Progress following a change in approach

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ashtown

It's been a long day and I have a lot of work to do over the weekend but I promised James I would post something about my recent progress in fighting Peyronies. Unfortunately I don't have much time at the moment to answer questions so I'll try to be fairly clear about the steps I feel are helping and hopefully this will be a source of encouragement for some of you. A few months ago my curvature was almost 80 degrees but when I checked yesterday it looked about 20 degrees at most and my progress is accelerating.

I don't want to give the impression that I am Peyronies free yet but I'm definitely making rapid progress. At one stage my scarring was so bad I struggled to find any part that wasn't badly damaged and chronic inflammation was always a major problem, so even the slightest squeeze would cause pain & inflammation that lasted hours. Now I have no real tangible scarring and inflammation is much reduced but I go out of my way not to provoke it.

I've had a lot of bad treatment from doctors and frankly a lot of bad advice from the forum. The worst was to use a VED, which is what got me to 80 degrees with a twist, shortening and narrowing thrown in. Pentox made me feel pretty awful without helping at all, while Cialis caused the arteries to over dilate, which then irritated the nerves and caused more inflammation. The first 18 months were just a painful period in every way and nothing helped.

For quite a while I had a feeling that diet was the real way forward but I only approached it in a semi serious way, however after more than a year of Pentox etc where it only ever got worse I felt the whole approach to Peyronies is completely wrong and the doctors are no better than medieval quacks prescribing a course of leeches. In no way can a surgical operation that involves stitching your penis straight be described as cure for Peyronies. At that point I decided to drop all the prescribed medicines and heal myself in a more natural way. It was important to explain all this to my wife who just didn't understand at first how changes in diet could make such a difference.

First of all I dropped all meat & fish from my diet at Christmas and I'm completely vegetarian now. I still don't think of myself as a vegetarian and I'd love to eat a good steak but so much meat and fish is pumped full or antibiotics, hormones or chemicals that I just don't find it helpful. I cut them out and it has really helped.

Every day I use a juicing machine and drink over a litre of undiluted juice from various fruits and raw vegetables often including the skins where a lot of good nutrients are found. Ideally they'd be organic but I've had to get by with normal stuff from the supermarket and it still helps. There wasn't much change at first but after a month or so I began to feel a rapid improvement with the inflammation starting to switch off, leaving a generally more natural feel and appearance. I would suggest you watch the documentary "fat sick and nearly dead" for some insight because this is what got me started and it has helped my health in other ways as well. My thinking is clearer now and my eyesight even seems to be improved. I get good erections now every night while sleeping without any supplements like L-Arginine.

The vegetables and fruits I normally juice include:

lemons including the skin, which I then add to the drink
courgettes
cucumber
celery
apples
oranges
carrots
leaks
cabbages
sprouts
radishes

The list could be endless but it's pretty much all good and helpful to your body on numerous levels. Pop in a drop of olive oil to slow down absorption into your body to avoid insulin spikes. All those leafy green vegetables are loaded with fantastic goodness and juicing just allows you to load up with so much more than you could manage by eating. I also eat one avocado every day around mid-morning because it's just a wonderful source of nutrition and great for inflammation.

I take 5000iu per day of vitamin D3, which is important for inflammation and zinc that is particularly good for the penis. I've read that chronic inflammation limits our ability to gain D3 from the sun and I live in a grey part of the world plus I work indoors so the D3 is helpful.  

During the day I eat serious quantities of raw ginger in ginger tea. It's not an easy taste to live with but it's amazing stuff for getting a grip on inflammation and if you consume it every day it will really help. I probably eat about 4 inches or more of root per day. A couple glasses of green tea also does no harm.

For other food I just eat salads, vegetable soups and anything I can think of that is tasty and made from vegetables. I do eat a little pasta and rice but only brown and unprocessed. Pasta of any variety would have caused me pain previously but as my body recovers and I am able to tolerate it more easily now. Nevertheless the plan is to keep going and really beat this completely, which I believe I will do in the next few months. This evening for dinner I ate quinoa, sprouts and raw fennel. Lunch was sauerkraut with sweet potatoes, which are fine unlike normal potatoes. Sweet potatoes are not actually potatoes as many people believe and they are one of the best foods you can eat.

The other wonder food that really heals is home made sauerkraut. Fermented vegetables are a major part of healing the gut lining where most of our immunity system is regulated. The stuff you buy in shops is junk but to make your own all you need is a large jar, some cabbage (red is best) and some sea salt. Then you just leave it for 4-6 weeks undisturbed for best results. Eat sauerkraut every day and you will slowly repair decades of bad eating. Make sure you don't eat pasteurised sauerkraut because that kills all the good bacteria and renders it pointless.  

Things to avoid are also worth noting:

antibiotics, bread, sugar, potatoes, cakes, cheese, biscuits, white pasta, processed foods and anything with additives or chemicals. One or two cups of coffee per day are OK if you are doing all the other things right but go light on the milk. For fats grass fed butter has been OK and extra virgin olive oil is fine. Avoid margarine type spreads and anything artificial. In a weird way my bad reactions to certain food types have enabled me to effectively test what to avoid because the pain was clear and almost immediate.  

Following all of that just make sure you sleep well, get some exercise every day and try to keep your stress levels low. Not sleeping enough is still my worst habit. Meditation and yoga is good for reducing stress that would otherwise drive inflammation. I also go to bed every night telling myself that the steps I am taking are healing my body, which may sound like nonsense but don't underestimate the power of the mind to heal if it believes in something.

Apart from all that my one big bit of advice is to leave it well alone to heal. Prodding, pulling, squeezing and all the rest makes it much worse. Avoid masturbation & sex as well. It's really easy to undo good progress through silly damage so you just have to be disciplined and leave it well alone. If you can concentrate on work and try to forget about the horrors of Peyronies I think that's helpful.

All of this probably makes me sound like a health nut but I'm not obsessive about this stuff, however I have realised that for practically all my life I just wasn't treating my body well enough. The way I see it an injury became the trigger for my Peyronies but the underlying cause was years of taking my health for granted so now I'm having to address this and reboot my system. I'm 46 years old and married with a 17 year old daughter but the great thing is that the body wants to heal if you'll just give it chance. I have no doubt that my body is healing and my Peyronies is now in retreat but I'm not about to fall back into old habits.

My approach is not something unique or totally original and I found various people on the internet with other autoimmune diseases that cured themselves using the same strategies so I really believe this is replicable by others across a whole range of illnesses.
 
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

james1947

ashtown

Thank you for taking the time and posting.
It may be an alternative treatment for some members :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

NeoV

Nice post, thank you.

What echoes most with me are two things you're essentially pointing out.
First: Diet is important
Second: The penis needs to heal (avoid sex, manipulation, and sex).

I agree with these sentiments completely, without going into the fine details.

I might bring up that, I also get the feeling that you might be saying that when your penis is inflamed no treatment will work. I think this is true, and VED and pentox plus sups can work given you are properly resting your penis and being healthy.

I wish you luck , glad to hear your improving!

ashtown

I won't be using the VED or Pentox anytime soon as my current strategy is proving vastly more effective and I believe it is a good deal safer in addition to promoting better long term health.

My belief is that you need to look after your body as a whole and then leave it alone to do the repair work naturally without physical manipulation. Localised treatments fail to address underlying health issues that caused the problem in the first place. Regarding Pentox, if it makes you feel sick, hot or anxious etc I think that's your body's way of saying it isn't happy.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

emasculated

The curve improving could be sign of worsening condition. My doc explained it to me like this: Curve is because of a plaque, e.g. on the upper side resulting in upward curve. It could happen that another plaque forms on the opposite side. This makes everything straight(er), but also shorter and it's a sign of worsening. Don't think that's the case here at all. I just mean curvature degree is not a good measure of improvement / worsening. Better just check length / girth, if there are any changes there.
"Without health life is not life; it is only a state of languor and suffering - an image of death."

ashtown

I agree that curvature alone is not a good measure of positive progress and I'm more interested in other signs of healing at this stage. Indeed this is one of the reasons why I don't consider surgery to be any kind of cure for Peyronies. In a similar sense something like Xiaflex may cure the obvious symptoms of Peyronies but it does nothing to address the underlying cause so you will still be susceptible to a recurrence or some other autoimmune disease in the future.

