I need new insights about my condition - please help..:(

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PDSuffer

Hi Guys,
I really need your help because I'm starting to get really concern about my situation and I need more insights about my condition. in the first few days of Pentox & antibiotics(for the prostate) I started to feel all kind of weird things in my penis(like it getting better), most I guess was related to the Pentox due to the "heating" feeling in my penis, but now I feel like my condition got worse with the "hard flaccid", deformations & curves. I don't know if what I feel is an opposite reaction from the Pentox or maybe the Plaque is getting worse because my Uro dr. said that I'm still in the "development" process(confirmed by colored doppler) & that my erection pain is a good sign that the Plaque didn't fully developed or maybe Pentox making my condition worse(like 10% of the guys who take it).

Today I called the medical center where I was diagnosed by color doppler & asked them to send me the examination photos(I hope they can still do it), I really want to publish them here to get some more info about my Peyronie's.

I'll now go thru all my really disturbing symptoms which I concerned about, I hope you guys can give me some answers and more detailed insights about them, I'm really getting desperate :(

-Really enlarged penis during pre-urine (I don't sure why, I think that when my urine tube is filled with urine it presses the Plaque(located on the left side near the glans) and the Plaque may be blocking more blood flow to my penis?) -*I think I'll upload a pic of that..
*Note: after urine penis more relaxed and smaller

-Mild burning or even slight pain during urine(sometimes I even need to bent my back to pee) I've "banana" curve and stiffness("hard flaccid" condition), this is really drives me crazy like something inside blocking and stressing all the veins, urine tube etc.
I can also feel the lump from under my glans to the middle of the shaft.

-Penile discomfort during any blow flood activity(walking, sports etc.)  - my penis is always stiff when flaccid and getting larger when I walk etc. also due to the lump under the glans-to-middle shaft the penis is more bent and uncomfortable.
*Notes:
1.When setting my penis is more flaccid but still stiff, I can bent it like a "rainbow" from the middle shaft to glans very easily, but in a scary way(like it's broken)
2.When I searched about "hard flaccid" I saw that many people saying that while peeing it actually disappear, but this is not my case...:(

-Deformation, bents, hourglassing(*specially on blood flow activities/semi-erections) GET A BIT WORSE AFTER PENTOX/Prostate antibiotics(I started both in 27/1/15 - x3 400mg a day pentox / 2x a day 200mg Ofloxacin)

WHAT THE H*** I'M GOING THRU..DO YOU GUYS HAVE THOSE SYMPTOMS ALSO? I DON'T WANT TO LIVE LIKE THIS FOR YEARS IT'S SOULBREAKING..PLEASE HELP :(


Thanks you all in advance, I really appreciate your support & help.
I hope for a better future for all of us.

God bless.


Goldenman1

I also have some of these symptoms that you mention,

do you also have ring structures on your penis? Like scar tissue that either goes around your whole shaft or just a part of it?

Btw, what is your age?


NeoV

Who have you seen for your symptoms? Any specialist near you? Definitely sounds troublesome man, I'm sorry : /
How often are you engaging in sex or masturbating?

PDSuffer

Hi Goldenman1,
Thanks for your reply.

Quote from: Goldenman1 on February 08, 2016, 06:46:58 PM
I also have some of these symptoms that you mention,
Can you specify which of the symptoms I mentioned are you suffering from?
Does your Plaque located near the glanes? (like mine)

Quote from: Goldenman1 on February 08, 2016, 06:46:58 PM
do you also have ring structures on your penis? Like scar tissue that either goes around your whole shaft or just a part of it?
I'm sorry but I don't have a clue about "ring structures". do you mean the lump from the plaque? I've a lump under the glans(from glanes to middle shaft). I can feel it especially when I pee(or on any blood flow activity). due to that the upper side of the shaft is like "bented inside" & when my penis in flaccid state I can really bent the penis from the middle of the shaft like it's broken :(. I guess that all symptoms this is due to the plaque my Uro detected near the glans(on the left side) :(

Quote from: Goldenman1 on February 08, 2016, 06:46:58 PM
Btw, what is your age?
I'm 29 now. I've peyronie's around 11 months now, I only got diagnosed around 10 months ago(thanks to the unprofessional Uros in Israel). the disease started when I was still 28 :(.
This really ****ed up my life, especially my sex life.

Thanks in advance for your help man.

PDSuffer

Hello NeoV,
Thanks for your reply man.

Quote from: NeoV on February 08, 2016, 07:30:21 PM
Who have you seen for your symptoms? Any specialist near you? Definitely sounds troublesome man, I'm sorry : /
The last doctor I seen was the doctor who diagnosed me with Peyronie's via color doppler(around 3 weeks ago). he prescribed me with Pentox 400mg x3 a day and antibiotics from the prostate. I'm on both for almost 15 days. I can't really see any major improvements. the only thing I notice the most is that my penis is maybe a little less sensitive like it was before pentox, and when I say sensitive I mean in a bad way. but I still have all the disturbing symptoms I mentioned in my 1st post. sometimes it feels like there's some improvements sometimes less or none. it's so hard to point on some improvements since my condition is really not balanced: one day it's better and other day wrose.
the thing is that I suffer from it even without any sexual activity, I don't know if you guys also.
Life turns to hell from me, I was very sexual active and now I left with nothing.
Do you think I should get another diagnostic? I want to get another but I found only one doctor who knows how to treat peyronie's in Israel, this is so sad..he's the only one who suggested for color doppler, the other Uros I been to told me that this is in my head, color doopler won't show anything, try to have sex and if you have issues return to us. those doctors really pissed me off.

Quote from: NeoV on February 08, 2016, 07:30:21 PM
How often are you engaging in sex or masturbating?
To be honest since I got this disease I didn't had sex at all. I'm so embarrassed and can't really imagine how sex can be pleasurable with this erection pain and penile sensitivity(in a bad way). I'm hurt both mentally and psychically, you're maybe one of a few guys who realize what I'm going thru right now. this "Hard flaccid" condition drives me crazy. making my all penis and skin more sensitive. the penis skin is stretched almost 99% of time than before due to this "Hard flaccid" which makes the penis more larger(some like semi-erect). I can't barely put a lotion cream without feeling a bad sensation in the penis, not talking about erections which I feel like my penis it's going to explode. so yeah it's hard like a wood(10 times then before) and bigger maybe 10 times then before, but I prefer a small penis instead of all this nightmare.
Yes I masterbate from time to time just because my body demands it "unfortunately", because now it's not enjoyable like before. my lobido also got ruined because when I think about sex it turns to be something painful in my mind and add all the aesthetic deformation caused by this plaque - you get  a big turn off for sex or masterbation.
When my penis is erect it's maybe a slight more bent than before, but much less fixable. it just standing like a rocket, and until I get to this "rocket" state I've to put up with pains. my glans also seems to not getting enough blood. when I touch the glans they feel softer than before I think and less purple more pinkish. probably to due the flaque near the glans. I always had a bent to left penis but now it looks worse. like a hanging banana shape curved to left penis :( it got larger both flaccid & erect. The enlarged penis due to my peyronie's scares me. I was ok with my 17-18cm erect. now it's more I pretty sure.

Sorry for the extra info, I just felt like sharing my thoughts I hope you're ok with that. only god know what I going thru...

Thanks in advance for your help & support.

QuackAttack

Peyronies Disease,

Stay away from the quacks that say it is in your head. Maybe have them induce an erection and they can see what is going on. The guy you have sounds like he is following a standard protocol with Pentox and the doppler in color sounds outstanding. I had doppler, but it was in black and white. i am on Pentox 400mg 3x a day, which is the standard protocol. You might want to see why you aren't on 3x per day. I don't know if your URO had you start traction, but traction is standard now and Dr. Levine in Chicago does clinical research on traction. As for quick results, that isn't going to happen. As much as I want quick results and we all do, Pentox is going to take 4-5 months to show anything. I am 6 weeks in and I haven't seen anything yet. Xiaflex is promising and even that takes several cycles over many months. Be persistent and don't give up!

