treatment for venous leak

[james1947]

Dr. Kuehass is right, an Iranian research regarding Pentox was dismissed.
From the other side, let's don't forget that Dr. Kuehass is first of all a surgeon.
Leading US Peyronies specialists are prescribing Pentox 3*400 mg per day, sometimes as high as 6*400 mg per day.

James

[skunkworks]

I dont think you would get any benefit from the surgery for the soft glans. You should try other treatments like xiapex or PRP or pure STEM cells (difficult to find). Speak with dr Kuehhas about all this.

Soft glans can definitely be caused by venous leakage so the treatment might help. There were a few cases a while back on another forum where people had their soft glans cured by having a procedure done by an interventional radiologist, who would embolise the vein. Far less intrusive - [Long-term results of the veno-occlusive percutaneous treatment of erectile disorders of venous origin]. - PubMed - NCBI

[yyy]

With surgery I meant his surgery, stage technique. Not the surgery for venous leakage

[james1947]

skunkworks

The research in the link you have provided is from September 1998, it means 17 years ago.
Do you know if have some followup? Something happened in those 17 years?
Or is a dead end like so many promising treatments for Peyronies and ED.

James

[skunkworks]

It is a surgical (percutaneous) procedure so there will not be the same sort of study coverage as for pharmaceuticals.

http://www.jvir.org/article/S1051-0443(14)00046-3/abstract

Venous leakage treatment revisited: pelvic venoablation using aethoxysclerol under air block technique and Valsalva maneuver. - PubMed - NCBI

A young man with position-dependent erectile dysfunction: diagnostic work-up and interventional therapy of an arteriovenous malformation


This is a procedure performed quite often now, it certainly has not been a dead end. I've posted about it quite a few times in this very forum. It is a legitimate solution for venous leakage, offered by most hospitals with an interventional radiology department.  

[james1947]

Thank for the links Skunk

It seems that is a real available ED treatment.
I will try to see if the treatment is available here where I am living.
I will not check in Singapore of Thailand as they are very expensive. Like implant surgery is double than in the US ( US $12,000 to $20,000) without extras.

James

[Pfract]

"Dr. Kuehass is right, an Iranian research regarding Pentox was dismissed.
From the other side, let's don't forget that Dr. Kuehass is first of all a surgeon.
Leading US Peyronies specialists are prescribing Pentox 3*400 mg per day, sometimes as high as 6*400 mg per day."

James... what about the papers from Tom Lue on pentox reducing scar tissue...? i can search them if you want.

[james1947]

Pfract

All we have about Pentox is in the library board
Peyronie's Disease Resource Library - PDS - Peyronies Society Forums

James

[Dared]

So will this procedure cure ed caused by peyronies or just venous leak?  

[poppedknob]

This what I found on London Andrology Institute website:

Penile Sclerotherapy
A common cause of erectile dysfunction, especially in younger men, is venous leakage, which is estimated to be present in 30 - 70% of cases. In a healthy male, blood that flows through the arteries is trapped in the erectile tissue, which in turn leads to increased pressure inside the penis and a rigid erection. In patients suffering from venous leak there are some structural deficiencies of the blood trapping mechanism, which results to blood leaking during erection to the nearby arteries and in turn soft or complete loss of erections.   Patients with venous leak will usually suffer from erectile dysfunction from a young age, which in many cases is position-dependent and often report that their penis glans are soft during erections. Our doctors can easily diagnose venous leakage through an ultrasound test.
Unfortunately, patients suffering from venous leakage respond poorly to oral drugs. A common practice has been the use of a penis ring, which is an elastic band tied around the base of the penis, after erection has been achieved, which in effect restricts the penile blood outflow. Beyond the impracticalities of using a penis ring, there are also health risks resulting from extensive use, which can lead to nerve damage and a deterioration of erectile dysfunction. Whereas surgical options for the treatment of venous leakage have been around for a long time, their outcomes have not been satisfactory.
At London Andrology Institute we have pioneered a technique called sclerotherapy, which is the only scientifically reported technique that successfully cures venous leakage. It is a minor surgical procedure under local anesthesia , lasts 20 minutes and patients can return almost immediately to everyday activities after the operation.
In effect, a special material (Aethoxysclerol) is injected in the main vein of the penis through a small incision, which results to a shrinkage of the pelvic veins. In this way the blood outflow during erections is minimized and a rigid erection can be achieved. Two x-rays are taken before and after sclerotherapy to confirm the vein shrinkage. The advantages of this technique are summarized below:
Minimally invasive, low cost treatment for venous leak with no serious side-effects or complications
Complete cure of erectile dysfunction reported for 63% of patients and significant improvement (patients become responsive to oral drugs) reported for 14% of patients, giving an overall success rate of 77%
Interesting to know how many man were treated with this treatment.
I sent them an email, asked for price and where the treatment is available outside the UK.

James

I am interested in what you find out.  I've had this condition since I was very young(I knew I had this problem when I was 13 without knowing anything about the condition or cause) and only now just finding out what it might be from a new doctor.  Mine seems to me be caused from self-corrected Peyronie's.  