Previously my penis had a wholly unnatural appearance, even when flaccid and now it looks much more normal. It's not the same length yet as before I had Peyronies but it's slowly regaining some lost length as the curvature decreases. I'd be surprised if I ever regain my full former length but if it gets within an inch I'll just count myself as lucky. Regarding girth I suffered some serious hourglass narrowing and some of that is still there but it's much improved.

For the longest time I had permanent inflammation and scarring at the base of my penis and particularly on the right hand side that extended about an inch. This area has been incredibly stubborn for 18 months but has just about disappeared over the last couple of weeks, which is what gives me some optimism that this is finally going right. The only strange thing is that I still get a jump in inflammation at the base of my penis whenever I take a hot shower but it now dies down after ten minutes.

Following an erection I used to get pain with bad inflammation and it just looked like it had been hit by a hammer for an hour or two after it had died down but that is 95% gone now. I also had cord like structures along the top of my penis that have completely disappeared. That last point feels like a point of healing to me.

There was another thread a while back about adopting a whole plant food diet where a forum member took a similar approach and switched to an entirely vegetarian diet. He forgot about his Peyronies and one day after three months he realised it was straight again. I don't think his case was anything like as bad as mine but it shows a similar line of progress.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

emasculated

I actually noticed a benefit on my pain from eating lots of celery and there is evidence that it decreases inflammation: Celery Works Great for Inflammation, Gout, Cancer, and High Blood Pressure

This article references this highly technical paper: PNAS Plus: Molecular basis for the action of a dietary flavonoid revealed by the comprehensive identification of apigenin human targets

Among other things it reduces TNF-alpha: Flavone deglycosylation increases their an... [Mol Nutr Food Res. 2012] - PubMed - NCBI

What would be highly interesting if one of these "superfoods" as they are called does also decrease TGF-beta!
Then I would eat tons of that stuff.
I searched somewhat in pubmed but couldn't find an article on TGF-beta and some vegetable or dietary supplement.  :-\
"Without health life is not life; it is only a state of languor and suffering - an image of death."

rd

Ashtown, I agree with your post almost 100%. I to started taking Pentox and using a ved but they didn't seem to help and to only make things worse. I then did the stem cell treatment and had some success I think, but I can't say for sure. But it was around that time frame I begin to really focus on diet and actually learning what was good for me and why. I started off with the documentary you mentioned "Fat sick and nearly dead" and went the vegan route for 6-8 months. I felt great at first but I exercise a lot and started to feel weak and starving all the time. I pretty much stopped the vegan diet when the receptionist at my work asked if I was OK and said I looked sickly. I than began to do more research and started going more paleo. I primarily eat meat veggies fruits nuts and berries. I stay away from all processed foods which I had been with the vegan diet. I did add grass fed meats to my diet. All my meats in fact come from local farms that feed the animals there natural diet and let them run around on the farms. I haven't never felt better in my life. I also try to eat seasonally so in the winter I eat pretty much meat (to get more vitamins and minerals I added organ meat to my diet which has plenty to make up for the lack of plant based foods) and not much else until the season changes and I added in what grows during that season. I do however cheat from time to time with the seasonal stuff. I have noticed great improvements doing this not only in peyronies but in general health. I noticed my sight seemes better over all my head feels clearer and reaction times much better. I stopped doing all the juicing as well because I found that I was getting to much sugar from the juices and when my sugar/cabs aren't very low I get really tired feeling. One thing to note is I noticed major improvements after seeing someone mention they started putting ginger in tea and eating ginger. I added this to my diet and noticed major improvements with in a week. Then they slowed down. I think this may be to do I was feeling so good I started masterbating more because I was pain free and could hardly find the lumps. I have since started taking more ginger root and actually just eating the slices followed by chugging water down after. I have started to see good improvements again. I have three lumps now well two. I had three when starting the ginger and one seems to be completely gone. The other one just below the one that is gone is hard to find as well and almost gone. The one to on the left side of my shaft all by itself is reducing in size too. I don't know if this is coincidence or not but I have read that ginger root is a good anti-inflammatory as well as increasing circulation and one article even said it increases circulation specifically in the pelvic region.

I have actually felt so good I started talking to a girl and might test out the old equipment. It's been about 3 years since I have had sex. If all keeps going as it appears I think no later than the end of summer here I could be lump free.

But I had to chime in even though our diets are different I think you are on the right track and that diet is key and that not one diet fits all. The biggest thing with diet I found was to ask why. I was always told fat and cholesterol were bad for me and to stay away from those. I started to ask why they were and found much to the contrary and when I made the adjustments to my diet I noticed huge improvements. I use to be one that always tried to eat well  and avoid fats and would also just listen to the media as to what was good with out ever questioning who did the research and without looking at it. So many might think they are eating healthy when in reality they are being fed misinformation.

I think we need to put diet out there more as a treatment plan. I know for me pentox caused me more pain when I was on it and I felt bad physically. The VED I gave up after not seeing any results. I think diet should be mentioned more and I am starting to see that as a means to help heal and hopefully recover from this. I think that sometimes we are to quick to jump to meds which I know I was guilty of when getting this horrible condition. But I think our bodies if given the right building blocks are capable of healing and recovering from this.

bigfish

I too agree, ironically the foods that are best for you are  the most expensive and generally take time to prepare. The two things most people don't have...time and money.
BF

ashtown

A major point I picked up from the cooling inflammation blog is that our immune system is largely governed by our gut flora and it takes time for the gut flora to adapt to different types of food. Indeed allergies and food intolerance is basically a sign of poor gut flora health that leads to inflammatory diseases.

Like many people, prior to studying this more I was eating Indian one night, Italian then next and maybe a little Chinese or Texas ribs during the week. All that makes for wonderful variety and an incredibly stressed immune system as the digestive system works to try and deal with constantly changing foods. The trick it seems is to focus on a very repetitive diet so your body has time to adapt and then only introduce changes very slowly. The inclusion of fermented vegetables will also help recovery over a long period but fermented dairy products like kefir are only temporary sticking plasters.

To put this in perspective I have stuck to a very rigid diet since Christmas with no meat until last week when it was my daughters 18th birthday and she wanted to go out with a few family members for a meal. I was dreading it and when we got there everybody else loaded up with a roast dinner that I would have loved but instead I ate a much simpler meal of four fish types, salad and a little seasoned potato because there was no plain vegetarian option. Wouldn't you know it I was in pain for the next two days with serious lump of inflammation and I had been doing really well in the week leading up to that. It took several days to get past that, which is a really clear message from my body over what it will tolerate right now.

I also feel physically weaker than I used to before I switched to a vegetarian diet and where I would have done 50 press ups previously I now feel like my arms will fall off at 30. I actually saw a documentary on this a few years ago with a retired athlete who went vegetarian for a month and found his raw strength was much reduced but he did better in areas like endurance and all his blood measurements where much improved.

Something I think would really help with our immune systems would be a fecal transplant that sounds awful but you can get it in pill form now and it has worked wonders on some people with problems like Crohn's disease. Basically it takes bacteria from a healthy individual and places it into your body to repair the gut damage. It goes without saying though that this hasn't been tried with Peyronies. A fecal transplant is basically the remedy to antibiotics and poor diet that have caused many of us so much damage without knowing it.

Regarding juicing there is a trick you need to learn and that is to add extra virgin olive oil, which slows down the absorption and stops any insulin jumps. Also if you stick to mainly vegetables rather than fruits there isn't likely to be that much sugar in there anyway. For me juicing is pretty effective but it took me a month or two to start feeling the benefits and I did this in addition to eating normal food.

Personally I have never gone vegan, which has allowed me to keep going with grass fed butter (Kerrygold) plus other things like eggs and a drop of milk in my coffee. There are well known deficiencies in the vegan diet and the war on fat is a silly one, since good quality fats like extra virgin olive oil actually help to drive down inflammation.

You mentioned ginger in your tea RD and I was the one who first mentioned it here on the forum. The story behind that dates back about a year when I was looking into inflammation and compared studies in turmeric against ginger. At the time I went for turmeric and it's good for pain but after several months with no real improvement in lumps I tried ginger and I was completely bowled over by how effective it was. Then one day I read that you shouldn't take ginger with Pentox because they are doing similar things to the blood which can make it too thin, so I figured why take Pentox with all the nasty side effects if I can just take ginger and make progress without hurting my health.

You mentioned RD about starting to masturbate when you started to feel better and see improvement. You are not alone and I've made the same mistake with obvious worsening a couple of times. Everything starts to look better with the ginger etc and when you've had an 80 degree curve, 20 degrees can look excitingly straight so you start masturbating every day just for the thrill of seeing the improvement. This is a huge mistake and after a few times I saw worsening, so please, please avoid the temptation. Eating big chunks of fresh raw ginger every day and avoiding masturbation of other physical contact is a major step towards recovery judging by my experience.

Diet is such an essential point is fighting Peyronies or indeed any autoimmune disease. It's just crazy how much it has been largely ignored on this forum. The one thing I am going to resume is burdock, which I ran out of a couple weeks ago and since then I haven't seemed to make any great progress, though that may just be down to work and family stress. One improvement I noticed today is that my hour glass narrowing has practically disappeared now and it's just a really slight dent on the left hand side. When I was at my worst following massive damage from the VED I would say my hour glass narrowing had reduced my girth by about 50% to a point where it was no wider than my thumb and I have small fingers.

Emasculated is right about celery and I have it every day. It's very cooling and contains useful nutrients. The one point of warning is that it's also something that you have to wash really well because they tend to have a lot of pesticides that we really don't want.  


Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

arcadia68

ashtown,

Very interesting. I have been considering changing my diet and have wondered if the chemicals in meats are a major culprit for my ED and Peyronies. My VED use seems to have made everything worse, too. It sounds like inflammation was a major problem for you. How much was ED or Peyronies affecting you? Has your sex life improved with these changes?

thanks
arcadia68

ashtown

I can't say if chemicals in meat are directly causing your problems but I just prefer to eliminate the risk. Inflammation is still an issue for me in that if I were to sit here and squeeze my penis a few times I'd very quickly experience signs of protest. Checking for positive or negative developments is hard to resist but I can only say I've made the most progress when it was completely ignored for at least a week.

When I first got Peyronies ED was actually the first sign that something was obviously wrong before I experienced any real pain. That became less of a problem after a while. My general condition is slowly improving but I don't want to risk sex at this stage because in the past it has made it worse. I also think it's important to resist masturbation because just like somebody else mentioned earlier it seems to make it worse in my case.

Peyronies is always changing until you've beaten it completely I guess and even then it can come back without warning. My latest update is that my hour glass narrowing has significantly reduced, so it no longer looks weird or freakish like before. My curve is around 15-20 degrees. Depending on my level of discipline and other factors such as stress it could be better or worse next week.

I have no problem gaining or maintaining an erection on my side or lying down but if I stand up it dies really quickly unless I stimulate it in some way, so I'm guessing there is some kind of arterial damage there possibly caused by the VED. My hope is that this will heal in time and as for the rest I'm just continuing with the same plan.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

Old Man

arcadia68:

Please read my PM to you this date about over pumping and holding times with your VED therapy.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

rd

I have to agree with ashtown again. My peyronies isn't noticeable anymore except to me. I have two lumps one so small its hard to find another shrinking and the dents you can't see but can only tell they are there by feeling now. But I have made the most progress by leaving it alone for a week at a time. I noticed if I check more often than this I stop seeing results and might even go regress a bit. I found that if I leave it alone and schedule once a week to check I get the best results.

ashtown

When I first joined this forum; before I even had an official diagnosis for Peyronies, somebody here gave me one of the worst pieces of advice imaginable when he told me to squeeze the plaques firmly every day to try and break them down. I don't remember who it was but I now understand how unbelievably stupid that was. To anybody reading this thread your number one priority with Peyronies should be to avoid inflicting further physical damage.

It's hard without a doubt to completely ignore for a week or more when you are anxious about progress but just like RD I've found that if I check it more often it sometimes gets worse. Following the last appointment with my urologist I was in serious pain 24/7 for the next two weeks with several new plaques emerging after a few days because of the excessive pressure he applied during the examination and I can't believe I was actually paying the guy to inflict that kind of damage, while telling me it couldn't do any harm.

In many ways I wish I had a job that got me outside the house more and moving around with constant activity. Spending hours alone in front of the computer every day isn't at all helpful, so I really need to throw myself into my work and completely forget about the Peyronies somehow for an extended period. Being sat for extended periods seems to cause more inflammation and pain.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

melting

I think you might be at the root cause of why the body didnt handle the situation the right way. You sure are on the right track.

I was rather fine when I was vegan. Peyronies came upon me when I was about 6 months back into standard diet. I was in a poor state mental and physicly. Im pretty sure that worsened the situation at least.

I think we have to be very honest about our circumstances that might play into the condition.

Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

NeoV

I couldn't agree with Ashtown more,

More activity, more blood flow, less masturbation, just a healthier penis all together. Staying active is crucial for the blood supply to your penis and all sorts of other things.

ashtown

There are two obvious points I've noticed. My inflammation and pain are easily at their lowest levels following a good night of sleep and they are also pretty good following some kind of extended exercise like a one hour walk. A combination of the two with a healthy diet and no touching appears to be the route towards healing.  

A couple months back I saw a documentary about exercise and it showed that while it's good to get out and do 30 minutes of physical activity a sedentary lifestyle in general, such as working in an office is the real problem because inflammation levels spike when you are sat immobile for several hours and the guy they were testing was a writer like myself.

They advised getting up every 30-45 minutes and walking around for a few minutes just to let inflammation levels subside and I do this from time to time but not nearly enough. With a chronic inflammatory condition like Peyronies this becomes even more important and good sleep is also vital.

When I first got Peyronies it followed an extended period of stress, lack of sleep, poor exercise and a fairly useless standard diet. No doctor has ever mentioned how any of these factors might play a role in the development of Peyronies and they want to close down the entire discussion so the only topic is Pentox for 12 months followed by almost certain surgery to correct the curve without ever addressing the causes of the problem.

It has only been through personal research that I've started to reverse this condition and I'm pretty sure now that I'm getting some of it right but there is more that I could do.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

UrsusMinor

Well, you won't find me arguing with good diet and exercise.

That said, I've been a vegetarian (no meat, no chicken, no fish) since 1969. And, yet, look: here I am, on the Peyronie's Forum.

I will note that about 18 months ago, I tore my rotator cuff very badly, and went from someone with a vigorous Power Yoga practice to someone who couldn't even swing his arm enough to go jogging. Happily, I'm coming out of that period. Unhappily, I am coming out of it with Peyronie's.

I am fully willing to believe that this is primarily an inflammation issue. How you address the problem of inflammation is another matter entirely. A lot of the nutritional advice I hear, even based on so-called scientific studies, is crap. For example, there was a study showing that there was an immediate inflammatory effect of eating a meal containing saturated fat compared to eating a meal containing polyunsaturated fat. But the test meal was a milk shake and carrot cake--a sugar bomb the size of Hiroshima. What this proves to me is that saturated fat is more inflammatory that polyunsaturated fat if you are eating more sugar at one meal than most of our ancestors ate in a month.

Inflammation may be an issue, but a lot of healing processes, and muscle-building processes, involve inflammation. There's good inflammation, and bad inflammation.

The old advice for recovering from a heart attack used to be "don't do anything to stress your heart." Now it's "Begin exercise, and keep increasing your level of exercise, as soon as possible."

This sounds a lot to me like the "No sex, and no masturbation" versus "Use it or lose it" debate here.

By all means, find out what your body wants. But I've got a feeling there isn't any recipe...

james1947

Ursus

You are vegetarian from 1969 and got Peyronies? How old you are?
I never made any diet, eat red meet just if it is fat, eating sweet things, drinking, was heavy smoker also, very not healthy life and had never any problem until the accident that triggered Peyronies.
Can't say that the trigger was cholesterol (90), no sugar (70), no blood pressure (110/70), just the accident.
What ashtown is saying that he cured his Peyronies doing his diet. This is the reason I made the topic sticky that others may want to experiment with his diet to cure themselves.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

UrsusMinor

Yep, I became vegetarian just before I turned 15.

It was relatively uncommon in those days, and many people warned me I would probably die! Things have really changed over the past 45 years. Nowadays if you tell someone you are a vegetarian, they say 'good for you!'

I had the good luck to live in California when I was young, and 1969 was the peak of the hippie era, so being a vegetarian wasn't as weird as some of the other things going on.

So, yep, I recently turned 60, and Peyronies was pretty much my birthday present!

melting

I think something like muscle fatigue is a minor and time restricted inflammation process. While doing the same exercise, with fatigue, over and over will lead also to problems.

I think the inability of the body to cope with the initial problem within the penis tissue right away will lead to an overexpression in the iflammation process.
The tissue of the penis is predestined for it as it isnt as much covered in blood and has a rather ineffective lymphdrainage opposed to lets say shoulder connective tissue.
So non usage is probably not so good.
I guess your other incident probably helped to offset a higher level/sensitivity in your body combined with poorer circulation.
Diet then can just do so much. But when diet is bad too it will make it worse..

I know that the initial cause of my plagues(during intercourse) wasnt creating the plagues right away.
It was followed by non usage(bad blood supply) , very poor diet and bad overall health/fitness and psyche. Only after that the plagues formed.

I think a healthy diet should be the foundation to prevent it and help in the process to get rid of peyronies.


(btw. vegetarian still could mean that you might ingest something not healthy for your body.. think gluten or milk..)
Daily Transdermals and Traction/VED solved my Peyronies Disease https://www.peyroniesforum.net/index.php/topic,12587.0.html (DMSO+X)

Ketric

I happen to be reading this particular string and almost fell out of my chair when I read something ashtown posted back on April 22. He mentioned that his urologist pinched and squeezed the area where the plaque was most prominent. I had almost the exact same experience with 2 urologist (not on the same day!) who worked at the same office. The first guy nearly dropped me to my knees when a grabbed and pinched the area. Then a few weeks later, I requested a follow-up but clown #1 wasn't available so I saw clown #2...who pretty much did the same thing, like they thought it was ok.
Now here's the irony...I was straight, no curve but in some pain. A few weeks after the encounter(s) is when the curve began to appear and accelerate.
From what I understand, once Peyronies Disease starts it's "course" changes come quickly...but I truly wonder if those 2 quacks actually injured the area more. Anyway, I'll be heading for the Lahey Clinic this week and hope to have a much less painful and more positive experience as this Dr actually has some expertise with Peyronies Disease
Sorry, I know that was an older post but felt the need to comment.  

Mc007

Hey everyone...let me introduce myself...I've just gotten on to this forum over the weekend as I was flying to Chicago...
I have had Peyronies Disease for about 4.5 years now. I have never seen a urologist, because I am a dentist with EXTENSIVE background in research, in lasers, and inflammatory nutrition.

What I want to comment about is the inflammatory parts...then I'll throw in some of the laser stuff....

My soon to be Ex-wife, was diagnosed with MS about 7 years ago. We visited a number of neurologists around the country and landed in a practice in Durango, CO. There, we, along with our local MD who is extremely holistically trained, discussed this in depth. From there, I have done a boatload of research. AND since then, every year we get MRI's on my wife's lesions, they are almost completely disappeared. She still has some lingering symptoms from "scarring" of the myelin sheath's but, still, much better and all because of DIET and SUPPLEMENTS. The diet is based upon blood tests that are very in depth that tell us what foods we are allergic to. The body is like a machine, garbage in, garbage out. Do you put Diesel in a gas engine? No way...so to make the cells in the whole body healthy, one must eat healthy. It's easy for us to say, "just go gluten free", and things will heal, but it's much more than that. For her, it was gluten, eggs, and dairy. She adhered to that STRICTLY, because she didn't want to be in a wheelchair. She is only 54.

I have been on my diet, but I cheat, which after today, I will cheat no more. Ash is right spot on..my results are getting better, but not back to where I'd like to be, so I will follow in those footsteps...I will also talk with my MD, and will get back to everyone on that. There are blood tests one should take, IF INTERESTED in going this route, that are very important, so you know EXACTLY what to avoid food wise, and you would be surprised by the results of the tests...I was, and I test my patients as well, when they want, because of inflammation in the oral cavity is a huge problem (gum disease), and it's amazing when a patient becomes compliant how the body responds.....

The laser stuff...there are many wavelengths of laser light. Two that are extremely beneficial in humans, Nd:YAG, and Er:YAG...I won't get into specifics unless you want me to, but the Nd:YAG lasers have a biostimulatory effect that is amazing. It works on a cellular level on the mitochondria of the cells. It reduces inflammation tenfold and promotes a healing response like nothing I've ever seen....Drawback...I tried it on my self just recently, and it is a "heat" laser, and caused some internal pain while using it. I'm going to do this again soon, but find a suitable power and pulse duration and see what happens. I have been very busy with the stress in my life, so if you are wondering why I haven't gone crazy trying to treat this on myself that is why. I will document my progress and see what results I get, along with diet and supplements...who knows...I've found, by accident, a way to perform root canals that is changing the way dentistry has done them for the last 100 years, and maybe, just maybe, we can find something to help us all....wish me luck!
Best,
Mark


james1947

Mc007

Wish you luck with the laser treatment.
By the way, we have some topics regarding lasers.
If you will read them, you will get some impression about other people results. Just a search on the forum main page.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

UrsusMinor

I'd like to hear a good deal more about the laser issue, but we probably shouldn't hijack this thread. Perhaps you can post more info at one of the existing laser threads? I'd love to hear more.

runner70

I am a newbie to this and to nutrition, but I'm on the same course of an anti-inflammatory diet.

It's my recent understanding that you would certainly cut down on inflammation with a vegetarian or vegan diet, but isn't it the foods that are processed as sugar that cause the inflammation?
In any case, that's what I've been learning. The biggest things I've cut out are the pasta, bread and deserts. It was incredibly tough at first, but now, not at all.

I'm glad to hear the diet changes may be helping some of you.  

UrsusMinor

I've been a vegetarian most of my life, and I got this anyway.

For me, at least, the carbs are the problem.

That said, it is possible to make very low-carb, high-protein pasta--if you don't live in fear of gluten. (I don't.) These are as good as any homemade noodles I have ever had (and homemade beats store-bought any day):

http://yikesnocarbs.wordpress.com/2011/11/22/low-carb-soy-flour-pastanoodles/

Bent Johnson

Quote from: Mc007 on September 08, 2014, 01:57:00 PM
There are blood tests one should take, IF INTERESTED in going this route, that are very important, so you know EXACTLY what to avoid food wise, and you would be surprised by the results of the tests...I was, and I test my patients as well, when they want, because of inflammation in the oral cavity is a huge problem (gum disease), and it's amazing when a patient becomes compliant how the body responds.....

Best,
Mark

Hello Dr Mark,

Thanks you so very much for your encouraging post. I find this all VERY interesting, especially regarding the blood testing for nutritional deficiencies and what foods to avoid. Could you please provide more information? I would be very grateful indeed. BTW, was the blood testing done at Cyrex Labs?

Thank You,
BJ

 

mikes

ashtown,

what you have described as an alternative treatment seems very promising. Have you had an ultrasound to obtain an "objective" measurement of your results? Do you believe the healthy way of living you have been following has reduced your plaque(s) - if any - size?

I can verify that when I had a 20-day break from stressful office work  (caused from wifi in my case) I could only feel the plaque and almost no inflammation around it when flaccid. Also my urologist mentioned that my plaque was softer.

However, after going back to the office for a month, and suffering from stress and bad quality sleep inflammation came back with a vengeance and a 1 mm increase in plaque size.

Mike

james1947

Mikes

Ashtown was last online at May 03, 2014 so don't expect an answer in the near future.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

StriveForSucccess

QuoteThe vegetables and fruits I normally juice include:

lemons including the skin, which I then add to the drink
courgettes
cucumber
celery
apples
oranges
carrots
leaks
cabbages
sprouts
radishes

I would like to add: have you considered broccoli? It's incredibly healthy.
Forever trying

james1947

StriveForSucccess

From your 4 posts, I don't understand yet what is your connection to Peyronies.
Please detail.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum