Penis is getting mushy, and it hurts after VED

[niceguy]

I had Peyronies since I was very young (under 18) and I had a girl sit on my penis with clothes on and my penis collapses at the base of the penis, like it didn't collapse all the way but a huge part of my penis popping outward and tore down. Since than my penis had a huge bend up starting at the VERY base of my penis, but it is VIRTUALLY undetectable because it occurs almost before the penis comes out of the body so there is no real visible bend on external portion of the penis, it just seems like my entire penis comes out at a rediculous 90 degree angle apon erection. I am 27 now (It started when I was under 18 from what I told you) and since than I've lost 2 1/2 inches of my overall length. Now it seems like my entire penis is starting to curve now and I can feel a hard wire running diagnally through my penis where the initual injury started, it seems like the scar wire is getting thicker, and longer over time and that's causing the shortening causing the entire penis to bend. If you're wondering why I haven't gotten my penis surgery done by now since I've had the disease for 10 years is because doctors are f'^+'ing stupid. They expect all bends to be RIGHT IN THE MIDDLE of the penis, and can't even comprehend or wrap there heads around the fact that scar tissue can form at the base of the penis, and even affect the penis that is inside the body internally and the bend doesn't have to occur on the external/visible penis. So because of lack luster doctors telling me I didn't have the disease over and over, even though I couldn't have sex EVER IN MY LIFE I wasn't able to get treated and all the doctors made me feel crazy. Secondly, there is a HUGE fear aspect. And I've already lost so much length I feel like if I wait longer and try VED again it will somehow give me some length back before surgery but what keeps happening - is what my question is about - is everytime I seem to use it doesn't cause ANY pain, but the day after it does. My penis feels MUSHY, and there are like RINGS around my penis, for the next few days after doing it, and my bended areas feel looser, like I reopened my scar tissue. So I end up stopping doing it, and than have to wait several months for my penis to "stabilize" again, and it usually seems shorter, than i want to try to VED again to regain the length I just lost. Here I am again, 10 years later, with the same question I've had, should I stick with the VED after these symptoms I've been experiencing, or should I just wait for my penis to stabalize after these recent injuries and just go in for surgery once it does?

[niceguy]

Like I said, there is absolutely ZERO pain while doing VED itself. But I do have pain days with 12-48 hours and than all the OTHER symptoms to listed above (mushy penis, ring lumps around penis at NON-scar areas, and the spots that are bent are much looser which scares me and makes me feel like I re-ripped the scar areas causing my bend to loosen up.)  

[NeoV]

STOP NOW, the rings are lymphatic vessels and the mushiness is called edema. You will rupture your lymph vessels soon and cause the "donut effect". My penis is now chronically mushy after over 1 year of rest. No surgery can fix it and the damage is likely to be permanent.

Pain from VED is serious, pain from lymph damage is very serious and you will be in hell once you realize there is no healing from the damage. Remember this, the pain I had was actually quite small, and the lymphoedema as well, but even that amount of pain was all it took to permanently damage myself. Warning signs were few and little, I was shocked. I did not over pump nor did I hold for very long.

VED should only be used when there is no pain, and minimal swelling at best. It should not be causing lymphocele and pain.

STOP VED !

[niceguy]

Quote deleted by moderator - James
Please obey the forum rules!!!
Hit the Reply button to answer and not the Quote.

Okay I'll stop but I have a few questions. The mushyness is mostly when I soft, and it goes away. When you say it goes mushy permanately do you mean when you are erect or soft? And what are the bad things that come with having permanent mushyness? And are there any other damage I may have caused.  

[niceguy]

Does anybody else have any input, please?

[james1947]

NiceGuy

I understand your frustration for not getting answers from forum members except NeoV.
I suppose it is because they didn't encounter your symptoms.
I don't know from which part of the world you are (you forget to fill country in your profile) so I can't advise you a Peyronies specialist in your area, but you have to see one as soon as you can. Not a regular urologist, a Peyronies specialist.

James

[NeoV]

Erect and soft permanently, and it doesn't stop getting worse once you start to damage them from my experience.

The bad things are that aesthetically it looks bad, sex feels worse because of loss of sensation due to the fluid build up, and edema of the glans can make it so it's difficult to ejaculate since the sperm can't come out as easily.

Moreover, any damage is likely to get worse over time, and there is no way to treat this. Compression is a weak attempt used in severe cases but even that does not get rid of it. I fear that as the years go by my case of penile edema will get worse and worse with no solutions. It's already to the point where I feel bad on a daily basis.

I believe Tom Lue was quoted saying that the edema is normal and not a problem, but pain and edema is a big problem in my opinion. I will have a chat with Lue in the next year or two about this and see if there is any way I can ever recover.

I am no expert, but remember, my damage came with little warning, and only mild pain or stinging when pumping relatively low.

[ryanchan]

How does one define "mushy"?

How is it different from a soft flexible penis?

Does it feel like there is fluid build up that can be pushed out?

