Report

[R1]

Hi Guys,

Wanted to report after some weeks on oral medications at this may help others.

I started to feel pain 6 months ago.
-My first MD and 2 urologists initially did nothing for me apart from advising Vitamin E.
-I sensed lumps 3 months ago (right before the head) and they had been growing very significantly until these last days.
-My regular MD decided to give me colchicin 2 months ago (on my request).
-My same regular MD decided to give me Pentox 1 month ago (still on my request) and I decided to keep colchicin until end of june.
-Next to that, a month ago I added arginin 3g, carnitin 3g, co q10 next to vitamin E 500 *2.
-A month ago I really decided to be more aggressiv on the disease as the right curve was getting more significant (in the 10°), so was it getting harder to get good erections (but it could have been stress), and a hourglass effect was clearly visible, hence the pentox & supplements.

Note that I feel lucky I did not experience medications side effects so far (except some rare/light dizzyness and headaches/nausea) specially while combining pentox and colchicin.

These last days :
-the lumps have reduced significantly
-the pain while flacid is completely gone
-my erections are better and the erected pain is less
-the curve did not change (good or bad)
-the hourglass is still there

These last days I also replaced arginin 3g with citrulline 3g as I felt arginin was not doing much on my blood flow.
And indeed what a change : 30 mns after i take citrulline 3g my flaccid penis gets "chubbyer" (more blood flow?).
And if I take it in the evening, I feel a boost on my erection (but it could only in my mind).
And it could be a coincidence but situations seemed to improve at the same time.

About Vitamin E, it is not very useful but I read many studies out there that combined with Pentox, it was having very good results on fibrosis on soft tissues.
This is a treatment given to women who suffered fibrosis after applied radiotherapy on breast cancer (radiotherapy can create fibrosis).

About supplements, I strongly advise the powder version : much easier and cheaper.

Conclusion : i feel the situation is not worsening (but i am being very cautious as i know peyronie can be evolutive/tricky), or maybe even improving (no pain, no lumps) which feels good.
I could not say if this is thanks to the medications or if I am simply getting out of the acute phase or if i am in between phases (hopefully not).

My next step is VED :
-to possibly correct the curve (although at that stage it is not affecting me too much)
-to possibly correct the hourglass which is bothering me from an aesthetic point of view (being married for many years, i can live with that thus)
-to ensure optimal erection (this is mainly an "insurance" or to work on my confidence)

So here we go, sharing my experience so far and willing to share my optimism

Regards,
Erwan

EDIT : i shall add that i also completed stopped cofee and alcohol and i have been ensuring light but regular exercices.

[Stabler]

R1

It sounds like you are going in a good direction especially with the plaques being reduced along with the pain becoming less. Having the Peyronies become stable is a positive in the realm of things (in my opinion) From what I have been hearing and read the VED is a good choice but wonder why you didn't start that earlier, that seems to be something the men start right along with the meds, I was just curious.

Great news on the progress  

[R1]

Re your question "why not use VED earlier", it has been only 3 months that I have diagnosed and it took me some time to realise that the so called specialists (urologists) did not know about that disease nor cared about it.

That and the money aspect (over 200€ ...).

Quote deleted by moderator - James
Please read the forum rules!!!

[Stabler]

Ahh yes, money is a key factor in all of this. I hate that. Well it will be good when you can start with VED keep us updated.

[Jonbinspain]

Yes, money can be a key factor. However, what is far more  of a factor are Urologists who seem to treat this disease as some sort of minor irritation. I guess, compared to say, Prostate cancer it is, but if more Uros had Peyronies themselves maybe they'd take it a hell of a lot more seriously.

Rant over, sorry!...

[james1947]

Again I have to agree with you 100% Jonbinspain

if more Uros had Peyronies themselves maybe they'd take it a hell of a lot more seriously.

James

[kuaka]

Check out my home made VED device in the appropriate area.  I have around $50 US in it, and it seems to be working...in tandem with my home made traction device, which cost around $7 US...  I use them both daily and the usual cocktail of OTC supplements...D3, B6, Ubiquinol, Arginine, Carnatine, and recently started Pentox/Cialis...  Actually successfully penetrated a couple of days ago, but the pain was too much to complete the process...

Traction just now appeared to be a bit farther out without pain than before...hard to tell, as the placement of my member in the cradle of my homemade device is not totally consistent.

My point is that some of the treatments can be done less expensively than the prescription/manufactured route.

[R1]

Hi,

Just wanted to give an update a bit over 6 months after my previous post.

My treatment for the last 6 months :
-pentox 3 times a day + vitamin E (some may say Vit. E is useless but studies show that associated to pentox it has some good results on fibrosis)
-colchimax (to keep the inflamation away) even if the acute phase is behind me now - doctor says it can act as anti calcium
-the usual powders : arginine/ornithine, citruline (much more efficient that previous two), carnitine, coq-10
-magnesium / vitamin K2 : also to fight calcium in the soft tissues
-VED 10 mns about every day

Good news is that the curve is gone so "something" is working (I believe the key items are Pentox and/or VED).
Another good news is that I believe I have much more and much better night erections probably due my treatment (better blood flow, etc ...).

The hour glass is more visible thus and I have this rubber band feeling just below the head which is unpleasant while erected.
And it requires more efforts/concentration for the head to fill (blood comes in ok but also easily comes out).
I associate this to the hour glass (i could be wrong) so my focus is on reducing this for now.

My plan is to keep the above treatment for another 6 months, if not a year since I read that this disease usually takes about 18 months to settle so i wont give it any rest during that period.

One question I have : is it ok / healthy to keep the VED for so long / permanently or shall I give it a break for a while? any inputs/experience over here?
Am I right in thinking that VED (and eventually pentox since it softens the tissues) may improve this hour glass effect?

In any case I would definitely recommend pentox (and vit E as this is "for free") + VED : I am convinced this significantly improved my condition.

Regards,
Erwan

[Gutted]

Thanks for updating us Erwan ... always appreciated

It has lifted my confidence in Pentox and VED again. My Uro just said on Thursday that Pentox would have no effect on me now as I have had Peyronies Disease symptoms for 5 / 6 months but it seems you started Pentox later than 6 months after  your symptoms ?

[basebend]

I would like to say as well that I notice a difference when I take vitamin K2. I've noticed multiple times, so I want to say it's not due to placebo, but I can't be sure.  

[NeoV]

Awesome. Those supplements definitely should be working. As for hourglassing, traction actually nearly removed mine completely. I am very happy with the results, but my case was/is ventral only (bottom side) and I used downward manual traction to fix it. I used the VED for three months but was forced to stop, that was good too.

[Freemason]

Hey Neo what Traction decide did you Use? I'm going to get one.

[NeoV]

I actually only use my hands! Been doing that for years now and really makes a difference.

[QuackAttack]

Free,

I am using the Size Genetics and have had some positive results in a little over 4 months. However, it isn't an overnight solution. I have gone from about 52 degrees to 45 degrees. I will say that the SG device like all similar devices are not the most comfortable or easily concealed. I plan to get a Phallosan Forte because it is easier to conceal as it isn't as bulky. The SG device offers a money back return if you are not satisfied. You can also get money back if you take a before and after picture of your results with a testimonial as well.