Stop the inflammation!

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Lostinspace

I'm new and never post!  I seem to come across as abrasive typically. I've been reading here for over a year. I've gone from a dent to normal, to a curve, intense swelling and pain, to more dents, increased curve...all the while taking pentoxifylline, and several other supplements. Much of  the information I've obtained came from here as well as endless reading. If I found out anything... BE PROACTIVE! The sit and wait is advice given by inexperienced medical professionals. First and foremost stop the inflammation!!! I can not stress that enough!  Change your diet and lifestyle. Stress management, stop smoking, drinking excessively, anti inflammatory diet. Things like ginger root and peppers are highly anti inflammatory. Use the VED and be cautious..  Listen to your body. It is easier to keep what you have than to regain what you have lost. I have been eating ginger root for several weeks and the painful inflammation is practically gone... Literally!  I quit smoking and drinking and started eating better last year, but that wasn't enough. The ginger for me has been the one thing that seems to work. I have seen improvement since I began using the VED. I have straightened the curve to almost pre-peyronies. Regained some girth and some length and this is only in two weeks. I started having nighttime erections again. My penis fills more uniformly and quickly. IMO you have to get a nice gently stretch when using the device to get the remodeling  benefits. Listen to your body above all. If it hurts then STOP! I read somewhere on here it isn't a race! Be proactive... Take charge of your life. If we lose this battle then it will be fighting to the end. Stop the inflammation is the first step and that can come in many forms... Find out what works for you!?  I'm 47 and was diagnosed about 12 months ago. I apologize for the rambling...  

Italiano

Lostinspace,
I am very happy for you. In my opinion, the most important thing is to treat aur disorder as an opportunity. You changed your life style and I did the same, above all in order foods and infact now I am almost vegan, I don't eat meat but in some rare occasions , I avoid cheese (unfortunately I love it) and generally I focus my attention on the necessity to alkalise my body counteracting acidification process.
I tried a lot with ginger and I still eat it but withot the great effect that it was for you.
The big problem is my condition of diabetic because of the high sugar blood level playng a strong pro-inflamatory role.
I tried a lot of different treatments as evrybody can easly know reading my few posts: Pentox (I did'nt tolerate), Cialis (I tolerated it in a better way), ALC, ESWT, Iontoforesis (above all only with verapamil), different kinds of vitamins and herbs (vit. E, C, D3, pycnogenol, resveratrol, ubiquinol), VED (I think it can be very useful but first I suffered for overpumping and than I definitively stopped when I had a problem with the C cylinder of my soma correct).
According my experience, the only device that really helped in stopping my inflamation was androtherm, that I started in Terni (a town far around 100 km from Rome, I moved about) from may 2013 and that I still do. It also helped in reducing plaques (as 3 echografics evidenced) and a little bit with curvature. I must write a complete post someday.
Regards

FriskyDingo

Italiano,

It would be great if you did a complete post. I found this regarding your treatment:

Androtherm Application for the Peyronie's Disease
Androtherm Application for the Peyronie's Disease

Seems like something with high potential, and I know many forum members are considering thermal treatment. Has your experience with androtherm been similar to the results in the study?

Thanks.

Edit:

After a quick google search I found this... Androtherm device is the product of Onchotherm GmbH
Oncotherm - Index
There is a language translation at the top of the page. They are centered around cancer treatment, so their new peyronies protocol they are testing is still in development (according to the study).
If we have any German speakers who can contact these folks about the future of this device I would be grateful. I am currently using a high powered infrared laser at home, which seems to be similar to this device, although I am not sure what infrared mechanism they are using.

Italiano

FriskyDingo,
I will write a complete post next week when I will meet my urologist and I will know precise number of treatments I did.
Certainly I am the person that recived the gratest number of treatments and that contributed to emprove the protocol (at first the duration of each treatment was 30 minutes, now it is 60).
In the whole, I had a reduction in my plaques (I have 3 calcified plaques) of about 50% and the evolution of my condition is proven by 3 ultrasounds (13.01.2014; 01.10.2014; 16.06.2015).
Also curvature is emproved but I haven't evidence so I cannot say how many degrees because I diden't take pictures as I had to do (I promise to remedy!)  
I am happy to say that I don't fell pain any more.
See you soon

FriskyDingo

Look forward to your post Italiano. Be sure to tell us what they use to instrument to induce the heating. Is it infrared laser, red laser, infrared led?

I have recently purchased a 500mw infrared laser and will attempt my own hyperthermia treatments with it. I will update its effect in my main post.

Italiano

Friskydingo
I am totally sure that the device I used and still use isen't similar to a laser or a infrared lamp. The heat dipends from elecromagnetic filds and realizes a different method of hyperthermia. The easier thing to do is just reading what follows, taken from a study evrybody can find on our forum:

"The traditional hyperthermia had good benefit in treatments of Peyronie's disease; however it was controlled with the only single thermodynamic intensive parameter, with the temperature.