[niceguy]

I don't know, it's feels - different. I've had the problem for the last 10 years or so everytime after injury even my girlfriend (before she cheated on me for the disease and we broke up) noticed it. Like normally my soft penis is the side of it feels a lot more rigid, not like hard, but more dense. When my penis is "mushy" it's my penis is a sack of water as opposed to a limp penis.

[NeoV]

Mushy and "a sack of water" is edema. This is not the healthy response we someone's get after a VED session that makes the penis more elastic. Edema is very clearly different and its aggravated by sexual activity.

[james1947]

Niceguy, you should see a Peyronies specialist!!!

James

[Thisismyusername]

Niceguy, I don't have any experience with this but since you asked for other opinions, I'll just say that I agree with NeoV that you should stop VED and it does sound like the problem could likely be edema.  I wouldn't use the VED unless you are getting a clear benefit without any side effects.  In your case it sounds like it is just aggravating things.  

[niceguy]

Well, when it's like a sack of water, it's not swollen at all.. The skin and my limp penis just feels abnormally soft.

[LWillisjr]

Does anybody else have any input, please?

NeoV was interacting and trying to answer your questions. Frankly I agree with what he is saying and I don't see a need to post anything unless I have something additional to add. While almost 10,000 people have joined our forum, we probably have less than 20 active members at any one time. But have hundreds who are reading and looking for information.

You imply but haven't said whether you can achieve an erection. You say you can't have intercourse but didn't say why. You have no external curvature but commented about your erection angle which is the angle it is at the base. And you say you have no pain.

1. Can you achieve and maintain an erection?
2. What is your erection angle? (Parallel to the floor is 0 degrees, and the +/- upward or downward)
3. What keeps you from engaging in intercourse
4. What are these scar areas you refer to?
5. Who diagnosed you with Peyronies?
6. Besides VED what other treatments/meds have you tried?

[niceguy]

When I stated I have no pain I was talking about during VED. I do have pain however during intercourse, that's a different matter entirely also masturbation is really difficult and causes pain as well.

1.) Yes, if I have constant stimulation
2.) 90 degree, starting from the base.
3.) Okay, a few things. 1, the bend starts at the base of the penis meaning my entire penis apon erection is at an offset angle making it when I have sex to have all that pressure to go straight to the scar tissue/bend area causing excrucating pain causing immediate ejaculation . 2.) If I attempt to have sex the partner tries to push the penis down to make intercourse possible, again all that torque goes straight to the base/scar/bend area and reopens my original wound causing me to LOSE ERECTION, as well, as ejaculate, and have pain.. 3, This sounds similar to the others, but after the advancement of my disease it has created a "bowing" effect on my entire penis and it causing my penis to bend in half during intercourse causing ejaculation/and loss of erection from the pain. I HAVE NOT been able to have successful intercourse ONCE in my entire life since the disease developed at 14, and I've had over 5 gf cheat on me because of this matter, and I haven't recieved surgery yet because I am afraid to lose any more length than the 2 1/4th inches I have already lost.
4.) I am referring to the SCAR TISSUE/BEND areas, sorry.
5.) I have been diagnosed many times since i was 14, (4-5x times) I am 27 now and I don't remember the doctors names off hand - but I have had one idiot doctor (whom I already mentioned) who was too idiotic to see that my bend was at/before the base of my penis and was too ignorant of the disease and apparently only thought the disease can only occur in the MIDDLE of the penis and could not rap his head around the fact the bend can be at the very base causing the penis just to be at offset 90 degree angle coming out of the body.
6.) Vitamin E for many years, have to admit I haven't stuck to taking it.

[LWillisjr]

Re: item 2.  Your erection angle is 90 degrees. Your erection doesn't curve but points straight up?

Re: item 3. I really have trouble following your "offset angle" explanation. If you erection angle is 90 degrees then I would understand that during intercourse this would put some downward pressure at the base. And I don't follow the reopening a wound explanation. If something is tearing or ripping open seems completely not natural.

I'm not trying to be difficult. I just don't follow it logically. I have a high erection angle and I can take quite a bit of pressure pushing downward for sexual positions. I would have too much discomfort from the pressure long before there would be any physical damage. You see to have several complications that may or may not be Peyronies related. And any pain or bending would certainly be enough to keep me from ejaculating. So in your case I am completely confused and by the lack of response others may be as well.

Les

[niceguy]

"I have a high erection angle and I can take quite a bit of pressure pushing downward for sexual positions."
Yes, but your injury/bend area is not at the base and mine is, that's why you don't feel pressure at the base and I do when I push down. If you did have the injury/bend there you would feel the same pressure/pain. This is the problem I think you're having, when I push downanywhere on my external penis I am STRAIGHTENING my penis out because my bend is at the VERY beginning of my penis - and that straightening causes pain.
Re Re: Item 2: It curves and it points straight up.

     Re Re Item : "I have a high erection angle and I can take quite a bit of pressure pushing downward for sexual positions."
Yes, but your injury/bend area is not at the base and mine is, that's why you don't feel pressure at the base and I do when I push down. If you did have the injury/bend there you would feel the same pressure/pain. This is the problem I think you're having, when I push downanywhere on my external penis I am STRAIGHTENING my penis out because my bend is at the VERY beginning of my penis - and that straightening causes pain. Okay, to explain what I am talking about you need to understand the weight of the actual penis causes pain, my entire erect penis weight is contradicting my bend which is up. So I got the entire running length of my penis PULLING down on my bend/scar in a very concentrated area, just being erect causes pain. I imagine for you that the tip of your penis, the part that is bending up is sensitive to downwards pressure and that downwards pressure causes pain to your injury area.

