Penis Indentation from Masturbation. Any help and success stories?

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Andros

I am very depressed. I caused an indentation on the right side of my penis from pressing with my pinky my right side of the penis whilst erect. I was trying to straighten my penis because I have had a slight curvature to the left. The right side of my penis had the most problem forever but I was fine with it.

I went to the uro and he performed an ultrasound check. He found no plaque so he said yours is due to scar rings. He prescribed vit e and potaba. I told him these I believe are ineffective and all I want is for the dent to go away. Off the record he told to start using a penis extender.

I feel dead not that my penis has the new dent on the healthy side. Anyone who has a success story on how to treat the dent fully?  

Old Man

Andros:

You are right about Vitamin E and Potoba not being very effective. Many years ago, my uro RXd Potoba and I took 13,000 (yes that is right, 13,000) of those tablets at the tune of 6 tablets 4 times a day!! During that time, Vitamin E was taken twice a day at 400 mgs, also not any effect.

Only result that I had was severe upset stomach and bowel problems for the entire time I took the stupid pills.

So, find another uro, one is qualified in diagnosing Peyronies Disease symptoms and get treatment from that doctor.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Andros

He also prescribed off the record a penis extender. I am very depressed because I have the indentation now on my healthy side and it has affected me beyond imagination.

Any success stories? Any suggestions. I will contact another uro out of the country because it is difficult where I am to find a good uro. Also he found no plaque but I have pain which I am suspecting is the pain of peyronies.

I am lost do not know what to do. Penis pumps he said are ineffective and you may cause damage penis extender is safe but I am reading that for my indentation will not do nothing. I have read a lot on the forum and I do not seem to be able to find anything positive.

james1947

VED, Pentox, low dose Cialis, VED and VED again :) in my opinion Andros.
Just very carefully with the VED and so with traction. I have damaged my glans with a traction device, now is OK already.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

kuaka

When I first discovered my Peyronies Disease (after a period of abstinence for other reasons), I had several bumps and dents on the sides of and in the middle of the inside of the curve.  Mine is on top in the "classic" position.

Even before finding this site or knowing what it was, I built and started using a traction device...somewhat like the penis extenders marketed.  Check out the home made traction device in that section.  I had only used it about three times when the dents and bumps smoothed...so I knew I was onto something.  Again, that was even before I landed here.  

I have since added VED, and the combination is actually making some progress...or so it seems.  It is agonizingly slow, but I think I'm getting somewhere positive.

Caution and patience are key to progress without additional injury.

Andros

For how long have you been doing traction and VED. Have you had any success in treating indentations completely as in eliminating them?

kuaka

I must have caught the indentations as they were just forming, as I don't have them now.  I only have the classic Peyronie's curve upward.  It was the traction device I was using first which stopped/reversed them.  I've been using VED for a few weeks now, and I seem to be making progress on the curve.

I'm also doing a bunch of supplements to help soften the scar tissue and improve circulation.

Andros

Anyways. The thing just caused so much panic and stress to the point that I do not function. Severe depression and anxiety. It is a nightmare that I will not be able to treat it and make the indentation go away as in eliminate it. I have on heard of one person telling me that he managed to eliminate the dents and that it is possible but then again every situation is different. I wish I was not stupid an knew that it is dangerous tou push your penis while fully erected. I feel a great loss. Too bad. I wish things were different.

kuaka

I doubt anyone here doesn't wish things were different.  Hang in there.

Andros

Not many reports from members about anu success on eliminating dents. That is killing me completely.

james1947

Andros

As I have written before:
Start treatment as soon as you can and you may be surprised by the positive results, including eliminating the dents, especially if you are starting early.
Just do something indeed to be on a self sorrow mood.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Andros

I am on pentox. Also tomorrow I am ordering penis extender and a pump and I am getting my self arginine. I am on pentox for days now and I will have to waith for my pump to arrive and the stretcher. Old man said that for me the single cylinder protocol should be fine.

james1947

Moved the topic here as it not belongs to "Alternative treatments"

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Andros

Can one after if lucky and stabilizes stop treating and go back to normal. Not having to pump each day stretch etc. In other words are the treatments permanent and put it ala behind him. I know there is no cure but there are people who are dealing with it for so many years it seems that it is a major preoccupation.

