new member. confusing, borderline symptoms

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C_lab34

Just wanted to introduce myself and participate in these forums. I must say, though, that I have not been officially diagnosed with peyronies. I do have lifelong erectile dysfunction, and some troubling structural changes have recently occurred that have pushed me over the brink in seeking more aggressive treatments and diagnoses. Even if it turns out that I don't technically have peyronies, I reason that my penis problems overlap enough with many of the members on here that I can still take part in and learn from the discussions.

I'm a 27 year old man who, looking back on it now, always had a problem with erections. What's funny is that no one knows what normal is until they start paying attention to other people and the way they talk. I can remember even as a teen of 15 or 16 that my erections would fade almost instantly the moment I stopped stimulating it. Spontaneous erections were few and far between and I almost never woke up hard. By the time I hit my early twenties, I couldn't get as hard even with steady stimulation. The urologists I saw at the time were, as expected, dismissive, telling me I shouldn't have a problem, and that I should see a psychologist or sex therapist. Well, I've lived with this condition and haven't sought more help until I aggravated my condition about 4 months ago.

I bought an otc pump and thought I'd try to improve my functioning that way. Little did I know that what functioning I had was about to take a turn for the worse. Using the pump, I remember feeling some discomfort but nothing too traumatic. It also didn't seem to work very well. I would come out of the pump a little swollen and not very hard. Maybe I didn't know what I was doing or rushed it. Anyway, a couple of weeks after beginning with the pump I noticed, to my horror, that I was smaller in both the flaccid and erect state. About a half inch in both length and girth. I know for sure on the length, but I've never measured girth before, but it looks and feels thinner than it used to be. I know guys have lost a lot more than that on here; I feel for you because even what I've lost has sent me into the blackest, bitterest depression.

In the flaccid state I'm shorter and harder, and it looks bad compared to how it looked before. I don't have any bending but it seems uniformly narrower and a little shorter. Before, even with my erectile problems, it looked and felt healthy. It looks sick now. What I fear is that what I've done has caused fibrosis to occur all along the shaft, either in the tunica or maybe the corpora. I saw the supposed specialist in my area and he was arrogant and short with me. He didn't think it was peyronies but he also wasn't interested in giving me any kind of tests. I now take 5mg daily cialis and it helps me to perform. With the cialis, I can get usable, though by no means rock hard, erections. It costs over 200 dollars a month and I hate the fact that I take a pill to get hard. I'm sure many of you can relate. It might be early but I'm already thinking implant. I'm trying to save up right now for a trip out to San Diego to see Dr. Irwin Goldstein, one of the leading sexual health specialists in the country. He can give me every test so that I'll know for sure what is happening and what I can do about it. It's extremely frustrating having problems that are either laughed at or ignored. I'm not saying that having cancer is preferable or that people with cancer don't suffer immensely, but at least you can fight that with dignity. Erection problems are an easy punchline in America, even though the condition destroys your will to live.  

alwaysreading

Hey Clab. I got severe ED that came with an acute injury (which in turn caused the onset of Peyronie's). I lost about a quarter of my flaccid length and a third of flaccid girth in a month, so I know where you're at. I also had doctors totally blow me off because of my age (I'm 29). I'm still in the thick of it myself so I'm afraid I don't have much wisdom for you. All I'll say is that this community is here to help and despite different experiences we all know what it's like to feel like you've lost this really important part of your body and with it your sense of identity and sexuality. There's nothing I can say to change the fact that you have some hard days ahead, but I know for me personally getting really aggressive in terms of treatment and knowledge helped me feel less despair. The sense that you're watching this terrible thing happening and can't do anything about it is probably the worst part of this thing. Read around these boards, especially the Oral Meds board. The oral cocktail that is most common for Peyronies Disease (low-dose Cialis, Arginine, Carnitine, Pentox) is, with the exception of the Pentox, really about penile health. The Pentox is tolerated relatively well by most people as well and probably wouldn't hurt to take if you believe you have fibrosis. Print out the studies available on those boards and head to another urologist. Try, if you can, to get a doppler ultrasound. Doctors may dismiss your concerns because of your age, but it's clear you have a physical problem. They won't dismiss a test that demonstrates as much.

Beyond that, draw strength from this community. I've been in touch with some people over Skype that have reached out to me and honestly that, more than anything else (more even than the treatment I'm currently on) has helped me cope. Even if your friends and family want to be supportive, there's only so much they can do. The way this thing consumes your mental space is devastating and I think only men who have been through it can fully understand where you're at. But you're in the right place. We know where you're at because we've been there. PM me if you want to talk outside the forum. In the meantime, be kind to yourself! This is a hard thing you're going through; it is easily the hardest thing I've ever faced and the most daunting. Don't get down on yourself if you have tough days, and don't be afraid to reach out to the people here. Good luck.  

rellisacct

River Pharmacy is a Canadian pharmacy that you can get discount drugs sent to you over the internet. This is where I got my Cialis and Pentox and didn't even need a prescription to do so.

This will save you a considerable amount of money.
"Opportunities multiply as they are seized."
― Sun Tzu

NeoV

I'm 27 as well. It is my personal opinion that overmasturbation can cause both ED and fibrosis. Even at only 4 times a week, once you are in an inflammatory state any sexual activity will worsen it.

It may not be relevant to you, but it's often the one factor many of us overlook. In my own case, and again in my personal opinion, this was crucial and could have saved me a lot of grief.

bishop

@rellisacct Interesting -- River Pharmacy is a Canadian company, but they don't ship Pentox to Canada. Arghhhhh

rellisacct

@bishop

Of course they don't because that would just be too easy for you. So ridiculous. Sorry man, that's all I got.  
"Opportunities multiply as they are seized."
― Sun Tzu

james1947

YoungPDGuy just posted an other online Pharmacy:
internationaldrugmart.com
I never bought from this source, maybe other members have experience with them?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

bishop