The only close peyronies specialist to me...

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notscared

February 01, 2015, 04:37:16 AM
I had to travel an hour to see him. after waiting for an hour or slightly longer i saw him. It was less then six minutes. He never looked at my penis.

His name is Raffael Carrion. Supposedly he created and patented quite a few of the devices and is VERY popular. You can look him up if you are un-aware of him.

This was about a week ago. He just said "be back" then a nurse came in and gave me this pre-printed panphlet that said to take a bit of cialis and pentox as well as a low dose of l-arginine every day.

Does this mean i have peyronies if he never even looked whatsoever or scanned me with an US? I'm gunna assume i don't until then and just take the medicine to be careful.

Old Man

#1
February 01, 2015, 08:00:10 AM
not scared:

Sounds like you got the typical/standard visit from a doctor who is not really experienced with Peyronies Disease. I would strongly suggest that you get an appointment with another uro who is more knowledgeable of Peyronies Disease as well as ED if you have that problem for a better diagnosis.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

notscared

#2
February 01, 2015, 08:40:09 AM
Old man,

If he was unknowledgable then why did he have a pre-printed panflet with ALL the recommended treatments they recommend on this forum?

He didn't say "just rub some vitamin e on it"

He gave me the pentox and cialis. I'm assuming he didn't give me a VED because i told him that i get erections that are almost normal (well besides the bend) very easily.

nemo

#3
February 01, 2015, 10:11:34 AM
It doesn't matter what he knows or doesn't know - if he couldn't take the time to examine you or even come back and talk to you, you got a dud, his "reputation" notwithstanding.  Old Man is right - find someone who cares.

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

notscared

#4
February 01, 2015, 12:48:54 PM
He talked to me nemo. For about 6-7 minutes. Then just left and a nurse came in and gave me a peyronies panphlet (he is a peyronies specialist) and now i'm on cialis and pentox.

james1947

#5
February 01, 2015, 03:02:14 PM
notscared

I will add my opinion to the others expressed here.
It seems that he is so big specialist in Peyronies that he can see you have Peyronies just from watching your face and talking with you 6 or 7 minutes.
More low level specialists will palpate your penis and make an ultrasound.
The good thing is that he put you on Pentox and low dose Cialis (in case you have Peyronies).
By the way, how much daily Pentox and Cialis?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

notscared

#6
February 01, 2015, 05:35:39 PM
James, 5mg cialis every other day. 800mg pentox daily.

james1947

#7
February 01, 2015, 10:07:17 PM
notscared

If you can tolerate it, increase Pentox to 3*400 mg daily.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

gringoviajero

#8
December 05, 2015, 07:32:59 AM
Something is amiss here.  I know Rafael Carrion at USF Health in Tampa.  He's my doctor and this week performed the first Xiaflex cycle on me.  As I've said here in other posts, I would encourage anyone within driving distance to see him.  There are other "Dr. Carrion"s in Florida, and at least one in Miami that also deals with Peyronie's.  Rafael Carrion with USF Tampa is a "name" in the field nationally.  My uro at Chesapeake Urology in Baltimore recommends him highly.  He has an excellent manner, listens and doesn't patronize.  I encourage guys to find out for themselves.

skunkworks

#9
December 05, 2015, 09:52:09 AM
gringoviajero - did he diagnose you using ultrasound?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

gringoviajero

#10
December 05, 2015, 03:57:06 PM
No, my plaque is obvious.  It's like a rubber band .5" wide and 4" long on the side.  It's not hard but very firm.  When he put in the needle, the syringe stood up on its own, the tissue is so thick.  His colleague did the first injection and Dr. Carrion did the 2nd.  I told him his colleague was too conservative, so Carrion went to town and had that needle all over the area where I thought it the most necessary.  Now I'm black and blue and dark red, of course, but little swelling (nothing compared to my reaction to my bromelain compound).  After what I did with bromelain, this is a walk in the park.  I'm optimistic and have my own regimen of modeling, with which he agreed, which will be better than that little tug, pull and bend nonsense Auxillium has.  They're too afraid of lawsuits, in my opinion.

gringoviajero

#11
January 05, 2016, 07:59:18 AM
As a follow-up, as I have on other threads: 5 weeks post-cycle one and no improvement at all.  I go back to Dr. Carrion, USF Tampa next week for cycle two.  This will be the last as my new insuror, Florida Blue, doesn't cover Xiaflex.
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