Old Man

Andros:

My Peyronies Disease symptoms have been in an arrested state since 1996. I still do the VED therapy cycles several times a month just for maintenance of being ''straight'' again. Don't want to go back into recession of the symptoms.

I strongly urge any and all to continue the VED cycles even if they see good results. This will prevent further recession, etc.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Andros

So essentially once you have it you are lost. You cannot go back to say normal even if your manage to improve the visual aspect. It can get worse again. So there is no eliminating this curve or this dent or that. All is temporary. I am 28 and I will have to keep a pump in the house and a stretcher and be worried about this thing forever. To say I am depressed it would be an understatement to the terminology.

My pain is unbearable despite pentox and ipuprofen. Never knew this disease was like that. And I was aware of it because I searched it due to the curvature I had. Now after more than ten days and pain I can definitely see the dent. There is scar tissue beneath I can feel it when pressing but the uro said it is no peronies because no plaque yet. Well from here I understood that if it causes deformity and pain then it is peyronies. This is just too much for me.

Andros

The uro said that you must have plaque for peyronies? Does this mean that to have peyronies per say you need plaque or just scar tissue and or curve and indentations? How long does it take for plaque to form. Can plaque be absent during acute pain and then form?

Old Man

Andros:

No, you don't have to keep the exercises with the protocol going on for each and every day after getting the symptoms arrested. I just use the VED to keep my 85 plus YO Dick in a more healthy shape. I have had a high libido since the age of about 10 when I first ejaculated in the old farm barn while watching some cows DOING IT!

My first experience with Peyronies Disease came at the age of 24 when I actually ''broke'' my erect penis. It happened during a very heated sexual experience with an older woman. It took some doing to correct that episode of Peyronies Disease since no known remedies were available back then, except using the RX: take potoba, vitamin, and wait 6 months to come back on the scene with the doc.

Fast forward to 1995 when I had a radical prostatectomy of a stage 4 cancer. This surgery left me with more Peyronies Disease due to bad application of a catheter prior to surgery. The nurse did more damage trying to force the oversized cath into my small urethra. Anyway, after the surgery the VED that was RXd for my symptoms took just over a year to recover my lost dimensions, curves and hour glass effect.

Relating this to let you know that you DO NOT HAVE TO USE A VED FOR THE REST OF YOU LIFE!  The VED can be used for many men's sexual problems with great success. The recovery rate has been placed at 90 plus percent based on the severity of the Peyronies Disease. ED also can be corrected well enough for sexual activity with a good grade of a VED.

So, bottom line, to answer your question about having to use a VED for the rest of your life is absolutely not true. It can be used for keeping your Dick in a good healthy state though. Inactivity of ones erections over time can and will cause problems. I know first hand about that area of inactivity.
Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Andros

Yes but from what was a perfectly healthy organ now due to stupidity and subconcious bending counterwise my slight congenital curvature I now have pain. I was about to have a blast for the first time in y life and now I am depressed. Uncertain how this will develope and judging from the pain not sure it is regular scar tissue in thenend of the day. Plaque can form in 6 months a year who knows. More bending not sure. I take pentox and anti inflamatories out of nowhere as I was healthy and I the outcome is going to be unpredictable. Members told me they had no sucess in eliminating dents. And even if it is scar tissue despite the killing pain I don't know how the scar tissue will feel palpable or not. You see all is fresh in my mind and from one day to another like this by forgetting and settling for something less on probably the most important part for a man is devastating. Another week until the extender is here and the pump well I need to order.  

kuaka

"plaque" appears to be somewhat of a misnomer.  If you think of the Tunica as a cheese cloth like material, with inelastic fibers loosely woven, and scar tissue lumping a portion of them together...this is a visual of what Peyronie's is.  This lump is referred to as "plaque", and in some technical sense of the word that is what it is.  The solid nature of the scar tissue which prevents the "cheese cloth" fibers from being extended is the source of the primary trouble caused by it.  It can also constrict blood flow, which causes the related issues of incomplete erection (leaving the end limp) and all manner of circulation related issues.  From a strict medical diagnosis standpoint, Peyronie's might actually be defined by the "plaque"...but detection and labeling of it should not be considered the be-all-end-all of diagnosis in my non-medical opinion.  In the larger picture, any physical change in penile structure which interferes with circulation and/or erection comes under the umbrella of Peyronie's...again, just my opinion.  Any "injury" to the tissue which causes change has the potential to create said scar tissue "plaque" and should be treated as "early" Peyronie's...again, just my opinion.  Cautious optimism is called for, and cautious action...just waiting until it manifests in a plaque detecting level before doing anything about it doesn't make sense.  Good luck.

Glassglue

We all feel your pain Andros and I wish I could make you feel better. The measure of unhappiness is the distance between expectations and reality. At only 28 you expect to not have to worry about your dick. But that's not reality right now.

Best I can do is to tell you that it is not as bad as you think it is or will be. I am only recently into this myself and just because I'm older (54) it's not really much easier. Your penis is an extension of your ego and any malfunction seems to be a dagger in your heart and a confirmation of your mortality. Again this is only confirming the reality that always existed. You just aren't allowed to ignore it any more, maybe sooner than you would like and sooner than many.

You WILL be ok. Just take my word for it. You are younger and more resilient than you even know and life is long. You will recover and be happy.  

Old Man

Note to all:

Fellows, I will be 86 years old in September this year! Thankfull for each and every day of that old age and being able to do just about anything I want to do. I too know the problems that all of you are experiencing no matter what area of the whole body we are talking about.

Won't belabor the point I want to make other than to say this: My medical history fills several discs now when converted from the old manual systems. This history includes over 20 odd ''cutting'' surgeries, replacement hip and knee joints, serious problems with my back including spinal stenosis, arthritis, and two others I can spell and oh so many others. I have been divinely healed of heart problems along with stage 3 (almost a 4) prostate cancer  and I know that one has to remain positive about each and every problem in life that faces them. So, to be positive, I had to develop a ''system'' for remaining that way. It is difficult, but one has to try!!!

Anyway, my point is to support the posts made by other members about aging. So, if any one desires any assistance from me about ''doing something'' about their problems, feel free to ask.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Andros

Age deterioration of the body is different than penis damage with whatever that ensues to a man. Thing about I am new in it. Everybody speaks about compromise, improvement and this and that. If diabetic you take insulin but it makes you normal as long as you take sort of. But my F^@$!ng penis just where I was about to have a blast and had all sorts of plans. It would have been better to crash and die. At least no suffering there once your are dead. It has caused nothing but panic attacks.


Quote from: Steveo on June 03, 2015, 09:48:40 AM
Well my friend, this won't be of much comfort to you but, as you get older and older, parts of your body stop working as well as they once did, and eventually they stop working entirely.  Sadly, that's the nature of aging.  I'm just shy of 40 and in just the last 5 years have seen my body deteriorate to a shocking extent.  I can't imagine what it's like when you're 50, 60, 70 years old.

Keep your health as best you can, because once it's lost it doesn't really ever come back.  You can make minor corrections if you're lucky, but every day it becomes more and more difficult.

Andros

I obviously have not been where you have although I have been through a lot but this is too much for me. What I have already been is too much for others but not for me. This is not the only incurable disease condition I have on me but this is not comparable to anything. Seeing my penis with indentation from one day to another. Having immense pain which I would not mind having it for years so long as someone could tell me that the deformity will go away and you go back to normal. Why not take as an example those who do not have that many health problems. I mean it is not like we speak about diabetes hypothyroidism and the likes.

Quote from: Old Man on June 03, 2015, 10:39:51 AM
Note to all:

Fellows, I will be 86 years old in September this year! Thankfull for each and every day of that old age and being able to do just about anything I want to do. I too know the problems that all of you are experiencing no matter what area of the whole body we are talking about.

Won't belabor the point I want to make other than to say this: My medical history fills several discs now when converted from the old manual systems. This history includes over 20 odd ''cutting'' surgeries, replacement hip and knee joints, serious problems with my back including spinal stenosis, arthritis, and two others I can spell and oh so many others. I have been divinely healed of heart problems along with stage 3 (almost a 4) prostate cancer  and I know that one has to remain positive about each and every problem in life that faces them. So, to be positive, I had to develop a ''system'' for remaining that way. It is difficult, but one has to try!!!

Anyway, my point is to support the posts made by other members about aging. So, if any one desires any assistance from me about ''doing something'' about their problems, feel free to ask.

Old Man

Andros

This is an issue that I will not make concessions or sales. If the deformity does not dissolve and go back to normal without afterwards having to follow things like pumping my dick which lets face it is not the best thing in the world, wearing traction devices and the sorts then that is it for me. This is too much crap. The last 10 days I thought it is an injury I may heal. I will pump the dent and this and that. Now with this pain and understanding I know where this is going. More people have responded in my inbox telling me they had no success with eliminating indentations that informing me that it works. The pain is my constant reminder that this is not a simple case of injury and it will not go away. I am already affected by the dent. It is not the most logical thing to say I will put all my hopes on the pump. Spend money and waiting for an extender. I take a lot of pentox and nurophen. I will soon have a pump yes, but despite all this I am not sure will end in a year and look back at it and say hey it is perfectly as it was before. I have no more no worries. This is not the case.

Quote from: Glassglue on June 03, 2015, 10:24:16 AM
We all feel your pain Andros and I wish I could make you feel better. The measure of unhappiness is the distance between expectations and reality. At only 28 you expect to not have to worry about your dick. But that's not reality right now.

Best I can do is to tell you that it is not as bad as you think it is or will be. I am only recently into this myself and just because I'm older (54) it's not really much easier. Your penis is an extension of your ego and any malfunction seems to be a dagger in your heart and a confirmation of your mortality. Again this is only confirming the reality that always existed. You just aren't allowed to ignore it any more, maybe sooner than you would like and sooner than many.

You WILL be ok. Just take my word for it. You are younger and more resilient than you even know and life is long. You will recover and be happy.

kuaka

Difficult when in pain, but patience.  I have more pains in other parts of my body than a man twice my age should due to some rather severe injuries I've survived...but I've survived.  There is still joy and pleasure in life, even with daily...continuous...pain.  Keep looking and trying various things which "may" help, and "have" helped some and you stand the best chance of coming upon the combination which is effective for you.

Glassglue

Andros
I said you would be all right and that is true, you will be. You may not be exactly the same, but it will be all right. Even if you get your dick back to 100% (and it may be possible you could do that) you will not be exactly the same person for having been through this. That's ok too. It's just how life works.

You've got people around the world thinking of you right now and wanting to help because we've all been through or are going through this, and even worse things, and we know how it feels to be disappointed. So you're not alone at least.  

Andros

To be honest I will not go into detail of all the things I have been through for my age but this is the absolute worst. I cannot explain how important my penis is to me and by that I am not suggesting that to others it is not. I mean that even the details, how it was everything.

I spoke again with my uro and he said that I have to wait for 6 months to know the outcome. As far as potaba is the only one with indication from European association of urology. Vit e is just supplementary.

Another uro I asked out of the country said that potaba and vit e has been greatly discredited and now trental is prescribed. Well I have not gotten my self potaba and vit e but Pentox has been the first thing I bought.

Penis extender was recommended by my uro and the second uro said that it is not a bad idea. So the first got it wrong as to supplements but the second was honest that basically you cannot do anything. That is what the first said too after being on the phone with him for half an hour.

The indentation I caused is causing me immense pain I increased my pentox and ipuprophen to 6. The pain is constant reminder that I am getting worse. At least that is how I see it although from what I have been advised here it is not definite.

There are great advocates for Ved here and Old man and James said that they got rid of dents and hourglasses. Others in pms said they had no change and not even with indentations such as mine. So I have to let my self know that it is all anecdotal in the end of day.

Even the Ved and traction changes the studies are not controlled, specimens is too small non randomised as the subjects must have volunteered, there is no follow up to show how permanent any change they saw was. And in addition we do not know how many studies thy conducted where there was no change on the penis but they chose not to reveal the study. I mean these are dead cheap studies. Give 10-15 blokes a penis extender worth 20 quit probably tell them to put it on for a year and come back. Also no pictures of the results on their penises if any, before and after.


Andros

I also had an extensive discussion about surgical option in the worst case scenario and I expressed my fears. Plication nesbit operation would be out of the question. Cut and shorten your penis F~@< that. The other with removing and implanting a piece of fat or cadaverous tissue caused ED among other crap but you do not get shortening considering that you do not get infected and or reject the implant. And last is the implant which again is crap because as he explained there are arteries which extend in the diameter of the penis and hold the blood are dissected  so the feeling is not normal.

So all in all not only the other side of the tunnel is crap and I know some of you say well I lost this size that size maybe at age 60 but it is just due to compromise but for me it is out of the question. I am now faced with removing the indentation and I am not sure if it is possible.  

james1947

Andros

Make a search on the forum main page regarding Dr. Kuehass technique.
No shortening there.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Andros

That German Centre of urology claims to be able to operate without shortening. In fact I was on the phone today with their old surgeon for lengthening, girth enhancement, peyronies, congenital curvature, as he also has a separate practice and I am waiting a call back tomorrow to discuss further. Surgery on that particular place of the body is at best a measure of desperation. I had multiple surgeries elsewhere and there are always complications to some extent. Implant not plication does cause shortening but causes ED because the autologous fat tissue or other type of implant well is not penis. It does not respond nor expand. If it did then true penis enlargement an reconstruction would be possible just like lets say other plastic surgeries.

Andros

Just to notify a few. When your inbox is full it does not allow the sender to PM you. I cannot respond to two people because their inbox is full. You have to delete.

LWillisjr

Quote from: Andros on June 03, 2015, 06:12:47 PM
Implant not plication does cause shortening but causes ED because the autologous fat tissue or other type of implant well is not penis. It does not respond nor expand. If it did then true penis enlargement an reconstruction would be possible just like lets say other plastic surgeries.

There is an implant does increase when inflated. And if it is properly sized when implanted there should be no shortening. A lot depends on the skill of the surgeon and there are many horror stories out there unfortunately.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Andros

While speaking with a uro with no experience in implanting them told me that there are arteries that are perpendicular to the penis. The implant option cuts them and the penis hold no blood after that so the feeling cannot be the same. I mean it sounds logical. It is not just about having a straight thing down there with skin on top of it to be able to penetrate. Those implants when they inflate the implant they have no veins on their penis on outer engorgement sort of and its logical. Not that other two options are any good. Either cutting the penis short what a terrible technique or removing the plaque but also removing part of the penis and having to throw a piece of fat there like a lump that won't function. I mean really no matter how you see it is crap. I am still in stress about the way this is going to develop. What improvements I might see or not see. Whether It will get worse, will the pain subside. F^@% that. And that xiaflex can cause gangrene what else is there to say.

Andros

How does the scar tissue feel. Is it lumps? Does it take time to form. Is the deformity of any kind visible from the begining.

Uro said there is no plaque. At least visible on the ultra sound test. He said scar tissue is there but if it becomes a plaque then you have the disease.

What I cannot understand is how long will it take to know for sure. I have pain when not erect. Ihave vissible indentation both flaccid and erect.

Lucketts



There is currently work being done and clinical trials on botox and stem cell (taken from your own body) injections.  I personally feel that the solution and resolution to peyronies disease may come from the latter.  Check out NIH clinical trials.  Just wish there was more funding provided to NIH for peyronies  When I asked my urologist why there wasn't more $ for research, he shrugged and said cause it won't kill you.

LWillisjr

Quote from: Andros on June 03, 2015, 06:53:42 PM
While speaking with a uro with no experience in implanting them told me that there are arteries that are perpendicular to the penis.

I suggest you talk with men who have had the surgery and not take advice from a urologist you admittedly has no experience with them.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Andros

Well your urologist sorry to say is dumb. It is not because peyronies does not kill that there is no funding but because most people do not know about due to the low percentage of men suffering from it. 3% or so? Many think ah bent penis that is peyronies. But that is not true. And also I did not know that it appears usually after 50 or 60. So with such a small amount of people comparatively to other diseases why would they spent that many millions in research and development in a cure or treatment that should be relatively an one off deal. I mean they canno get you on a pill which will dissolve the plaque as long as you take it.

So no crazy profits no reason to put money in it. And even then without plaque the curve and deformity does not always correlate. Some reduce curvature in studies with no change in scar tissue.

Quote deleted by moderator - James
Please read the forum rules!!!

Andros

I agree, it is true, people who had surgery are the ones to ask. But look. An operation that will remove a healthy piece of my penis so that it straightens well it is desperation to say the least. That is how I view it. I believe that there should be a better option.

If you for the second option and remove the plaque instead the new tissue causes ED. It makes sense. A piece of fat or cadaver or silicone or any of the options cannot function as penis. If they did we would no be here and would have been able to have penises on demand.

Implants well it has always been my question. How do they feel. Sensitivity and everything. Considering that they are the last option.

Lets face it the disease does not give you light at the end of the tunnel in any case. They manage to attack cancer and sometimes successfully eliminate it but not scar tissue on the penis. Well that is sad.

Quote from: LWillisjr on June 04, 2015, 07:03:37 PM
Quote from: Andros on June 03, 2015, 06:53:42 PM
While speaking with a uro with no experience in implanting them told me that there are arteries that are perpendicular to the penis.

I suggest you talk with men who have had the surgery and not take advice from a urologist you admittedly has no experience with them.

Andros

Ok the pain os for the most manageable now. Not sure whether or not is because of pentox and ipuprophen. I now feel tightness sort of. The indentation is the same and I feel the tightness when erect.

Can someone explain how should the scar tissue feel if it is peyronies plaque? Lumpy or anything like that? Please describe. Mine feels like strings.

Not sure when to have the 2nd ultra sound to check what is going on. The uro said If I have no plaque until month 6 then most likely it will not form. Any truth in this from someone with experience?

james1947

Andros

You will find all the answer if you will invest time and read the forum!!!

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Andros

I read the forum more that you can imagine. I have indentation I have scar tissue. I am not sure as to what actually qualifies as peyronies. Is it the calcification that shows on ultra sound?

I have curve have bent from previous years. Now I have Indentation on my right side and penis from injury. This is my confusion.

As far as studying I have read all the section about studies treatments etc from oral medicatio  to stretching to ved. I only left thensurgery stuff out.

I also read members experiences. Others say it can be just scar tissue just like elsewhere on the body or it can be a case where the body reacts upnormal.

Glassglue

My take is that no one really knows what it is or what causes it so it doesn't matter. It could be multiple different conditions with multiple causes. No point trying to figure out differences if the treatment options (or lack of) are the same.

As for not funding research because it kills no one I have to note that this is the only bulletin board I've been on with an ongoing discussion about suicide. I was told by one urologist that I should be happy I'm not seeing him for a fatal disease. I agreed and left. No follow up appt with that one thank you.  

james1947

Sadly Glassglue, everything you have written on your post bellow is 100% true.
Don'r have what to add to it, as this is the naked true.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Andros

Well my question I guess is could you have scar tissue that is never calcified? If one has calcification then my take is that no amount of ved or stretching will make any difference.

An update thus far after two weeks the pain is somewath manageabe but after e few erections and massaging and manual stretching just like in xiaflex instructions my indentation is worse. Also I now feel it. Before I could only see it now I feel there is something there without touching.


LWillisjr

Quote from: Andros on June 04, 2015, 07:56:54 PM
I agree, it is true, people who had surgery are the ones to ask. But look. An operation that will remove a healthy piece of my penis so that it straightens well it is desperation to say the least.

Which is why we only recommend as a very last resort. Try everything else first.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Andros

Ok an update.

Pain is reduced. There are are times when it gets more intense but overall now is less. Yesterday for example it got bad in the evening.

Pentox is at 6 x 400 plus ipuprophen with every pentox.
Cialis 2.5 each day.

After roughly 15 days the scar tissue is more palpable. The dent after a few erections seems to be getting worse. It is more vissible and the area beneath ti harder.

I got today a manual vs pump like the ones for break bleeding kit. It is the best hand pump out there as in durable and pretty accurate. No sudden change in pressure when applied. I am waiting for a cylinder. I understand that for peyronies very mild pumping not to the point of fully erect or causes discomfort and not for prolonged periods.

Andropenis should be here in 5 days for traction.

I will be adding potaba as I am in the beginning and allegedly is where potaba may do something. I know most here saw no difference from it. Old man told me in 95 when he started he took like 13000 tabs a lot of vit e and did nothing.

I will be adding nolvadex as well at a dose of 20 x 20mg each day. Not sure where this is going but to be satisfied the indentation at least has to vanish.

Steveo

Quote from: kuaka on June 03, 2015, 10:06:27 AM
"plaque" appears to be somewhat of a misnomer.

I agree, it bugs me when people call it a plaque or describe that they want to "break it up."  It's not some adhesion on the skin, it IS the skin.

I personally think that peyronies "plaques" are pretty much the equivalent of hypertrophic scars.  Hypertrophic scars can form anywhere on the body if a wound takes too long to heal.  Fortunately, hypertrophic scars can be remodelled and often turn into normal, non-raised, pliable scars.  The only problem is that this can take years.  And if the internal wound in the penis never heals then it turns into calcification as a last emergency measure by the body and then I don't think it's going away without surgery.

I believe that traction and VED mimic the standard compression, stretching and massage that is normally used to help hypertrophic scars mature.  Compression may help too though I haven't heard of it ever being tried.  Unfortunately since the scar is under the skin, silcone sheeting is of no use.

Glassglue

You are doing very well Andros. You are doing everything known to man to help yourself and for right now you have to feel good about yourself for making an incredible effort to get yourself to that point. I know how much work it is. The first step is to arrest the progression and if your pain is subsiding then it is likely that you are making progress there. I attacked mine in pretty much the same way and after about three weeks the deformity stopped increasing. I have no idea of course if anything I've done is responsible for that but at least I'm no longer panicked.

So I'm not much further along than you having been taking the meds for about six weeks. I'm tired of all the pills already, and I just switched from a topical testosterone supplement to an injectable which should work better. But I have hope that the ved and drugs may improve my poor dick over the next six months.  It has a couple of dents and fairly subtle curves and feels lumpy but the plaques are still soft at least and it is usable and although I am very unhappy still I know it could be a lot worse.

By the way are you getting your testosterone levels checked? I think that is what the nolvadex is to improve if I remember right from my body building days.  

Speaking of which am also interested to hear how you do with the ved being young and on cialis. When I do it trying to follow the protocol you cite I get fully erect after a single pump and stay that way for the whole session. I've had to modify the process to still pumping while erect but not to the point of causing significant discomfort. After two weeks I've not had any bad effects as a result (nor improvement for that matter but then it's only been two weeks).  

Andros

My left side has a lot of scarring for as long as I can remember. The new indentation after the pain has subsided is harder now. I can sense it and feel it. The penis does not feel soft there when flaccid. My testosterone levels are checked and they are fine. Erections are hard but the new indentation is there and it feels tight when erect. Not sure where this is going but now I know more about the disease I know I have it. It is not just my natural congenital curve I had which caused the problem in the first place. I can now feel other scar tissue I have just like you describe with your case. In the past I did not know. I am not sure whether because I have no calcification is why I never visited the uro for this. I can feel pain further in my groin beneath the pupil bone which indicates that the torque applied on my penis due to the previous curve and deformity has caused some new scarring there as well just not visible.

Even without cialis my erections are ok. What I want is to progress no further and eliminate at least the indentation on the right side of my penis which was my healthy side.

I have added potaba today. No side effects from any of the medications but generally as far as meds go I have massive tolerance. I usually get no side effects with very few exceptions in the past where in some medications I can recall I could not stand them from day one.

I am not interested in gaining size or any of that kind of stuff. I just want my penis to be healthy again. The indentation to go away and scar tissue to dissolve so that I can see what I used to.

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