that it makes really a big differents to visit them (at least on this stage of my Peyronies Disease)

Besides i do not have the time to travel and not that much financial resources to experiment with the "heroes" in treating or diognosing the Desease.

From most of what i read about the super specialist they do not really more than the others but are more expensive and at least - what else could they do ? - since the Desease is not cureable even not with tons of money....

All i want for now is a reliable Diagnose - and some kind of controlling the improvement by a Dr. that at least know of what he is talking about...

A really Treatment - well i dont think that they really could support - on my opinion it is  kind of making money cause they know how despaired people with this Desease are and that they would do everything to get rid of it...

What really would make sence is to bring up this disgraceful Situation (concerning Peyronies Disease) to the Public Mind and maybe more sientific support would follow....

Maybe there have to be gathered something like a couple of Billion Dollars cause if you want something to change in this world - in most of the cases you only can do it with money...

Thanks for your advice concerning Dr Franklin Kuehhas  but this is no option for me as i does not have the money and currently not the time  and at least not the nerves anymore to travel those distances and not to be sure if that is really worth ist in the end.

mG
kovasis
Age 51
First onset of Pyronnies  June 2016
Indurations under the glans and at the base.
4 Years Stable
Daily use of 5 mg Cialis and 300 mg Pentox

JohnWright

Kovasis -- Actually your idea is apparently worth considering. In June 2016 I was in the Peyronie's specialist office at the University of Washington where the surgeon brought up the idea of just skipping everything else (including the plication surgery I had arrived for) and going straight to an implant.

I'm a fairly decisive kind of guy, but my own self-awareness lets me know I'd need an undetermined amount of time to emotionally and mentally prepare for that kind of approach, irrevocably altering the family jewels. That particular day I was (and still am) of the belief that my dick is capable of natural function for sex. My issues with erectile dysfunction (ED) are intermittent and mostly psychological -- I think. hehe  

So, I told the surgeon I wasn't ready for an implant -- yet. I've watched the videos: The surgeon takes the equivalent of a fat knitting needle and utterly collapses the contents of the corposa cavernosa -- sie sind nicht mehr! The two chambers will never function naturally again. Sie sind gebrochen. Think honey comb inside a bee hive. You'll still have the hive, but the honey comb has been permanently destroyed. It can't be rebuilt.

The contents of the corporsa are destroyed to allow for insertion of the implant chambers. Again, in the videos, some of the more amazing implants can extend penile length a bit as well as expand girth. Two popular dreams for most of us men!

Being able to have sex is important. It's imperative to be of sound mind and emotional well being before deciding to skip over all the things you described in your original post. But, you have to know there is no going back. Once you've got the implant you'll be reliant on the implant for any kind of erection for the rest of your life.

So, I told the surgeon I wasn't ready for that. The surgeon (who has helped thousands of men with Peyronnie's as well as ED), stated right there that the plication surgery he would be doing would not prevent me from having an implant in the future if/when I was ready. My plication surgery was only in June 2016, and I couldn't be happier with the results. I'm 1000% satisfied and having Mind Blowing Sex. hehe    

However, it is nice to know that an implant is an option, AND having this awareness gave me peace of mind with a Plan B. In my future, if there is any additional curving of my manhood or malfunctions, I've had enough time since June 2016 to think about this and I'm confident that I too will just skip all the other options and go to an implant. Long term planning at its best. hehe

So, I'm with you. Just make sure you understand the full ramifications first. Also, all of the warnings and admonitions on this site about finding a Peyronie's specialist STILL apply to implant surgeons. Those surgeons are eager to get their hands on your body and money. You only get one dick and pair of balls. Identifying a surgeon who has already practiced on thousands of men before YOU is mandatory. Treat the family jewels like gold.

Hier ist für eine bessere Zukunft!

John

kovasis

JohnW:
Thank You for your Reply.

Of course - Yes it is the last Resort decisison and it depends on the individual Situtaion (as evrything concerning Peyronies Disease) and Yes i'am aware of the Consequences that this step / decision may have.

But thank you so far for describing it the way you did.
As i already mentioned I'am just afraid of worsening the Situation and thus the conditions to have a successfully implant solution.

I will try at least the next couple of Month to proceed with the conservative "treatment" and will try to find a Dr. who attend me (maybe tomorrow - at my Clinic Appointment).

As i also mentioned the condition actually is not that bad in comparison to other cases i read of here in the Forum.
So most of it is also a Psychological problem - to feel that rough cord / buckle at the Bottom of the Schaft - to see maybe other bad progressions (like the little rope on the left dorsal Schaft  i discovered recently) or kind of deformity even in flaccid state (seemd to bend to the left - as also in half rigid state - with kind of bottleneck look -( Big at the Bottom to the half - and a bit smaler in direction to the Top)) and last but not least the ED problem - doesnt make it all easier to bear and stay cool to find the right decision...

Concerning ED the weird thing is that as soon as she is on top my dick is getting flaccid within a couple of seconds (less than a Minute) - in Missionary i do not have this problem even after 10 or 15 Minutes.... So it seemed poszion depending.

Also a Thing i would like to ha


Age 51
First onset of Pyronnies  June 2016
Indurations under the glans and at the base.
4 Years Stable
Daily use of 5 mg Cialis and 300 mg Pentox

kovasis

 Also a Thing i would like to have investigated by a Dr. who cares.... Yes this is the roller Coaster again...   
   Again Thank you.
   
   mG
   Kovasis
Age 51
First onset of Pyronnies  June 2016
Indurations under the glans and at the base.
4 Years Stable
Daily use of 5 mg Cialis and 300 mg Pentox

nemo

Admittedly, I have not read every word of this thread, but if you're considering an implant when, by your own estimation, your length loss, girth loss and bend are really "not bad" then you're attempting to hammer a nail with a boulder.

My impression is you want an implant more for psychological reasons than medical - to "skip" the worry that comes with Peyronie's. I think that's really questionable judgment. Not only is this procedure expensive, invasive and carrying a certain degree of risk (of infection), it is entirely irreversible. There's no going back. Your future is literally in the hands of the surgeon and hopefully a flawless piece of equipment.

I suspect you would trade one set of worries for another set of concerns - "Will the implant fail and need replacement? (almost certain if you live long enough); How do I explain it to a new partner?; Is it everything I hoped it would be?, etc. - and given that you're "not bad" as it is, I think this is an unwise decision. There are probably millions of men around the world having perfectly good sex lives with mild-to-moderate Peyronie's. You can be one of them but it sounds like you're letting your brain get in the way.

You raise an interesting discussion topic. I wouldn't deploy "the nuclear option" unless I was unable to function. That's just me though.

Regards,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

kovasis

Nemo:
Thank You for your Reply.

Yes of course you are completlely right it is actually a very strong psychological problem - I'am a person that normally is used to act proactive to solve problems - kind of go getter.
As many of us here i was never confrontated with a Problem like this (PDS) - and there is as we all know no way to solve this easily or to solve it anyway and this is something i cant deal with.

So many efforts need to be done and you cant be sure where it ends - if you like it or not most of the time you have to take care of almost everything concerning your overall health without garantee that this will lead you to a stable and never grow worsening case of PDS - Of course one should always be aware of ones overall health - but this ist not the same - this is more like obsession that wont let you go ...

If i would know that my current condition will be the same for the next 10 or 15 Years and if that would be possible by live a normal life (without eating tons of supplements and other stuff)
I would say OK lets see and give it a chance.

But you dont know and you will never know what will happen next - this is something you carry all the time in your mind - even if you try to supress it.

Implant is Risky - Implant is irreversible - and implant has other aspects that need to be considered - Yes - But these aspects seemed to be overseeable and kind of manageable.

As i already mentioned i will give the Treatments a Try - at least the next couple of Month - but if my condition get worser I'am afraid that it will also harm the solution of an Implant surgery.

Thank you for your point of view it is really difficult to decide what will be the best way out of this Situation and maybe i'am wrong but i dont like to imagine a life that    does not offers me the abillity to restore calm - kind of serenty again.

mG
kovasis

Age 51
First onset of Pyronnies  June 2016
Indurations under the glans and at the base.
4 Years Stable
Daily use of 5 mg Cialis and 300 mg Pentox

Wladyslaw

Hello,
I am of the same opinion as Kovasis - the constant struggle and fear for the rest of life, the situation getting worse is terrifying.
Of course, surgery is irreversible and fraught with complications, but life with the hope that something is going to improve is unreasonable.
I was in 3 urologists who supposedly treated Peyronies Disease and each of them said that Peyronies Disease was a hopeless disease. Each of them has another idea for treatment. None of them have heard to treat Peyronies Disease with Pentox and VED. They consider it ridiculous to treat Peyronies Disease with leg cramps and penis enlargement pills. They are willing to save large amounts of medication for potency, order further research and arrange for further visits. It seems to me that in my case the implant is the only rational solution, as time works to my detriment.
I have worse thoughts, my penis is getting worse and I lose money that I could spend on implant.