Appt with Dr Levine...

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

Freemason

Hi all,

Wasn't sure where to post this so picked here. I have an apt tomorrow with Dr Levine. Wanted to see if there is anything anyone wanted me to ask him?  PRP thoughts? Botox?

I live in Iowa and I've seen a couple urologists and both have said there is nothing u can do for peyronnies.  So frustrating. It's their job and specialty and that's all I get.  Any way I guess they do an ultrasound at my apt with Levine... Not sure what else. I'll prob ask to do Testosteone and PSA test. I've never had my Testosterone checked.

If there's anything else anyone can think of let me know and I'll try to ask.

LWillisjr

Make sure you get YOUR questions asked. I think you will find Dr. Levine to take a completely different approach than you other urologists.

Is this your first visit with him? Did his office also schedule an ultrasound before you office visit?
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Freemason

This is my first visit with him. They said on phone that they would be doing an ultrasound at the visit...so not sure if it's in office or before I meet with him? Guess I'll find out.  Hope I get the ultrasound though for driving all this way and staying in a hotel, lol. Will be nice to see exactly how bad my plaque is etc..

nemo

I predict you'll come away mightily impressed with Dr. Levine. He's one of a handful of true "specialists" in Peyronies Disease in the United States. I had a phone consultation with him several years ago (not sure if he still does those or not) and even over the phone, he was more helpful than most of the urologists I've seen about Peyronies Disease, and gentleman to boot.

Best of luck,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Freemason

Dr Levine was great.  Ultrasound showed no calcification...good blood flow...my sensitivity was that of a 17 year old apparently(vibration test)...but I've got 50 degree curve upward. Ultrasound showed rope like scar on right side.  He said I'm prefect candidate for injection therapy or PEG? Procedure.  Guess peg procedure is they remove some scarring and graft over it? He thought I was perfect candidate for this and he said it would straighten me out and length would either stay same or improve. I did get a RX for Pentox and amino stuff he recommends.  And of course traction.

What I'm thinking of doing is seeing how Pentox, sups and traction does for 3-4 months..then if no improvement then maybe injection for 3-4 months and surgery last?

Any thoughts?

kuaka

Sounds like a good plan.  Graduate invasiveness of treatment only if needed.

Pfract

Those are some good news indeed! Go ahead with that plan, but careful with traction. Very careful!  

kuaka

Ditto on caution with traction.  It is a fine line to walk between properly stretching the plaque or preventing it from forming and causing injury which will only cause more to form.

Freemason

Thanks for the replies. Yea I've read from others that slow and steady is way to go.  Although the way in which my dick was stretched and pulled with Dr Levine leads me to believe i can't hurt it that much. Lol. Never stretched like that before.

I'm almost leaning towards injections first rather than jumping to surgery. Sure grafting will cure my bend but it will also take along while to recover and the risk of losing length scares the hell out of me.  I remember him saying that injections only work about half the patients and degree of improvement ranges from around 10%-70% he said.  If I can go from 55 degree to less than 25-30 degrees I'll be mostly happy. I can live with that and I'll prob gain back half an inch or more.

micvegas

where is dr. levine located? I just to talk to someone who knows this disease.  

QuackAttack

Chicago at Rush University Medical School Dr. Levine is the man! I read parts of his book and it is very informative without being bogged down in medical jargon.

NeoV

Dr. Levine recommends enzymes?
What enzymes would these be?

edit: oops, my mistake. Aminos!

Freemason

Don't think I said enzymes Neo? Aminos...just the basic stuff. l Carnitine etc..he gave me a card with the company that sells em...but he said I could use same combo from anywhere.

NeoV

Oops, oh okay that makes much more sense. Probably Arginine and ALCAR or citrulline.  

Freemason

Yea that was it I think..basically stuff to increase Nitric oxid and help with blood flow..again he said I didn't need to get it from the card he gave me..want to reiterate that he wasn't pushing me into a particular company...He was first Uro I've been too that actually seemed to care about my Peyronies Disease

swiss

I have an apt with Dr. Levine coming up...he stretch it? My last uro stretched mine and 2 days later I got another plaque after one went away completely. I was pretty devastated. :(  

Freemason

Hey Swiss...Yea he did to measure flaccid. If you've already had that done I'd just provide the measurement to avoid it. I'd also tell him what happened. It was more uncomfortable than painful. He was pretty careful. Think you will appreciate him and his knowledge. I know I did over any other uro I've tried who just said live with it.

swiss

[Full quote removed by admin - Please check the forum rules.]
Swiss, please use the 'Reply' instead of 'Quote' button


Thanks man. I'm lucky enough to live in Chicago. I wish I had come to him earlier. One plaque went away, but I don't know why the hourglass hasn't. :( yeah I think il tell him to be super careful I've been so lucky to not get another plaque and been so careful if he tugged and I got another one I would be devestated.