Strong erections possible only when sitting -Help

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philmvas

Hello, I am new here... I hope I post in the appropriate subforum but feel free to move the topic if necessary. I am mid-twenties and I have mild upward curve due to Peyronie's. This I first noticed about 4-5 months ago... however it could have been earlier. I have not had sex in maybe 7-8 months so I am not sure how I got it. Regardless, it seems the plaque has not calcified yet. However, at the flaccid state just behind the glans (where the plaque seems to be) I can feel the penis is tighter, when I squeeze it it is not as "mushy" as the rest of the penis; it's more like there's something hard inside that prevents the rubbery feeling you normally get when flaccid. I can feel this all around at this part.

My urologist put me on pento 400mg 3x day. He also suggested Vitamin E 400mg 1x day and L-Arginine 2000mg per day (I use Arginine Ethyl Ester 3g 2x per day I don't know if that's good or bad?), Feel free to point me out to other supplements.

Anyway, when I first noticed it I completely freaked out. I got a referral for ED before that, but because I was mainly freaked for the curve I did not talk much about my ED with my doctor. I have recently noticed the following stange thing: when I sit on a chair or something I can get a maybe 80-90% erect (not rock hard but maybe between a banana with the peel on and an apple if that makes sense) and the glans engorges fully.

If I lie down, the erection goes immediately (within seconds) to 50-60% and the glans and corpus spongiosum deflates. It feels more wobbly, the penis looks definitely thinner and the glans is like flaccid. The same happens when I stand up (although in the morning I can keep better erections getting up but the glans is still soft). I even noticed that the thing with lying down happens at the morning too: my morning wood is thin and with soft glans, and as soon as I stand in the edge of the bed it gets hard with full glans and CS.

This is causing me extreme distress to say the least. It has caused me to be full-on depressed, feel anxiety to the point of having almost panic attacks, extreme saddness etc. I have read online some things and it seems this could be some sort of venous leak? I have an appointment with my urologist next week (he's one of the best in this country it seems) and I will request a Doppler as my mind will go crazy if I don't know.

Given that however and for my piece of mind I have the following questions in the meantime:
Could it just be temporary and hopefully go away? I haven't tried pills and do not know if they'd work but am I doomed to using cockrings etc?
Is there anything I could try to fix this without esorting to pills etc? Is there a hope it could be permanently fixed?
Assuming this is because of the plaque, could Xiaflex for instance fix it if it removes the plaque? Generally is there any hope to fix this without having to use a cockring or pills?

I feel so lost... at this age this is so not fair, my life has not even began yet. Please help me!

PS: I should say I have gotten my hormones checked 2-3 times in the last 4 months... the testosterone was consistently high-normal (840-1070), the estrogen high (one was 40 the other 50), the prolactin I checked once was really high (can't find it right now but well above the normal range), SHBG, free test etc seemed to be normal. If that all helps.

kuaka

Consider Magnesium Chloride.  Magnesium deficiency seems to be a common factor in many fibrosis conditions, and modern Western farming techniques deplete it from our food chain.

LWillisjr

Quote from: philmvas on November 21, 2015, 12:58:36 AM

Given that however and for my piece of mind I have the following questions in the meantime:
Could it just be temporary and hopefully go away? I haven't tried pills and do not know if they'd work but am I doomed to using cockrings etc?
Is there anything I could try to fix this without esorting to pills etc? Is there a hope it could be permanently fixed?
Assuming this is because of the plaque, could Xiaflex for instance fix it if it removes the plaque? Generally is there any hope to fix this without having to use a cockring or pills?


I am not sure if you are asking about the ED problems or regarding the Peyronies curvature. It might be that pills (Viagra, Cialis) could address the ED problems. And Xiaflex could soften the plaque. Everyone is different so we can't say one way or the other.

It is good that you are going to see your doctor in a few days. Work with him/her to come up with a plan for treatment.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

PeetyPeet

Hi Philmvas,

Thought I'd chip in as you have some symptoms similar to mine. Before I go on, sorry if you already know all this.

