Really frustrated from disturbing penis sensation nearly 24/7

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PDSuffer

Hello guys, (sorry for the long post)
Please help me :(
I really worried about my future. I don't know what to do anymore. every psychical movement that causing my penis to rub against my panties, I feel an annoying sensations. this is really a nightmare, its been almost a year & a half since it all started and I'm still stuck with those awful sensations.
A year & a half ago I'd extreme pains during flaccid/erection that got reduced by time, but I still have mild pain specially during semi-erect. I lost sensitivity and my penis is always Hard-Flaccid and more vulnerable to pain by touch etc.
This is really feels like kind of disability for me & really effecting my life because it's hard to keep my mind of this bad irritation. I can feel my penis 24/7 except setting because my penis doesn't move while setting, but if I put my mind into it I can feel the abnormal stiffness inside my penis.
I don't really sure, but I've this theory that maybe the Hard Flaccid condition made my skin more thin and sensitive(in a bad way). I also have a little bit of skin scarring near the glans(on the frost side) and also on the corona of the glans due to some over night injury(that may lead to my peyronie's also), so all of that probably contribute to my penis sensitivity(in a bad way). I thought maybe I should consult with a dermatologist about flatting the scarring a little bit in hope that it will help with the annoying sensations. I don't really sure that the scarring is the main issue because I'd that before(at least the one near the glans), and it didn't bother me pre-hard flaccid.
A few weeks ago I'd another appointment in the hospital with one of the best Peyronie's specialists in Israel, he told me that I've a mild Peyronie's & that the plaque is all over the shaft - IS THIS POSSIBLE? sounds weird..anyway I told him that I was diagnosed(with peyronie's) via Color-Doppler Ultrasound test only while penis was flaccid and the result was a plaque near the glans on the left side. he told me that it's mandatory to do this test with full erection also & it possible that the Uro who performed the Doppler test missed something. I asked him to schedule a 2nd Doppler test(now with erection) to confirm Peyronie's, he preferred to re-schedule another meeting in November to see if I'll have any improvements and if not I'll do the test.
It's really hard for me to get back to my normal life like this, I don't even talking about having sex or high libido and stuff like that, even though it's clear that my issue really affecting my sex life & social/work life. when all this started I got fired from my work because the company was sold to another one, so I'm unemployed for more than a year now, struggling to find some reliefs for my issue. unfortunately everything I tried didn't really worked. I'm really really worried about my future as this is effecting me mentally and psychically. holding me back from enjoying life and even getting me depressed from time to time. I've a lot on my mind lately because I want to start a job in a new country & this issue really make things more hard on me, making my life miserable. Although I'm doing a walk 3 times a week(for 40 min), I sadly have fears from doing psychical things like walking for a long-time or standing too much etc. due to my disturbing sensations in my penis.
I thought about buying a product called: 'Two Old Goats - Essential Oil Lotion', because I saw on one of the threads here that it helped somebody with hard-flaccid and pain. I even thought about tie my penis to my stomach(like in the African tribes) so it won't move and bother me.

I want to sum up by asking 2 questions:
1.Is it normal for somebody with Peyronie's or Hard-flaccid to experience what I'm feeling?
2.Anybody knows what can I do about my issue?

I really really appreciate the time you spent to read my post.
Thank you very much for all your help & support.

Jack1909

I've been struggling with chronic pain for four years so I understand.
After trying almost everything I scheduled an appointment with a Doctor involved in pain therapy..

You should investigate the origin of your pain and as far as I know the possibility of a diffuse fibrosis doesn't sounds absurd.

I'm with you, I had to give up on almost every activities and rethink even the most natural actions in daily life since from that crap popped up
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

NeoV

For me, hard-flaccid went away after stopping all sexual activity and erection checking for nearly two weeks. It came back after I masturbated too much, but as I took breaks like this for a year, slowly the gap between how often I could masturbate or have sex got smaller. Traction helped immensely.  

It was so bad for me, that the only way I could ejaculate was by squatting down and doing it on the floor. Ridiculous right? Somehow this worked for me, and now I'm much better. I also did reverse kegels in the shower while squatting, which helped a lot. Any stretches for the pelvic area can help out a lot. I know how hard it is, a lot of us have pain every day, constantly.

peyronny

I"m going through some very similar issues, so I know what you're going through. If nothing else I"m always available to talk, but considering how bad my situation is I don't like handing out advice cause mine's just gotten worse.  

PDSuffer

Guys,
First of all thanks for all your answers. I really appreciate the sincerity & support.
I'll reply you all:

@Jack1909 - You talked about "diffuse fibrosis", do you know if there is anyone here that have such a thing? I mean all over the shaft?
The Pain Therapy sounds interesting, do you know what it's involves?
Soon I hope I'll do the 2nd Color Doppler examination(this time with full erection) to confirm peyronie's, so after this test I'll be more sure if I really have peyronie's or pelvic floor issue or maybe both..:( :(

@NeoV = As for the traction device I'm not sure if I fitted to use it because my bent is not so bad & also I'm afraid to make more damage. but i'll ask my Uro doctor after the 2nd peyronie's confirmation(via color doppler - full erection this time) about it & also about the VED.
P.S. - You always replying my posts, I really appreciate that!

@Peyronny = Thanks for suggesting support. what did you mean by: "considering how bad my situation is I don't like handing out advice cause" did you tried anything that helped your situation?

I find a little comfort knowing that I'm not the only one on this boat, I hope you guys too. I feel sorry for all of us..:(

peyronny

I must've sent that post before finishing the sentence, don't know what happened.

Nothing I've done has helped significantly and my situation keeps getting worse so I don't have any good advice. I'm not saying the things I'm taking don't help other people, but I'm very prone to trauma it seems for whatever reason, maybe weight related. But if you are early into this you have more chance of recovery I think, I wish I was doing more when this first started.

I have several lumps, I'd say at least 75 percent or more of my shaft is now filled with scar tissue. It's getting difficult to go to the bathroom in the mornings because the hard flaccid is so bad I can barely retract the skin. I guess the goal is to just soften them as much as possible and make it stable.

PDSuffer

peyronny,
Thanks for your reply man.
In my case it's weird. I don't have those lumps people talking about, at least not visible to eye ones. I can feel hardening that starts even bellow my testicles and goes up to my penis, like a hard swollen tube. I wonder if its pelvic floor issue. I maybe have both peyronie's and pelvic floor, I don't sure until this day. I'm really expecting my 2nd US doppler diagnose. if it's peyronie's I must have like 90% of my shaft filled with scar tissue or something, because I really feel equal hardening all over my shaft, maybe a little more close to the glans where the plaque was diagnosed(on the left side). it could be that the plaques messing with the blood flow and causing all this hardening feeling. it's a big painful to masturbate a least a the beginning(semi-erect), but when I'm getting to full erect my penis is so stiff & almost not flexible at all,l I can break walls with it - feels like it's going to explode. it's a bit painful erection and curved. when flaccid it's hard and very sensitive to minor pain and bad sensations. if you taking the "hard flaccid" out of me I guess 90% of my problems are gone. as for the curve I don't know..  

NeoV

I also have cords under my testicles, it feels all messed up down there in my perineal area and I have pain 24/7. Usually I just forget about it, but in the past it was very severe, particularly after sex.

I had two bicycle accidents where the seat hit that area hard repeatedly. I can't say it's related for sure, but I think I have some serious vascular damage or scarring down there. It may simply be vascular damage due to pelvic clenching I did all my life in order to orgasm. I really hate it.

About VED and traction, I would argue that precisely because you don't have it that bad, now is the time to do it. Several studies demonstrated the usefulness of traction in the acute phase.

For me, somehow it all got better with abstinence and traction. Then there was the time when I did a lot of reverse kegels and only ejaculated while squatting, no clue why that helped me. I feel your pain man, I just hate how mysterious this all can be.

Jack1909

Quote from: PDSuffer on October 12, 2016, 06:17:05 PM

@Jack1909 - You talked about "diffuse fibrosis", do you know if there is anyone here that have such a thing? I mean all over the shaft?
The Pain Therapy sounds interesting, do you know what it's involves?
Soon I hope I'll do the 2nd Color Doppler examination(this time with full erection) to confirm peyronie's, so after this test I'll be more sure if I really have peyronie's or pelvic floor issue or maybe both..:( :(


[jack1909 - if you are going to quote a post then edit out the non relevant parts. I did this one for you but I'm not going to keep doing it. Admin Les]

I have some kind of diffuse fibrosis that covers a big part of the shaft...
Pain therapy consists in a mix of anti depressants managed by an expert of pain therapies..some antidepressants are great at tackling pain  
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

Pey-penis

Hello PDSuffer!
I took Serrapeptase and Nattokinase when I had a painful penis at the beginning. Maybe You have a problem with blood vessels? This ought to be checked with Doppler. If You have an inflammation try DMSO alone or with Lugol 50/50.

PDSuffer

Thanks again for your replies guys.
As I did before, I'll reply each of you in the same message to avoid a chain of replies.

@NeoV = You mentioned the bike accidents, I think I also got it from my electric bicycle. before I started to develop all my symptoms I was biking on my electric bicycle everyday to work, you can just imagine how much impact I got from riding on the cracked sidewalks in a very high speed(almost 24.8mph). I don't know if I'm in the acute phase anymore..I'm now 1.8 years with this disease. as for VED & Traction I think at some point i'll give them a try as I don't find anything else useful right now. by the way the "cords" you mentioned - do you feel like it's starting from under the testicles to almost the glans? like a stiff tube that comes from inside the body and goes thru all the penis - that's what I feel. this hardness is the so called mysterious ''hard-flaccid" which is 90% of my problems I guess. if I've pelvic floor issue, it explains why I've less pain when I having erection laying down.

@Jack1909 = thanks the info man. antidepressants sounds interesting as I noticed that if I take aspirin for example I feel less pain(probably due to the affect of anesthetic). I want to try a product call: "Two Old Goats - Essential Oil Lotion" because I saw that it helped someone here in the forum with his penile pain, but I will also investigate the pain therapy options in my country, thanks.

@Pey-penis = I never heard(i think) about: Serrapeptase, Nattokinase & Lugol. I'll look into that thanks! I will soon request a 2nd Doppler test as the 1st one was performed under flaccid state only, so after that i'll know more about my condition for sure. do you still have penile pain(with or without the medication you mentioned)? thanks.

NeoV

Mine starts below the testicles, and bunches up on the base of my penis. When my Peyronie's started, it was a huge mass of cords there right near the testicles on the shaft, but they have lowered in position and diminished greatly as things have gotten better.