Considerable improvement on oral cocktail

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james1947

Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Mentos

Dfurman

What was your squeak behavior over the course of your improvements? I'm at a place where I am seriously considering no masterbation or sex for a while.. Erections yes but no physic stimulation.  

dfurman

I certainly cut down on jacking off to at least 3 times a week.
I did continued having intercourse at least 4x week but really cautious with woman on top and using lots of lube to avoid further trauma.
I agree with general consensus that erections are super important in the healing process, especially morning erections. Mentos, if you have the will power to abstain from sex and only encourage erections, then i guess it would be OK.
To me sex was my way of coping with the psychological issues of this. Without, sex i think I would've lost this battle.
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

MattFoley

If I had the time, I would engorge my penis all day long so I could maximize blood flow. Unfortunately, society expects me to work to pay my bills.  ;)
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addboy

I went out and purchased Propolis, magnesium cloride, and changed my coq10 to ubiquinol with kaneka QH and it's been helping with my erections and blood flow a lot!  My erections have been firmer and more frequent pretty much started a few days after administering.  
Implant: AMS
Date installed: June 2014
Doctor: Dr. Garber, Philadephia, PA

Mentos

Addboy that's great too hear!! Keep us posted & wishing you continued healing!!

MattFoley

Hey guys, I have to add that I'm also seeing improvement in my erection quality. Two days ago I was getting ready to masturbate so I put on my cock ring and some porn and before I could put on the VED, I got a solid erection. The erection was so good that I couldn't put the VED over my curved penis.

I'm not sure to what degree this protocol was the reason for it but this is the only thing I've done differently since starting this particular treatment.

God bless our penises.

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Mentos

Hey guys I'd also agree that I've seen some improvement as my inflammation that was below my gland appears to be gone. As well my 90 maybe 95% full erections seem to be about as straight as they always were and it is only when fully hard does a curve show.. I'm not exactly sure what this all means but I'm certainly sticking to the regime.

I have also started with the size genetics but have not gotten into the habit of using it much.  

MattFoley

Mentos, that's great news, I'm happy to hear about your success. Keep it going!!! :)

Also, I just got my prescription of Diclofenac so I'll be adding that to my protocol as per the clinical study that supported using it as part of the treatment protocol for Peyronie's.


http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3437487/
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dfurman

Great news guys!!! let's keep this up

I ran out of propolis yesterday and restacked today another 90 day supply this morning. This will mark month 4, I plan on pushing it a full year, where all the dramatic results should happen.

Still a little pain here and there, I am thinking if I should throw in Ubiquinol for that. Any thoughts?
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

james1947

dfurman

Ubiquinol will be my choice in your case if you can afford it.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

MattFoley

I definitely agree with James. Ubiquinol is a must if you can afford it in your budget.
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NeoV

I have been seeing improvements from this combination for the last few months, however, as of today I am stopping taking all of these supplements.

I am very sad about it, since my penis continues to change and improve since first using VED and starting these supplements.
I'm stopping because my edema continues with no signs of improvement. My glans is soft from the edema and I've lost some sensation on the glans as well.

I've heard elsewhere that supplements have caused soft glans in others, the source is highly unreliable, but I'm really at a point where I need to try everything to get rid of this, it's becoming worse than the peyronies itself and I would never consider having sex with it, since there is so much fluid under the skin and the glans is far from rigid.

I'm very sad and confused and I do not know if this is the best choice.. I want to believe these supplements are helping and it really seems like they are.

The other supplement I had added in was Grape Seed Extract. I do not know how any of these supplements could cause edema, but the whole issue started with a mild priaprism of the glans, not VED entirely.

Wish me luck, and I wish all of you luck on this cocktail : / I have a feeling that simply laying off any sexual activity for a long long time will fix this, but it's been very hard for me to do.

I really need everyone's support I feel so terrible about this.

-V

james1947

NeoV

You are not alone in this problem. I had to stop Pentox after 18 months and I had huge benefits from it.
My problem is getting more and more frequent bad flue while on Pentox, ones in two months.
By the way, what are the other supplements/medication you are stopping?

James  
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

dfurman

NeoV

Very sorry to hear about your soft glans problems. Have you consulted a different urologist maybe, for a second opinion?
On a separate note: adding Ubiquinol as recommended by MattFoley and James has worked wonders getting rid of most of the pain. This pain was nothing more than slight discomfort caused by rock hard erections induced by Propolis and Larginnine (harder and firmer erections than pre-peyronies).
Thanks to you guys advice is now nearly gone. Planning on taking Ubiquinol on regular basis.
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

james1947

dfurman

The credits regarding Ubiquinol/CoQ10 should go to George.
We are just repeating his advise. :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

MattFoley

I think dfurman means in this thread not who was the originator of suggesting Ubiquinol in these forums.  :)
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stefanybezar

I have a deal with my doctor. He is in charge of supplying me Propolis through out my treatment. My doctor recommended me to start using propolis on daily basis.

addboy

It appears that my improvement has leveled off and now I'm seeing minimal positive effects from the propolis. I find this with any new supplement/drug I take.  I'm taking 400mg twice a day. Is this the recommended dosage?
Implant: AMS
Date installed: June 2014
Doctor: Dr. Garber, Philadephia, PA

james1947

stefanybezar

Could you give us some more information regarding your Peyronies?
Could you tell us who is the doctor that put you an Propolis and the daily dosage?
What are the benefits you are expecting?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

MattFoley

addboy, the normal dose for Pentox is 400 mg, 3 times a day. My doctor has me taking 800 mg, 3 times a day. You shouldn't really change your doses unless your doctor is aware of it.

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jbvertigo

I am new to forum and haven't quite figured out how to use this properly.  I am a 60 year old male who was just diagnosed with Peyronies. Mind numbing information.

My doctor has put me on Pentoxifilli and L-Argine with vitamin E.   I have just started but I fear I am late to the party.  I just noticed this about a month ago and waited a month to see the doctor.  Since starting this cocktail my penis has curved more then the last time about two weeks ago.  I am totally bummed out.

As you all know we will try anything.  But when I hear that other doctors are using injections etc.  How do you know what is the best to use? How do you know if you are on the right track?  Who is keeping up with this stuff?

JbVertigo

LWillisjr

Well unfortunately there isn't one thing that works for everyone. If there was a precise cure we wouldn't likely all be here. So we try to stay up on all the new treatments and share as best we can what seems to work.

The best thing we have found as a collective group of fellow sufferers is to actually try multiple treatments. Usually a combination of prescription drugs along with VED or traction treatment. If you haven't read the following yet this might help get you to a common baseline of what is recommended so far.

MUST READ BEFORE YOU POST - Information for new members - Peyronies Society Forums

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

james1947

jbvertigo

What you are describing is progression of the disease.
You are not late to the party at all. It is just two months from the start so you are in the early stage of the disease.
Using the correct treatment you may (not for sure) halt the progression and even reverse the symptoms.
I am proposing you to start VED according to the forum protocol, carefully not to over-pump, 3*400 mg Pentox (you are on it already), low dose Cialis, Ubiquinol. L-Arginine may help also, regarding vitamin E, will not make damage.
Send a PM to Old Man if something not clear about VED (how/what/why), he is our Guru in the subject.
My opinion above of course.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Head Up

This thread hasn't had a post in 10 months and could use an update. This Propolis supplement sounds very interesting. Has anyone from this thread who tried out the supplement had any results they care to share? Thanks  

Thisismyusername

Yup, I tried Propolis, did absolutely nothing, just like every other supplement I've ever tried.