Oncothermia is a special hyperthermia [40], working on the action of the modulated electric field in the locally treated lesion. It has long experience in the oncology [41]. Its idea to use the benefit of the electric field makes it feasible to apply it for Peyronie's disease, unify the effects of EMDA, and heat in a specialized treatment.

Our objective is to perform a pilot study with the application of a special (adaptively modified) kind of oncothermia for Peyronie's disease, called Androtherm.

The method is based on the paradigm of the energy-dose control, replacing the single temperature concept [42–44]. With this approach the oncothermia returned to the gold standards of the dose concepts in medicine: instead of the parameter, which cannot be regarded as dose (the temperature does not depend on the volume or mass), Oncothermia uses the energy dose, measured in kJ/kg, like Gy is used in the radiation oncology to characterize the dosing of the treatment. The requested job is to change the structure of the target, for which a definite energy dose is necessary [45].

The historical energy-dose-like control (temperature multiplied by its application time) is physically incorrect and operates with an overall energy average in the area, instead of a directed and well-measurable energy dose (measured in kJ). So these points are realized, and this procedure is called modulated electrohyperthermia or oncothermia [46] and it is specialized now for andrology. It is a well-designed capacitive coupling on 13.56 MHz free frequency [47]. The presently applied radiative hyperthermia device is operating with a frequency one order of magnitudes higher than oncothermia does. The process is controlled by the changes of the impedance and by the absorbed energy, which are both accurately measured. It was developed for Peyronie's disease, concentrating the plaque dissolution, using all the experiences and achievements from the past 20 years."
In any case, my very best good luck for your attenpt with infrared laser!
Italiano


Curvature15

So are you telling me you are reversing your curve and symptoms by going to an inflammatory diet and eating massive amounts of ginger root? Please share more

Thanks

Lostinspace

Honestly,  it is too early to say that. The pain seems to be under control and I have seen modest improvements in only a month using the VED. I'm probably too cautious, if I feel any discomfort the following day I will rest. This disease changes by the minute. Less than 6 weeks ago I appeared fairly normal. I had pain, but then bad things started to happened  and I didn't know what to do. I came up with another plan and ran at it again. My focus is on stress management, stopping the inflammation with diet and VED therapy. I feel that it is crucial to not aggravate the condition, but doing nothing only allows the shrinkage to take place. It is easier to prevent that than to regain the losses. The ginger and jalapeño peppers seem to have made a significant difference!  I will do my best to post results good or bad. All we can do is not give up...  

kuaka

Considering that scar tissue is the body's response to perceived injury, an anti-inflammatory diet is probably a great idea anyway.  Inflammation can be in response to allergy or injury, so reducing it cannot be harmful as far as arresting this condition goes.

Good luck

jim morrison

 First and foremost stop the inflammation!!!

For newcomers, this is about the best advice on here. Along with, "never bend while even partially erect/engorged".
It took me a little while to completely realize this.

skunkworks

An ancestral style anti inflammatory diet certainly helped me. Basically just meat, vegetables and a bit of fruit.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

nemo

Lostinspace, tell us how you're eating ginger root? In tea, as whole slices, what?  Personally, I hate the taste of ginger, but if there's a palatable way to eat the stuff, and it seems to reduce inflammation, I'm all for giving it a try.

Tell us how you're going about consuming ginger?

Thanks,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Paolo

Nemo, I for one use a lot, a lot of ginger root in a Nutri-bullet with berries and Spinach, Yum!  :D
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

nemo

51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Paolo

Hi Nemo, see attachment, basically a blender specific for juicing/smoothies  :)
Whenever you find yourself on the side of the majority, it is time to pause and reflect.

jim morrison

  I have been taking a couple 550 mg gel coated tablets of ginger root per day. You can get a bottle of 100 at walmart for like $5.00. Or you can get it online. I also randomly take, garlic, cinnamon, aloe, grape seed, tart cherry, turmeric, fish oil, borage oil, among others. All for inflammation. Fish oil and borage oil reduce Prostaglandin E2, which is a natural inflammatory that the body produces. Believe it or not, exercise releases Prostaglandin E2. Fish oil and borage oil are Prostaglandin E3 and E1 respectively. Prostaglandin E1, which is found in borage oil or evening primrose oil, is what the uro gives you to induce an erection when getting a doppler. SO this helps with blood flow to the penis as well.
 From what I have gathered thus far, you should combat the early stages of Peyronies with the above mentioned dynamic as well as the following: Anthocyanins such as cherry and grape seed are antioxidants and possible anti fibrotics and work in conjunction with the whole Prstaglandin concept for healing, Pentox, Acetyl L-Carnitine, Nitric Oxide boosters such as L-Arginine, healing agents such as Bromelain and Aloe Vera. Those are the core supplements that I take. It is relatively inexpensive for these.