Can you have sex with your Peyronies?

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popopo

Last time I tried I couldn't orgasm and stay erect during intercourse. How much differwnce do condoms make, since I never even tried without condoms? My only hope is that the extra feeling keep me erect.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

QuackAttack

Popopo,

I think everybody is different. Some people that get Peyronies may get ED. I have no problems functioning. It still works fine, it just pisses me off that it isn't normal. I would go without a condom and see how it works.

Jimbruski

Absoulety cannot have sex.  Left bend close to 90 degrees.  No pain to speak of but the harder the erection, the more the bend so.......no sex.

Jimbruski

TheE

Quote from: Greenalien on February 02, 2016, 02:25:57 PM
Hey guys, I know this is an older post... but I thought I would chime in.

Peyroine's has definitely impacted my sex life. The mass I have has started to cause a curvature towards my abdomen. Right now it is a moderate curve so not too bad for penetration. I find the pain to be the larger barrier.

The psychological aspects are almost worse... take the enjoyment out of things when everyone is afraid of causing pain.
Bit of a late reply but it sounds like You're still in the acute stage, I hope things improve and the fun comes back. I'm past that sharp pain stage but it's still painful when I'm first erect because the scar's stretching. The area can also be quite tender and enflamed after sex but the curve has gotten less. No change in my waist deformity or girth loss though. It can get better I'm trying to say :)

KoffeeKup

Yes.

Fortunately there is no pain.

Unfortunately their isn't much pleasure either. It can kinda come and go. I think my mild case could improve at least sensitivity wise but there is definitely a 10 degree curve that wasn't there and I do not feel as much as I used to. At least it doesn't hurt but I really can't feel much.

I am finding that I need to watch my overall health to keep it functional. I can't afford to sink into depression or poor habits or everything starts to act funky again.

Knowing that there is a large mental component is helpful and a little annoying... I have learned talking about it and making positive changes helps.

Masturbation is a no-no tho. It is what got me here in the first place although it has shown that all hope is not lost. Too much of a good thing...

Hedgehogger

no, i cannot perform sex it painful and i can't overcome my mental awareness that i am having this pain.
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dever

late reply but yes, I still can though it is becoming more awkward

mrbentpp

Yes I can. I have a 90 degree right bend! It felt weird at first but I got used to it. The issue is not me but my wife. She says it hurts. If it didn't hurt her, I would not have much of a problem except erection issues, but I am 63, so that is not so uncommon at my age. Cialis works great but is so expensive.
Age 66 Peyronies 2010, 90 degree bend, Dr. Ritenour (Atlanta) tried VED, injections for years but gave up. Now pills don't work for ED. FINALLY got implant 3/16/2021 Dr. Hakky Atlanta 20cm Titan

bent1956

Penis-in-Vagina sex: not really.  No pain, but I can't figure out workable geometry.  See more info and digram attachment below.

Oral sex: not a problem, maybe even better than before for me and my partners (shorter penis and bend puts partner's tongue proximate to my frenulum hot spot for more pleasure for me, and no gag reflex triggered for partners).

I have had Peyronies Disease for about 20 years now. I have experienced significant shortening (maybe 4-5" if I were straight).

My penis goes out about 2 inches, and then makes an abrupt 90 degree upward turn, and goes maybe another 2-3 inches.

With this bend, when I am erect, the head of my penis presses into my body.  I have to hold my penis down a bit at the root to make the head stick up, and even bend it down even more to make the head face away from my body.  

But there's a geometry problem I have not been able to work out for Penis-in-Vagina sex with any partner in that time:

Imagine that my partner is laying down on pillows, with her legs spread wide.  Assume we can raise or lower the pillows and angle them so that we can position the entrance to her vagina so it is whatever height and angle would match my penis.   I bend my penis away from my body and position the tip so that it is at the entrance to her vagina pointing upward.  I can try to thrust by moving up and down, but if I move down much, the tip will slip out and rebound to its original position with its head against my body. That upward-downward movement is also awkward, and the frenulum which is the most sensitive part of my penis doesn't really rub against anything in this angle.

Alternatively, I can try bending my penis downward at the root.  Now the tip is pointing more outward.  In this case, I can slide the tip forward and backward a bit.  But again, only about an inch or so, or I slip out again.  While I am moving more in and out in this position, the head of my penis still wants to press upward, so again the frenulum doesn't get any friction.

If anyone has the same problem but worked out better alternatives, I'd love to know.

Diagram at:

Limping Along

Negative, but can't say if that is and ED problem or Peyronies.  Prior to diagnosis/peyronies onset, no problems, since, can't maintain an erection long enough to insert, or in some instances, even manual stimulation fails.

Steve W

I can perform, but with irregularity. I have about a 60 degree bend to the left with severe "hinging." It requires an extremely rigid, strong erection, which I don't always obtain, even with Viagra. No pain, but with the bend, and the center penis weakness, which bends during penetration, it makes penetration extremely challenging, if at all possible.  
65, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.

peyronies_dave

Penetrative sex has been off the menu for the past couple of years here. The combination of a 45 degree left lateral curve with an 80 degree dorsal curve, plus ongoing ED, puts paid to that. Although I can get a half decent erection with the help of medication, I can't sustain one for longer than a minute or two. Currently awaiting surgery to deal with both issues (graft/reconstruction plus implant.)
UK-based, mid-fifties, 'complex' peyronie's with ED, awaiting graft + implant surgery on NHS

jumpjustin

I have more of a hinge effect and around a 30 degree bend. My biggest problem is flaccidity on the upper half of my penis. Entry is tricky, and requires lubrication. Once I'm in if I can maintain an erection, it works. Missionary is best by far. My biggest problem is my mind. I start becoming conscious of the problem which isn't the best thing for keeping an erection.....


charlie17

Thank you all for the great posts on here.  

Thank you all for the great posts here.


Thank you all for the great posts here.  It's been 3 months since the injury during intercourse that's led to my peryonies (proximal shaft fibrosis as diagnosed by Dr Goldstein in San Diego).  I have a 15 degree curve to the left, which is slightly more than my natural curve, but my main issue is ED caused by the fibrosis, as well as a fair amount of pain (some of which Dr Goldstein says is from a L5/S1 spine injury I'm also looking to take care of).

I understand sex may make things worse, especially if you're not perfectly hard.  I've been taking 20 mg cialis daily to help heal (and after 3 months just got on pent yesterday), and recently upgrade to bimix to help ensure full erections.

My question is, do you guys recommend absintence to help heal, as I'm likely still in the acute phase at 3 months in?  I'd very much like to continue having sex while I explore treatments and hopefully show some improvement, but I'm concerned about making things worse, both my ED and my pain.
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Bubba dawg

I don't think anyone here knows that answer to that question charlie. I would ask the Doctor who examined you. Call his Nurse and she will relay your questions to him.  I had sex when I was in the painful stage. I did not know I had Peyrones at that point. Not sure if it made me any worse.  Could not have sex in the banana stage. That is when I went to the Doctor
5 Rounds of Xiaflex. Good results.

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