GENERAL COMMENTS & Questions - that won't fit under any of our other topics

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TheLastRobot

Sorry to keep bombarding you guys with text, but there are some details I missed and some information to add.

First of all, today I had my first spontaneous erection in weeks. I can't begin to describe what a relief it was. It wasn't full, and it went away after a while, but I had it - better yet, I had two. I don't know how long this blessing is here to stay for, but maybe it's just cause I'm a little more relaxed, seeing how many people here are able to prosper in what I consider to be a worst-case scenario.

There's a detail I've been frequently forgetting to mention in my accounts of what's going on: There's not just a lump in my shaft. Whenever it shows up, it's accompanied by a similar protrusion where my shaft meets my testes, that goes down into them. It seems to go into my taint, as well. It seems like some kind of tube. I can't claim to know much about penile anatomy, but I do know that this tube, whatever it is, didn't use to stick out this much, and feels similar to the lump itself. It hurts to the touch - it feels hard, and maybe swollen. I think it may connect to my prostate, but what do I know. Also, I occasionally notice a white discharge from my penis after I pass a bowel movement, which corroborates the prostate theory. Since these things are not, to my knowledge, consistent with Peyronie's, I can't help but wonder if everything I'm going through might have more to do with this swollen tube, whatever it is. Any thoughts?

Also, I can't help but wonder if I may just have injured the little guy, and my constant attempts to make it work normally are just slowing down the healing process. I'm considering just leaving it alone for about five days to two weeks and seeing if I notice any improvement, but since the predominant philosophy here is "use it or lose it", I was wondering if leaving it alone for so long might be a bad idea.

LWillisjr

Quote from: TheLastRobot on October 05, 2010, 03:22:39 AM
To me, it seems like I've got some Peyronie's going on, and I want to mitigate the damages as best I can, even if it turns out I'm fine, until I can find a urologist who will give me a satisfying confirmation/disproof that what I have is Peyronie's and I can start getting prescription meds.
TheLastRobot

You have stated a number of symptoms.... so I'm curios which ones you believe are Peyronies Disease related. Lumps that come and go don't equate to Peyronies Disease for me. It almost seems like you have an injury of some sort. Maybe giving yourself a break for a bit and letting things heal up. I would consider going back to the clinic and make sure you point out the issues with the fluid discharge and the lumps that come and go. Listen to what the say and don't jump to any type of pre diagnosed conclusion.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

TheLastRobot

lwillisjr:

I guess it's the fact that the lump doesn't seem to be consistent with much else. I did hours of scouring the internet the first time I noticed it, hoping for some kind of indication as to what it might be, and a lot of sources pointed to Peyronie's as a possible cause of lumps in one's penis. Furthermore, a lot of accounts of Peyronie's didn't sound too far off from what I have. Basically, this is the option I've been investigating the most because it sounds the closest to what I have.

Part of the problem is that I've read that it's possible to have Peyronie's without any noticable curvature. Terms like "nodule" and "hourglass" penis kind of mean nothing to me, so a lot of it is up to guessing. These gaps in my understand are the reason I've seen fit to describe what I'm going through in all too much detail.

The injury theory seems to make sense, and rings awfully close to something described in a thread in the progression section, except that the person there is uncircumcised whereas I am cut. His last post indicates that he believes he's just dealing with an injury, and he hasn't written anything since, leading me to believe he may be right. Here's hoping it's the same for me.

LWillisjr

You'll read everything on the internet...  so be careful what you read. Generally lumps caused by Peyronies Disease don't come and go on a daily basis. The lumps appear and stay. That's why I suggest you get these checked out.

Also....  your statement about it being possible to get Peyronies Disease and not have a curve. You'll find some disagreement on this one as well. If you read medical journal documenting Peyronies Disease, they will define this as
"Causing a curvature due to trauma or internal scarring of the penile tissues". So one could argue that by definition that you don't have Peyronies Disease unless you have a sudden curvature. But there are others here who have documented hourglassing. This is consistent with Peyronies as it is caused by scarring equally all the way around the Tunica. So while you may not have a curve in this case, the scarring is present.

And finally, many equate Peyronies Disease with erectile dysfunction and these are not necessarily related either. It sounds to me like your anxiety issues may be working on your mental state and could be greatly impacting your ability to achieve an erection.

I'm not a doctor..... just my opinion.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

fubar

Lastrobot

Probably would be a good idea to get a good doctor or urologist to listen to you.If you do not have a deformity and you have pain.Peyronie's Is usually defined by deformity and some pain.


Discharge and things felt like tubes or anyhing close to your body could mean something else entirely .Please make an effort soon to see another urologist and get to the issues of your troubles and I recommend this to a couple of others new here.

If you don't have Peyronie's good but you may have something more life threatening. And this would not be good so get to the bottom of what is going on with you and do not waste time doing so.

Good luck and get back to us on what is going on with you!


Fubar

Brightdog

Lastrobot:

It can be difficult when someone who might have other issues tries to get the attention of the medical profession for a condition that is not yet stable. This can be frustrating and stressful. It sounds like SOMETHING is happening, and no matter what the potential causes, that something should be investigated. A GP at a walk-in clinic will not be the person most likely to make a good diagnosis, but you must get their attention long enough to get a referral to a urologist.

Glad you found some hope/comfort in our stories. Allow me to offer a few more details that might relate to your situation.

First, you indicate that the doctors may be treating you as if you were a hypochondriac. My father was a hypochondriac. Instead of being treated for it, he was inappropriately treated for the imaginary or exaggerated conditions. He spent much of his 30s and 40s as a Valium zombie. Finally he threw away all the pills. He is now 84. So when doctors think they might be dealing with a hypochondriac, they are right to be careful about how they proceed. They are NOT right, though, to assume that every complaint might stem from the more general condition.

I went the other way. Terrified that I might be seen as a hypochondriac, a did NOT go to doctors unless I absolutely had to. And I endured incompetent doctors longer than I should have. I had a doctor who thought I was imagining illness - because some of the symptoms were the same as stress-related illnesses. He had been my doctor for about 10 years. So for 2 years I got sicker and sicker - my nails were shredding, my hair was falling out, I had gastric problems. I was sure I could feel something moving inside me. I had done a lot of travelling, and I thought I had a parasite. My doctor said it was all in my head and that we have no nerves in our intestines to feel that sort of thing. I am a former dancer - I know my body.

Then I showed up at the hospital with a foot-long segment of a bizarre tropical parasite in a jar. Yes, it had grown to the size where I finally grabbed a hold of an end of it that finally made its appearance out my rectum. It was about 2 inches across. I have never been so scared. And angry. I pulled - but the worm broke off and I could feel the rest inside me. The folks at the hospital were very excited to see this. My doctor was on vacation, so he didn't see it.

They killed the parasite. A year later I had some of the same symptoms with a new complication: I couldn't speak properly. I could write, and I could think, but when I tried to speak I had trouble making the words come out in the right order. My doctor said it was stress. He initially refused to prescribe a parasite test. I insisted.

Yep - the tests showed I had a protozoal parasite that had gained critical mass in the speech centres of my brain. So it WAS in my head this time - literally! But my doctor had treated me like I was a hypochondriac.

We argued about what drug should be used. I had done the research and knew which one would pose the least risk to my system. He insisted on the most common treatment, which is really hard on the digestive system. He absolutely refused to give me anything else. Since I needed to be treated - everyone was thinking I was crazy because my spoken sentences made little sense - I finally agreed.

The drug kicked me out of remission for unsuspected celiac disease. So I got sicker instead of better (except my speech centre recovered). I ditched the doctor, went to a new one who caught the celiac disease. Since then (about 8 years ago) I have only really had to see a doctor for broken bones and injuries from car accidents - except for the Peyronie's.

I should have been more aggressive with my doctor when my Peyronie's first started 10 years ago. Appropriate treatment at that time might have saved me having to go through the surgery route this year. But once a doctor starts treating you like ALL your complaints are psychosomatic, you need to find another doctor. Even if SOME of your complaints are psychosomatic, that is no reason to assume that ALL of them are. My life was miserable for years because the doctors did that to me - and without cause.

Now, here's a suggestion for you if you think the doctors might be right about some of your complaints being psychosomatic or triggered by hypochondria: biofeedback. People who are so sensitive to their bodies that every difference is magnified and seems to require attention should be encouraged to learn biofeedback. It might help determine which symptoms might require a doctor and which can be better regulated by the patient. Check it out.

crashbandit

WOW, I'm going to take caution the next time I read one of your posts brightdog. That is the most craziest story and I think I'm going to have nightmares every night the rest of my life! I thought that kind of stuff only existed in movies like hellraiser or nightmare on elm street. Sorry to hear you had to go through that and my hat goes off to you.

The last robot, definitely get those lumps checked and the pain you are experiencing in the left side of your shaft is probably some trauma. I have the same thing, soreness along the left side of shaft and a curve when semi-erect but no curve when fully erect. Now I believe my injury was sustained when I was younger and has been catching up to me in my older years. I also has some stinging along the bottom of the glan, which kindov feels like a mild badder infection all the time.

It's amazing how those injuries we think heal when we are younger, actually just stay hidden until we get older. Do you sleep on your stomach? This was my problem when I was younger, I would squish my boners into my mattrass all night long, not recommended for our precious penis.




Cheers

newguy

TheLastRobot - I do sometimes think that those possibly predisposed to peyronie's can experience issues while doing something as innocuous as masturbating. I would certainly get it checked out, and get on pentox, start with the VED if that is deemed a good cause of action. It's important to be as careful as possible in relation to therapy and sexual activity.

BrightDog - What a horrifying tale (with thankfully a positive outcome). I totally agree that sometimes it's important to take your health into your own hands. If peyronie's has taught me anything, it's to make sure that I stay as healthy as possible and to do my own research before visiting the doctor.

BrooksBro

All physicians are only "practicing" medicine, and they DO make errors in diagnosis and treatment.  It is a reality that 50% of them finished in the bottom half of their class.  LOL    At least for now in America, we can (most often) choose our physician.

TheLastRobot

Hey all, thanks again. Another update:

I got a good, firm erection today and decided to inspect it fully to see what's going on. I've definitely got some leftward erections, but what worries me is that for all I'm sure of I may have always had it but never paid much attention. What's scary about trying to figure out if I have certain symptoms is now I'm looking for them. The things I find may have always been there but not indicative of anything bad.

On my last visit to the doctor who, incidentally, has become my new MD, he sent me for some blood tests which I only got done this morning. If they come back negative I'm planning to return to him and tell him in more detail what's going on down there. I kind of glazed over the penis things and put the emphasis on other health-related concerns I've been having. I've also, like crashbandit, been feeling some pain in my glans which does feel like some kind of infection. I've also been feeling some discomfort in my "posterior" lately, so I can't help but wonder if I may have got some kind of infection in there. I've hear prostate and urinary tract infections often come hand in hand. Does anyone have any experience with this? Are urinary tract infections prone to cause lumps? Regardless, if the tests come back negative, I'm going to ask for those possibilities in particular to be looked into if they weren't covered in the blood tests. That should, hopefully, get me to a urologist.

Also, crashbandit, I do indeed sleep on my stomach. It never occurred to me as being potentially problematic. I'll start sleeping on my back or side from now on and see if anything changes.

As for pentox and VED, my biggest problem with those is that one is expensive as hell and the other can't be purchased over the counter. I'm unemployed and all my money comes from my father who, though a very supportive person, is very pragmatic when it comes to health and, being aware of my tendency to self-diagnose, tends to favor the opinions of doctors. Convincing him to give me money to buy a penis pump is extremely humiliating and asking him to order me dick pills over the internet is hardly better. I'm feeling a little stuck here.

Brightdog

Quote from: BrooksBro on October 08, 2010, 06:59:45 AM
All physicians are only "practicing" medicine, and they DO make errors in diagnosis and treatment.  It is a reality that 50% of them finished in the bottom half of their class.  LOL    At least for now in America, we can (most often) choose our physician.
We choose our own here in Canada, too. Which I only mention because for some reason the anti-health-care-reform campaign in the US seems to give people the impression we can't, and that "socialized medicine" means death panels etc.  

Old Man

Brightdog:

Check with your friends and cohorts across the Atlantic in the UK. They have a very different viewpoint about timely appointments and long waiting times to get one. Also, trying to even get an appointment with the doctor their choice seems to be a problem.

I am sure that our members in the UK can set the record straight about the above if I am wrong. But what I mentioned is being related to me by at least some of our guys there.

The American version of the health care overhaul is driving many health care providers out of business already and many more doctors and health care specialists are taking a good hard look at the new system.

The above are strictly the observations and opinions of the writer only.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Brightdog

Quote from: Old Man on October 09, 2010, 02:31:13 PM
Brightdog:

Check with your friends and cohorts across the Atlantic in the UK. They have a very different viewpoint about timely appointments and long waiting times to get one. Also, trying to even get an appointment with the doctor their choice seems to be a problem.

I was not referring to the UK. The sources I was hearing from in the US (USian residents) were telling me these things about Canadian health care - and they were fabrications.

Quote
The American version of the health care overhaul is driving many health care providers out of business already and many more doctors and health care specialists are taking a good hard look at the new system.

I am having trouble finding a credible source for this. Since the reform to date is more about providing access to insurance (with other reforms being phased in), I am not sure I see how the providers have been affected yet - since they are still getting their money. It is true that the entire US is in a recession, and private medicine is at the mercy of a populace that can pay, so I would imagine there has been some economic hardship - and I understand there has been some caused to employers who are paying premiums for their employees - but I am not finding credible links that can separate the general economic crisis from the effects of the reforms.

I found a medical staffing company in Florida that went bankrupt - but the news reports make it clear it was because of the general recession and hospitals hiring fewer temps from them. Maxicare in California was building debt since 1986 and suffered major slides down BEFORE the health care reforms, eith rumours of impending bankruptcy prior to 2008. In fact, an admittedly cursory scan looking for health-care related bankruptcies in the US isn't turning up any related to the reforms, but lots related to the NEED for reform. Including a huge number of bankruptcies previously being caused by medical bills (that was the finding of a Harvard study prior to health care reform).

Lots of Canadian medical personnel still move to the US because they can make pots more money. So perhaps the reports of health care providers going out of business are exaggerated. Unfortunately there is more than a little political posturing happening as the privateers of health care try to make sure their profits continue unabated. When I travel in the US I watch US television and hear the most outrageous whoppers on news and public affairs shows. I have no idea how anyone down there can sort it all out when the media can't be trusted to do a good job.

The above are strictly the observations and opinions of this writer too!


Old Man

Brightdog:

Since I am apparently much older than you and have lived back in the late 1920s and early 1930s when we had universal health care in the States, health care was very limited and poor. One had to go to a clinic run by doctors that were just out of medical school and had to do their time as interns in the public health clinics. The service we did not get caused a lot of premature deaths when maybe a visit to a good doctor would have saved their lives.

My reference to the UK health case program is based on what members of this forum state is the case when they try to get good medical health care. Their NHS just does not seem to come through for them as they state.

Your country may or may not have the same program, but I think that the United States just does not need the Federal government telling me or any other private citizen where they get their health care.

As far as your reference to a credible source of information relative my comments is like blowing smoke in the wind. I don't have to support it with any source, I know first hand what is in store for the general public here.

Anyway, you have your opinion and I have mine, so the subject is closed as far as I am concerned. I will not address this subject again on this forum or in any private message/email either.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

crashbandit

Quote from: TheLastRobot on October 08, 2010, 06:35:12 PM
Hey all, thanks again. Another update:


Also, crashbandit, I do indeed sleep on my stomach. It never occurred to me as being potentially problematic. I'll start sleeping on my back or side from now on and see if anything changes.


It might be hard to not sleep on your stomach but for the sake of your penis! Plus it also saves your back and neck a ton too.  
Cheers

Tim468

Wow -just catching up here.

Um, in no particular order...

Act sooner than later for problems and move along to better listeners if the docs don't listen.

No one I know is going out of business as a doc. But millions of Americans don't have access to good care and need it - well, actually they get great care - when they go to Emergency Rooms and demand it, and get treated for "emergency conditions". We then pay for it with tax dollars. Since those charges are flat fees, they average about 5-7 times more than the usual negotiated fees with HMOs and insurance companies - and so the money is either lost by the hospital or paid by tax dollars at a higher than average rate. Not a good system for provision of basic health care.

Docs can always make (more) money by having a private practice on the side, and richer people will pay out of pocket for those services. Happens in France, Canada, Belgium - everywhere.

Tim
52, Peyronies Disease for 30 years, upward curve and some new lesions.

MikeSmith0

Hmm... usually I can follow most of the medical literature on this topic, but that abstract was over my head...I guess the important question is:  are their any therapies that target smad proteins?  Other pro-inflammatory molecules can be targeted with things like pentox (in theory- and it appears to work for some in reality)...but  I haven't seen these proteins discussed here.

George999


edified

I just crafted a pretty detailed message to 'confused', which immediately vanished when I tried to preview it.   I do not have the energy to start over.   The error message says my "session timed out while posting."   So the more time one takes trying to put together a carefully worded message, the greater the chance it will be erased by the software?   Very frustrating.   I just joined, this was my first post, and largely an exercise in futility.

tl48

Edified-
If it was an important message, repost it!  It seems like everyone on this forum has one thing in common- dealing with a disease that we are all trying to figure out.  Sorry you "timed out" for your post, but it sure seems like there are greater concerns that we are dealing with- loss of manhood, troubled relationships, and how to rid ourselves of this curse!!!!!

newguy

The message wasn't erased as such. When a session signs it, it means that you've been logged out from a forum due to inactivity. It has on occasion happened to me on various forums. If I write a long post, I make sure to 'copy' it, just in case there is a problem. That way I can log in again and repost (paste) it. Sorry to hear about it though, I know it's an irritating thing to happen. Don't let it dissuade you :).

Dabak

I was just reading through some science news, and found an interesting article.  Some scientists were trying to understand a disease called Fibrodysplasia Ossificans Progressiva, a "genetic disease in which acute inflammation causes soft tissue to morph into cartilage and bone."  There is an article about it at physorg.com.

Given the calcifications caused by Peyronies, I wonder if the mechanisms are related.  It seems that given a mutated gene (or one of two specific growth factors, TGF-beta2 and BMP4), the cells revert to an adult stem cell like stage, where they can differentiate into cartilage and bone tissue.  There is no cure for this disease, but understanding the mechanisms could lead to progress.

ohno

Interestingly, my urologist recently told me (with more than a little hint of horror) that during surgery for peyronies he removed a a sizable piece of bone from one of his patients.

Dabak

Same here.  Dr. Leu up at UCSF Medical even pulled out some pieces of bone from some sample jars to show me.

chefcasey

So My local urologist that I saw a month or so ago wants me to come in for a cystoscopy, originally because I had blood in my urine when I gave a sample.  They sent me to get an ultrasound and ct scan and everything came back normal.  Now I know the reason i get blood in my urine is because I have plaque from my Peyronies Disease pushing on my urethra, and that's why my corpus spongiosum doesn't "fill out" all the way.  My concern is that many men say this procedure can aggravate Peyronies Disease, so I'm not sure if I should do it or not.  Does anyone have experience with this prcedure?

George999

Casey, Blood in the urine can come from the kidneys due to any number of reasons or from the bladder OR from the prostate or from the urethra.  You need to ask DIRECTLY what the urologist expects to determine by a cystoscopy.  Some major concerns, such as bladder cancer and urinary tract cancer in general, for that matter can be resolved these days by a pathology study of the urine and no longer require cystoscopys.  Problems with the kidneys or prostate certainly wouldn't be diagnosable by a cystoscopy anyway.  I have had numerous of them.  They are really no more invasive than a colonoscopy, but why have one if you don't need one?  Unless the doc can come up with a justifiable reason, I would be politely asking for a second opinion. - George

chefcasey

Thanks, the uro told me it's not my kidneys or my bladder, since he could see they were normal from the ct scan.  He says he still wants to do it just to "see and make sure everythings ok".  I don't mind getting it if it's neccesary, but like you said, why get something shoved in there if there's no need for it.

George999

The best thing for you to do would probably be to get a urine test WITH Cytology Report if you haven't already.  This is a test where they examine the cells contained in the urine for any strangenesses.  The lining of the bladder and the urethra is constantly sloughing off dead cells just like the skin does.  If you have any sort of cancer going on or even inflammation, these tests will sort that out.  It is completely non-invasive requiring only a urine sample.  Additionally, make sure you have a full urine analysis and blood test that includes all the kidney stuff.  - George

restore

Wishing you all a happy new year!  Thanks for all the advice and encouragement.  I hope and pray that 2011 will bring even more good news in the discoveries that are being made in the efforts to eradicate this condition. Thanks to you and this forum, I'm feeling more optimistic that we will eventually beat this thing and restore our physical health as well as our relationships and peace of mind.  

newguy

Thanks restore. Here's hoping for a positive 2011 for all of us..

lespleen

It's widely held that Peyronie's predominately  strikes men of northern european descent. Obviously we can't conduct an official survey here but i was just wondering about its prevalence among men of more immediate african ancestry? I thought i inherited a predisposition toward this thing from my northern european side but it looks like the condition was handed down to me from my african side. Just interested in its epidemiology .....not that this forum's demographic is representative of  the world's. If you happen to be of african ancestry please drop a line. obviously I don't want this to turn into something inflammatory.....  similar inquiries could be made  into the prevalence of Peyronie's   among other so-called racial groups. I hope that this doesn't offend anyone and is appropriate .The african american case is particularly interesting given the severity and frequency of cardiovascular and prostate related problems they're bombarded with as compared with other racial and ethnic groups.  

rd

I wasn't able to find any discussion on this but found some articles online about how scientist believe that the  p21 gene blocks regeneration. They apparently bread mice without this gene and they regerated holes that were placed in there ears as well as limbs. They then turned this gene off in mice that had it and saw the same result. Have any of you heard about this or what are you thoughts.  

Royden3

Certainly dreaming behavior changes with time and you are having some epic dreams.Not strange,I also have.

George999

Sound (REM) sleep brings dreams.  Testosterone levels *may* be connected with degree of sexual content.  - George

crashbandit

I think I may have more a Vericocele roblem then a Peyronies Disease. Last night after sex and ejaculation, I had pretty intense pains in my left testicle. The pain was not a sharp pain but an intense ache throughout the testicle and pubic bone area. Also the pain did not strike me until after ejaculation. There was also major swelling in the cords that attach to the testicle. I've had this problem before and is always alittle achy but has big flare ups like this one.

It seems during or before flare ups I tend to have premature ejaculation. I don't know if the mild form of Peyronies Disease I think I may have is just a masked Vericocele. I still have the pain within the penis, which wasn't a symptom of Vericocele, I don't think.

Anybody have this problem?
Cheers

RichP

insist on a  bilateral (both sides) doppler ultrasound on the varicocele(s) and discuss your possible peyronie's concerns with your uro - make sure that they are an andrologist sub-specialty-type uro though.

crashbandit

Thanks Rich,

Have you had problems with a Vericocele?
Cheers

RichP

yeah bilateral - although the right hand side (less common) only showed up on a scan. probably going to have the left one embolised at the least.

crashbandit

Quote from: RichP on February 13, 2011, 07:50:24 PM
yeah bilateral - although the right hand side (less common) only showed up on a scan. probably going to have the left one embolised at the least.

Have you noticed or know if Vericocele can cause premature ejaculation or cause pain in the penis?  
Cheers

terr15dorian

This site can help you by giving you some relevant information..nctimes.com


onlyone

Hello there, just joined the forum, small bend and a large lump on the right, bend has gone away on its own, terrific, but now  have ended up with corporial fibrosis  spreading all over.  Before that I  vericocele on my right, (feels like a bag of worms in there). lots of pain.  and used hormones to gradually reduce it over two years.
I can say to anybody reading this , that YES the curvature CAN GO AWAY  on its own, it took a whole year though. .. patience and waiting may bring you relief.  the fibrosis doesn't seem to always happen, is truly grim if it does.  

George999

Onlyone, thanks for posting!  It is good to finally hear from someone who has experienced a spontaneous remission.  We would like to hear from more cases like yours.  On the other hand, sorry to hear about the coporal fibrosis.  That is truly devastating.  I hope that you are aware that Pentoxifylline can help with that as well as with Peyronie's.  The two diseases ARE related.  If you can find someone who will prescribe you Pentoxifylline you may well benefit from that even yet.  Ubiquinol might also help.  - George

BentYoung

I cant believe I need to post this but the younger more immature crowd (with even more immature friends) may be able to relate. So when I go out with friends on the weekends and have a few beers they seem to think its downright hilarious to smack one another in the junk region AKA "sack tapping" (seems like middle school behavior, but these are guys in there mid 20's...sad I know). You can imagine that when one of my friends starts this downright retarded behavior and I am a target, my reaction is one of quick temper and, regretfully, retaliation. My hopes were for this to stop because I was retaliating, but this seems to have no effect. I have also tried heated verbal requests for no more, but they are just that thick headed. I am now at the point of actually debating on telling them my situation which I know will end the stupidity (they are my long time friends after all) but I don't know where this disclosure will lead. Given that they like antics like this in the first place, I feel a little apprehensive about telling them my secret and it leaking to others when they are intoxicated again. I guess my question to everyone would be, have any of you seen a worsening in their Peyronies Disease from mild blunt force situations like this? It certainly can't help the condition in any way but this is driving me absolutely nuts. This is a problem I never thought I would need to address, but sadly it is. I have lost sleep worrying about my Peyronies Disease getting worse after nights like the ones above.      

Skjaldborg

BentYoung,

I would suggest you NOT tell these idiots friends about your condition. If they won't stop punching you in the balls for fun after told them to stop, they will certainly give you a hard time about having Peyronie's Disease. Having this disease is a sensitive issue: it's not something to be ashamed of, but it's also not something that should be shared with people who will certainly mock you and make you feel bad. Telling them will not spread awareness about the disease and it will not bring about a cure faster.

You need some new drinking buddies. Failing that, give the next idiot who gets too close to the jewels a good crack in the nose. I'm serious about that.

-Skjald

P.S. it's unlikely that your Peyronie's would get worse from this unless you are undergoing very serious trauma. Don't worry about this aspect and just get them to stop or hang out with some cooler people, by all means.

ComeBacKid

Dude,

How old are you?

Kids did this when I was in high school like 10th grade.  I've been "sack tapped," and also got a few kids back when we were immature.  I also took a shot in the testicles in a soccer game once.  A few taps won't hurt you, but stay away from these kind of people and stuff.  Repeated sack taps could hurt your testicles, and who knows what it will do to your Peyronies Disease.  I did hear on the john tesh show on the radio one kid in Minnesota was sack tapped a lot and he lost a testicle, now his parents are suing the school district for not stopping the bullying.  When I was in high school bullying was way to common, this is my main critique of the public school system which I think is otherwise well run where I live and gives you as good of an education as you want to get out of it.  Bottom line is, I'd say stay away from these idiots, but if you only took a few taps it shouldn't hurt you.  

Comebackid

ComeBacKid

P.S.

Drinking is bad for peyronies it made my condition worse.  Try to kick this habit or limit it drastically.  Sorry for this bad news!  Get new friends to, anyone who is sack tapping other grown men at age 21 or above (I'm assuming since your drinking your at least that age) is a douchebag.  People bully others that let them, if you dig in and look like you will fight back like hell, a lot of people will p~$$% out and go away.  With this being said try to avoid people like this as much as you can.

Comebackid

Woodman

There in there mid 20's REALLY?!!!  Man, I don't know how immature that is sounds more retarded to me! Why would someone in there mid 20's want to touch another mans junk! Iam 38 yrs old and I would never let another person hit me in the testicles. Thats before or after my Peyronie's. Especially with this condition. If you are telling them not to hit you and they keep doing it anyhow you have three choices. One don't go out drinking with them. Two since you have already sternly told them not to touch you and they keep at it anyhow thinking its funny cause its getting under your skin. Tell them when they are sober next time anyone taps you that you are gonna break there nose. Then if they tap you while they are drunk or other wise punch them in the nose straight off. When they cuss and such tell em remember I told you if there was a next time I was gonna break your nose. Three find a new group of friends to go out with if your going partying.

Even my friends that are parents are very quick to correct there kids if they throw, swing, hit or run into someones private areas on purpose. I have one friend that knows I have Peyronies and he always is very quick to correct his kids if they start to play too rough with me involving one of them hitting me below the belt.

With this condition you really do not want any additional trauma. Remember anything negative can make your condition get worse.  

Sorry for being bold and blunt but that even got under my skin a little and it isn't even me experiencing it!

BentYoung

Thanks all for the responses. I should have clarified a little more in my posts. These are not bullies that are mere acquaintances of mine. If a guy I barely knew came up and did such a thing, I would have little problem "cracking him in the nose" as you put it. These are people I have known and shared many experiences with for more than 10 years. I personally have never been bullied in my life and these instances are somewhat few and far between. That being said, it doesn't make their actions any more justified. Hitting another man in the junk is downright dumb and immature regardless of who is doing it. I very much value them as friends excluding these instances and am not the guy they are picking on exclusively. I am merely a part of the group and subjected to unfortunate stupidities. This a trend that I will not allow to continue by whatever means is necessary. If it means new friends, so be it. God knows us Peyronies Disease sufferers need little more to worry about. My intent was to see if there were others out there that have had similar cases of small injuries, not necessarily the same exact kind that led to changes in there Peyronies Disease.        

LWillisjr

Others here may disagree with me. I understand "buddy antics" or whatever else you want to call it. If these guys are your friends, then I would suggest you tell them about Peyronies. You don't necessarily need to tell them you have it. But I for one am all for communicating awareness of Peyronies Disease.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Iceman

does anyone have a website i can go to to see pics of diff Peyronies Disease - just want to get an idea of where I would site amongst this.