Many peyronies sufferers do not also suffer from ED. As I understand it, the fribrotic tissue / plaque is localised to the tunica albuginea. The erection will bend round the area of fibrosis, but it's still an erection. In some cases, however, fibrosis can also develop in the corpus cavernosa, causing ED as well as a bent penis. Finally, fibrosis can just develop only in the corpus cavernosa, sometimes called 'corporal fibrosis', which is what has happened in my case. Some people consider this peyronie's - it's all fibrosis of the penis -  and some don't - I don't have any curvature, just severe ED.

Moving onto your symptoms. I too get erections easier if I'm sitting in a chair, or lying on my side / stomach. Lying on my back however, my erections are significantly weaker, even when taking cialis, which is a shame because that's how I like it :). I've had a test for venus leak, and there wasn't one. All I can think is that the fibrosis has made things so 'tight' down there, that the laws of gravity take a stronger effect when I'm in certain positions.  I think you're right to get checked for a venus leak - speak to your urologist about the test where they inject a dye they can monitor - sorry can't remember the name.

I also have a lack of 'mushyness'. One urologist I saw described it as 'woody'. I'm mushy at the base, but get increasingly woody as you feel up the stem. it being most prominent just below and behind the glands. In my case, this is the corporal fibrosis. It might not be in yours, the fibrosis of the tunica albuginea might also give a similar sensation, if it is the circumference of your penis.


A few questions for you:

1. How are your morning erections? Are they weaker and/or less frequent?

2. What medication are you taking outside of your peyronies' treatment, including anything seemingly harmless?

3. When you exercise how does your penis react? Does it shrink/retract excessively?

4. Do you have any history of trauma or priapism?


I sympathise with your situation. I also started suffering ED in my 20s (now 35). It has been deeply distressing at times. Try not to worry too much, you've made an early start with the most popular peyronies treatment (pentox). You might also want to consider a VED. Do a search on the forum and check out the protocols. And taking pills for sex for the rest of your life isn't as bad as it first seems. Cialis, for example, can be taken very discreetly, and can last 48 hrs. Pursue with tests, tell your urologist about your ED and ask if you could also have fibrosis in the corpus Cavernosum.

Sorry to go on, hope this is helpful.


philmvas

Thank you everyone for the replies.

Quote from: LWillisjr on November 22, 2015, 02:51:51 PM
I am not sure if you are asking about the ED problems or regarding the Peyronies curvature.
I am asking about the ED problems.

Answers to the questions below in red:
Quote from: PeetyPeet on November 22, 2015, 03:21:53 PM
1. How are your morning erections? Are they weaker and/or less frequent?
It's weird they're on and off. I mostly get them but then might get some days without. Mostly though it's weak when lying but strong when sitting even in the morning
2. What medication are you taking outside of your peyronies' treatment, including anything seemingly harmless?
I take Pento, Vit E, Arginine, Butcher's Groom
3. When you exercise how does your penis react? Does it shrink/retract excessively?
It shrinks more than usual but comes back to normal after half an hour or a shower
4. Do you have any history of trauma or priapism?
I had a urologist inject something for erection to check my curve a few months back. The erection was sort of painful at times and did not fade down for at least 4-5 hours

I went today to the urologist and he did the test. He injected me with something to induce erection and then left me alone for a while. When he came back I had erection but was lying down and the glans was soft as usual for me when lying. He did the doppler test and said everything was normal (I don't think it was the one with the dye though). He gave me some Cialis for free and told me to do kegels and that he expects this to go away on its own within a few months. He said he did not see any plaque though acknowledged a 30 degree curve.

I honestly do not know what to think. If it was an issue of getting it up or keeping it up I would agree with taking Cialis or whatever. But is it really possible that it would go away on its own?

didi20031

hey philmvas,

what you describe sounds very familiar to me! I had exactly the same problems with erections for a while. they where harder when sitting, less hard when lying and for some time I was hardly able to have erections; the latter were short periods however.

For me it was exactly like your doctor said, things got better after a few months. When I developed new plaques with a new inflammatory phase, ED came back as well, and vanished again after some time. Now I am stable (for approx. 4 years already) and erections and sex work fine!
Of course I cannot tell you if it will be the same for you, but the fact that you have no venous leaks is for sure good news!

I hope it will be the same for you! However, you have to be patient. All the best to you!
didi

PeetyPeet

Hi Philmvas,

I speak purely from experience:

It sounds like your ED isn't too severe at the moment, although it does sound like your penis might have some blood flow issues. I'm speaking about the excessive shrinking during exercise here. It's a shame you had a standard penile doppler and not the one where they inject dye, however on balance I think you probably don't have venus leak. I think the fact the injection induced an erection is a good sign.

Keep an eye on your morning erections over the next few months. If they become less frequent and/or weaker this is could be a sign something could still be wrong.

Priapism can cause corporal fibrosis. Has your ED developed since your 4-5 hr erection?

You're taking the right medication. Pentox and L-arginine improve blood flow. Your body develops a tolerance to L-arginine over time. After 2 months, you should stop for a month before starting again. Vit E is an antioxidant but beyond that it won't really do much.

Why are you taking Butcher's Broom? I read that although it's used for circulatory problems in the legs, it can also cause blood vessels to narrow or constrict. My layman's guess is this could reduce erection quality.

I hope things do get better. Please let us know how you get on.

Best

Peety



philmvas

PeetyPat,
I had ED before that. I cannot remember when exactly it started, but at least 1 year ago. Thinking back, I can never remember a time where my glans fully inflated when lying back. That's why I was worried I had venous leak. I started Butcher's Broom because I thought I had venous leak and that it would help. Should I stop?

Regarding the test itself, the doc did the test 10-15 minutes test after injecting with 70% erection level. Then he immediately injected something to stop it which was really really painful. The erection seemed to subside only on the side of injection, and I did have a sort of erection for 3-4 hours after that. Since then I have been having really bad morning erections, my libido is non existent, and my erection quality worse than usual. Should I worry?

One thing I have noticed since the 4-5 hour erection 3-4 months ago, is that even when flaccid the penis seems hard behind the glans. It's hard to describe, it feels mushy at the base but cannot be squeezed behind the glans for about 0.5-0.75 inch maybe. Like if you squeeze you feel it hard. Since the second erection 2 weeks ago, this feeling has expanded to the whole penis for several hours a day (sometimes more). I am really starting to get freaked out here. What should I do?

I'd also like to mention the doctor suggested kegels. Is it OK to do them with squeezing your anus? I cannot seem to even stop peeing without doing that, but some online sources mention you should really try to isolate the two separate muscles... how the hell do you do that? And what is a good routine to start with?

Finally would a traction device be ok to use with some modification like the VLC tugger? It seems I cannot tolerate the noose at all (have tried in the past).

Oh and I should mention I recently took up smoking again, I don't know if it could affect these issues so quickly though...

PeetyPeet

Hi Philmvas,

I'm little confused over the sequence of events.. You seem to have had 2 penile injections. one that lasted 4-5 hours and one that last 3-4? In any event to address each of your points as best as possible:

1. ED time of onset and injection:
Sounds like your ED hasn't been caused by injection-induced priapism. A 'sort-of' erection for 3-4 hours isn't necessarily priapism. Although, if you think it has become noticeably worse since, you should explain your symptoms, along with what you experienced during and immediately after the injection to your urologist.

2. Butcher's Broom:
I've just tried to read a little about Butcher's Broom. I found a forum where a guy said it and horse chesnut taken together helped his suspected venus leak, and a commercial website that  advertised it as ED treatment. The only way to find out if it is helping/making things worse is to stop using it and monitor the results. My guess is that you won't see any dramatic change whether you take it or not. I know from personal experience that L-arginine and pomegranate pills (PM me if you want to know the brands), improve erection quality and overall blood flow in the penis.

3. Hardness behind your glands.
I'm afraid I can't diagnose your hardness. Based on personal experience, I can only suggest that it might be fibrosis of the tunica albuginea and/or the corpus cavernosa. I'm not sure what you mean by 'the second erection 2 weeks ago'. Start taking L-arginine asap, it will improve blood flow which can only be a good thing. Tell your symptoms to your urologist and suggest the following tests: penile MRI, venus leak test with dye, rigiscan (monitors the frequency and rigidity of your nocturnal erections). You might also want to consider seeing a vascular surgeon to check all the veins in the groin area are sound. He'll do this with an MRI.

4. Kegels
Haha I wouldn't worry about tightening your anus. I tried and I can't isolate the motions either. I don't practice kegels so i don't know a routine. Why not try searching through the forum. See if any other members have done them and posted a routine.

5. Traction devices
You want a VED (penis pump) for ED. I'm not sure a traction device will help. Look up the VED protocols in the forum.

6. Smoking
Give it up. Even if you think it isn't affecting you too much, smoking is nonetheless really bad for you.




philmvas

Hi PeetyPeet
Quote from: PeetyPeet on December 02, 2015, 02:53:33 PM
I'm little confused over the sequence of events.. You seem to have had 2 penile injections. one that lasted 4-5 hours and one that last 3-4?
Yes
Quote from: PeetyPeet on December 02, 2015, 02:53:33 PM
2. Butcher's Broom:
I've just tried to read a little about Butcher's Broom. I found a forum where a guy said it and horse chesnut taken together helped his suspected venus leak, and a commercial website that  advertised it as ED treatment. The only way to find out if it is helping/making things worse is to stop using it and monitor the results. My guess is that you won't see any dramatic change whether you take it or not. I know from personal experience that L-arginine and pomegranate pills (PM me if you want to know the brands), improve erection quality and overall blood flow in the penis.
OK, I'll stop it and see what happens
3. Hardness behind your glands.
I'm afraid I can't diagnose your hardness. Based on personal experience, I can only suggest that it might be fibrosis of the tunica albuginea and/or the corpus cavernosa. I'm not sure what you mean by 'the second erection 2 weeks ago'. Start taking L-arginine asap, it will improve blood flow which can only be a good thing. Tell your symptoms to your urologist and suggest the following tests: penile MRI, venus leak test with dye, rigiscan (monitors the frequency and rigidity of your nocturnal erections). You might also want to consider seeing a vascular surgeon to check all the veins in the groin area are sound. He'll do this with an MRI.
I\ve already been taking Arginine for 2-3 months. The form I am taking is Arginine Ethyl Esther, I read somewhere it is more bioavailable than regular one. Is this OK? I'll PM you for the pomengrate pills
5. Traction devices
You want a VED (penis pump) for ED. I'm not sure a traction device will help. Look up the VED protocols in the forum.
The traction device is more for the curve than for the ED
6. Smoking
Give it up. Even if you think it isn't affecting you too much, smoking is nonetheless really bad for you.
I know. But it is the only thing that keeps my anxiety levels off the charts

PeetyPeet

Hi Philmvas,

I've PM'd you the brands and also made recommendations for L-arginine. As I understand it L-arginine is more bioavailable than just Arginine. You could also try L-citruline which is kind of the same thing and is considered by some to be even more bioavailable than L-Arginine.

Regarding your smoking. I don't want to sound preachy, but I really would recommend giving it up. It damages your blood vessels, and raises your blood pressure, both of which can contribute to ED. It might take the edge off in the short term, but it will make you more stressed in the long run, which again can contribute to ED. And then there's cancer - every drag is packed full of carcinogens.

Regular exercise is the best way to reduce stress. It could even help your ED slightly. I don;t condone alcoholism, but if you must have a 'quick fix' for your stress have a drink - just a glass of wine or vodka lemonade before bed. Alcohol dilates blood vessels, which can be good for ED. Excessive drinking of course is very bad for ED so no more than one drink a night!


blooming

According to articles I have read over the years there IS a connection with smoking and ED

Jonbinspain

Smoking constricts the blood vessels, which could lead to ED if you have other health problems, or are predisposed to it.