PDSuffer

Hi QuackAttack,
Thanks for your reply.
Quote from: QuackAttack on February 11, 2016, 09:53:20 PM
You might want to see why you aren't on 3x per day. I don't know if your URO had you start traction, but traction is standard now and Dr. Levine in Chicago does clinical research on traction.
I'm sorry, I wrote the wrong dosage. I'm on x3 a day(Pentox). I confused it with my Antibiotics(Oflodex) dosage which is x2 a day.
My Uro didn't talked to me about the traction device nor verapamil solutions(I didn't even knew about those treatments back then). he told me that Pentox is the most effective and recommended treatments(*except Xiaflex - which by the way not available in Israel, if I understood correctly) by the european/us protocols.
I thought to ask him about the traction device, but I think the traction device is for really painful flaccid curves. maybe I'm wrong. in my case I've something around 20 degree I think(when erect) and bent to left when flaccid(like before my peyronie's but now it worse). I wonder if the traction device can also fix my flaccid bent(on the way..). The one thing I'm worried about & I know it may sounds weird, but I don't want the traction device to make my penis longer. it's long enough already. just the thought of my penis getting longer makes me chills.

Quote from: QuackAttack on February 11, 2016, 09:53:20 PM
Pentox is going to take 4-5 months to show anything.
Thanks for this info, I'll try to stay optimistic. it just that sometimes I feel like it getting worse and I don't know if my scar tissue is getting bigger or it's kind of an opposite reaction from Pentox. I really suffer from this so much..I can't stand too long because my penis is in stiff state and enlarged and bent, I can really feel it down my pants in a bad way. when I've to pee or after pee it's a nightmare(my urine tube is so stress due to hard flaccid i got pee drops after urine which wet my panties). I've to pee more often than the average person due to that, I don't know if this is peyronie's related or my prostate issue. I think I really need to talk with someone here who's a specialist in Peyronie's to understand why I've all those symptoms(maybe some of them are not peyronie's related) and to know what can I do immediately to make some relief on my symptoms. it's driving me crazy and it's very annoying. I CAN'T LIVE LIKE THAT..:( I thought maybe to use heat packs, less loosened panties, anaesthetize cream..i don't know.

Quote from: QuackAttack on February 11, 2016, 09:53:20 PM
Stay away from the quacks that say it is in your head. Maybe have them induce an erection and they can see what is going on
You right, I thought about it many times when I was seeing those unprofessional doctors. they always told me to lay down during the penile examination, but at some point I decided to stand up instead of laying down because when I'm standing up my hard flaccid state getting worse due to blood flow. even then they couldn't detect my problem because they were so uneducated about peyronie's. I've so much rage towards those doctors. I even was examined by a senior professor in the hospital which didn't even cared about my condition and just kicked me out after 3 minutes by saying it's all in your head. finally I sent pictures of my semi-erect state(hourglassing, deformations) to the right Uro doctor which resulted with my current peyronie's diagnosis & 500$ less in the bank. by the way, I sent those pictures to other Uros too and 99% didn't have a clue what I've, only one of them called me first thing in the morning and told me: "you've peyronie's and this is for life and don't bother to place an appointment with me because you'll just waste your money", but I after I asked this **an doctor about the doppler test he said that it might give some answers about my condition. those are the Uros in Israel. this is a big shame for the medical world too. after visiting all those clown doctors I went to an herbalist which also didn't had a clue but I'd no choice because none of the Uro I been to were able to diagnose & treat me(expect for the private Uro).
Along with my peyronie's battle I also planning to sue my medical public institute.
I hope that your way to diagnostic was faster & less complicated than mine.

Thanks for your support & help. :)

QuackAttack

Peyronies Disease,
It isn't much different in the USA. Most doctors are completely ignorant about Peyronies. Fortunately, I do my research and my wife is a medical professional so, it was easier to find the right person and we have a Peyronies specialist at the military base we are stationed at. That being said, I didn't actually see the URO until 4 months in. Once I saw him he confirmed via doppler ultrasound. I saw his physician assistant which was a waste of time. I was given Viagra, which I didn't need and another drug that I stopped after two weeks because it had me in the bathroom every 20 minutes. My URO said the drug combo I was prescribed was worthless. The URO was surprised that I bought my own traction device because they are expensive. Had I seen him to start, he would have given me one because he knows they are one of the most effective methods available. I take things into my own hands because I don't have much trust in the medical system and I am not one to wait for things to get worse. You should send a personal message to Old Man on this forum. Since you have an hourglass issue, he would tell you to use a VED (Vacuum Erection Device) and he has a protocol to follow. He fixed his problem long before the drugs today with a VED. Old Man very likely can help you as much or more than most of the doctors you have or will see about this condition.

On the positive side you are 20 degrees. I am at 45 degrees and I was around 52 degrees before traction. As for length, lucky you, most people are starting with average length and lose length.

PDSuffer

QuackAttack,
Sorry for my late response.
I'm now communicating with Old Man by your recommendation, thank you. I've the feeling that some of my symptoms are not peyronie's related but maybe I'm wrong. I hope i'll have some more answers and improvements soon, because my life literally stopped from being normal..:(
VED sounds also like something that can make my penis larger and believe me the last thing I need now is a larger penis. I'll consult with Old Man.

Thank you for supporting me man & for your time and efforts, I really appreciate that.

Have a nice day :)

NeoV

Sorry I wasn't able to reply sooner.

We can all definitely relate. I am 29 as well and I know how it can make sex just not enjoyable, and how getting to 100% erect state is not only difficult but looks and feels awful. It really can wreak havoc on your mind.

Your symptoms are unique in some ways so more opinions as soon as you can is a good idea. Traction and VED are indispensable. I think you will notice a difference, not in size exactly but in shape, stability, and overall penile health. I regretting waiting so long on both.

PDSuffer

Hello NeoV,
Thanks for your reply & advice man.

For me getting an erection is not difficult specially when I'm aroused but it comes with a price: deformity(specially on semi-erection) very non-flexible erection, very hard(feels like my penis going to explode) & painful the disease also made my penis bigger and longer(flaccid & erect). when my penis is fully erect I can see a more visible lump under the penis comparing to pre-peyronie's & the penis is standing strong more closely now to my stomach thankfully without major curve but with pain :(
I want to share a story with you guys that happened to me a few days ago, i'll make it a short one:
After almost a year of non-intimacy with girls I went out with a friend of mine and while being with her i'd a lot of moments which my penis got erected and it was so frustrating because I've pain. we didn't had sex because she sees me as her friend but I was kind of horny but not like I was pre-peyronie's probably due to mental and psychical damages a lot of thoughts was running thru mind those moments trying to restore the same sensations as before peyronie's but unfortunately it's impossible. I want to note that the "sudden erections" also happened to me before peyronie's. pre-peyronie's I was a very sexual guy, this disease really destroyed me. I don't sure when my erection pains will vanish. I always think that when my erection pains will go away so will the "Hard flaccid" state. sometimes I've the feeling that maybe I don't have peyronie's even thought it was diagnosed via Color doppler. please correct me if I'm wrong but the main reasons for me to think that I've something else are the following:
1.My penis is stiff from the base to tip
2.People say they can feel their lumps. I my case I see the lump(specially when peeing or erection) but it feels like a tube in my penis is  "swollen" and not like it's a strange object growing in my penis(but maybe that's what is should feel)
3.Peeing for me comes with a slight burning, I pretty sure I don't have prostatitis so do you think it might be the peyronie's?
4.In the active phase of the disease there's mostly pain. I was in enormous pain when this all started for at list two weeks or more when flaccid. now I don't have pain when flaccid just erection pain and uncomfortable feelings and annoying sensations due to the "hard flaccid" state and all those symptoms getting wrose after masterbation. if my flaccid penis pains gone almost a year ago those it means that I'm not in the active phase? because I still have erection pains..:(

If any of you think that i might have something after reading the above, rather than peyronie's I would really like to know.

Thanks NeoV & you guys.
I really appreciate all the help you giving me.  

NeoV

I'm sorry to hear about your frustration, it's the same thing I went through minus the visible bulge. It may be a vein and you are experiencing fibrosis from over masturbation and damage in general. Regardless, I recommend resting your penis for 7 days. No checking, nothing. Gentle hand traction or VED are advised but not if it leads you to masturbation. You have to be strict with yourself.

You're asking the same questions I did, but what is awful about these doubts about the diagnosis is that it makes you delay treatment while you think "maybe it's not Peyronie's."

Regardless of what's happening, you need to treat it somehow as Peyronie's or general penile damage or injury. The treatment is the same, so seeing a Peyronies Disease specialist is the best choice for anyone suffering any symptoms you describe. Again, regardless of diagnosis, treatment is the same.

I really wish I had a definitive diagnosis, I wish I knew exactly why I also have prostate issues, swelling etc, but sometimes you just need to tell yourself that the reality is simple (even if it isnt), and that "I have Peyronie's or Penile damage and must treat it."

This means VED and traction and complete abstinence. Ignore your penis as if it is gone from your life, healing like a broken arm until the damage resolves. In the meantime make an appointment with a specialist. Take this as a time to meditate and work on your mood and mindfulness or hit the gym or jog. I'm sorry if I'm projecting here, but this was a serious issue for me it made a huge difference. I've also seen a lot of guys our age with similar issues.

I had hard flaccid for a year before I finally abstained long enough for it to go away. I remember going through a terrible time. Now my flaccid penis is longer than any time in my life, hardly has any hourglassing, and hangs basically straight. I attribute this to traction and altering when and how I have sex and masturbate alone.

While this is not the only answer, nor is it the answer for all men, I highly recommend it since you may have vascular inflammation, and you seem to have fibrosis and poor oxygenization of your penile tissue (hard flaccid). These symptoms themselves may result in Peyronie's even if you don't have a classic presentation of the disease!

I firmly believe that Peyronie's has to be treated by treating overall penile health, all of which is basically the same. Once the tissue is healthy and without inflammation for long enough, scarring may diminish. The same goes with thrombosis and lymph issues. While there is a genetic link to the disease, even treatments targeting those in that camp is the same as for one whole does not have the genetic link or general penile issues.

Some day we can hope to find answers to the more complex aspects of our symptoms, but for now I am recommending you jump on board a Peyronie's treatment regimine, or anti fibrosis regimine, as soon as possible.





PDSuffer

Hey NeoV,
Thanks for your very detailed and helpful reply.
I must say that I really felt connected to your post. you said some things that was going on my mind for a long time. the daily mental battle is the worst.
Quoting: It may be a vein and you are experiencing fibrosis from over masturbation and damage in general
Sometimes when my penis is very stiff during flaccid state, I can see a vein popping out on the bottom left side of the shaft, does it means something? thanks.

Quoting: "Ignore your penis as if it is gone from your life"
I'm so frustrated that sometimes I'm saying to myself: ohh F^@% it, I'm going crazy over my penis and it making me worse. here are the facts: new broken penis = new life, stand up be strong live with it. yeah it's hard mentally and psychically: hating your new penis, trying to avoid masterbation even if I "horny as hell", trying to avoid sexual and emotional thoughts, the relationships delma..it feels half man.
Maybe I just need to let it all go, this is going to be my life for good to live with this disability for the rest of my life. game over for me.
Pentox = currently off & tell you the truth I'm afraid to re-taking it due to sides.
Traction = afraid of using it, don't want more damage and stretching to my penis. don't know if it even fits my condition. (probably not available in Israel)
VED = same worries. (probably not available in Israel)
Surgery = hell no.
Injection = ok, I think.


Currently I'm only doing heats therapy with a heating pillow & eating garlic/turmeric for anti-inflammation.

Sorry, I'm writing this while tears in my throat. I always overcome situations in my life, but maybe this is too big. maybe it's a punishment, idk. I don't know if i've the powers to deal with this disease too much, because when I do I also get into kind of depressed mode. I'm almost a year with this condition and in one thing I pretty sure: if it didn't healed after 3 months it's probably for life(or for a very long time).
after seeing the plaques in peyronie's surgeries it seems impossible to reverse this tissue. when seeing the pictures the only thing that got thru my mind is: "I got f'^+'ed for life". I won't harm myself or anything, but I would have to deal with that in my own ways. I hope i'll return to normal state, but every day that passes by without any improvement just keeps me away from optimism. I just wish to wake up one morning without pains in my morning wood. that thing alone will make be the happiest man on earth for a long period.
I took pentox(400mg x3 a day) for 1.5 months didn't saw any major improvement and I need to take that drug for at least 6 months = 6 months of maybe improving my penis not even to the point of satisfaction, but in the other hand destroying my all body.
Got to be some others things..those meds works on 1 side and f'^+'ing up the other..

Thanks for listening NeoV.
I really appreciate your concern & support.
I will update if I see any improvements in the next months(even if I'm not on pentox).
Have a nice day man.