Long term outcomes of peyronie's disease surgery

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FriskyDingo

Hey Sunseeker,

Im currently trying to setup an initial Skype consultation with Dr. Kuehhas. I cant see him in person because I live in the states. Ive been in contact with their Patient Co-ordinator, but before I finalize a time/date for the consultation, I would like to ask you some questions.

My plan is to systematically use a list of alternative treatments I have found to help my peyronie's in the past. This includes supplements, VED, and clinical therapies. I want to use these together (before I had done them at separate times, so maybe there is a synergistic effect) for a year before going through with surgery. I started these combined treatments March 1st of this year, so my surgery would be around March 1st of 2017.

Do you think that contacting Dr. Kuehhas for an initial consultation 11 months before I would consider surgery is too early? Should I wait until I am closer to that date, like 6 months before? How many months were in between your initial consultation and your surgery?
 

Jonbinspain

My opinion is you should wait until closer to the time that you are considering surgery.

You may well change your mind. And, of course, your current condition can change in the interim period.  

FriskyDingo

Hey Job,

Ill take your advice and wait. Can you tell me how long you waited from initial consultation to time of surgery?

Thanks

Jonbinspain

For me, it was about 3 months. However, I'd fought this for around 4 yrs with everything and anything. I had improved penile health considerably, but the curvature stubbornly resisted all attempts to improve it.

Each case is different. For me, I had calcified plaque and a severe curvature thst was making my penis sexually incapacitated.

By all means try all the other remedies first, and I hope they work out for you. Surgery is always regarded as the last option, but in my case I'd run out of options, and so taking the risk of surgery was a no brainer.

Having said this, Dr Kuehhas is an excellent surgeon and the risks are as  minimal as they can be in such precise surgery.  

Freemason

This Bernard guy is an idiot and likely a fraud himself..Dr. Zacharakis who works at London Andrology as a consultant surgeon with Dr Kuehhues and Dr Egydio I Skyped with mentioned he was friends with Dr. Levine..I spoke with Dr. levine and he knows all of the above mentioned surgeons quite well and all are highly respected according to him...

Bernard..or whatever your name is I welcome you to call Dr. Levine and ask him yourself..as a matter of fact if you do PM me and I will conference in on the call with you...how's that sound. Then u can come back and apologize to everyone here and Jon for your highly inappropriate comments.

It's bad enough that we men have to deal with this devastating disease then to have someone come on hear and question whether or not we really have it.

FriskyDingo

Sunseeker or Job,

Can you give us an update on how things are going as of now.

And remind us your date of surgery or how many months its been.

Thanks

Jonbinspain

For me, it's been 7 months now. My penis is still straight and mostly healed apart from a little residual soreness around the head, where the incision was made. Plus a bit of what looks like loose skin. But that disappears when erect anyway.

It works fine, and from having very little sensation ( quite possibly to do with the plaque) I now seem to be very sensitive. Again, maybe that's my imagination and it will settle down.

Size wise I have back almost all of what I had. Girth is certainly back and whilst length may be still down about .5 inch or so, I'm continuing with traction and will hopefully get that back.

All in all, I'm very happy. I have a sexually functioning penis that I didn't have before my surgery.  

FriskyDingo

Thank you Job,

Can you just remind me what specific surgery you had, STAGE, ect? Do you feel that if you could not do traction for a long period of time everyday that it would not be worth it, or that penile size would not return? And, imagine you work an extremely physical job... how long do you think you would have to take off of work to let the surgery heal?

I have corporal fibrosis and I am contemplating surgery, but I cannot put in hours of post-op traction every day. My work schedule just wouldnt allow it.

However, I am getting better with heat/cold pack therapy. Although the scarring may not go away, if full sexual function returns then I will probably forgo surgery for the scarring.  

Jonbinspain

Frisky;

First of all, corporal fibrosis is a completely different animal to Peyronies. I'm told that it's not impossible to treat, but every case is different.

I had Peyronies with pretty severe curvature. I did try just about every remedy suggested, plus some that weren't, but nothing would change the curvature. Hence the surgery decision.

I had the Egydio technique in London.

I would suggest you seek expert advice re the corporal fibrosis as to what can be done.  

FriskyDingo

Job,

Dr. Kuehhas offers a MOST technique that seems like it can help with corporal fibrosis. I know STAGE and Egydio are not meant for corporal fibrosis, but it appears MOST may be because it involves a prosthesis. On other forums I have read prosthesis being effective for corporal fibrosis.

https://www.youtube.com/watch?v=BlYPAt2KtgM 0 - Kuehhas talking about MOST, with an animation

However, I could not find the MOST tecnhique on the london urology website.

I would definitely seek expert advice concerning corporal fibrosis before I did anything, and Kuehhas is my probable choice. Im sure you know how tricky the problem of finding an 'expert' is, as it seems most 'expert's in the entire subject of peyronie's are worthless.

Jonbinspain

I'll look. I did ask him about corporal fibrosis for another poster on the forum. He responded by saying it would depend. He would need to see and decide if it was treatable or not, depending on the severity etc,

Your video is treating the problem by inserting an implant. That is the usual way of dealing with corporal fibrosis.  

Jonbinspain

Full quote removed by admin

I should add that Franklin Kuehhas is an excellent surgeon. You would be in very good hands should you decide to be treated by him.  

FriskyDingo

Thank you for everything Jon.

I am in the process of having an MRI interpreted by radiologists. I will have the results within a week. I will then send the interpretation and a copy of the MRI disc to Dr. Kuehhas once after I have contacted him.

Gollam121

[Full quote removed by Admin Les] Please read our forum rules regarding quoting others and also making repeated posts.

Yes I know about Herwig and Kuehhas, they are complete crooks and have certainly ruined my life with Scerothreapy.

I've written on other threads about this.  

james1947

Gollam121

You are really on a mission to smear Dr. Kuehhas, don't you?
I see the Administrator put you under moderation.
I suppose if you will continue in this stile you will be banned by him.
You can post your opinion but smear is not allowed on this forum.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum