Congenital Curvature or Peyronies Disease

[Old Man]

Wayne:

Yep, I have been using a VED for 15 years now. I had a radical prostatectomy in April 1995 which was a non-nerve sparing one at the time. The robotic ones just came into being a year or so ago. I had a slight ED problem since the age of about 55 (now near 81) so I have been using retainer or cock rings up to the operation to hold up erections.

The VED was prescribed for me to help with the ED and to give the old tool exercise to regain the lost length from the surgery. I had a very large prostate and the urethra was shortened by an inch more than normal operations for the cancer. The overall process shortened me by about 1 and 1/2 inches.

The ED pills were not in at the time, so the VED exercises were done to help with the lost dimensions. I used a protocol that my uro and I developed as there were none known at the time. It took about a year of constant daily use to do the job. At present, I am back to the old size and maybe a bit more over those years. The urethra can and will stretch if done on a daily basis for extended periods of time. Just wish that the tunica would do the same thing!!

Anyway, the VED was the weapon of choice for me in getting me back somewhat to normal again. The jury is still as far as I am concerned about changing a congenital curve. There are several men that I worked with on their Peyronies Disease and after surgery that have tried unsuccessfully to use any form of manipulation that helped with their congenital curve.

Old Man

[wayne999]

Wayne:

Have not noticed any change in the U curve at all. This period of time includes 15 plus years.
So, as far as I know, in my case there is no evidence of any change in the curves.
Old Man

Are you saying you've been using VED for 15 years?

Yes, hopefully we can get other people to input also. Maybe there is a lack of results in this area because no has really committed to a longer-term type of approach.

[Old Man]

Wayne:

Again, with all my exposure to VED therapy over the past years, I have no record of any congenital curvature being affected in any manner through the VED usage.

However, I suppose that anything is possible if one keeps on using the VED over several years usage. In my personal case, I had always had a slight "U" curve which means it bends slightly upward in the middle of the shaft.

I have used the VED therapy to clear up my Peyronies Disease symptoms and still use it on a weekly basis just maintenance to keep my penis healthy. Have not noticed any change in the U curve at all. This period of time includes 15 plus years.

So, as far as I know, in my case there is no evidence of any change in the curves. Others using the VED may have some input on the subject. Hopefully, they will jump in and post an answer for you.

Old Man

[wayne999]

Has anyone heard of VED helping out a congenital curve? I remember reading on "penile enlargement forums" years ago about guys who wanted to actually induce an upward bend in their otherwise normal penises in order to hit the so-called "g spot". Apparently by using jelq-type techniques, over a period of (im going from vague memory) a few years (not months, or 1 year...so it did take time) they were able to apparently get the desired curve. It would seem to be that VED, over an EXTENDED period (daily use, several years, etc) could help out with a natural curvature condition ?

Interested to hear thoughts.

chiguy:

No, these devices if used with caution and common sense are not dangerous to use. I have very little experience with the traction units though.

The VED when used as stated above and on a regular schedule like the 26 week protocol can and will help with penile health. There are few, if any cases on congenital curvature being straightened. But, VED therapy can and will give one the best erections they ever had if they have any ED problems.

Old Man

[lwillisjr]

Well I see an NHS urologist in the morning. I'll probably be told something like "penises come in all shapes an sizes, I wouldn't worry". But i'll try and argue for an erect Dopler scan. I won't get a hold of Pentox as its not approved (im taking arginine and vit e at the moment). But if I get the scan i'll take the results that to someone working privately.

I've also taken pictures on my penis in different stages.

Sounds like you are prepared. Be ready for the "textbook response". Good luck and keep us posted.

[falcone]

Well I see an NHS urologist in the morning. I'll probably be told something like "penises come in all shapes an sizes, I wouldn't worry". But i'll try and argue for an erect Dopler scan. I won't get a hold of Pentox as its not approved (im taking arginine and vit e at the moment). But if I get the scan i'll take the results that to someone working privately.

I've also taken pictures on my penis in different stages.

[keepitstraight]

Hi everyone,

I updated my blog with some literature and info about penile curvature, mostly congenital: http://curvaturapenianadiscussao.blogspot.com/. Please take a look if you wish and once more thank you all for this forum. Anything my email is: keepitstraight80@hotmail.com

Best Regards
 Alberto

[chiguy]

I had the penile doppler ultrasound done in December. It wasn't as bad as I thought. First the technician did a scan of the flaccid penis. They put a special type of lubrication on there and then wave the wand around it. Then the radiologist will administer a shot to get you partially erect. Once you feel the response, you get up to a full erection and they will lube you up and wave the wand again. Then you are given time to naturally reduce the erection, but if you can't, then they administer a shot to bring it down medicinally.

The shot they give measures your ability to induce erection. The ultrasound detects the plaque, any scar tissue other than plaque, and measures the bloodflow.

All in all it took me about one hour. I was surprised by my results that it wasn't as bad as I thought and a few of my symptoms were mental.

[jackp]

falcone

Most urologist have a special ultra sound machine. They use it for kidney, bladder, prostate and other ultra sounds. This ultra sound machine can also do a Color Doppler of your penis. The first scan is with you flaccid, then the doctor will inject you with PGE1 and wait a few minutes and then scan you erect. This gives him a lot of information about you including peyronies plaque and venous leakage.

Like Old Man said erections are the key to quality penile health. The VED is an excellent way to maintain penile health.

Jackp

[falcone]

Thanks, Old man.

If I can get a hold of this peyronie's specialising radiologist, is it an erect Dopler Scan I ask for?

[keepitstraight]

Hi,

First welcome and thank you for your statment. Second take a breath and think: there is treatment and there is actually some options/variants for treating it! Your statement here is most important cause you actually introduced a well known problem but generally dismissed but the majority of Drs worldwide, belive me. I too have congenital curvature downward and im 25 years old. I have been dealing with it since lets say 19/20 years old. I will not go in much detail about the problem itself (for these past years i have been researching a lot about it and actually discussing it with some drs. worldwide, of course in a superficial basis). But feel free to PM me or email me in case you need any more details or support about it (im not a Dr. but im well aware of the problem and actually consulted some drs face-to-face). I should stress it: the majority of Drs. do not deal with this problem frequently, in fact most of them are not confortable (technically, experience, etc...) with it. So do not let you and your son be dessapointed by it, its fairly normal! There is hope. There are a bunch of Dr.s worldwide that can deal with this problem, and they are specialized particularly for dealing with it. So this is the first principly: search for a Dr. that is well trained, many surgeries, experience, informative, etc... (Where are you from?). There are alternative surgeries for treating it, but unfortunatly there still no consensus what should be redly applied, and that varies from Dr. to Dr. The majority advise Nesbitt or modified plicature alternatives (Esses-Shroeder, yachia, 16-dot plication, etc...). But in recent years there as been some good improvments in the excise and graft procedures and some Drs. do it. But i think it all depends specifically from case to case. Well i will not go further with details, please be free to ask any question to me or to anyone in this forum, there is amazing people here that can give support and help. I hope i can answer. email: keepitstraight80@hotmail.com

Best Regards

[RedSunn]

My son was diagnosed with congenital curvature so severe that the doctor said that sex would be impossible for him.  He curves down and twists to the left.  One side is 7 inches long, the other is 5 inches long.  I was wondering if there are treatments alternative to the nesbit procedure or shortening his penis.  He is extremely upset about having to hace some of his penis 'cut off' in order to 'fix it'.  The doctor said that any other surgeries like grafts or whatever can go very wrong and that permanent erectile dysfunction could occur.  What about dmso treatments?  Is there any verifiable evidence that it affects curvature in a positive manner?  I also saw that dmso can be toxic or permanently detrimental if used improperly, how would you know how much to use and when?  What confirmed positive and negative results can happen when using dmso?  I saw something about skin clearing that using dmso can make your skin translucent while using it.  Is this permanent or long term?  Please help, we have been suffering through this for years, first doctors poo poo'd him, then sent him to urologists who had no idea what to do with him, then we got this doctor who seems to be educated and does a lot of penis specialty surgeries, but seems unpersonable when it comes to the aprehensions of a teenage (18) boy.  His entire life seems to be on hold until he can get 'his biggest problem fixed'  because he will not have relationships with people, especially girls because of it.  I know this is a mental thing that needs addressed, but he does not want to have to deal with a girl finding out about it or having to tell her, so he simply stays away.  We are making the arrangements for the nesbit, because he sees no alternative to it, and his health insurance to cover the surgery most likely runs out in June. PLEASE HELP!

[Old Man]

falcone:

Most all of us agree that erections are required to keep one's penis healthy. Only in certain cases should it be avoided, however those are few and far between. (Not sure what these are, just that it has been said not to do them, etc.) I would recommend that if it is possible for you to have them, by all means do.

Others may jump in and give their opinion too.

Old Man

[falcone]

Anyone?

I just mean are erections something I should be trying to induce rather than avoid?

[falcone]

Well im still trying to get a hold of a Peyronie's specialising radiologist based in London from the recommendation of a guy on here. I might just bite the bullet and pay for a private erect scan nearer home, but I just don't trust anyone that doesn't specialise in it, given my false diagnoses 3 years ago.

I will be about another 4-6 weeks before I am contacted by the NHS urologist, so I don't have pentox yet.

At the moment I am taking 800mg of Vit E and 2g of Arginine daily and hoping for the best.

Can I ask - are erections in general desirable for combating the progress of the disease and reversing the scar tissue? Should I be trying to create prolonged erections/masturbate perhaps a short time after I have a dose of vit E and Argninine.

[chiguy]

I am early on in the fastsize, so I will be able to let you know in a year or so. I asked Dr. Levine the question and he said in his studies, the size appeared permanent providing individuals used the device for 6 months. If there is tissue growth, wouldn't it be permanent? If you liken it to a muscle, then there must be maintenance (at least minimally), which to me would mean an erection.

Personally, I'm unsure as well. Judging by the fastsize forum, which I viewed, many people stopped and still offer advice, but there doesn't seem to be any reports of people losing their gains, save for tenths of inches.

[Old Man]

chiguy:

Don't count on the gains from the fastsize being permanent. Any stretching of ones penis by whatever device will return to its original state if a maintenance use of the device is not continued. VED does return one in most cases of Peyronies Disease to their original size, but thereafter it must be used to keep what gains have been made.

I am told that the traction device stretching is the same way. In addition, my uro group in my home town states that any gains of one penis size by mechanical means is only temporary if the stretching is not kept up on a continued basis.

Just my take of these devices.

Old Man

[chiguy]

Yea I think that's the main difference between the VED and fastsize. The VED is primarily for ED problems and moderate curvature from peyronie's like hourglassing. The fastsize is not generally good for ED, but can straighten any curvature to an extent. Plus, the gains are permanent.

[Old Man]

chiguy:

No, these devices if used with caution and common sense are not dangerous to use. I have very little experience with the traction units though.

The VED when used as stated above and on a regular schedule like the 26 week protocol can and will help with penile health. There are few, if any cases on congenital curvature being straightened. But, VED therapy can and will give one the best erections they ever had if they have any ED problems.

Old Man

[chiguy]

I've never heard of anyone saying it is potentially dangerous. It comes with physician approval. I have experienced no pain with the device. It only seems to help.

[falcone]

Are they not potentially dangerous?

[chiguy]

Falcone,

You can always order the fastsize now since it can't hurt. Even if you don't have peyronie's it will help. Same with a VED, whichever you prefer.

[falcone]

I have some L-arginine to now. So about 2gs per day?

I am going to see a radiologist specialising in Peyronie's in London by someone here (Im in Glasgow, Scotland and I don't think there is anyone near here that specialises that I can find anyway), will cost hundreds of pounds including travel but I don't trust general NHS urologists. As for Pentox, maybe if I get a diagnoses from this radiologist my GP will give me it. But 2 months is a long time to wait for this urologist (I suppose I could see a general private one but they might be clueless to) and in that time I could lose more penis size so i'd better get down to London soon!  

[bart15]

Well as anticipated, my GP refused me Pentox to be on the safe side on the account that im "self diagnosing" and made an referral to an NHS urologist that will take around 2 months

Well I think going to the uro will be good because they should be more knowledgeable on the subject matter and you should have better luck there. I don't understand how doctors are hesitant to prescribe pentox...it has few side-effects (Which if you have no caridovascular problems should not be an issue), has from what I've read on the product monograph on the Health Canada website barely any drug interactions, is cheap, and most importantly, has been documented to have positive effects. Falcone, if you do not have the Iran study on pentox use for Peyronies Disease I can send it to you if you PM your email to me.

I agree with chiguy; you need to get the pentox and L-arg (pycnogenol is also reported to increase L-arg potency). I take vitamin D3 and E as well, but if you take vitamin E try to get a full spectrum one rather than a cheap one that only contains d-alpha tocopherol or just the tocopherols. Vitamin E contains 8 groups; 4 tocopherols and 4 tocotrineols. Peyronie's disease insitute suggests getting a full spec vitamin E, and George on this forum has stated that he saw some results with it. However, he has stated to me that vitamin E will only go so far and you definitely at this moment should be looking at getting the pentox as your foremost supplement. Also, I think you should look into getting a VED or traction device. I'm 23 years old and I just started the VED and am getting my FS traction device next week. They will provide you with fairly controlled (If you are conservative) tension against your penis; rather than jelquing, which I tried as well and actually experienced some pain under my right testicle as well.

Bart

[chiguy]

Unfortunately many of us on this board being in the US and Canada do not understand the British healthcare system. Is there anyway that you can see a different general practitioner? Perhaps can you pay out of pocket to see the urologist sooner?

[falcone]

Well as anticipated, my GP refused me Pentox to be on the safe side on the account that im "self diagnosing" and made an referral to an NHS urologist that will take around 2 months

I have had a bit of an epiphany regarding what I said that my hour glass is only visible when flacid and semi erect. I have a short frenulum, which I have had an operation on it but when erect it the foreskin skin only goes to the back of the head (im uncut). So realistically the hour glass is probably prominent under the foreskin when erect.

[chiguy]

When you get the ultrasound done in both the flaccid and erect states, let us know the results and the curvature. Vitamin E generally doesn't work for a long period of time. It's most important to get pentox, take 2000 mg a day of l-arginine supplements, and start using either a VED or fastsize. Both are inexpensive.

You also should see a male sexual function specialist such as Dr. Levine in Chicago or Dr. Lue in San Francisco. Tell us where you live so we can point you in the direction of a doctor like them.

[djrnil]

hi im 22 ive visited a urologist and he hasnt diagnosed me with peyronies or a curvature. a girl i used to date convinced me to do jelqing a penis enlargment technique. she had injured me once where i couldnt get an erection for a couple days to a week. then i heard a pop when we were having intercourse again. after a month of pe i couldnt get an erection for about a month or more, and when it started to come back they were extremely week. its been about a year and my erections have gotten better but there not nearly as good as they were before. ive lost an inch in girth and half an inch in length and my penis seems pretty curved. its been a psychological and physical nightmare. im getting a urogram done because ive told my doctor of pain. i just dont know what i can do im taking vitamin e and levitra. i  was taking viagra but if i take more then 25mg i cant sleep. im in pain everyday and i just want some help and ideas on what i can do to fix this if i can. and for nyone that reads this that hasnt done jelqing after an injury dont do it or this could happen. everything was pretty much fine before then.btw this is all by the base of my penis or below it under my testicles. im going to read the coping forum asap cuz this is hell

[chiguy]

I'm on week 1 of the stretcher and it actually isn't too bad. It caused a little discomfort the first two days, but after that it's relatively painless. Just be careful lifting anything, squatting, or running (wouldn't recommend). I'm going to add another bar this weekend since I feel I've hit the top on this current setting.

Since I am only 26 hours into the device, I want to take it a little slow.

[falcone]

Ouch, im a bity wary of those penis stretchers 

Turned up at wrong time for my appointment so ill have to wait until Friday to ask for the Pentox, will keep on the Vitamin E for now and buy some Arginine tommorrow.

[chiguy]

Dr. Levine generally doesn't use vitamin E, but 400 mg won't be a problem (some doctors say it works). Dr. Levine uses pentox and l-arginine and traction, the fastsize device, together. He also may add viagra to the mix if you need it.

[falcone]

I don't know much about the medical care field in the UK, but push for an erect ultrasound. If she doesn't go for the Pentox, try to at least get the GP to agree to the erect ultrasound to detect plaque. If there is plaque or scar tissue, maybe then she will agree with pentox.

To increase bloodflow, start taking 1000 mg (2 pills) of l-arginine daily. L-arginine is a relatively inexpensive health supplement.

In addition to Vitamin E? Also if I get pentox should I stop the rest of the oral treatments?

[chiguy]

I don't know much about the medical care field in the UK, but push for an erect ultrasound. If she doesn't go for the Pentox, try to at least get the GP to agree to the erect ultrasound to detect plaque. If there is plaque or scar tissue, maybe then she will agree with pentox.

To increase bloodflow, start taking 1000 mg (2 pills) of l-arginine daily. L-arginine is a relatively inexpensive health supplement.

[falcone]

Okay, so I got my Vitamin E today (soft gel capsules) and took 1 400IU.

I see my family GP on Tuesday. How do you think I should go about asking for Pentox?

As obviously she might dismiss it as my Peyronie's hasn't been official diagnoses yet. Obviously my "pitch" is important, if she thinks im jumping to conclusions she might not give me it and want me to see a uro first (who won't find a plaque when flacid).

Edit: I think I should be able to convince her. To be honest I've just had a bit of a epiphany. I have a short frenelum so when my epnis is erect the foreskin does not just far past the head. That is why it seems that the hour glass is only present when flacid and semi erect when it seems that it will actually be present when erect to, just hidden behind the foreskin.

I'd just like to ask one question. Im almost certain I have lost length around this area (even when I reported thinking this 3 years ago and a urologist fobbed me off with a flacid scan) but is this likely (obviously no one here can tell for sure) that if I dont have a plaque that id lose length, or is that only in cases with a palpable plaque?

Cheers guys. I am going to phone a peyronnie's specialist radiologist in London and travel down in the next week or so, for my official confirmation, and will return here to talk about treatments.

[falcone]

So even if they dismiss it as not peyronnie's I could technically "self-medicate" with Pentox and Vitamin E.

I've made an appointment with my GP to hopefully get some pentox this week. I won't bother asking for a referral to a NHS urologist as they are seemingly useless. Searching the net for some kind of private specialist anywhere in the UK. Can't find anything though.

[chiguy]

The ultrasound measures bloodflow so a separate test is not required.

Just to briefly update you on my condition. I have a bend about 19 degrees upwards and 16 degrees left. The doctor saw some scar tissue (plaque), but is unsure if it is peyronie's. I went to the most knowledgeable doctor about this in the United States (Dr. Levine). He said I have an area that is peyronie's like, but it is not definitely peyronie's.

He is treating me as if I have it: I have pentox and will be doing traction as soon as it arrives. The pentox took away any remaining pain and I can barely feel the scar tissue. This is two weeks on pentox.

I had pain while flaccid for several months, which finally went away. Then I had pain in my erection only and it gradually decreased and finally the pentox got rid of it. I was worried about bloodflow, but mine came up 100% and once that mental weight was lifted, my erections went back to normal.

Get to any doctor that can do an ultrasound, semi erect and erect, even if you have to pay out of pocket. It is worth it.

[falcone]

Masturbated a couple of hours ago, and now around the upperside area of my waistline is giving me a kind of dull throbbing pain when flaccid which im sure I havent had before. Im 100% certain I have Peyronie's and glad I found this site or else I would have took those idiots diagnoses after that flaccid ultrasound found no scar.

I look forward to taking my Vitamin E when it arrives and hopefully get some pentox from my doctor as I said. Hopefully these will delay or even stop the shortening/ thinning of my penis.

Is anyone aware of any UK "specialists"? Im in Scotland but will travel down to England if I have to.

I don't the NHS as I think the will refuse me all the tests I will ask for - erect and semi erect ultrasound (I sincerely they doubt they would give me both of these) so will have to go private I guess.

Are there any other tests I should demand? Blood flow etc?

Any answers much appreciated.

[keepitstraight]

Hi to all,

Happy New Year. Well i have just created a blog to discuss particularly the congenital way of the problem. Also thoso who have peyronie are welcome. I hope im not inflicting the rules of this forum. Just to let you know you are all welcome to post on my blog anytime:
http://curvaturapenianadiscussao.blogspot.com/
It is a bilingual blog, that way we can adress more people. As soon as i have some people posting and start to have feedback i will be interested in open a new discussion post concerning the application of the grafting technique to the congenital curvature and also the manipulation of ventral and surrounding tissues. It seems that in recent years there are some doctors (including Prof. Sava Perovic and Prof. Paulo Egydio) that have had good results applying both procedures, if fact it seems that manipulating some tissues of the penis (including those ventrally around the urethra) can partially or tottaly correct the congenite curvature (in ventral curvatures), but not in all cases. There are some studies about this from Dr. Devine and others.

Thank you for you attention and Happy new Year,
  Alberto

[falcone]

I have ordered some vitamin E and will hopefully be able to get some Pentox from my GP. Given that it will probably take 3-4 months to get an appointment with another urologist with the NHS, so hopefully these can so something about the hours glass and me me recover/ stop me losing any more size/elasticity - the curve doesn't really bother me.

I would like to see a specialist, but I don't think there any private ones anywhere near me here in Glasgow. According to some list I found anyway.

[falcone]

It is important to get an erect and semi erect ultrasound as well. I had those done, which detected some scar tissue, in addition to the flaccid one, which did not detect any scar tissue. I am not a doctor but I would go again to have this done if you can. The traction, fastsize, will help the curve or bend regardless of peyronie's or not.

Ah in that case im certain my semi erect will show scar tissue. I just hope I don't lose any more size waiting for an appointment! Pretty depressed about this to be honest, its going to be a battle to get them to even have a proper look at me.

[chiguy]

It is important to get an erect and semi erect ultrasound as well. I had those done, which detected some scar tissue, in addition to the flaccid one, which did not detect any scar tissue. I am not a doctor but I would go again to have this done if you can. The traction, fastsize, will help the curve or bend regardless of peyronie's or not.

[falcone]

Ask for the Pentox. There are a million posts about it. It is shown to be effective in many men with peyronies. If you have congenital, it probably won't help. I saw Dr. Levine this past week, the pre eminant peyronie's scholar, he said that it is possible to have scarring that is not peyronie's and will not progress. He is not convinced I have peyronies and may just have scar tissue that won't progress. Plus, my scar tissue isn't that thick and plaque is generally thick.

It is important to get an ultrasound to show where the plaque, if any, is located. If there is no plaque or scarring, it is congenital. I would say do this before starting medication if possible.

I had a flaccid ultrasound done three years ago that detected no plaque but many posters here say does not determine that I don't have it. I will look for different types of tests when I see another urologist or whatever the NHYS send me to soon.

My curve does not bother me or impede penetration. Its not the concern, its the hour glas when semi erect and the general rigid feeling of my penis (which I admit could be because im worrying). But it just doesn't feel right at all, the progress between semi erect and erect is uncomfortable althought not painful. Also if I have had sex or masturbated and do it again soon, its hurts around the bend - otherwise the bend doesn't hurt.

From the sound of it, I may have peyronnie's tissue or early developments.  I think I have lost size, but can't be sure.

[chiguy]

Ask for the Pentox. There are a million posts about it. It is shown to be effective in many men with peyronies. If you have congenital, it probably won't help. I saw Dr. Levine this past week, the pre eminant peyronie's scholar, he said that it is possible to have scarring that is not peyronie's and will not progress. He is not convinced I have peyronies and may just have scar tissue that won't progress. Plus, my scar tissue isn't that thick and plaque is generally thick.

It is important to get an ultrasound to show where the plaque, if any, is located. If there is no plaque or scarring, it is congenital. I would say do this before starting medication if possible.

[falcone]

The annoying thing is. Thats although my curve has been there for a long time, I can't remember when the hour glass got there. Would have been useful.

But, if I go see a specialist or urologist I would imagine they would just misdiagnose me again. It is definately rigid most the time when flacid but thats been the case for years.

Is there any meds that I could get directs from my GP? As it would also be like 4 months before I got a referral. The NHS is a joke.

[Tim468]

I'm with Les here. I think that a dent or bend that fills out or straightens out when fully erect is simply tissue (tunica) that is less compliant than normal (the initial dent is due to it stretching out less well - or needing greater force to stretch out), and then only "going away" when fully erect and the tension is greatest.

If it is new, I would look at yourself as A) lucky and B) having "early Peyronie's Disease". IOW, I would get going with the treatments that folks do here.

If you do not do anything and it clears up spontaneously, great. If you do nothing and it gets worse, you're probably going to wish you had a time machine to go back for a do-over.

Tim

[lwillisjr]

falcone,

Several guys on the forum share similar symptoms as you have described. Their penises seem to exhibit Peyronies Disease behavior when semi-erect, but then seem to go away with full rigidity.

My .02 on this is that you have an area that is "Peyronies like". Meaning an area that is somewhat fibroid but still has some elasticity to it. This could explain why there isn't palpable plaque or even shows up on an ultrasound. As you become erect this is the last part of the tunica that stretches or expands. So in my opinion, it is not an issue of once having Peyronies Disease and not now. I think you have some tissue that is partially Peyronies Disease like. It may stay like this, may get better, or could get worse over time.

I would approach it as possible Peyronies Disease and try to improve it or prevent any worsening effects.

Les

[falcone]

Would they be able to tell me if I'd had peyronnie's in the past? The hour glass isn't prominent well full erect.

I was probably just misdiagnosed with the ultrasound. The NHS are useless.

[jackp]

falcone

If it looks like peyronies, smells like peyronies, --------you know the bit.

With the loss of length I would go to a Male Sexual Function Specialist not a general practice urologist for an evaluation. Also start the VED protocol for the lost length.

Jackp

[falcone]

I haven't posted here in about 3 years. I have an hour glass where my upward bend is. However I am not sure when my bend occured. 3 years ago I saw a urologist and they sent me for an ultrasound that determined I had no plaque so they said I didn't have peyronnies...hmmm. Around the time before the ultrasound I had posted here sdaying that I thought I had lost length but I can barely remember around that time.

Can you have peyronnies without a plaque? Im pretty sure I have lost length. But my hour glass is only prominent in a semi-erect state, a feel like I have a vein like a ring round it, but it moves with the foreskin so it doesn't seem to be on the penis itself. Sometimes after sex or masturbation if I get an erection soon after it hurts around the area of the curve to.

Is there anyway of telling if you have had peyronnies in the past? Even though the ultrasound didnt find a plaque I still feel like I had it - my curve seemed to improve a bit but at the expense of some length like it ate into it and made it shorter. I don't know, maybe im imagining things.

Really worries me though.

[BentYoung]

Anyone ever heard of someone having a congenital hourglass deformity?