[Rizzomc]

It's a real shame that razor hasn't given any follow up. This is pretty common on many forums where guys get surgical procedure done for ED. You hear a lot from them early on and then they go missing entirely!
It suggests to me most likely that results begin to head in a negative direction and this obviously depresses the person and they feel no worth in communicating the situation with everyone. Understandable.
But disappointing and deflating for the rest of us who have great hopes

[james1947]

You are wrong in your assessment Rizzomc:

...results begin to head in a negative direction and this obviously depresses the person and they feel no worth in communicating the situation with everyone

People are selfish, what to get but not to give, usually if what they have done is successful they just disappear.
Some even writing on the forum they don't have any interest anymore to be around here, like one guy in the past:

I am strait, don't want to spend time around here, not see you again

They are back if they situation is bad again.

James

[Pfract]

Yes.. I do think it's a bad situation. But he has shared is results on FT though... And they are positive! I'll post the link sometime later on.  

[razor1]

Actually I have provided updates on FT. I stopped posting here for a few reasons
1. Last post I made, I got told off for not following forum rules about quoting
2. Some members here seem to assume negative / attack and generally seem unfriendly/ non appreciative as Rizzomc / James have below.

Anyway, here is my last update. If you want to read more you can look at the thread on FT.

I had some hormone issues, with gyno starting a month or 2 before the operation, and my dr had said to wait and see. I went and saw my uro after the operation and my Estradiol was in the upper normal range, and free Test in the lower normal range. I was put on medication to lower the estradiol.

I've now managed to get my hormones in check, with Estradiol about mid to low range and free testosterone mid to high range, and my erection quality is good and seems to be improving daily. I assume the penis smooth muscle is getting stronger with more testosterone and less estrogen.

I'm waking with very hard morning wood each day, and am able to get very hard erections alone easily and they don't go down quickly. I still take 5mg cialis daily, and have been using viagra before sex (more until I have the mental component sorted, as alone I have no issues). The glans are also a lot harder always (they never used to get hard)

After having issues for so long the mental concern/worry about failure can still cause issues getting/maintaining erections. While alone I can get and maintain easily, sometimes when having sex if I start to worry etc then I will begin to lose it. I think it's really important to try and deal with the mental side as well as the physical.

Seems like my cause could be a combo of multiple things - venous leak, sub-optimal hormones, mental/performance anxiety.

[LWillisjr]

2. Some members here seem to assume negative / attack and generally seem unfriendly/ non appreciative as Rizzomc / James have below.

Sorry you feel that way and didn't mean to run you off. Our forum is structured a little differently than many on the internet. Both in the way the topics threads are structured and there are rules on how to post. The moderators spend a lot of time to help comply, watch spammers, etc. We all get a bit frustrated when people can't take 5 minutes to read the rules and comply.

[Pfract]

Razor1, indeed one feels a bit put off at first, but don't get discouraged. Thank you for sharing your experience with us. I have been following your thread on FT also. Best of luck and hope you get cured..

[ihavegivenup]

I accidentally came to this thread and thought maybe my experience could help some people who are anxious to go to this disappointing doctor.

I have undergone the surgery of Penile Venous Stripping combined with Curvature Correction and Varicocelectomy by Geng Long Hsu, and Penile Venous Stripping only for the second time by same doctor after couple months, and I would like to share my frustrations and Geng Long Hsu's failure in fixing my problem.

To begin with, the reason why I have had to gone through the second surgery was the first one didn't work at all, without any positive impact on my erection but with a bunch of undesirable side effects. Until now, many surface areas of my penis are still numb and the length is about 1.2 inches shorter than before operation. The most important thing is my erectile dysfuntion has not improved at all, not even for a second, and has even gotten worse.

Also, the Curvature correction and Varicocelectomy sugery were sold to me, out of the blue, by the Geng Long Hsu when I was lying on the surgery table with my lower body naked and ready for the Penile Venous Stripping only. He abruptly said I would be a stupid men if I didn't accept the extra two operations combined with the Penil Venous Stripping. As a result, I reluctantly accept the other two operations to prevent him from blaming the possible failure on the lack of the extra ones, even though I thought my penis was not curved at all. However, it turned out to be a big failure even with these two last-minute added operations.

Some may interested in how painful the surgery was. In my case, it was very painful and I had no choice but to suffer the whole process because it was only local anesthesia. The most painful parts were my sore back, which started aching only three hours after the surgery started and kept soaring within the 12-hour-long operation, and when the doctor was not aware of the anaesthetic decay, which caused dramatic pain. Those days after surgery were also quite uncomfortable, I couldn't stand or sit well until three weeks later.

Geng Long Hsu always told me that it would get better and all I had to do is be patient. Now, it has been several months and nothing has improved. I still can not erect properly.

If I had had the chance to know the surgery was so ridiculous, useless, and harmful, I would not have had myself in such miserable situation and wasted so much money on this tragedy.

[Hawk]

I wish you had checked the forum and you would have known that risks and the negative results of such surgery.

I am going to likely split this post and move it to the ED section of the forum since this is an old board that is no longer used.  I will leave a link so you can still post and follow the topic.

[Christopher1]

Thank you for sharing your experience with this surgery. I am sorry to hear about what happened. = (

Is it possible for you to get an implant so you can go back to a normal level of function?

[Pfract]

What I am so impressed, is how many guys in to this doctor which shouldn't even be practicing to begin with.

I remember Talking with a Portuguese guy, back in 2015 only one year after my fracture that went there to Taiwan, spent all his money and got no results as well.

Never heard from him since... It's sad :/

[Patientxyz1992]

I readed all of papers from dr hsu and i dont know what to think, when you look at his papers you will see that he knows penile anatomy and i doubt all of his work is fraud, and on numerous ocasions he is saying that penile tissue heals slowly even up to 2 ywaes