Questions about my first medical prescription

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PDSuffer

Hello guys,
I was diagnosed with Peyronie's via color doppler a few days ago(the plaque(scar tissue) is located near the penis glans) and I was also diagnosed with prostatitis via rectal examination which I think lead me also to orchitis(inflammation of the testicles) because after the rectal examination I was started to feel disturbing low level pain in my testicles for some reason. the doctor prescribe me Oxopurin(pentoxifylline) 400mg for 3-6 months(for the Peyronie's) & Antibiotics for the prostatitis.
The doctor didn't gave me the name of the antibiotics yet, because he asked me to do a sperm culture test which resulted negative, but he still thinks that I should take Antibiotics(same as I), so I sent him the sperm culture results and he will decide which Antibiotics I should take.
Before I'm going to my main questions, I would like to tell you guys my story(short as possible):
I'm 29 from Israel, my Peyronie's journey started 10 months ago as I started to feel strong pain in my penis while flaccid especially at the tip of the penis, I couldn't even walk properly without moving my penis every minute to other positions. since then I visited around 5-6 urologists(some of them at the hospital), but none of them managed to identify my issue because apparently 99% of the urologists in Israel don't know how to treat Peyronie's :(. you can only imagine what I was going thru at the time..the only words I heard from the doctors was: "this is in your head", "you don't have peyronie's", "doppler will not show anything" etc.
It took me 10 months to find a doctor that knows how to treat peyronie's and have the right tools to diagnose.
Before I was diagnosed I thought I'd "Hard Flaccid Syndrome" because nowadays my penis is pretty hard when flaccid, I don't know if it's from the Peyronie's or Prostatitis.

My current symptoms are the following:
-Hard Flaccid
-Mild burning sensation during urination
-Penis deformation(getting longer-bigger) pre-urine or when any blood flow activity(e.g. sports etc.)
-Pain during full erection(feels like my penis is going to explode)
-Random hourglassing shape during semi-erection
-Penis more bent when flaccid or erect
-Mild testicles pain - especially when setting(swollen,heavy testicles & loose hanging scrotum)
-Bad blood flow to glans(I think) - when erect the glans are not fully filled with blood
-Burning sensation in urine tube after ejaculation(even general penile discomfort)
-Loss or very low libido(due to mental and physical trauma) *very low free-T was diagnosed in blood-test.
-Low amount of sperm & very thick
-Constipation(*also pain) during bowel movement at least in the beginning.

Possible causes to my prostatitis & peyronie's(*all occurred around the time of peyronie's/prostatits):
-Electric bike riding
-Propecia(finasteride)
-Constipations
-Ice bath for rectum due to hemorrhoids(*The Dr. said it might be the cause of prostatitis)
-Sex(not too tough, not above me position)
-Cut in penis shaft due to pubic hair shaving
-Overnight injury of penis glans(two dark spots which resulted in damaged skin tissue on the corona of the glans)
-Cleaning anus with toilet paper in cold water(I don't sure it can make damage to the prostate, but who knows..)

Ok guys, sorry if my story was too long I just think it might help you guys answer my questions about the prescriptions I got from the my Dr.
My main questions are:
1.Do you think Oxopurin(pentoxifylline) can really help and solve my case?
2.The antibiotics treatment can also help with my testicles pain? I mean does antibiotic helps both prostatitis and orchitis diseases?
3.This question is not about my prescriptions, but I've to ask you guys: does my low free-T is due to prostatitis issue? can it also make me feel weird in a way of bad concentration and "drugged" like feeling? because I'm experiencing those weird things lately. (*currently I'm not taking propecia for 2-3 months & oral saw palmetto I didn't took for almost a month, but I'm using topical saw palmetto oil & pumpkin seed oil etc.)

I very very appreciate the time you dedicated for reading my story and answering my questions.
Thank you very much for your support & help!

God bless us all.

QuackAttack

PDSuffer,
I would suggest that you add L-arginine and L-carnitine along with traction. Dr. Levine is a big proponent of traction and the two supplements are helpful for blood flow.

james1947

PDSuffer

First, I have to say that you write down a very detailed report so it is more easy to give some answers :)
First, I am not surprised by:
Quoteapparently 99% of the urologists in Israel don't know how to treat Peyronie's
I am not surprised as it is the same all over the world :(
I will try to give you some advice, hope I will not miss nothing.
QuotePropecia(finasteride)
Stop it immediately!!! It is a main cause for Peyronies!!! A main cause for ED.
QuoteElectric bike riding
I don't understand what you mean, but if it is a kind of scooter, will not cause Peyronies
QuoteIce bath for rectum due to hemorrhoids(*The Dr. said it might be the cause of prostatitis)
Sex(not too tough, not above me position)
Cut in penis shaft due to pubic hair shaving
Overnight injury of penis glans(two dark spots which resulted in damaged skin tissue on the corona of the glans)
Cleaning anus with toilet paper in cold water
Will not cause Peyronies
You have to separate the symptoms of Prostatitis and Peyronies
Prostatitis is treated with antibiotics. Check out with the forum what the doctor will prescribe you as some antibiotics are culprits (not proven) to cause Peyronies.
Your last uro seems to understand in Peyronies, at least he prescribed you Pentox. How many per day by the way?
Some people tolerate hardly Pentox, myself also, start with 400 mg per day, increase to 2*400, then 3*400, don't take later than 6 PM, always with meal.
Pentox helped many with the pain also,hope this will be with you also.
Regarding traction, I had no success with it, but many members reported that it helped them
What helped me is VED, Pentox an low dose Cialis.
An other thing that may help you with the pain is CoQ10.
Low Testosterone should be treated as soon as you can.
Last thing that not connected to Peyronies:
I am living in the far east for long time, people here are washing themselves after toilet, not using paper, most have no problems that toilet paper may cause :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

PDSuffer

Quote from: QuackAttack on January 24, 2016, 05:22:03 PM
PDSuffer,
I would suggest that you add L-arginine and L-carnitine along with traction. Dr. Levine is a big proponent of traction and the two supplements are helpful for blood flow.
QuackAttack,
Thanks for your suggestions and sorry for the late response. I'll check the possibility in adding those natural supplements you mentioned as well as the traction device(I'll ask the Uro doctor about it - I don't even sure if this is sold in Israel)
BTW - do you think the traction device is good for every peyronie's suffer? I mean when my penis is flaccid I don't have the 90 degree curve even when it's erect i have a slight curve(a little bit more than I'd before peyronie's).
Thanks again for your help.


