New Member in Twin Cities

[bigchetek12]

Hello,
I just (1 month) was diagnosed with mild Peyronies Disease, the curvature is about 10-15% I'd say and pain is mild. I saw a urologist who admitted he didn't know anything about it and asked me to see the groups PA who does all this work. That's in 2 months..
I'm going to start coQ10 100 mg 3 x a day now and wanted to know about taking trental also, if any of you are physicians I am also and can self prescribe or ask a colleague to. Id like to get started on that drug right away. I do have a LOT of performance anxiety and am panicking that my sex life is over, at 51 years old. Does anyone know of specialists in the Minneapolis area also?
Lastly thank you so much for this forum, what Ive read so far is so so helpful..

[james1947]

bigchetek12

An expert close to you may find in the link bellow:
https://www.peyroniesforum.net/index.php/topic,4063.0.html
CoQ10 will not do much because your age is 51, you should take Ubiquinol, the refined CoQ10 (Ubiquinone). Debate on the subject you may find bellow:
Coenzyme Q10/Ubiquinone - Ubiquinol - Peyronies Society Forums
It is  good idea to start on Pentox as soon as you can, I was adding 2.5 mg daily Cialis if you don't have ED, 5 mg if you have.
Also I was starting using VED, gently, according to the protocol on the forum.

James

[nemo]

If you'll read the boards a bit, you'll see that Trental (Pentox.) is pretty much the gold standard prescription pharmaceutical treatment for Peyronie's.  COQ10 (Ubiquinol) is a supplement that some believe has some positive effect.  The two together, plus daily low dose Cialis, are pretty much the go-to oral treatment at this point.  Don't expect a miracle, but they're about the best one can do right now for this "disease."  

Don't panic. I know it's hard not to, but most men on here with Peyronies Disease remain sexually active. It's not a sexual death sentence in the majority of cases.  

Best,
Nemo  

[user of no names]

I also live in the twin cities and recently saw Dr Landon Trost at the mayo clinic.  There aren't many experts in MN as Dr Nehra went to Rush in IL.  Dr Trost is young at 33 but I can assure he knows what is going on.  He does all the peyronies cases at mayo and studied under Dr Mulhall and Hellstrom.  Here is his info on the site: Landon W. Trost, M.D. - Doctors and Medical Staff - Mayo Clinic.
He is the only Dr in the state who can do xiaflex injections and prescribes pentox and cialis.  I will write something soon on my experience with him.  If you want more info PM me.
later jesse

[NeoV]

Many of us get pentox online.

For mild cases VED therapy might restore some of your lost dimensions.

EDIT: VED, as far as I'm concerned does restore lost dimensions regardless of the progression of the disease. I think it's invaluable.
The only reason I speak of it lightly is to not anger those who for whatever reason do not find VED useful. I stand by my belief in it's usefulness.

What I actually wanted to say was buy a VED immediately and start oral therapy.

-V

[james1947]

NeoV

Your statement bellow is not accurate:

For mild cases VED therapy might restore some of your lost dimensions.

My case is far from mild (to the bad direction) and VED has helped to restore some length and girth.
I don't think I am alone on this subject.

James

[NeoV]

I agree with you completely James, edited.

[Nordicz]

bigchetek12,

I was referred to Dr. Landon Trost at the Mayo Clinic. I highly recommend him. He specializes in the disease and as stated by Get Bent he is one of the leaders in less evasive corrections. He has several publications and was a large contributor to the new drug xiaflex being approved for treatment in this disease.

Z

[james1947]

Nordicz

Can you give us some more details regarding Dr. Landon Trost?
Like specialized in what, address, way of contact etc'.

James  

[Nordicz]

Sure James,

Found at   Landon W. Trost, M.D. - Doctors and Medical Staff - Mayo Clinic  


Education

   BS - Exercise Physiology Brigham Young University
   MD Tulane University School of Medicine
   Internship - General Surgery Mayo School of Graduate Medical Education, Mayo Clinic College of Medicine
   Resident - Urology Mayo School of Graduate Medical Education, Mayo Clinic College of Medicine
   Microsurgery Training Course
   Fellow - Andrology/ Infertility Wayne Hellstrom - Tulane University
   Fellow - Andrology / Infertility Sijo Parekattil - University of Florida
   Fellow - Andrology/ Infertility John Mulhall - Memorial Sloan-Kettering Cancer Center

Certification

   Eligible, American Board of Urology

Professional Highlights

   Scientific Committee Member, International Society for Sexual Medicine, 2013
   Research and Awards Committee Member, Sexual Medicine Society of North America, 2013
   Award for Best Fellow Presentation, Sexual Medicine Society of North America, 2013
   Joseph Hume Memorial Award in Urology, Tulane University, 2007
   Member of Junior AOA Medical Honor Society, Tulane University, 2006

Interests

   Male infertility
   Microsurgery
   Oncofertility
   Male hypogonadism and testosterone deficiency
   Erectile function rehabilitation (post-operative)
   Peyronie's disease
   Male sexual dysfunction

Publications:   Google Dr. Landon Trost Peyronies Disease for a list of his publications and contributing content to the subject.


 

[james1947]

Thanks for the update Nordicz.
He have also other "happy customers" on our forum.

James

[james1947]

This topic is locked.
Please continue with specific subjects on the adequate boards

James