Now imagine your entire erect penis length, we're talking 4-5 (dont feel comfortable talking about my actual penis length, especially after how much length I've lost) is all pulling down on your injury area. That's a LOT of weight for a very small/injury area, that weight is going to cause damage and ripping and tearing by itself - not just that - the length is going to add to that weight. Imagine you hold 8 oz with your two fingers, okay, not that bad. Imagine holding a 8oz weight at the very end of a 5 inch stick 2 fingers - it's basically 5x the weight. That's what's happening. It's a lot of weight that causes pain, just by being erect. All that weight is than concentrated on to my small injury area(s) - it f%*cking hurts.
I have the bend in a completely different area - not all the same laws of physics apply the same as to what you are experiencing.

"If something is tear or ripping open seems completely unnatural."
The outside of my penis is not opening up, it's all happening internally. Taking an erect bent penis and STRAIGHTENING it will rip something internally. Try taking a stick with a 90 degree bend and try straightening it, it's not going to straighten out without causing damage to the bent areas.

"You see to have several complications that may or may not be Peyronies related."
Well it IS Peyronies related, I can even FEEL the scars. And I remember the injury that caused the problem, and shortly after the injury the problem occured - just like peyronies. Also (at least) 3 doctors diagnosed me with it already. You say it could be something else, I don't know what else it could be but you may be right. If you ask me it's definitely Peyronies, but it could be something else as well - who knows. Love to hear more input, thanks. And I hope I was more clear this time, I have a bad habbit of being overly vague and I apologize for that.

[Old Man]

niceguy:

Just want to add my 2 cents about your post below. Please if you will, in the future, break up your posts into paragraphs. Your posts appear as just one long paragraph. This makes for very difficult reading, especially for those of us who have an eyesight problem.

Thanks in advance for your cooperation in this request.

Old Man

[niceguy]

I will, and sorry. And I just fixed my last comment to make it easier to read.

[Old Man]

Niceguy:

Many thanks. Now I know how you got your forum name, you are a really nice guy. The rework of your post makes it much better readable and it did not take much of your time to edit it either.

Now, us older gents with failing eyesight can read it more easily.

Regards, Old Man  

[LWillisjr]

I imagine for you that the tip of your penis, the part that is bending up is sensitive to downwards pressure and that downwards pressure causes pain to your injury area.


Imagine you hold 8 oz with your two fingers, okay, not that bad. Imagine holding a 8oz weight at the very end of a 5 inch stick 2 fingers - it's basically 5x the weight. That's what's happening. It's a lot of weight that causes pain, just by being erect. All that weight is than concentrated on to my small injury area(s) - it hurts.

My curve was corrected surgically, I have no pain now.

I am an engineer and totally get the principle of torque applied to your injury area. When I had a curve I could still take quite a bit of pressure before I felt any pain. You seem to be under a lot of pain even under the slightest conditions. So I don't now what to recommend to address your level of pain. I can see where VED usage would cause you pain as well.

[james1947]

niceguy

Maybe I missed somehow, but I went true all your posts and the only oral treatment I found is Vitamin E. It is correct?
You are not treating your pain?

James

[niceguy]

Yes, I have taken Vitamin E. I usually take it for one day and forget to take it for the next month. And no, I don't take anything for the pain.

[james1947]

So Niceguy you should start taking something for the pain as this is your main issue if I understand correct.
Some on the forum using Ibuprofen, some CoQ10 helped, some Pentox.

James

[niceguy]

Should I take something for the pain and continue VED? Or should I just stop?

[james1947]

In my opinion, try a few days without VED while you are on pain medications.

James

[NeoV]

If you have pain from VED, stop. There is nothing else to be said. You are causing some sort of micro damage if you have pain, and it may be permanent.

My only warning signs were SLIGHT and MILD stinging around the penis.

[MisterBee]

Scroll back to the start of this conversation and read NeoV's original reply.

That sounds terrifying and awful, and if it is the situation you are in I would be stopping.

[Baldeagle]

Very, very important to not pump to the point of causing pain!  It can be very tempting to want to keep pumping when you see your penis stretching longer with each pump, but you must resist this urge.

I only one time pumped to the point of discomfort (discomfort is short of pain) so I could recognize how it felt just prior to getting to the point of discomfort.  Now I stop pumping when I get to that point of just prior of discomfort.

You will notice in a short period of time your penis will be slightly longer when you get to this point.  I just started the 3 cylinder protocol 3 days ago, I was 5-3/4" long at day one, now after 3 days I can pump to 6" when getting to the feeling just prior to discomfort.
 

[Thisismyusername]

Don't continue VED if it is causing pain in your penis.  You are not helping your penis by working through the pain.  You are likely making things worse, in my opinion.