I feel like this is my plan for the future. Comments are appreciated

[powderpowder]

If you guys know my story you'll get what i'm saying, if you havent you can go to the my stories forum and my thread to read it.

So i don't have ED with my peyronies, no curvature and no pain really, just a slight hourglass.  5.35" long and maybe 6" girth.

If you don't have ED, and peyronies, with the research I've done if you don't have curvature that severely changes the anatomy there is a good chance that you don't get shortening.  Most of the shortening that guys mention of 1-2" is when they do nothing to combat the disease and already have had ED before the peyronies, (these are just my views and i could be wrong but i feel like this is the majority)  and then they realize they have peyronies and the treatments start.

So if you have no ED, peyronies, good sex life and constant erections then you could be good for a long time, correct?

But once you get ED, whether it is from plaque or age or other normal ED factors, is when the penis can go through shrinking due to it not being "worked out" and getting constant erections such as noctural and morning erections.

I feel as if when this happens, if I get ED, I will have to go down the implant route.  This is because once the ED hits, I think as if the shrinking starts, and traction and VED can only help so much.  The implant will help keep the tissues and plaque "healthy" and not cause me to shrink.  I've been thinking about this alot lately, being that I am 5.35 in length and that I would really prefer keeping as much size as possible.

To add on, yes the pills may work.  But the penis is not getting the workouts and exercise it needs on a daily basis, correct?  Which is where shortening would still occur I believe.  Injections are a turn off to me, as I would not like the idea of pricking my penis with needles (and in some cases people get fibrosis and peyronies from injecting)  so that's not good to me.  The only thing would be is insurance would probably want me to do pills, then injections, then VED, and if nothing works then they'd pay for the implant.  But do we have that much time to waste not getting healthy bloodflow to the penis?  For the future I've been looking at guys like Eid and Kramer.

[LWillisjr]

powderpowder,
I read your post and wanted to respond. You make some interesting points and I understand these are your observations. So I just wanted to add mine as well for others to also consider.

It is clear to me that plaque/scarring from Peyronies does cause shortening. This is due to the fact that the plaque/scarring keeps the Tunica from expanding in that area as it once did. If the plaque is isolated then this also causes curvature in that area, again due to the fact the Tunica doesn't expand in that area.

But I'm not sure in regards to ED. I can't argue with what you say. But I don't think that ED necessarily would cause shortening. Many men have ED and I have not heard of any of them complaining about loss of length, but loss of achieving an erection. So I am just not sure ED plays a part in penile shortening. I have always tried to separate the two topics of Peyronies and ED as I believe they need to be treated differently. Does Peyronies cause ED, or does ED cause Peyroneis.......? We don't know that either is true.

If you do later on get ED, and you are a candidate for an implant, an insurance company is not going to demand you get Varapamil or Xiaflex injections as this would have nothing to do with your ED. The typical treatment for ED is of course is to try Viagra/Cialis. I know men who use a VED to achieve an erection for intercourse (not for Peyronies therapy, this is different). And finally implants would be a last resort.

I had surgery for my Peyronies because I did not have ED issues but die have a 70 degree curvature. One of the complications of the surgery was possible impotence. My doctor (Levine) said IF impotence/ED became an issue post surgery then he would suggest the implant route.

When I was first learning about Peyronies the thought of an implant scared me. But being on this forum I have developed contacts here and have since spoken to men that have had implants and their success afterwards. If I ever get to the point that I can't achieve an erection I absolutely would pursue an implant as an option now.

So I do agree that if you get ED, that this is surely a path for you to pursue. But pursue it as an ED issue.

[Jonbinspain]

Briefly, I think it can be a matter of the cause of your ED. If it is caused, as it was in my case, by low testosterone, then yes low testosterone and Peyronie's have been linked in some studies.  

[welshwales]

As for the ED Peyronies Disease link, I'd like to add that before I developed the disease at thirty I had never experienced ED. It was when the disease progressed aggressively that the ED kicked in, quite suddenly. It also occurred at the same time that the penile atrophy did, loosing a couple of inches and a fair bit of girth above the main plaque sites.
So in my experience Peyronies Disease led to approximately simultaneous ED and penile atrophy. But there are so many factors to account for, age, general health, genetic predisposition, injury, diet and perhaps most importantly the preventative measures you take once symptoms of the disease are presented.
Any plan for tackling the disease should begin with doing everything you can to improve both penile and general health. Moderate VED therapy and low dose cialis to begin with, and pentox if you can get a script. Then any other supplements you feel comfortable taking.

[powderpowder]

I have also heard of many people with Peyronies having almost little to no shortening and not many symptoms normal oeyronies sufferers have. I think a BUNCH of cases that are mild (sort of like mine I think) go unreported because a person with mild peyronies may not go through many changes. (Possibly only hourglassing or slight curve by no shortening) and not have it affect them to seek out treatment.

With that being the case, I started Pentox and oral supps. fairly soon after getting diagnosed (5 months after my small sex injury) and have been on it for most of the acute phase. And now my doctor is putting me on daily cIalis for the last four months of my treatment, and to add on all of this treatment is for about a 2mm plaque, so maybe it all depends on how you fight the condition early on also.

[welshwales]

I used to think my Peyronies Disease was mild. It was pretty stable for a couple of years, mild hour glassing with a 15° bend to the right. Then suddenly out of the blue it progressed, and continues to progress erratically, going through periods of stability and aggressive progression. My uro now considers my case to be severe.
Basically my point is that Peyronies Disease is in no way predictable. It follows no set pattern of events or stages, and has no clinicly proven method of treatment.
In my own personal opinion the guys who develop it after an injury and develop only one plaque site, have a better prognosis of stability or even cure. Those who are cursed with the family history and genetic trait to develop fibrotic disorders tend to have a rougher time of it.

[james1947]

welshwales

Then suddenly out of the blue it progressed, and continues to progress erratically, going through periods of stability and aggressive progression.

Right and you are not the only one.

Basically my point is that Peyronies Disease is in no way predictable.

Right and this what we are saying always.

It follows no set pattern of events or stages, and has no clinically proven method of treatment.

Right again, what helps to cure one, it is not indication that it will help others.

In my own personal opinion the guys who develop it after an injury and develop only one plaque site, have a better prognosis of stability or even cure.

Not in my case. The injury sometimes triggering Peyronies and sometimes not.

Those who are cursed with the family history and genetic trait to develop fibrotic disorders tend to have a rougher time of it.

Very Right. This is the sad truth.
Don't want to make nobody pessimistic, but as we say always, Peyronies is a very personal disease.

James

[Stevew87]

Just wondering, how you can you avoid having a sex injury i mean was the woman on top or something and? I think in younger people you just fracture it and plaque tends to not grow but i could easily be wrong.

[powderpowder]

We just both made the wrong move at the wrong time, it was a micro injury  

[NeoV]

I was injured in missionary, girls can arch their back and do a lot of damage.

Mostly my peyronie's came from years of microdamage.