Hi, 24 year old here, suffering since mid-teenage

[Crankitup]

I've been following this forum for a long time without bothering to register here (maybe just didn't have the courage to admit I was one of you guys). Finally, though, I thought I should step up. I've mostly signed up in the hope that I'll be able to persuade people here to join the call to large-scale action because despite a few efforts fading away, I still think organized efforts and a plan will see us standing in very different positions year-to-year only if we try.

I want to state first off, that I haven't gotten myself diagnosed yet, but its very obvious I have peyronies.

I never quite remember when I developed a bent penis, but I first noticed I had one around the age of 16. Back then and now still, it bends about 30-40 degrees downward when erect and starts to go soft within seconds. Maintaining an erection isn't possible without constant stimulation. There has never been any pain nor lumps on the shaft, but erection does give that tigtening sensation, and there's a hard band of tissue along the top side of the shaft. I know for sure that neither the scar/bend nor the ED are by birth. Possibly my very first masturbation technique (a stupid wringing-it-between-the-palms) taught by a friend are to blame here, but can't be sure.

Anway, so that's peyronies+severe ED, but get this: I show classic signs of low T as well. I am physically very weak (often insulted for throwing like a girl), with almost zero chest hair even at this age (in contrast, my brother had em fully grown by max 19 years of age). I do have facial hair but again they're nothing like my brother's beard and grow up small and in patches that look still the same as 5 years ago. Around the same time during my teenage years when I felt my strength dwindling compared to other growing boys, I also experienced a libido downfall that I still suffer from. I think that's when my testosterone levels started to fall and maybe that encouraged peyronies or something.

So most probably I have Peyronies + ED + low T.

This disease has literally devastated a youthful, intelligent and ambitious man in me and turned it into a cantankerous people-hating chronically depressed slob of meat. I used to be top-of-the-class stuff as a kid but now I spend my time day in day out desperately thinking of ways I'm still relevant for life or life for me, or that I can still get my verve back. All of this happened despite my having thought all along that I was keeping this problem as best as I could from affecting my non-sexual life.

Still, there is hope, and its increasing. Its funny, the phases I go through these days, really. In my society, you're expected to marry by maximum 30 years of age. After that, I'd have to let society to know I won't be marrying cuz I can't 'get it up'. So here I am, praying and hoping that the earth would split open and either gulp me in or throw out a miracle cure for this godforsaken disease, and there's Anthony Attala and others like him who're really reaching out for no less than a miracle cure, but....just over a decade or two later than I'd like to.

How I'd happily bear all the grievances of Peyronies if only God had created me one generation too late.

I know that old or young, we all go or have gone through these phases. I just thought I'd share mine. It's great to have this community and even though I struggle to find motivation in life anymore, I am very motivated to stir up things around here and speed up efforts to accelerate a cure for all of us. I'm pretty definite that the inactivity of the only peyronies forum worthy of mention will, in the end, be blamed for medical solutions coming in later than sooner. For me, every year counts, and Attala is doing all he can but we are not.

I'll be following this post up with one in the advocacy and awareness board.

[LWillisjr]

I would encourage you to NOT assume you have Peyronies until properly diagnosed. If you have been on the forum for awhile then you are probably also aware of congenital curvature. If you assume you have Peyronies then you might pursuing the wrong type of treatment. Treatment for Peyronies vs. congenital curvature are different. Just be sure what you are pursuing so you don't lose time following the wrong treatment initially.

Les

[NeoV]

Sounds like you have it to me. Mine also started around 24, I'm 27 now.

It doesn't matter if you have Peyronies or not, you have debilitating symptoms that match or exceed the severity of many people with a diagnosed Peyronies.
LWillisjr is just trying to point out that, without a diagnosis we can't say that much to help you
So, yes you should see a true specialist, as soon as you can, but don't let the ambiguity of your illness fool you into apathy.

Penis health and testosterone should be viewed in a holistic way. Exercise, eat well, give your damn dick a break!
I have Peyronies as well but have never had an ultrasound myself.

I recommend you take a break from porn and masturbation to get the "sexual high" back and restore your testosterone. I do not accept that penises are meant to stay hard without stimulation. I think that's normal. Maybe you do have ED, but before you slap a label on it, do everything else you can to combat it. I've had plenty of times in my life when my erections felt that way and they still do so long as I'm masturbating every other damn day. The brain get's used to sexual high, just like any drug, and the result is a lessened effect of said drug.

Try to see a specialist, then consider traction or VED, and look at the supplements or medications that are out there on on these forums.

You can and will find love from women in your life if you choose to seek it out. You can be loved sexually even with a bent or injured penis.
Most men even with "well functioning" dicks (whatever that means) don't demand or seek out real love or adoration in their lives, or sexual liberation for that matter.

Focus on your problems and consider yourself in a state of healing, you can do this man. Commit to your problem and don't try to run from it anymore.
The best sex of my life came after Peyronies had begun. Tackle this as a whole! Feel free to PM any of us, that's what this forums for.


-V

[Crankitup]

Thanks a lot for the kind words and advice.  

I know i should get a diagnosis soon, but there's no way i'm starting treatment until i find a urologist who knows the latest news on this disease inside out, which is even harder in my part of the world. I made this decision after a little web research 8 years ago showed me how sketchily it was understood all over the world, and it was a clever one, seeing as how several young people on this forum got further screwed in their early years by the bad treatments their doctors rushed them into.

And neo my dong has always had its share of rest, mostly cuz it just has to before it can go again. Plus, my humble drive doesn't demand much work anyway.

Lwillisjr, there's a hard band of tissue that makes my penis inelastic and unable to curve up - something that wasn't there till before puberty at least. But if there's a chance that still isn't scar tissue, awesome. In any case, I'll have to battle it out.

Cheers,

-T

[Mcclete22]

I found my doc on this site.

Peronie's Physician Finder | Find Peronies Doctor & Treatment

I thought i wasn't any where near a specialist and I was screwed. Looked on that site and found a doc that was less than 1 hours drive. Called and it was going to be over a month until I could get in, then I asked about a cancel list, and found a cancel for the next day.

There is hope. Look for a doc and don't accept anything except help. Try that link, a doc may be closer than you think.