Help me to appear coherent please

[lonelyboy]

Hi All,
I have another appointment with Mr Minhas on Thursday and this time I'd like to be able to ask relavant questions and get across what I want from him, I think he just gave up last time and ordered the MRI because I was so incoherent, probably my fault as I haven't been able to get my condition across successfully to the previous 5 urologists.

Where my penis used to lay almost flat on my tummy when erect it now points up at 90 degrees, like I have a ventral bend right at the base.

My ED is quite severe, with sildenafil 100mg can get possibly 7 on scale after 1.5 hours, isn't a satisfactory finish, feels restricted and occasionally can't finish, the PDE5's appear to be getting less effective.

Its possible that some of the medications are contributing to my ED, I have now stopped prednisolone, atorvastatin and Risedronate and am still taking Lansoprazole, Myfenax, Hydroxychloroquine and Hydrocortisone, I hope to stop Lansoprazole soon and will ask about reducing / stopping Hydrocortisone after I get the results of my synacthen test.

I have been taking loads of supplements that others on the boards have recommended and have increased my testosterone from 10.1 to 13.9 since my last appointment with him.

I have the MRI report below:-
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Clincal indication
Erectile dysfunction
? Peyronie's disease.
Findings
There has been a reasonable response to Caverject
The glans however does appear under expanded but this may simply be as a result of incomplete tumescence
No intra cavenosal fibrosis identified.
There is a prominent dorsal vein that interestingly can be followed into the right inguinal region where it appears to drain into the long saphenous vein.
There is a prominent median lobe of the prostate that protrudes into the bladder base.
The bladder has been incompletely imaged but appears over distended.
Both testes appear unremarkable.
Conclusion
No obvious corporal abnormality, significant fibrosis or Peyronie's plaque has been identified.
There is however a prominent dorsal vein that appears to drain into the right long saphenous vein.
It would be recommended that if the patient has failed oral therapy he has a penis doppler and if this suggests a problem with the veno occlusive mechanism consideration could be given to ligation.
----

Thanks for any input.
Lonely

[wonderbread1662]

Hi Lonelyboy,

I would write down all my questions and concerns on a piece paper so that I have something to fall back on In case your mind goes blank when see him. This has some good info on what to ask a specialist. https://www.peyroniesforum.net/index.php/topic,3180.0.html  

[lonelyboy]

Thanks Wonderbread,

I had an A4 10pt of questions and concerns that I took with me last time, I think I need to narrow down my focus a bit and I'll maybe try to chop the questions page down as much as possible.

I can't really keep very much in my mind is my main issue, I get easily distracted following a line of thought, I think my mind is quite foggy possibly due to my illness or the meds I've been taking.

It has taken me longer to write the above than the time I'll get in my appointment  

Wish me luck, I suspect I'll need it

[wonderbread1662]

Try to make a tier like list. Pick a couple of must have questions to ask the doc. Then add your other questions that aren't crucial but would be nice to know afterwards. Believe me when I say that I know a bit on how you feel as I have an awful memory and I forget stuff all the time. I wish you the best of luck friend and hopefully you get some answers.  

[kuaka]

Where my penis used to lay almost flat on my tummy when erect it now points up at 90 degrees, like I have a ventral bend right at the base.

My ED is quite severe, with sildenafil 100mg can get possibly 7 on scale after 1.5 hours, isn't a satisfactory finish, feels restricted and occasionally can't finish, the PDE5's appear to be getting less effective.

Its possible that some of the medications are contributing to my ED, I have now stopped prednisolone, atorvastatin and Risedronate and am still taking Lansoprazole, Myfenax, Hydroxychloroquine and Hydrocortisone, I hope to stop Lansoprazole soon and will ask about reducing / stopping Hydrocortisone after I get the results of my synacthen test.

I'd start with this description of the issue.

[lonelyboy]

Thanks guys, I will act on both your suggestions, luckily the tube strike meant I had to cancel my appointment so I have a bit more time now.