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Author Topic: Searching for African American Men with Peyronies Disease to Share their Story with the Media  (Read 4820 times)

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LWillisjr

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  • 62 y/o - 10 yrs Peyronies free
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In August of 2013, I created a post highlighting the call to action by a group known as Voices in Action (VIA). I want to now make you aware of their continued efforts to connect Peyronie’s Disease sufferers with policy makers and the general public.
VIA is searching for African American men with Peyronie’s Disease who would be comfortable sharing their story with members of the media, but is more than happy to have anyone who has experienced Peyronie’s Disease contact them to find out how they too can be involved.

If anyone is interested you can contact the Voices in Action team at info@voicesinaction.net and by their toll free number at 1-855-971-0526. The VIA project is being funded and sponsored by Auxilium.


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Les - 10 yrs Peyronies Disease free
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NeoV

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The bellow two posters are perfect examples of BOTS. Please report these kinds of things immediately.

As for the original post, I hope someone actually replies since it sounds like a good thing.
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james1947

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NeoV

They posts removed

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Jimbruski

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LWillisjr,


Are you still looking for volunteers?
Are you looking for 1st generation African Americans?

I also read that the funding has been pulled for the VIA project.  If the project is indeed dead do you feel that another study may begin any time soon.

It would be interesting to know the percentage of men with Peyronies by ethnic origin and if there is any statistical comparison.

Just a curious mind,

Jimbruski
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LWillisjr

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    • My Peyronie's Story

Funding was pulled at the end of last year. So unfortunately all the projects that VIA was working on have since all been stopped. At the time our forum was developing a good relationship with VIA and Auxilliam.
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Les - 10 yrs Peyronies Disease free
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