PDSuffer

Hi james1947,
First of all thanks for your detailed answer as well man :) you made me smile.
My life is really a living hell since all those things happened to my penis. I was a very sexual active guy and suddenly(like in one day) it all came down to what I've now.
I stopped with that poison called 'Propecia' about 3-4 months ago(even then I was only 1 month with it), I tried oral Saw Palmetto right afterwards but then I quite that either due to really disturbing side effect of "drugged" feeling, watery semen, blurry vision, low labido etc.
I still have the "drugged" feeling but much lower, I only now use topical saw palmetto oil mix with other oils x3 a week(*with derma-roller for better absorption), I hope that this weird feeling is not from the topical treatment too :(
Electric bike is a bike with a battery(no need to pedal) I think I might cause some damage by biking it to rough on the sidewalks on a very high speed. before I was diagnosed I read about the "Hard Flaccid Syndrome" and I was 60% sure that I might damage my pudendal nerve, so I started physiotherapy which I still doing, but I think I'll quite as I now know my disease.
I know that injuries are the main factors to Peyronie's so I thought it might be the: shaving cut, overnight glans injury or sex.
You right, I didn't sepeared the symptoms and wrote it all together some belongs to prostatitis and some to Peyronie's. I'm sorry if I confused you or other readers due to that.
The doctor prescribe me the following antibiotics: OFLODEX(Ofloxacin) 200mg x2 a day for a MONTH(god help me) along with the Pentox x3 a days(for 3-6 months) I take it always with meal as you suggested. you can only imagine what my body going thru now...:( I really starting to feel the harsh side effects of those two drugs and this is only my 1st day: headache, nausea, imbalance felling, weakness, "heating" feeling in my penis and testicles(due to Pentox I guess..), along with my previous weird "drugged" feeling which until this day I don't really sure from what I'm getting this side effect. I think it is due to the prostatitis I might have some affect on my hormones or testosterone - it probably that, but it also may be the topical saw palmetto or my allergy shots.
I did all the hormones tests lately and the free/total testosterone and confirmed the results with endocrinologist(hormones dr) and she said that everything ok, but she also sent me to do "Bioavailable testosterone" & "TSH" tests.
I think I wouldn't stand those hard medications..:( at least the combination with the antibiotics. but I hope I'll be ok. I might need to ask the Uro to lower my meds in the future.
I'll be pleased if you could refer to my "drugged" feeling and advice me with that, if you've any clue.
I've a few more questions I didn't asked & I think it is about time to ask them as I might be heading for a long journey with my Peyronie's:
1.Is it for life? (without surgery or xiaflex)
2.Can I do sports: like running etc. (I actually already done some sports like running etc. but my condition really makes it more difficult as I feel my penis almost 24/7 and not in a good way)
3.I've 'Hard Flaccid' which is the main reason for all my penis discomfort feelings. Is it due to the flaque in my penis? all the penis deformations I experience: bigger penis in general specially with blood flow like pre-urine sports etc. After I pee I can feel the stiffness inside my penis pressing on the urine tube and as a result i've burning sensation(more like pain) and pee drops. not a pleasant feeling.
4.My testicles pain is also from the prostatitis?
5.My Uro said that if I still have pain during erection that is a good sign that my flaque is maybe still developing, I asked him if he thinks that more damage caused by going around doctors for 10 months without treatments and he said that only after 12 months is it getting more serious, but in the other hand he said that everything is not too late. I personally think that if I would start the treatment at the beginning of the problem it may affect my flaque better. what do think?

I'm sorry from my long post and many question, I realize that some of my questions are need to be pointed to my Uro, but it's very hard to communicate with him. I really really appreciate & thankful for your kind help & support in my case. I'm also sorry that I didn't post your quotes to my replies.

Have a nice day,
God bless us all.




james1947

Let's start from the antibiotic. You should discuss the side effects with your uro, sounds me scary:
https://en.wikipedia.org/wiki/Ofloxacin
Regarding Pentox, proposing you to start with 400 mg (one pill) per day in the morning, increase to 2 pills after your body got used to it, after no or minor side effects with 2, increase to 3.
The doctor told you that your Testosterone is OK. The problem with the doctors is that OK for them it means in the range that for your age is 270 to 1,070!!!
Testosterone Levels by Age
Ask the numbers from the doctor!!! OK for you should be close to the top. If not, it can explain many of your problems, including low libido, fatigue, etc'
To your other questions:
* Not to put you down but Peyronies is for life. With treatment, if you are lucky, you will reverse the symptoms, you can have normal sex life but should be careful not to injure yourself.
* Sport is generally good, very good I will say. Personally I am against jogging (fast walking will achieve the same fitness) as I got a comprehensive explanation that it damaging the joints plus damaging internal organs that not suppose to get the shocks that occurs when you step down. We are running on two legs, not four, so we don't have the flexibility of the other animals that runs on four. Just watch a cat or dog running :)
* Regarding hard flaccid, many Peyronies sufferers including me have/had it also.
* Your testicle pain may be from the prostatitis, I don't think is connected to Peyronies
Finally:
Quotemore damage caused by going around doctors for 10 months without treatments and he said that only after 12 months is it getting more serious
WRONG!!! Earlier the treatment, bigger the chance to stop the progress and revers the symptoms.

James
 
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Pey-penis

Hello All!
I would like to add my two cents. If anyone has problems when urinating type of itching and burning pain in the urethra, ask your doctor about methylene blue twice a day dose of 100mg or buy by yourself at chemical store and ask for weighing the doses of 100mg.

QuackAttack

I am going add another two cents and state that going out and buying something that is a prescription medication isn't something that you want to go out and buy, weigh and take. How do you know what kind of drug interactions there will be?

PDSuffer

Hello again James,
Thanks for your rapid reply! :)
Quote from: james1947 on January 28, 2016, 12:24:21 AM
Let's start from the antibiotic. You should discuss the side effects with your uro, sounds me scary:
https://en.wikipedia.org/wiki/Ofloxacin
My GP told me that this antibiotic is pretty strong, so I'm taking it with meals and probiotic 2 hours later. today I was pretty good with the sides, I think that in nights it's a little bit worse due to the lazy digestion etc.

Quote from: james1947 on January 28, 2016, 12:24:21 AM
Regarding Pentox, proposing you to start with 400 mg (one pill) per day in the morning, increase to 2 pills after your body got used to it, after no or minor side effects with 2, increase to 3.
The Uro told me to take it x3 a day, although I'm only 2 days with this medication(x3 a day) I didn't felt anything serious, at least I think I didn't because I'm taking the antibiotics too, so I guess that the strong nausea etc. was from the antibiotics. I will be able to determine the sides of pentox only after I stop with the antibiotics in less than a month. I decided to take pentox half an hour after the antibiotics to reduce interaction side effects. (generally I'm surviving, thank god)
BTW - you said not to talk penox after 6:00pm why is it?

Quote from: james1947 on January 28, 2016, 12:24:21 AM
The doctor told you that your Testosterone is OK. The problem with the doctors is that OK for them it means in the range that for your age is 270 to 1,070!!!
Testosterone Levels by Age
Ask the numbers from the doctor!!! OK for you should be close to the top. If not, it can explain many of your problems, including low libido, fatigue, etc'
I think you're totally right!
Please see my testosterone results(not so updated: 29/10/2015 *I also was on Propecia or just after I quitted*):
TESTOSTERONE                  27.38 NMOL/L  (    8.40-   28.70) (.......*.)

FREE TESTOST.                 39.70 PMOL/L  (    8.00-   90.00) (..*......)

Let me know what you think.
*Please note that I'll be testing my bioavailable testosterone & TSH soon(I'll publish them too).

Quote from: james1947 on January 28, 2016, 12:24:21 AM
To your other questions:
* Not to put you down but Peyronies is for life. With treatment, if you are lucky, you will reverse the symptoms, you can have normal sex life but should be careful not to injure yourself.
* Sport is generally good, very good I will say. Personally I am against jogging (fast walking will achieve the same fitness) as I got a comprehensive explanation that it damaging the joints plus damaging internal organs that not suppose to get the shocks that occurs when you step down. We are running on two legs, not four, so we don't have the flexibility of the other animals that runs on four. Just watch a cat or dog running :)
* Regarding hard flaccid, many Peyronie's sufferers including me have/had it also.
* Your testicle pain may be from the prostatitis, I don't think is connected to Peyronie's
I really hope I'm one of the lucky guys, but far as it seems the plaque probably won't go away by the help of medication only :( even though my Uro said that my case is mild. as first he was concerned that I've "high pressure"(don't really remember what it is), but he said that this is far worse and there's not treatment(or really good one). As for sex - I didn't have sex since this happened. I'm so nervous just from thinking about it due to the new appearance and erection pain(labido reducers), although I don't have a major curve(like 90 degree etc.) just a small one, but only when I'm fully erect. on semi-erection my penis gets all kind of deformation and curves which is pretty depressing and not aesthetic :(
After I visited too many Urologists in Israel without diagnosis, I went to Herbalist and tried my luck, but unfortunately he also didn't had a clue and he just advised me to walk a lot or run & gave me some herbal drinks. at first I only walked for 3-4 times a week because I'd a big penile discomfort and even pain in flaccid state. as soon as it got better I tried to run slowly(because walking is too slow for me) and succeeded without major pain but only penile discomfort while running & afterwords to do increase blood flow in the penis. I still have disturbing discomfort feelings in my penis especially when my penis is starting to get hard(from sex thoughts etc.). So nowadays I still doing sports including running(which I kind of afraid now after my Peyronie's diagnosis), but on the other hand quitting sports totally can lead to far worse body issues.
The day my hard flaccid penis will dismiss and return to flaccid state I'll be the happiest man on earth. this condition is really disturbing. I hope that pentox will reduce the stiffness.
Yeah I think that my tescticles pain is from the Prostatitis, I wonder if Prostatitis is linked to Peyronie's in someway.

Quote from: james1947 on January 28, 2016, 12:24:21 AM
Finally:
Quotemore damage caused by going around doctors for 10 months without treatments and he said that only after 12 months is it getting more serious
WRONG!!! Earlier the treatment, bigger the chance to stop the progress and reverse the symptoms.
You're absolutely right. thanks to the doctors in Israel I might have a bigger problem now. you said that some antibiotics are culprits to cause Peyronie's & I just remembered that in my first Uro session the doctor prescribe me with two different antibiotics due to her poor diagnosis for Urethritis.(btw - the sharp pain i'd in my penis that time was probably due to development of the plaque). So I took those two antibiotics:
1.DOXYLIN 100MG X2 daily for 10 days.
2.OFLODEX 200MG(surprisedly the same antibiotic I take now) X2 daily for 10 days.
I think I didn't had prostatitis back then(on my 1st uro session), but I'll never know because SHE DIDN'T EVEN CHECKED!! :( :(

James, I'm really thankful for your support & good communication with me. in those hard times I really need somebody to talk to, somebody who knows what I'm going thru and have the knowledge to advise me & answer my questions.

Have a nice day man. ;)

james1947

PDSuffer

Sorry I can't say anything regarding your Testosterone tests as they are in different units than I know as in the link I have provided.
You have to ask your doctor regarding the upper and lower limit of the measurement limits.
Regarding Pentox not after 6 PM: The reason is that many, including myself had insomnia if Pentox taken later in the evening.
If you don't have problem with the 3*400 mg per day it is fine. Some forum members were prescribed by leading Peyronies experts 6*400 mg daily and had no side effects.

Thanks for the "Nice day" wishes, I hope will be, especially in the evening when I will meet a fried in a baron the see for a couple of beers (or 2 or 3) ;D 8)
James

Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Pey-penis

Quote from: QuackAttack on January 28, 2016, 08:26:41 AM
I am going add another two cents and state that going out and buying something that is a prescription medication isn't something that you want to go out and buy, weigh and take. How do you know what kind of drug interactions there will be?
Why not opposed to if someone in the forum proposes taking 2 or 3 fold higher dose than prescribed by a doctor? If someone does not know anything about the methylene blue just ask Google. Here in Poland methylene blue isn't a prescription medication it is simply a chemical compound in wholesale.

PDSuffer

Hey James,
Thanks again for your rapid reply.
Quote from: james1947 on January 28, 2016, 05:02:41 PM
Sorry I can't say anything regarding your Testosterone tests as they are in different units than I know as in the link I have provided
I Think I'll consult consult with an andrologist about the testosterone level.
Quote from: james1947 on January 28, 2016, 05:02:41 PM
Regarding Pentox not after 6 PM: The reason is that many, including myself had insomnia if Pentox taken later in the evening.
Thanks for the advice. I don't have Insomnia from the Pentox(x3 a day) - *thank god* so I think I'll keep my drugs schedule as is.

P.S. - I would appreciate if you read & help me in my new thread (I need new insights about my condition - please help..:( - Peyronies Society Forums)
Thank you!

Have a great day James ;)