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Author Topic: PRP & HYALURONIC ACID  (Read 30197 times)

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james1947

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #100 on: February 23, 2016, 06:10:07 PM »

I hope that this treatment will not go on the "regular" PRP way :(

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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lespleen

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #101 on: February 23, 2016, 10:05:03 PM »

Thanks, Dros. This is purely speculative but is there any fact of the matter about how PRP + HYALURONIC ACID will act in a patient taking a variation of the PAV  cocktail ? I know that  injecting  anti-inflammatory agents to specific joint sites cannot be carried out in patients taking anticoagulants. The patient has to stop taking the anticoagulant ( including low dose asprin!) 8 days before the shot is administered to the knee, wrist, elbow, affected site in order for the injection to prove effective. Manual manipulation via traction aside, perhaps the variation on the PAV cocktail you're on is interfering with the ability of the PRP + HYALURONIC ACID  to deliver its payload and anchor itself in palce? Perhaps  the PAV cocktail, however beneficial it might be in itself, is somehow "diluting" the action of the PRP + HYALURONIC ACID? Have you discussed this possibility with Virag?
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Dros

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #102 on: March 04, 2016, 03:43:44 AM »

I did not talk to him about Pentox directly, but he knows from the survey that I take Pentox, so I guess he doesn't feel like it's a problem...

Anyway, it's two weeks after my 4th session and there are still no results when it comes to curvature... I guess it's either Xiaflex or surgery now... Unfortunately, Xiaflex is not covered by insurance in Switzerland, so I might well do it with Dr. Virag, as the way he uses echography to make sure where to inject seems actually perfect for Xiaflex, as there is almost no palpable fibrosis in my dick and the right injection site would be hard to find without echography.
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yyy

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #103 on: March 04, 2016, 03:39:47 PM »

Also dr Kuehhas in London performs Xiaflex shots together with an ultrasound
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james1947

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #104 on: June 08, 2016, 08:24:08 PM »

No news's from people treated by Dr, Virag?
So good that just not logging in anymore?

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
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Dros

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #105 on: June 09, 2016, 07:28:43 AM »

Well, in my case it was, unfortunately, a waste of time, money, and energy...  :-\
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james1947

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #106 on: June 10, 2016, 08:18:41 AM »

Thank you for the answer Dros

Like me, sadly, with the PRP :(

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

lespleen

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #107 on: September 20, 2016, 02:48:20 AM »

It is worth noting that dr. Virag uses the Regenlab product in his published studies. I spoke with their new Regenlab USA headquarters and they confirmed that Virag uses their system. Whether or not Virag was using this system when you received your injection is another story. The Regenlab product produces one of the lowest concentrations of PRP out there and indeed they actively compare their  product with competing products on the basis of this criterion.  This might not have worked to your benefit.
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fredukas

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #108 on: September 26, 2016, 03:44:00 AM »

I met Dr Virag and Sussman last Friday for a first clinical assessment. Their clinic is located about a block from le Palais de l'Ellysée which made it easy to find. After the first exam with Dr Sussman to locate and size my plaque with an echography, they also deicded to induce an erection to take photos. My deviation is about 50 degrees to the left and upwards. I must say that I have had Peyronie's since Sep 2015 and have been treated with injectable corticosteroids for six months that have offered nothing in terms of improvement. My urologist wanted to try another round of injections before surgery that I simply refused. I also explained to my urologist about the PRP treatment and was amazed that he simply hadn't a clue. In any case, and as I am health care professional, I discussed at length with Dr Virag of the treatment that I will start next month.  I also mentioned that I had looked into going to London or even the USA and brought to his attention the notorious P shot that he labeled as a scam that doesn't work. His name has also been associated with the father of the P shot concept that he resents greatly. He then allowed me to see his research project that he will present at a conference in Venice next week. basically he has more than 150 subjects enrolled in his research project but will present 75 of them that he has followed for the last four years. I saw the stats and he was very straightforward and honest with me. The results of his study show that only one case was entirely cured but that 85% of the group showed major improvement with an average reduction in angle of 27%, firmer and better erections. He did mention that the only way to work this issue is to inject into the plaque and to follow the 4 plus two injections as per protocol. Most of his patients return once a year to get an annual maintenance treatment. His stats also showed that 85% of his patient were satisfied with the treatment but he did tell me that I would not recover my penis like it was before. I want to share this with the folks on the forum so they can realize that all of those paying big bucks for a P shot are wasting their time as it is a money making gimmick. We also discussed the use of VD or an extender and he is quite favorable but told me to hold off until we do a few treatments. I am not sure how well I will improve but will keep the forum informed of my progress over the weeks and months. My hopes and expectations are to be in the 85% group who showed significant improvement and to maybe try to use an extender after to augment my chances of a full recovery. Again, just want all to know that Virag and Sussman are REAL health specialists who care about their patients not the $ making schemes that are growing in popularity.
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lespleen

