Progression won't stop after years

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popopo

Hello people,

I've been on the forum before, but it's been a long time ago. I just turned 21 and I'm having peyronie like symptoms since I was about 17 years old. When I was 17 I was in a bad bad place. I was working out and trying to become muscular since I've allways been very skinny. The more I started to focus on this the more I noticed how my body looked slightly feminine (tall and skinny posture, wide hips, skinny wrists/hands, etc.).
Then I read about low testosterone and a lot of symptoms where familiar to me (anxiety, depression, lack of energy, lack of focus, memory problems, no morning wood, etc. etc.) Then I went to the doctor to measure my Total testosterone. It was 16 nmol/l on a range from 10 to 35 nmol/l. I was worried ab out this number since I was in puberty and these numbers where rather low in my opinion and according to what I read for someone my age. During this period I was also doing Jelqing and using a penispump to hopefully make my penis bigger to compensate for my body (I know, sounds crazy but that's how emasculated I felt back then).
Eventually after going to several urologists and endocrinlogists I was denied Testosterone replacement theraphy because I'm in range. Instead I was diagnosed with body dismorphic disorder and was put on anti-depressants and got theraphy.
Also, the jelqing and pumping gave me peyronie's wich has been progressing ever since (about 2/3 years now) even when using cialis pentox and totally resting my penis or trying to massage it or just leave it.. no matter what.. I kept (and stil KEEPS) getting worse.
Now I'm 21, finally got a job and a goal set out for myself, but the theraphy didn't do anything for me. I'm still depressed about this situation. I know I could just let all of this slide, but after being so deep into a depression I figured that I'm going to fight to get my penis back and if I fail, I just want to die. The problem is... What do I do now?? I don't want to be obsessing about my testosterone and going back an forth from doctor to doctor again, but I still think that borderline testosterone levels are NOT helping my situation. I know for a fact that the "little bit of scar tissue that shouldn't get any worse" has progressed over a timeframe of 3 years! The doc's don't even take me seriously because they think I'm a mental patient.
And now my real question: "What can I do?" Should I still look further into testosterone theraphy (I've been thinking about buying it online since no doc will give it but I don't want to risk further damage of my body/mind. And what about xiaflex? I know it sounds crazy, but I'm scared to take action without getting my testosterone in check.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

james1947

Popopo

I moved your post here because it not belongs to "Alternative Treatments..." board.
What I can say just is that you have to find a doctor that will give you testosterone treatment.
From what you are writing in your post, I agree with you that in your age you should be close to the top and not to the bottom.
What kind of therapy you got?
Also you are not writing what your symptoms are regarding Peyronies. I suppose you have written in the far past, but if you want people to interact with you, you have to give some more details. :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum