Sex experience with Hard Flaccid + minor pains + slight curvature(-MUST READ-)

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PDSuffer

Hi Guys,
I want to share my sex experience with minor pains + HF + curvature. (a little long but worth it!!)
Well to begin with I want to note that my Peyronies is probably pretty mild and sometimes I even doubt if my problem is Peyronie(even thought is was diagnosed via Color doppler).
Since I got all my penis issues, I didn't had sex for around 1 year. I was very afraid of having sex even though my mind kept asking for sex, but not like when I'd my normal penis. so today it finally happened. I did it with a old friend of mine(female), because I felt more comfortable with her because she also know about my issue and she's very understanding and sensitive person. ok so let's talk about how I felt mentally and physically:
Mentally:
I was very nervous before the sex with her, i was always very nervous before sex but now I've some real reasons to worry about(pains, HF, curvature..). also a few weeks before peyronie's I'd some weird overnight injury(probably) & till today I've some minor scarring on the penis glans(corona of the glans) and also a old hyperpigmentation on the glans. so believe me guys that aesthetic issue plays a role in my mind no less than peyronie's sometimes.
Psychically:
Generally I can say that I didn't enjoyed sex like before Peyronie's. I felt less sensitions on my penis(blow job + penetrations). the 1st round of penetration was mixed with pleasure and minor pain. I do want to note that I also used condom so the condom put a little pressure on my penis as well. I cum very fast on the 1st round(like pre-peyronie's), but now even faster due to the 'Hard Flaccid' which causing kind of internal pressure, I believe it plays a role in my fast ejaculation. it wasn't so hard to get my penis erect after 1st round as I thought it might be but in the 2nd round I couldn't feel much(minor sensation) & minor disturbing pain. in my pre-peyronie's 2nd rounds I also didn't felt much and the sex was less enjoyable comparing to 1st round, but at least I didn't had pain and felt more pleasure.
All the time I was very careful with what I'm doing. I did a slow sex with only 2 position(above her + on the side), she likes slow sex so it didn't bother her. I tried going fast for a few times but than I felt that the pain increased & that I'm abusing my penis so I stopped with the fast movements. it was hard to get very stimulated(like: "I want to F^@% her harder" and stuff like that). I avoid any rubbing or hand jobs, as I was afraid of the pain and further damage. also I didn't want her to feel any curvature etc.
I notice that if I lay down my penis look almost like normal but if I stand up it starting to get different shapes. I was worried about my slight bent in the middle which is maybe almost not noticeable to others.
The penis felt like after "War" when we finished having sex and it took a lot of time for the penis to relax(go to back to full 'flaccid' in my case 'Hard Flaccid'.)
Unfortunately the sex wasn't good as before peyronie's and it left me with the feeling that I will not enjoy sex as long as I've pain etc.
But I also notice some positive aspects out of all those issues:
1.In the 2nd round of peneration due to the sensetion reducation I didn't felt I want to cum so I could continue having sex for a long time (*if she didn't had to go so early).
2.Since my really disturbing 'Hard Flaccid' syndrome my penis is more harder when erect(feels like he's going to explode) and bigger penis. (we had sex pre-peyronie's, so she confirmed those changes)
3.I Had less issues with losing erection during sex or after a quick break from penetration - probably due to the "stucked blood" in my penis = bad blood flow, which causing my penis to slowly return to flaccid.
4.She had Orgasm which is very rare for her! meaning my penis turned to a "War Machine"(attached to a person who barely feels it..:(  ),but I was enjoyed looking at her moaning and cum.

Ok so let's sum this up:
Maybe my penis is now turned to a "War Machine", but I can't enjoy sex like pre-peyronie's so that sucks, but at least I'm less nervous about having sex, especially with that girl. I hope I'll not "pay the price" of having sex.(more pains/issues - will update u guys on that).

