Penile MRI

[PeetyPeet]

So just had a penile MRI at UCLH. I have to say what a deeply unpleasant experience.

I was in the hospital for over 2 1/2 hrs. The 15mg caverject injection was performed by a very nice Dr but he had to do it just behind a curtain with other patients within feet of me so it was impossible to talk confidentially. The caverject didn't work properly - it would give me a 10 percent semi, then subside and continued doing this repeatedly.i was then left on my own for 45 mins.

I was given no instructions on how to act during the Mri.Once the Mri actually started I was told off for moving. I don't think it was my body - I could feel my penis beginning to erect and subside as before. They told me afterwards that the images weren't very good but they didn't have time to do them again.

And that was that. Sorry this probably isn't very useful to anyone. I will post the results - if any - after my follow up appt in a few weeks.

[redbullmaster]

  You should of been in a room by yourself, as you need to masturbate/get turned on to get a full erection for the scan.

[popopo]

Hey, I think your doctor treated you very unprofessionally... I would go to a different doctor and get another MRI if you think it will help anything. Honestly.. I gave up on asking advice from doctors. If you can get pentox and cialis there isn't much more your doc can do for you. You're better off trying to improve your lifestyle and overall health. Maybe experiment with VED and traction but PLEASE BE CAREFULL and if you really want surgery, just look for the best urologists mentioned on this site. Don't let yourself be treated by just any doctor, because I know from experience that some don't care about you as long as they think they're doing a good job. I think it would be a good idea to just wait before a good treatment is going mainstream. Oncr that happens they will almost BEG you to come in for treatment.. it's all about money.

[Pfract]

Sometimes they have to give you a stronger dose, because you can be so anxious that it might not work on low dosage. It happened with me in San Diego sexual medicine. I needed 4 shots to bring the erection down. And you should masturbate like you do at home, till you are hard but don't ejaculate.

If you really want the mri, although I am not sure what you will do with it, I'm to another place. As far as I know, mri's for ED are just done when you are looking for blockages on the pelvic area, to see if the doctor can place a stent or if you are looking to be a candidate for a penile revascularization.... Correct me if I am wrong.  

[Gutted]

And that was that. Sorry this probably isn't very useful to anyone. I will post the results - if any - after my follow up appt in a few weeks.

Actually Peety that was very useful to me. I was going to really push for an MRI at my next UCLH appt and I'm quite horrified by your experience.

Which one of the Consulting team was your appt with for that experience ??

It will be very interesting to see what result comes of it as well ...... keep us posted please

Thanks  

[PeetyPeet]

Thanks for your support everyone.

I really had my hopes pinned on the MRI scan. They are supposedly the best scan to identify anomalies in tissue. I hoped that a certified diagnosis of corporal fibrosis from one of the UK's best urologists with hard evidence would provide me with at least some treatment on the NHS and access to new treatments as they developed. So I was devastated when they said the images weren't very good.

I have a history of doppler scans not going too well due to caverject having little to no effect. I warned the urological registrar prior to him booking my MRI and I warned the Doctor administering it on the day - he gave me 15mg. I believe 20mg is the maximum but I don't think the extra 5mg would have made any difference.

I've decided to write to Mr Minhas before my FU appt explaining what I believed happened - i.e. the caverject trying to take effect was the cause of any movement, not myself and see if I can start the ball rolling to have another MRI but without any caverject. I'm not optimistic, I feel like I may have had my chance. Perhaps there are private options if they refuse to give me another one on the NHS. I remain very worried about my future

Gutted - I don't want to put you off. I wrote my post within a couple of hours of leaving the hospital. If you would like a more detailed, and perhaps balanced, account please PM me.

Best

Peety

[PeetyPeet]

Hi guys

Had my fu appointment today.

Apparently the Mri revealed no wasting. Astonishingly, the radiographer had reported that I reacted well to the caverject, when it was perfectly clear I had virtually no reaction at all.The letter I wrote explaining my experience had clearly not been received and the registra 'chris' would not hear any of it. Chopping me off, finishing my sentences for me etc. He then filled time by talking about implants and that was it i was out the door. The photos of my erect penis which the previous doctor had requested query not mentioned. I have an ultrasound on Monday, I don't have high expectations.

Having read such good things about Mr Minhas, I have to be honest, I'm disappointed. If not with him personally, but rather the clinic in his name.

[Jonbinspain]

Peety;

I'd suggest that you consider going to see Dr Kuehhas. It will cost you, but might well be worth it.

As I think we have discussed, corporal fibrosis may or may not be treatable. It depends how advanced it is.  

[Gutted]

Peety,

I saw Mr Minhas privately at London Andrology Clinic and had an extremely lacklustre experience. In fact, it was a total waste of money ! There is more information and open mindedness on here for sure !

Yes, if you're having surgery or Xiaflex, you need to choose the right specialist Consultant but otherwise all you need is on on this Forum !!

My experiences with both him and another Peyronies Disease specialist Urologist were extremely disheartening. According to them, no supplements have any effect INCLUDING Pentox and Cialis. And VED and Traction were next to useless. I fundamentally believe that they cannot be so categoric about these other treatments not working.

As usual with all Consultants I have seen about anything .... they are very "knife happy" ... if no surgery is involved they are just not interested

[PeetyPeet]

Thanks Jon and Gutted.

I was on the verge of contacting Dr Keuhhas when my appointment at Mr Minhas' clinic arrived. I thought it might confuse matters seeing two specialists simultaneously and I had no idea at this point I would see a chain of revolving registrars. I have an ultrasound on Monday and then I begin the long wait (30 weeks) to have the Rigiscan. I will see about contacting Dr Keuhhas in the meantime.

I'm not too surprised to hear that Mr Minhas has no time for oral treatments. However, I'm surprised he had no time for VED or traction. Okay so my condition is slightly different, but during my initial consultation with him he suggested that we could 'oxygenate the penis'. I took this to mean VED. Besides, didn't his colleague David Ralph write a paper promoting the use of VED for peyronies?

My primary reason for approaching Mr Minhas was to get an official diagnosis from a noteworthy professional, which I hoped would allow me access to treatments now and in the future. But it seems that this isn't going to happen. Given my symptoms, I really am quite surprised that the MRI showed nothing at all. I entered the MRI room without an erection and I left without an erection. It's sounds far fetched but the radiologist's conclusion that I responded well to the caverject makes me wonder if my images have been mixed with someone else's. Dealing with a cocky registrar - who clearly thinks himself a bit of a comedian - who won't let you explain is extremely frustrating.