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #109 on: September 26, 2016, 04:22:46 PM »

Virag selectively injects prp into penis by targeting the plaques or plaque involved. The so called P shots involve 6 injections of PRP with three on each side. Virag is using a kit namely the Regenlab kit which produces one of the lowest concentrations of PRP out there. The P shot administered in the USA varies  in the degree of platelet concentration according to the proprietary system or systems used by the physician. The P shot isn't one unitary thing. It might not be effective in treating peyronnies because it isn't administered so as to target the plaque specifically. But it might neverthless prove effective in improving Erectile Dysfunction for the same reason Virag has met with some favorable results with Peyronies Disease despite using an inferior PRP processing system.
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Gabriel

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #110 on: April 28, 2018, 11:12:46 AM »

Hi guys !

A little up on this topic: has anyone experienced Dr Virag's injection since Dros' attempt ?

After 7 months with all the oral package + topical mixtures + traction/VED and no sign of progress, I myself took an appointment with Dr Virag for the last week of may.

Although I have well understood that I should keep low expectations about his method, I will keep you informed if I see any progress or learn something new :-)
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

TonySa

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #111 on: April 28, 2018, 12:07:28 PM »

Have you tried xiaflex, or is it considerably more expensive?  Unlike PRP it shows success.
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Gabriel

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Re: Dr VIRAG PRP & Hyaluronic acid treatment
« Reply #112 on: April 28, 2018, 12:25:52 PM »

Well, actually my two urologists seem to be convinced that I should save Xiaflex as a "ultimate solution" when I enter the chronic stage (after 7 months I'm still inflammatory  :()... I think first of all I'll have Virag and Susskin examine my penis with erect echodoppler (something I never did), and see what they tell me !
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #113 on: June 19, 2018, 12:59:19 PM »

Hi guys,

Just had my first injection of PRP + HA from Dr Virag & Sussman (still very kind, listening, patient and professional).

As I am stupid as f**k, I had not understood that I needed to spread the anaesthetic cream 30 min after arriving at the office... So the injections hurted VERY BADLY (like 8/10 on an arbitrary scale).

Now (3 hours later), my junk looks like a mutant eggplant with especially a HUGE ugly swelling on the left side. And some pain is still there... According to the dr, it should subside tonight... Let's hope so, cause it's quite painful and visually almost terrorizing.

On the bright side, the Drs told me that:
1) They don't use Regenlabs' PRP system anymore (but they couldn't tell me the exact name of their provider, as they use a French intermediary) ;
2) I may feel some quick progress about the pain (I'm still in the very acute phase), like from now until 30-45 days ;
3) I may see an improvement on the deformation in 2-4 months.

On the dark side, I've been told that:
1) I should not have sex from now until one week;
2) I should not use VED nor traction from now until 15 days;
3) I had to pay 550 euros, of which 350 euros not refunded by the insurance;
4) All of this could be pretty much useless, and Xiapex should not be an alternative as it has recently been shown to destroy almost much than to repair the penile tissues. According to Virag, all the recent studies shade the initial success of collagenase; him and Sussman even personnaly had a patient who almost lost his glans from necrosis after Xiapex; and thus they don't even offer Xiapex injections anymore unless the patient insists A LOT for it... And we're talking about doctors who practice injections at 4 hands with a live ultrasound, so I must say they are quite convincing. But I'm curious to hear about your opinions guys, as I believe to have read some pretty good Xiapex success-stories here.

So... next injections in late july, late august, and maybe late september if the situation seems to improve from this treatment. I'll keep you up to date; don't hesitate if you have questions!

Cheers,

Gabriel

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

tiagofil

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Re: PRP & HYALURONIC ACID
« Reply #114 on: June 19, 2018, 05:19:09 PM »

,
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hope794

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Re: PRP & HYALURONIC ACID
« Reply #115 on: June 19, 2018, 05:38:06 PM »

Well said, tiagofil. I'm interested too.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #116 on: June 19, 2018, 06:24:49 PM »

Hello guys,

About PRP/HA, I think the only study is Virag's, and I does not seem perfectly rigorous; you'll find it there, in English: Evaluation of the benefit of using a combination of autologous platelet rich-plasma and hyaluronic acid for the treatment of Peyronie’s disease

And I guess CCH is Xiapex (Clostridium Collagenase ?...) ?
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

pey ron

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Re: PRP & HYALURONIC ACID
« Reply #117 on: June 19, 2018, 07:39:44 PM »

@Gabriel, don't disappear, stp! keep us posted!

best of luck!
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Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #118 on: June 20, 2018, 04:12:56 AM »

Haha don't worry Pey Ron, I do intend to stay around, cured or not... We're on the same boat, I'm not living it!

As for the sequels, on day 2 the swelling subsided a little, but 60% of my skin looks like a bloody rainbow (we've got red, pink, purple...)! Anyways, the doc said that the first effect I might experience (pain reduction) won't appear until a few days / weeks (/months)... I'll keep you updated, thanks for your support guys!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

tiagofil

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Re: PRP & HYALURONIC ACID
« Reply #119 on: June 20, 2018, 05:13:43 PM »

Great to read that there are doctors experimenting and documenting treatments (I'm going to read this paper), since this disease seems orphan from real scientific biomedical research. Good luck with the treatment. It seems all available treatments are secondary to other conditions. Traction was for micropenis, Xiaflex first for Dupuytren, etc.

CCH is indeed short for Collagenase clostridium histolyticum (xiaflex). Because it has slightly different brand names in Europe and North America I'm starting to use it more often.
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Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #120 on: July 05, 2018, 03:35:16 AM »

Hi folks,

So, it's been two weeks since my first PRP + HA injection: as stated by Virag, I can't report any progress regarding hourglassing/bottlenecking/curvature/plaque reduction. Unfortunately, I can't report any progress either about pain during erections, which could have (or not) already subsided according to the doc. It doesn't seem to have worsened, though; maybe a good sign, but it's way too early to judge.

Next round of injections at the end of the month; you can count on me to keep you up to date if I experience the slightest improvement :-)!

Stay strong guys,

G
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

ghost264

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Re: PRP & HYALURONIC ACID
« Reply #121 on: July 05, 2018, 11:04:58 AM »

Thanks for update @Gabriel, hopefully you will see improvement.
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Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #122 on: July 24, 2018, 03:49:34 AM »

Hello guys!

I had my second round of PRP + HA, done by Dr Virag & Sussmann 6 days ago (actually by Dr Sussman and her new assistant, as Dr Virag was on holydays; but the two ladies did the thing with much competence, and this time I barely felt any pain).

I was unsure about this and I still am, but at the same time I am too excited not to share it: for the first time in 10 months, my pain in erection has subsided a little!!

Actually, the first night after the shot, I had big, long-lasting and not-so-painful erections throughout the night, which was surprising to me, as after the first round of injections my penis was in so much pain that it did not get hard for like 2-3 days. Then, through the following nights (I did not get boners during the days, as I did not see any girlfriend nor had sexual stimulation), the erections subsided a little (albeit they are still there), as did the pain, which now seems stabilized. I'd say I went from a 7/10 to a 4/10 pain in erection, which is already awesome for me.

I hope SO MUCH that this is no fluke or illusion, and that the pain won't come back with a vengeance... Nothing to report about the difformity yet, but it's said to be normal after only 2 shots (I'm aware some did not see improvement even after 6 shots).

Anyway, I'll keep you updated of course!

Bye :-),

G
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: PRP & HYALURONIC ACID
« Reply #123 on: July 24, 2018, 04:04:16 AM »

Gabriel

Is he injecting in the plaque?
How many injections at one session?
Do you know the % PRP and HA and quantity?

I had PRP with no results, but if you will have results I may give it a try :)

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #124 on: July 24, 2018, 04:41:14 AM »

Hi James!

Yes, they are injecting very, very precisely in the plaque, with live ultrasound (it's a 4-handed process). You get 4 injections in one session; I forgot how many mL, but it's quite a lot in total.

I never asked for the % of PRP and HA, but I know the quantity of PRP depends on the proportion of red cells you have in your own blood (for me they are quite numerous, so I "only" got 14 mL of PRP, which they told me was far enough).

Anyway, of course it's way too early to claim any result :-)... But we'll see, and I'll keep you up to date if things continue/stop changing!!!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: PRP & HYALURONIC ACID
« Reply #125 on: July 24, 2018, 10:36:46 PM »

Thanks for the answer Gabriel :)

Can I know what is your platelets count? PRP stays for "Platelets Reach Plasma" so platelets quantity is important.
Mine is 1,000,000; more than double of maximum normal, so I can make the calculations according to the 14 ml you stated.
If you will have answer for the %, please let me know. I am living in the far east, not practical for me to make to fly to France.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #126 on: July 25, 2018, 02:59:17 AM »

Hey James,

You're welcome!

Unfortunately I have no idea of my platelets count, and don't think I ever had this kind of analysis... But I just took note of your question regarding the % and quantity of PRP/HA: it is now written in my "things-to-ask-to-Virag" file I carry with me everytime I go there, so I think I'll be able to give you an answer in late august ;-).

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: PRP & HYALURONIC ACID
« Reply #127 on: July 27, 2018, 03:41:39 AM »

Thanks Gabriel

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #128 on: July 31, 2018, 06:29:02 AM »

Hello guys,

So, it's been 2 weeks since my second injections, 1 month and a half since the first one. Here is what I can tell so far:
- Although the first one seems to have done pretty nothing, the second shot offered me a night of infinite-like erections and a tremendous decrease in erect pain for 12 days or so. Since 2-3 days pain has come back with a vengeance, but it's probably my fault, as I had a huge consumption of alcohol and marijuana this weekend, eating BS food for 3 days instead of my super healthy diet, and pain came back right on sunday evening... Hope it won't last... Anyway, I can say for sure the second shots greatly relieved my pain at least for a while, as this reduction happened literaly overnight after the second round.

- My left curve, which was progressing at high speed since may, has clearly stopped developing, and even subsided a little (it seems I went from ~25° to ~15°). I don't know if this is imputable to PRP, but it was concomitant.

- My hourglass, unfortunately, did not stop progressing, and even worsened a little. Since it all began 10 months ago, I've lost 1cm in diameter on the top half of the shaft, 1,5cm in length, and probably 25-30% in girth. I'd say the fact that it continue to worsen recently is not due to the PRP itself, but rather to the fact that I can't do traction or VED for 15 days after each shot... Which, as you can imagine, is hell of a dilemma. Anyway, I try to focus on the good sides, and I'm telling myself that I'm getting the Restorex if it's EU approved in january, and that it will get me some length/girth back along with the VED.........

Don't hesitate if you have questions!!

Best regards folks,

G

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #129 on: August 05, 2018, 07:03:55 AM »

Hi folks,

So I've made a complete erection check this morning: the slight left curvature I had and which was developping very fast is now gone, or so (it's maye 5°). I resumed traction and VED just a few days ago, so these can have helped for sure, but they cannot be accountable of this recent great progress. Is PRP responsible? Or chance? Anyway, of course I rejoice of this news, but my main and terrifying problem remains my hourglass/bottlenecking and girth/length reduction which are not getting better at all...

I'll keep on doing traction and VED and see. BTW, I might have found something useful for pain, but it's too early to be sure so I'll tell you after a good amount of testing time.

Anyway, I'm flying abroad for vacation tomorrow for 12 days, so I won't be able to post until mid August :-).

Take care,

G
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

hope794

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Re: PRP & HYALURONIC ACID
« Reply #130 on: August 05, 2018, 11:32:44 AM »

Gabriel, from 25° to 5°!!! that's really great news!!
I'm really happy for you. Which effects are you noticing on EQ?

P.S. = i think that some of the issues you still have may be corrected using the VED.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #131 on: August 05, 2018, 12:52:46 PM »

Hi Hope, thanks for your post!

Well yes, that's very good news, albeit the curve had not preocupated me so much (25° was tolerable, but it's true I'm better off^^)!!

About EQ I really cannot tell, apart from this first crazy erections night I related: the thing is I had had psychogenic Erectile Dysfunction before Peyronie's, and since it started I almost always took daily cialis, so... I wont be able to judge properly until I stop cialis, which I don't want to do before inflammation stops!!

And yes, hopefully VED will help me regain some girth and length, but the problem is that so far it has not even allowed me to preserve my basic dimensions... Although it's true I could have been more compliant over the last weeks or months. We'll see, and hope!!!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #132 on: August 24, 2018, 05:53:34 AM »

Hello boys,

A little post to update you: although it has been, as always, very sinusoidal, I think a can report a little improvement regarding pain while erect. After a big setback when I ingested too much alcohol/THC/sugars (+ acting stupid), things cooled down again, and for like 10 days my night-time erections have become not-so-painful again. Also, I had sex last night for the first time since one month, and after the usual big sharp shot of pain while getting an erection in my pants, the pain subsided greatly, and I was able to achieve more than one position for the first time in 6 or 8 months (nothing glorious though, and still had to go super soft and super careful).

So, this might be due to PRP (I think so, partly at least), but maybe also to my ointment mixtures (I do think they help, but not with pain in erection actually), or chance (and that we will never know). But I'm also wondering: I have been taking potassium bicarbonate for like a week now, and I think this might be involved too... Dunno actually, I'm making a lot of research and experiments with bicarbonates/minerals lastly (after reading the interesting thread here about baking soda), I'm wondering if that could be a solid lead; we'll see!

Another good news is that left curve is now very close to 0°; I consider it gone. Bad news is that hourglass is still clearly worsening badly, despite daily full oral treatment, VED, traction, ointments... And I do think it's affecting EQ: last night again, I had no problem achieving a strong erection at the moment I was stimulated (I was under Cialis too), but I was loosing it in seconds at the moment I was not stimulated anymore. Also, the upper part of my shaft takes a little extra time to harden, which is usual I guess.

So, good and bad here; anyway, I'm having my third round of injections next thursday, I'll tell you how it went :-).

Bye guys!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #133 on: August 30, 2018, 11:32:29 AM »

Hey guys,

I just came back from my third round of injections: it has been much more painful than the second one, but still much less than the first one. Dr Virag said the additional pain of today came from the fact that they were "treating" and "sweeping" an area that had not been reached during the former sessions.

Anyway, a few important informations here:
- According to Dr Sussman, who performed as usual a long and thorough ultrasound before injecting, my plaque has subsided from 3,3mm to 3,00mm in one month. As I have read somewhere here, I have to be careful regarding such claims, as measures can vary a lot depending on the will of the pratician. I would like to believe it's good news, but since the bottlenecking has not subsided at all, I'll wait at least the next ultrasound session to rejoice about an eventual plaque reduction.

- Once again, the ultrasound showed no calcification at all, which might support the fact that plaques can actually un-calcify (cf. my previous posts).

- Drs Virag and Sussman confirmed, looking at the pictures, that my curvature went from 20° or so to 0° or so, which is obviously great news.

- Something more polemical: I asked both Drs about the potential danger of Andropeyronie compressing the plaque right at the place where my bottlenecking is located... Both told me, as Dr Galiano already had 6 months ago, that they were not big fans of Andropeyronie, especially regarding an hourglass/bottlenecking deformations like mine. Both said that they actually don't really know what to think about it, but that it would not be stupid to think that the "strangling system" of Andropeyronie has negative effects on such kind of deformation... SO, I finally just ordered the ESL40 AND the PMP, so finally I just spent 750 F^$=ING EUROS for my junk today  ;D... This HAS to stop quite soon, because money is REALLY becoming a problem here  :o.

Anyway, I keep hope and will tell you about any progress in the next few days or weeks :-)!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #134 on: September 12, 2018, 04:17:55 AM »

Hello everyone,

So, It has been now 3 months and half since my first injection, and 15 days since the last one; I was waiting to be sure about this, but I think I can now say that the two lasts injections made a huge difference!

Here is what I can report:
- Pain continues to decrease sinusoidally, injections after injections (and I mean that the changes occurred each time the day right after the injection session). Pain was approx 7-8/10 in erection before the treatment, 5-6/10 after the second injections, and now 3-4/10. Sex still has to be very careful and soft, but now I can achieve 5-6 positions (compared to only one 3 months before) and have a relatively mutually satisfying intercourse.

- The general penis inflammation feeling is going down too, also with the precious help of my essential oils mixture; it's now very rare to feel a shooting pain or strange tingling in my penis throughout the day.

- Curvature is now undoubtedly a total 0°.

- Hourglass/bottlenecking does not seem to have worsened over the last 3 weeks. It actually might have improved a tiny little bit; like I might have re-gained 2mm in diameter in one particular spot, but this is way too slight and uncertain to be significant (and I don't mesure girth, but diameter, struggling to maintin my erection with a rigid measuring tape, so...).

- EQ does not look better. The thing is, as I am on Cialis H24, I have no problem getting an erection, but at the second I stop being stimulated, it falls down... According to the Drs, it may be a venous leakage caused by the cup-shaped dorsal plaque preventing the dorsal vein from compressing properly. I hope the next injections sessions (~3) will break down some plaque and fix at least partly this issue...

Well, to conclude, I'm not cured at all but it seems like my Peyronie is FINALLY stabilizing and has stopped getting worse, which would already be a huge victory. I don't want to judge too early though, so I'm waiting for the next injection round...

Bye guys :-)

G
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

hope794

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Re: PRP & HYALURONIC ACID
« Reply #135 on: September 12, 2018, 06:44:43 AM »

Gabriel, i am really really happy to hear this!! Furthermore, i also have a dorsal plaque (in the left dorsal part, just near the glans) and i also have a venous leakage. Probably that part is the worst one to have a plaque, because of the issues it can create to the dorsal vein occlusion... I think that too.

Keep us updated!! :)
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

james1947

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Re: PRP & HYALURONIC ACID
« Reply #136 on: September 12, 2018, 11:45:45 AM »

Happy to hear your results Gabriel :)

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #137 on: September 12, 2018, 04:21:39 PM »

Hey Hope and James, thank you very much, I appreciate your posts :)))!!

Hope, yes indeed we have an annoying condition... But, if I'm not mistaken, I believe that many folks here managed to better their EQ after long periods of daily VED use (like 12 - 18 months); I really hope it will turn out like this for us, and that our plaque will soften/shrink enough to let our dorsal vein be :)...

Oh James, I forgot to mention: I remembered your question, and asked it to Dr Sussman last time: the mix injected is actually ~12% HA and ~88% PRP, with an amount of PRP varying amongst people according to their red cells level.

I look forward to getting the next round of injections, and meanwhile I'm enjoying my new PMP, which allows me to progressively reach amazing tension power without feeling any pain... I will keep you informed ;-)!!

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: PRP & HYALURONIC ACID
« Reply #138 on: September 18, 2018, 05:49:41 AM »

Hi Gabriel

Thank you for the answer :)

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Alibaba

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Re: PRP & HYALURONIC ACID
« Reply #139 on: September 18, 2018, 05:56:41 PM »

1) I have no experience with this doctor or his technique.
2) I have experience with Hyaureaic acid ( sp) Rejuvenes collogen injections that were supposed to last 18 months to 2 years. My body would absorb the injection fillers in 2 weeks. The bit the your body replaces it with it's own collogen is total BS in my opinion. In my thinking, it only works in or right under the skin.
3) I have also had 2 rounds of stem cell treatment.  Again, I think it is total BS and the study I was in was discontinued because there appeared to be no benefit for any participants.
4) As I have stated before on FrankTalk,  Quick fixes are seldom a fix, costly $ that could be applied to well know more invasive proven fixes that could prevent lost time, worsening conditions, and depression that can cause you all kinds of grief.
5) I am old. Some of you are also, some not, but the time you waste on half assed fixes is time you will never get back. As an old guy, I have like a lot of you lesser experienced are testing now, have tried all the BS fixes and wish I had known about or pursued the best from the start.
6) I have a friend who just completed the xyaflex (sp again) treatments. Dick discussions have been the norm between us for a decade and he keeps me up to date. Other than pain of the injections that lasted a month at a time, it did nothing for him.
7) All the above mentions have been U.S. based by well known U.S. doctors at teaching hospitals.
For those who know me from other forums, as with my comments elsewhere, I don't have any opinion.  ;D ::)  Cheers boys.
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JS1991

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Re: PRP & HYALURONIC ACID
« Reply #140 on: September 18, 2018, 09:56:38 PM »

1) This is important, thanks for sharing.

2) I have no experience with this, so cannot comment.

3) I do have experience with stem cells, and I've gained some girth back in my most severe area of hourglassing and the deepest dent on my penis has filled back in about halfway as well as smoothing out. I believe being in the acute phase helped with this. Were you in a placebo-controlled study?

4) This is true, I understand your skepticism.

5) Good advice, but I advocate for a research-based approach; I feel like we all do and we've been making progress because of it with certain therapies. Also, your age (and I'm assuming your chronic state of Peyronie's) could attribute to the lack of progress for you. Have you tried any of the physical therapies?

6) Xiaflex has been proven to work on some members of this board, although it does not have a 100% success rate.

7) Same.

Thanks for sharing your opinions, it's always good to know what other people think on the subject.

Alibaba

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Re: PRP & HYALURONIC ACID
« Reply #141 on: September 19, 2018, 12:35:24 AM »

There was no placebo side to the study I was in. The product manufacturer was providing product trying to build a chest full of success stories in advance to marketing it at a shockingly high price.

I agree about evidence based as long as we know where that came from. I.E., weed out the supplier financed studies or doctors selling their own technique.  Despite that, comparative results from individuals of there own results have value. Studies tend to be averaged in the end with percentages that do not tell an entire story. An example is comparing the immuno therapy I am on with the competing product.  Advertised to have 46% better outcome. Reading the details it is a numerical process to arrive at that. Bottom line is an average life expectancy of 2.7 months vs. 2.9 months.  That 2/10ths of a month by the time they get done with the 2 stage number play = their 46% claim.

Yes, I have tried the physical therapies. Weights, stretchers, vacuum pump. Have a whole box of gadgets used over about a 15 year span of time. I keep forgetting to put the XLab stretcher on eBay.
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Kramer revision 3/1/17 Titan

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #142 on: October 02, 2018, 11:06:05 AM »

Hello guys,

Just coming home from my fourth PRP/HA session at Virag's. Hurted a little, but nothing unbearable (still MUCH better than the first time). And I scored a 19ml of PRP^^!

Anyways, according to the docs, my mean albuginea thickness went from 3mm (including ~1mm of plaque) to 2,8 / 2,9 mm ; since the beginning (approx. 3,3), that would be a 0.4/0.5mm gain, which, if true, is pretty encouraging. Plaque still covers all the top of the shaft like a cup, but according to Sussman it should show signs of regain in elasticity in the next weeks/months.

What I am truly wainting for right now is another reduction in pain: the 2 last sessions brought great results with regards to this, so I'll pay attention to what happens down there during my next nocturnal erections.

I'll keep you up to date of course!

Bye :-),

G

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Bueller

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Re: PRP & HYALURONIC ACID
« Reply #143 on: October 18, 2018, 05:32:06 PM »

Where did you get the stemcells done at? Has anyone tried gainswave? I was only using cialis and pentox and I felt like my condition stabilized but 5 weeks ago it got way worse so now I'm desperate for any help.
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Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #144 on: October 20, 2018, 03:57:28 AM »

Hey Bueller,

My treatment is not about stemcells, but PRP, which I'm having with Dr Virag & Sussman in Paris (more détails along the thread).

I tried gainswave, as many here, with good but ephemeral results on Erectile Dysfunction, and none on Peyronies Disease itself (as almost everyone here).

Anyway, a good use of the research function will provide you with a lot of informations; if you still have questions later, we'll be here to answer them !
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Gabriel

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Re: PRP & HYALURONIC ACID
« Reply #145 on: November 11, 2018, 06:37:03 AM »

Hey guys,

Just a little update to tell you... nothing  ;D.

Unfortunately, my latest injections seem to have had absolutely zero effect.

Besides, I made a big measures/pics check: actually for the whole time, my hourglass was indeed still progressing, but very slowly; it was actually more "normalizing", as the various lumps I had became what now looks like almost perfect symetrical concave curves on both sides, with a loss of around 30% total volume on the distal part.

Shortening, however, has really stopped, stabilized at around -1,2cm; I tend to think that intensive sessions of PMP and recently ESL40 since the end of summer are playing a big role here.

Anyway, after a huge burst of hope with a great diminution of pain, this injection protocol is kinda disappointing (apart from being crazy expensive); normal sex/life is still not an option... I think I'm gonna go for the 5 over 6 session (this tuesday), and if it does nothing again, dismiss the last session and explore ketogenic diet.

I'll keep you informed; bye guys  ;)!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: PRP & HYALURONIC ACID
« Reply #146 on: November 11, 2018, 09:55:30 AM »

Sorry Gabriel it didn't helped you, but I am not surprised.
Done PRP in the past, helped nothing.
I had hope that PRP and Hyaluronic acid will help as where I am living is relative cheap.
Thank you for updating

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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