P.S. - I want to go back to: "I don't really sure I've peyronie's" and note a few things:
1.Currently I'm on 'Colchicine' because Pentox gave me some serious side effects, but to be honest 'Colchicine' also gave me some bad effects, so I'm on & off  or dosage reduced and the only improvements I noticed is less pain I think and no hourglassing anymore(I hope). I'm sick of that meds - for me this is not a cure just maybe a temporarily relief, so I prefer to treat it locally or naturally.
2.I'm thinking of doing a MRI test(additionally to the color doppler I already did), because I think I've some more stuff down there or maybe it's not peyronie's. one Urologist diagnosed my issue as pelvic floor syndrome and sent me to physiotherapy(biofeedback, I didn't started it, but I'll probably start in the future). What do you think about that guys?
3.I notice that I can feel some "hard tube" from under my balls to the top of the penis - I think it coming from the pelvic floor maybe? or prostate maybe? I hope you guys can answer that.

Thanks for reading my story & replying my questions. I hope I helped some people to overcome their anxiety to have sex after peyronie's or at least to have some positive thoughts about having sex with peyronie's.
IF YOU GUYS HAVE ANY QUESTIONS PLEASE ASK, I'LL ANSWER YOU ALL :)

GearsA

Most the things you have said are a lot like my situation man!! Only after sex I get a bad swelling for like a few hours, maybe a day!!

The pelvic floor problem I also share, I think the symptoms we have show our body is having an issue there so everything is sort of seasing up!! Which sucks, cause that's a big reason for hard flaccid, I think we should defiantly try some exercises to treat that, also I bought an electric heat blanket, I sleep with it over my abdomen, since using I have been waking up feeling looser and stronger down there, still have bad days but much better!! Also mess wise I think just being healthy and fit is enough although I take coq10 and a few other natural based products to aid!!  I agree on sensativity change, it feels almost numb sometimes, although others it feels tender and weak, masturbating less or not at all should help with sensitivity I think mate  

PDSuffer

Hey GearsAce,
Thanks for your reply & for the time to spent to read my post man! :)
I'm sorry to hear that you're also experiencing similar issues as I do, but in the other it means that we're probably on the same boat so we don't facing this thing alone..
This 'Hard Flaccid' condition doesn't seems to go away..I'm living with this condition for over a 1 year now and it really sucks a$$. I don't know if my erection pains and flaccid sensitivity will go away once this 'Hard Flaccid' will vanish, but I'm pretty sure that I'll experience a huge relief once it will.
I'm currently experiencing a disturbing low back pain and left hip(specially after waking up in the morning or setting on the chair for some time) for a 3-4 days not. it's on & off along with testicles pain. it happened before I had sex so it's no related. I don't sure if this is a prostate problem or pelvic floor(or maybe both). sometimes I think that my main problem is the 'Hard Flaccid' more than the peyronie's but I wonder if the peyronie's is the cause of it or maybe prostate/pelvic floor.
Do you've also slightly urine burn or discomfort?
Do you've discomfort moments while walking/running?
Do you've a minor pains if you press you penis a bit hard?
I'll appreciate if you can read all my posts because I posted a lot of information about my therapies and symptoms.
I notice that if I "mess" with my penis too much, it actually worsen my issue. you talked about the effectiveness of heating, and that's exactly what I started to adopt lately. I've a heating pillow - I put in the microwave for a few minutes and than I put it between my legs(under the balls) for prostate+pelvic relief & I also gather the heat in my palm and than holding my penis for a few minutes or even half an hour to transfer the heat to the penis. heating helps a lot in our situation that is true, probably like every pain in the body, but unfortunately it doesn't cure the issue maybe improve it and shortening the time of healing(which is very good also). I need to try the biofeedback physiotherapy the Uro sent me, even thought I already been in physiotherapy sessions(but only a few), but unfortunately I didn't felt any major improvements. my Peyronie's Uro(because I've one for my prostate issues) gave me a drug called: 'Colchicine' which is kind of anti-inflammatory instead of Pentox, because Pentox gave me some harsh side effects. 'Colchicine' also gave me some bad sides so I'm on & off or dosage reduced(as I mentioned my previous post), but I think 'Colchicine' really helps with the pain at least a bit.
I think we should fight this thing together and share our thoughts & information, so maybe we can get one step further on how to treat those nasty things that ruin our lives.
The sex i'd temporarily worsen my condiation for a little while, but thankfully not a much as I was afraid it will.
I thought about doing a MRI test so maybe I could have some more clues about what's going down there, what do you think about that? I also thought about using my EU citizenship to meet with professional doctors inside in european union, because in Israel the treatments are limited and I only found one doctor that know how to treat peyronie's.
I hope to stay in touch with you - I think we can really help each other.
Thanks again for your reply & information ;)

QuackAttack

Peyronies Disease,

Have you been looked at for herniated discs in your back? I just saw my URO yesterday and he said that there is definitely an association between Peyronies and degenerative disc disease/herniated discs because your back is your main support mechanism for your pelvic muscles.  I'll go out on a limb and say that a high percentage of people on the forum either have confirmed herniated discs or degenerative disc disease or don't realize that they have it.

PDSuffer

Hi QuackAttack,
Sorry for the delayed response & thanks for your concern man!
UPDATE: The lower back pains are gone as well as my testicals pains(thank god). I think I got some kind of strained muscles from my home workout or the weather, but due to the testicals pains I might have experienced pelvic floor/prostate flare up...:(
This is actually not the first time I those symptoms, I really don't know what is going on with my penis and with all the other related organs(prostate/pelvic floor). I think I must do a MRI test(i'll demand it at my next appointment with my Uro). I've tons of symptoms(all listed in my previous post) and all my symptoms can be associated to Peyronie's/Prostate/Pelvic floor. till this day I don't really sure what exactly is the root cause of all my problems. my color doppler test indicated a scar tissue(as least that what my Uro said). so I might having multiple problems..
Anyhow I'm currently suffering, specially in the last few days, I'm doing the heat therapies with my heated pillow & I thought to buy a microwave heated gloves, so I can insert my penis to one of them and actually wear it or even sleep with it. the 'hard flaccid' condition is really annoying, I wish to get over this but it seems like a never ending state..:(
The erection pains also seems like a long journey. I guess the pain is due to the scar tissue that makes the slight curvature(in my case - like a rainbow) specially noticeable when my penis is semi-erect.
I really don't know when or how I'll go over those things..I hope soon. I also think I'm not doing enough and kind of limited with the treatments here(Israel).
If you've any suggestions for me(except the ones that you already gave me - thanks man) I'll be glad to hear.

Thanks again for following my posts & support me, man.
Have a nice day!

PDSuffer

QuickAttack
Just a quick update:
I been diagnosed with a kidney stone(7.6mm) via CT scan(a few weeks ago) in my ureter near the pelvic floor. I got shockwave therapy on sunday to smatch the stone. all my back pain etc. was from the stone I supposed. I wonder if the stone also somehow affecting my Hard Flaccid, very enlarged penis(like swelling) penis and curved when my bladder is full(I should upload a pic of that, this is a really good indicator of something that the doctors might missed).
I really excited to know how much improvements i'll get rid of the kidney stone. I hope a lot.
I'll of course update my condition after the kidney stone removal.

Have a great day. :)

jim morrison

I have a degenerated disc. It is the very first and lowest disc. I didn't know it could be linked to peyronies. I get pain from my penis all the way down my left leg sometimes. Just thought I would add my input for the disc survey  :)

james1947

Jim

For safety, Check your left leg pain issue with a cardiolog.
Most probably you are fine, but pain in the left arm or leg may be from hearth problems.
I had also acute pain in the left arm and left leg, they find that the pain is from nerves squised by the back bone, problems with disc 3, 4, 5, and 11, 12 , 13, 14.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum