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BATchap

Hi guys,

I joined this forum a few years ago and was given great advice by a lot of you to just go and see urologist to figure out my issue and possible treatments. Well, I don't know about any of you but I'm just too nervous to go and also too nervous to bring this issue up with my family. I'm 16, I'm certain I've got Peyronies; I recall a small plaque developing early on say 13,14 and I googled it and couldn't find anything - it wasn't really affecting me much so I dismissed it almost completely.
Fast forward to late 2014 and I was in the shower and looked down at my erection and I was like 50 degrees upwards - I was immediately concerned. I don't think the condition has really progressed from then on as in curvature angle but I feel like I've lost some flaccid size. Anyway, it's been eating away at the back of my mind since that day and I want to do something about it. I'm getting to the age where my relationships are flourishing and I just reject sex because I'm too insecure about it - as well as the fact it's just not normal. It just isn't something my peers have to deal with, at least to my knowledge. The closest specialist urologist that deals with Peyronie's is 8 hours drive. I've decided that there isn't that much that can be done in terms of treatment as I'm still developing and my hormones are going crazy - things like  surgery and xiaflex seem out of the question. I've recently read some success stories with the use of heat packs on this forum, so maybe I should give those a shot.

Basically, I've lost all hope - I've kind of expected to just dismiss sexual activity until I become an adult and then have the freedom to get it checked out. I just don't know what to do anymore...
Thanks so much if you made it this far, sorry for my life story.  

dplookin

I don't have an answer for you, but whatever you do, Don't Become Hopeless.  Don't give up.  You have plenty of time to solve this problem.  Right now, due to your hormones, you think a lot about sex (wished I still did), but by the time you get older and fall in love with the right person you will probably have the problem solved.  Keep reading the posts on the forum, and do whatever you can that might help.  I'm 69 years old and bad a very bad Peyronie's problem and I also have a problem talking to anyone about it.  Again, Don't give up hope.  You'll eventually solve the problem.  Take Care, dplookin.

kuaka

It is a mixed bag to be sure.  I'm 54 this year, married for 26 years to the love of my life, but the last decade or so has not been "active" sexually due to a variety of issues, culminating in this disease.  At your age, you have much to look forward to.  Focus on correcting your issue over time.  You have the luxury of having time and the ever advancing state of medicine working for you.  Even if it takes you ten years to get anywhere, you are still young then.  Work on your overall health as you go, mentally and physically.

Jonbinspain

I think you will have to bite the bullet and go to your parents. Your father should understand.

Whichever way, you need to get this treated. It will not just go away. Spontaneous resolution of the disease is extremely rare.

You need to see a Peyronies aware urologist. Don't delay any further, get help now!  

BATchap

Thanks for the support guys. I do agree with you on that Jon - the closest specialist urologist who deals with Peyronies is situated around 8-9 hours drive from me so that's a bit of a problem. I have got in touch with him and he advised me to see the local GP first as I can tell from the emails he believes it's congenital curve. It's 100% not though.
Cheers

JohnWright

BATchap -- If I were your uncle, I'd tell you:

- Go to your parents, tell them to take a couple of deep breaths (that'll freak'em out), tell them you have something to say, and then just blurt it out. Once you've said it, you will be FREE to talk about it.
- It could be a great idea to bring your parents on over to this forum so they can learn about the curved dick.

Question: Does the possibility of a congenital curve bother you?

You've noted a couple of times that "the urologist" is 9 hours away. How did you pick that urologist? Just curious. And, is he saying that he needs a referral from a GP? Because they average GP knows the P word, and that's about it.

My curve showed up when I was thirteen. It would eventually list to the right about 50 degrees. I had all the same thoughts as you about girls, and all the same fears. When I was 13, there was no treatment. Eventually in my 20s, I met an amazing and lovely girl, she didn't give two cents about a curved dick. As a matter of fact, a curved dick can do things that a straight one cannot. Those were some amazing years.

Don't let your fears control you. Those fears are unfounded. Plus, today, the world has changed and there are some amazing urologists whose specialty is the male dick (being a urologist and specializing in the dick are TWO DIFFERENT THINGS). The world is yours! But, you need to get your parents involved.

I found out this year that my own curve is congenital. But, I researched and found a urology surgeon who specializes in the male dick. I had plication surgery June 24, 2016. Today is my 18th day of post-surgery life. Guess what. My dick is straight. I couldn't be happier. There are at least three world-class surgeons I can recommend Peyronie's / Curved Dick. One in Seattle, Baltimore, and Orange, California.

I had to travel to another city, spend the night, do a surgery consult one day, and surgery was the very next day. All three of the surgeons I'm referring to follow this process. There wasn't a bunch of driving back and forth.

John

BATchap

Hey John,

Thanks so much for the positive reply! I seeked out this specialist because I literally looked up "Peyronies treatment Australia" and his name and website came up showcasing him as the leading Peyronies specialist (like in regard to plication and Xiaflex etc) so I was drawn to him of course. He wants a referral from a GP and I thought the same thing right - it's just another awkward step to actually getting to a specialist because a GP would have almost no clue about Peyronies haha. I'd literally walk in there and justify my case and say "I need a referral please".

I got in contact with this specialist actually and sure enough he immediately believed my condition was nothing but congenital curve considering my age. That's fine, although that's something I'd have to prove to him in person I guess. Maybe Peyronies is not really that uncommon at my age, maybe guys just don't bother about it until they're older who knows.

In reply to your question, the idea of congenital curve doesn't really bother me as much as Peyronies because it's natural, it's not something that is developed if you get what I mean. The idea of a curved penis however, does bother me. I just want a straight erection. I look at my penis now and I'm like sex would probably only work one or two ways.

There are also other avenues of treatment like all the alternative treatments on this forum and I'm just unsure as well in regard to the fact I'm still going through puberty and what effects things like surgery or injections could have. I think the best thing for me now is to just get a referral to some local urologist. But that raises another concern of mine and I guess one of the reasons why I haven't built up the courage to go; they're just going to tell me what I already know. I feel like local urologists wouldn't have a clue about using heat packs for instance to break down the collagen as showcased here and the only plausible thing would be to just ride it out until I'm older to get surgery or something. I guess I'll never know if I don't go so... Yeah

JohnWright

So, what about your parents. Have you told them yet?  

BATchap

In all honesty I haven't man. It's hard. I've also thought about what would even happen at a uro. I'd just discuss possible treatment options I already know about. I've been looking at traction devices but again, all these things are safe for 18+. Logically, I'm unsure of the effects anything could have on my still developing penis.

JohnWright

If I were your uncle, I'd say:

You're 16. While I applaud you for doing research, you are attempting to find conclusions that grown men three times your age struggle with. It's not for lack of information, rather our struggle is wrapped up in male pride, fallacious Western imagery, shallow speculation about what those who are close to us will think. You've already intimated the very same thoughts.

Your very best strategy is to get your parents in on this. Once you free yourself to talk about it with them, solutions and/or a will likely be forthcoming.