colchicine

[sikkidik]

As far as I see colchine is perceived as an old-fashioned treatment in this forum. Yet, is there anybody with any positive experience with it? If so, did you combine it with any other particular oral supplement?

[james1947]

I don't know if Colchicine is perceived as an old fashioned treatment on the forum, but we have 85 posts regarding this drug, including yours. Until you will get a concrete answer (from the thousands of forum members not too many are online frequently), you may want to read them. I suppose reading them, you will find out the answer to your question.
One of the posts is regarding a research you can read here:
http://www.hawaii.edu/hivandaids/Oral%20Therapy%20for%20Peyronies%20Disease.pdf
And here is a concrete opinion:

I personally took colchicine until I read the side effects.  That combined with no studies with evidence that it helps was enough that I stopped.  While most probably suffer no bad side-effects, it has some very nasty potential side-effects almost similar to chemo-therapy for cancer.  No one has ever shown me evidence it helps and no one here has ever report that they thought it helped them.

James

[itsme]

James. U told to be carefull with advice for new members n is always calling up my attention n of some others. I dont work for u and this disease is already bad enough withou a picky guy coming up everytime when we do something thats wrong for u. Egydio, the best doc in the world prescribes colchicine n Im trying it. Vit E is also prescribed by him n I have n uncle who took it n now doesnt have the plaque anymore. Im doing a favor helping new members. And if u dont believe on stem cell treatment please. Dont be rude to ppl who believe. Ur attitude is starting to be picky. Here is not a place to be rude to the others. If u dont agree with something just explain why. Im trying to help and I dont work for u!

[QuackAttack]

If I may way in on this prescription. I was prescribed colchicine by the PA prior to being seen by the URO. I got to about week two-three. The first week was one pill a day (0.6 mg), then one pill twice a day. I suffered uncontrollable diarrhea and was going to the bathroom every 45 minutes, missed a day or two of work. The PA suggested giving me something to stop me up, which I said no thanks.  Saw the URO yesterday and discussed this prescription and he said he isn't sure why she prescribed it to me because he hasn't seen much success with it, which is why he put me on Pentox. Hey, but if it is working for you keep at it brother. For me, it wasn't worth the intestinal problems, which I basically took as a sign that my body didn't want it in my system.

[james1947]

itsme

You have written answer to Jack, who he is?
By the way,what is the reason to wake up this topic after one year?
My problem is that you are giving authoritarian advice's to new members as a high level Peyronies expert and you are not!!!
Regarding my stile of being "picky" in your opinion, I will take your opinion in consideration when your contribution to the forum will reach at least 10% of mine.
Have a nice day, just be careful that someone will not sue you for giving bad advice's. I know the chances are low because is an anonymous forum, but still, proposing you to be more careful with your advice's.

James

[Pfract]

I totally agree with you on this James

[LWillisjr]

I don't view James' comments as being rude... but rather factual. And I consider James to be one of the more experienced members on the forum in regards to Peyronies disease and treatments.

Itsme,
While your English is good it is apparent it is not your first language. And some of your posts are confusing.

[itsme]

What I said about vit E n colchicine wasnt confusing. I recommended that to a guy as it was what egydio recommended n vit E worked for my uncle n he came saying I need to be carefull about what I said. If he doesnt agree is something another one is say that I cant recommend what the best dr in the world is prescribing n at least for now seems to be working for me. Some times Im on a cell phone, as it was the case the u mistake the stem cell doctors. Btw, Ive txted skye n they told me they are really selling stem cell to some doctors for peyronies treatment. It seems they are zahalskys suppliers.

[itsme]

James another day u even told a guy was a troll just because he is hopefull about stem cell n is even helping with research. U dont need to agree with me, but I have all the rights to say what Egydio prescribed me to the others. Maybe Im not here as long as u. But I have 4 relatives who had that and Im just recommending what the best doctor in the world prescribed me and it is worling for me for now. Thats the point of this forum, change experience, even more if what I have to say is what was said by the guy who everybody here talks about. If u take colchicine after eating it will not hurt u n vit E for sure ll not kill u at all. There is no reason here for anyone sue me. It is already stressing to have this disease, even more with u complaining about a broken link as I have done that on porpose or complaining a lot just because u don't agree with a treatment that even the best peyronies doctor prescribes.

[krazylord]

itsme nobody is gonna sue you. Everybody appreciate you sharing your experience. No need to get defensive on James or others opinion. Try to get the positive side of them. I am pretty sure they have good feelings and good intentions when they say smth. It is ok to disagree.

[LWillisjr]

Thanks krazylord,


Itsme.....  calm down.
It is ok to disagree. None of us are experts. It's just in almost every one of your posts you mention Dr. Egydio, Vitamin E, and Colchicine. We understand it worked for you and your family and you want to share that. We get it. It is just that this is first time I have heard that Vitamin E has worked for anyone. And MANY on the forum have been told by their doctors to try. And Colchicine does have side effects, some not so good. So that is what we are reacting too.

You are welcome to disagree with us, just don't get upset if we disagree with you. It's fine.

[elvisca]

Hi guys!

I'm taking (today is day 22) 1.0 mg Colchicine + 400 mg vitamin E as prescribed by my urologist.
By default, most of the urologist will prescribe this oral treatment for 90 days but mine said as long as I feel ongoing results keep taking it.
I must say that I, and she think the same, the lateral plaques sames softener already. The harder one is the one at the bottom, but let see how long this plaque will remain hard.

Good luck guys!

[Paolo]

Thanks elvisca, I will read up on Colchicine, I believe historically it has been prescribed for gout

Colchicine I believe is also used to treat Paget's disease, which has an association to Peyronie's, very interesting

Paolo