Considerable improvement on oral cocktail

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dfurman

It's time I share with other sufferers my success with a combination consisting of Pentox 3x day, Propolis 900mg 1x day, Magnesium Chloryde 400Mg (tablet) 1X day, Vit E 400 mg 1x day, L-Arginine 500Mg 1x day plus Cocoa butter penis massage before bedtime.
I first came down with this evil disease in February 2013. Heavily devastated by the drastic downward bend near the glans plus severe pain with erection (which put a sudden halt to my active sex life), decided to throw  all the heavy artillery at this sucker.
I have to admit it wasn't until starting on the Propolis 3 months ago all the improvements in the curve started to appear.
I will not make this up as I understand the frustration and pain this causes, but honestly, within weeks of propolis use the downward curve disappeared and my penis became straight (except for slight left bend, which is congenital).
I first ran into this "miracle" pill on a Spanish forum my wife found online. I decided to email some of the guys in the forum and 2 of them replied to confirm their great success with it. At that point the dices was cast. I bought this very inexpensive formula and ever since feel like a brand new man.
I am not saying this might work for everyone, however, my curve was a nasty one which had appeared suddenly and no doctor provided relief.
Another thing I believed has helped tremendously has been my wife support and staying healthy working out and doing happy activities.
Good luck to each one of you....and trust me there is hope without surgery. ;D
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.


NeoV

Dfurman,

Thank you for the report, it is truly interesting. This Spanish forum you found, was it for peyronies? Or something else? That's truly fascinating. And some studies to back it up it seems.

I'll give it a try.


inkhorn

dfurman- Congrats on your success. I quickly read the articles that Matt posted and did a brief google search on propolis. It looks like it is readily available in 500mg tabs or a topical gel. What about the topical version, for us? I know you said that you use one dose of 900mg and it is pricey, but why? Better quality? The stuff on the web and local health food stores looks pretty reasonable. Thanks Inkhorn

dfurman

Inkhorn--To clarify your comment, I believe you misread my statement below, I said "very inexpensive" or cheap if you prefer. A 90 day supply only cost me about $15 in local health store. I haven't tried the liquid or topical form as tablet was the one recommended to me by guys who benefited from it.
The forum deals with all sort of medical conditions but has a huge area devoted to peyronies. here is a link:
Link removed by moderator. If someone want the link, please send a PM to dfurman
**Only one warning for those who are diabetic, need to consult with their doctor before taking Propolis. I am not a doctor and not sure why. Just passing the info.
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

MattFoley

As per the medical study, I guess I should also look into getting an Iontophoresis machine as well to inject the Verapamil. Anyone know of one that would work for our purposes?
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inkhorn

Thanks fur- Must have got excited at your success and missed the "in"--lol Ink

MattFoley

dfurman, did you also have erection problems as well and if so, did this formula resolve it?

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dfurman

Quote from: MattFoley on October 27, 2013, 05:36:36 PM
dfurman, did you also have erection problems as well and if so, did this formula resolve it?

MattFoley I had major erectile problems. Not being able to maintain erection etc..not normal being 33 years old.
Between L-Arginnine and Propolis my erections are now rock hard. I don't want to take chances anytime soon; therefore, planning on staying on Propolis and L-Arginnine indefinitely.
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

MattFoley

Thanks dfurman, that's great news.

Can you please tell me which brand of Propolis do you use?

Also, why did you include Magnesium Chloryde 400Mg & cocoa butter?
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dfurman

Matt,

I Pm'd you the propolis brand. And yes, I am still using magnesium chloride and palmers cocoa butter with VIt E (mens formula) every day.

Good luck :)
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

NeoV

dfurman, that's wonderful news, and Matt, that would be crazy but amazing if you got one of those machines. Let us know if you find out anything more about obtaining one.

I just ordered propolis from iherb.com, as well as nearly every supplements I could think of to treat peyronies.
Also continuing blueberry extract (taking it now).

iherb somehow ships to Tokyo for only 4 dollars. I'm not sure how they do that.

dfurman

The logic behind the magnesium chloride is to get rid of any calcifications which will in turn soften the plaques. This supplement also benefits me for bodybuilding purposes in general.
The cocoa butter I use as penis rub lubrication to achieve a much healthier look on the skin. Hopefully some of this vitamin E will be absorbed into penis tissues to heal any scars.  
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

MattFoley

Thanks for that info, dfurman.

(1) The iontophoresis machines that are referenced in the article I posted can be found here:

http://www.androline.com/eng/

The problem is that beyond the home page, it's in freaking Italian. I had to translate the page to figure what the hell I need to get and then I have to contact these people. Man, nothing is easy.

Anyway, I sent the company a message on their website asking for someone to call or email me info on the machine used in the study. I'll keep you guys updated on what response I get from them.

(2) The combination of materials include blueberries. I can't find blueberries with 36% anthocyanosides, however I can find bilberries with that standard. Bilberries are closely related enough and can act as a substitute for the blueberries. My only concern is that the study calls for 160 mg. Now, do they mean 160 mg of anthocyanosides or 160 mg of the berry itself? Can someone take a look at that and give me their opinion? I went to vitacost.com and they have a variety of bilberries that fit the bill. However, if I have to add up the anthocyanosides to make 160 mg, that's going to be expensive. At this point, I decided on the Yerba Prima Bilberry Extra Strength -- 160 mg - 50 Capsules.

(3) My urologist has no problem in prescribing the diclofenac 4% so that's solved.

(4) I'm sure I can get the verapamil prescribed as well but I need the damn machine first.

(5) The vitamin E has to be in the form of dl-α-tocopherol acetate. I'm getting that from vitacost.com in the form of 1,000 IU. (Nature's Bounty Vitamin E Pure dl-Alpha -- 1000 IU - 60 Softgels)

(6) The propolis is also available from vitacost.com. It's called, "YS Eco Bee Farms Propolis -- 1000 mg - 90 Capsules"

(7) And we can't forget our friend, L-Arginine. Vitacost L-Arginine HCl -- 1,000 mg - 100 Tablets.


Thanks guys.

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Mentos

Why is there not more attention on this forum to this research and success?


It seems from the success that propolis should certainly be added to the Pentax, cialis, argenine combo or is there something I am missing?

In light of this report today I naught propolis, magnesium chloride,  blueberry & bilberry.  

MattFoley

Mentos, I know there's a solution here somewhere. We are just going to have to be the best doctors ourselves in order to figure it out. I saw my urologist yesterday and although he's happy to help me, he wasn't very enthusiastic about the study I showed him. Then, I saw my regular doctor today and he wasn't thrilled because the study we're talking about did not involve a statistically large group of patients. I'm like, dude, whatever.

The freaking Italians (lazy bastards in Milan) haven't gotten back to me yet either.

It was great reading what dfurman wrote but with the study as back up to what he said, come on, we have to try it. Especially considering the stuff dfurman is taking are not expensive.
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NeoV

Matt,

I ordered the Y's Eco bee farm propolis,

As for the Blueberries, it sounds like they were measuring by blueberry extract.
It's hard to know how standardized this really is, but it seems to be somewhat standardized at least in the medical community and research articles.

I ordered Life Extension Wild Blueberry, which is 375 of wild blueberry extract per veggie cap.

Natural Factors has a 500mg Blueberry "concentrate" in softgel form.
They note that it yields 12.5 mg  Anthocyanins

I should have gotten that one T_T

MattFoley

NeoV,

I think that's a safe bet. As I mentioned, in order to get to the 36% level of standardization, you would have to go to a compounding pharmacy. I think just getting some blueberry extract and then adding bilberry extract at the 36-37% level should work. Either way, dfurman isn't using those in his protocol so I'm not going to stress out about those items.
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NeoV

Wild Blueberry is  - vaccinium angustifolium, or some others..
Blueberry is - Vaccinium corymbosum?

Wild Blueberries contain more Anthocyanins than cultivated blueberries.

NATURAL FORCE "BlueRich" clearly states they use Concentrate 36:1 (fruit), and uses cultivated blueberries.
I'd say this one is great Matt, but like you said, I'm sure it's nothing worth worrying about too much.


MattFoley

NeoV,

I agree but the study calls for "36% anthocyanosides". Anthocyanosides and Anthocyanins are two very different things. I'm not sure how they differ without researching them. I would have gotten the blueberries as well but my budget is rather limited at this point.
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NeoV

Matt,

Anthocyanosides are Anthocyanins. They seem to be alternate names.
However, Anthocyanidins are slightly different, being the sugar-free conterpart of Anthocyanins.



MattFoley

Cool, even better. Thanks for researching and helping me with it.  :)

Let's pray we have similar results to dfurman.


God bless us and especially our penises.
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dfurman

Just for the record:  Y's Eco bee farm propolis, is the exact same product I am using. I did not disclose it earlier as I didn't know if product brand was allowed in forum.

I must stress the fact that I am also on pentox, which might triple the efficacy, who knows...
But in all honesty, the curve and hourglassing disappeared within weeks of Propolis use.
there is still few centimeters lost in length and girth, which I hope to recover in the next few months.
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

MattFoley

dfurman, thank you for the follow up.

At the very least, some of us who have been following this topic are moving actively to see if this protocol will work as well for us. Some of the guys have already ordered the products and I'm ordering mine today. I wish you continued success with your treatment. The war continues.
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Mentos

Yes Dfurman thank you very much!

I am moving on all of the treatment regimes you have outlined. Please keep us up to date and offer any advice / inspiration as it comes. It all helps.


Mentos


there is still few centimeters lost in length and girth, which I hope to recover in the next few months.
[/quote]

I am curious why you still would have loss of size if curvature etc is gone? Did you plaques disappear or remain?  

MattFoley

Mentos, I'm guessing a bit here but I think some of the loss of length is due to the plaque pulling the penis back. If the scarring and/or plaque is horizontal across the penis then loss of length is likely. All of my scarring is parallel with my penis so I have no loss of length. That's my understanding.

In dfurman's case, his plaque is pretty much gone but whatever may be remaining is causing a small amount of loss in length. Assuming continued success with his protocol and using traction/VED, I'm confident he'll get it all back and more!!
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dfurman

Mentos, the plaque still there but much softer and reduced in size.
Like Mattfoley said this is an all out war. A war which won't be won in one desicive battle, rather in small scale guerrilla hits.
I feel blessed I came accross the weapons to defeat this evil and be able to help others out of the darkness.
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

NeoV

Today I received my package  8)
Only took 3 days to get to Tokyo from the USA, for just 4 dollars shipping, which is unreal.

I want to truly express how grateful I am to receive this stuff over here. I was even able to use my JBC (Japanese credit card type) to pay for it. I've been very sad and worried here, not knowing how to get a VED, supplements.. But here I am today with all of my tools in hand, in a new apartment since last month in my first semester of grad school. I'm a happy guy today, and very thankful.


Per capsule/softgel

Propolis - 1000mg
Wild Blueberry extract - 375mg
Ubiquinol - 100mg  <--- (low dosage I imagine)
Grape Seed Extract - 100mg
Vitamin D3 - 1000 iu (restocking)
And a men's multi vitamin

Wish me luck! Until now I haven't been taking much along side my daily VED usage. Hope this helps me out.

MattFoley

Excellent!! Go to it, bro, and keep us informed. I pray for your healing.  :)

God bless us all.
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dfurman

Way to go NeoV!!!!
Keep up the positive attitude...that's also critical.
;)
Successful plication surgery by Dr Peter Stahl Dec 2018. Peyronies since Feb 2007. Tried Pentox, Propolis, L-Arginine, Xiaflex (10 shots), PRP Shot, VED & Traction with no significant improvement.

Mentos

This is a good study which shows many of our treatment protocols being successful. including propolis, blueberry etc.  

MattFoley

Mentos, excellent info!! Wow. Thanks for finding that. It goes to support a number of treatments and methodologies that a few of us here are excited about to explore.

I received my package today. It includes:

(1) Propolis 1,000 mg
(2) Bilberry 180 mg
(3) L-Arginine 1,000 mg
(4) Vitamin E 1,000 iu
(5) Magnesium Chloride 520 mg


I hoping for a miracle like our friend dfurman got.

God bless.
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Thisismyusername

I'm also going to start taking Propolis.

I've been taking CoQ10 300 mg per day for around 3-4 months now.  I started adding Saw Palmetto 320 mg per day a few days ago and will be adding Propolis 1000 mg per day later this week.  

I'll let you guys know if I have any improvement.

I've also taken vitamin E 400 mg per day and L-arginine between 500 mg and 2000 mg per day in the past but didn't necessarily notice any help so I discontinued.  

jackp

I have been taking Saw Palmetto for over 20 years. Just to let you know it will take 6 to 8 weeks to notice any improvement.  

Jackp
http://jackp-penileimplant.blogspot.com

MattFoley

Thisismyusername, if you're going to take Propolis I highly recommend you take the other supplements as well as per the study I posted and dfurman's program. Please consider getting the stuff I got for myself that I posted below.


Jackp, are you taking the Saw Palmetto for Peyronie's or general mens health for prostate, etc.?
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Mentos

im curious about saw palmetto also?

It will help understand your posts if you will check them with the speller. It takes very short time.

jackp

MattFoley

Saw Palmetto is used for men with urinary and prostate problems.  

It comes from the Saw Palmetto tree in South Carolina and Florida.  When doctors were doing a study they found that the native Americans living in that area did not have prostate and urinary problems.  

The biggest help for men with peyronies is urine flow. It eliminates the need for flo-max and other prostate drugs and there side effects. 20 years ago +- it reduced my prostate size from twice normal to a normal size.  

Jackp
http://jackp-penileimplant.blogspot.com

MattFoley

Jackp, thanks for the info. I took saw palmetto years ago when I had a prostate issue. It worked great. I thought there may be some application for it with Peyronie's.

God bless.
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inkhorn

Jack- Can you elaborate more on the urine flow subject you mentioned in relation to helping peyronies. I'm not sure if this line of questioning is considered highjacking, if so I apologize in advance. Regards Inkorn

Mentos


Thisismyusername

Ive been taking propolis for a week and a half and saw palmetto for 2 weeks.  Have not noticed any differences.  I'm not taking all the other stuff that dfurman talked about though.  

I'm taking: coQ10 300 mg per day, saw palmetto 320 mg per day, propolis 1000 mg per day, vitamin D3 1000 IU per day.

Honestly, no supplement I have ever taken has made any noticeable difference.  

I don't mean to discourage others from trying.  Maybe others will get some help.  And I have not been taking propolis, saw palmetto, and vitamin D for long so I will give those another 2 months or so to really see.  

james1947

I am taking 3*450 gr. Saw Palmetto per day.
As Jack has told me, 450 gr. per day is good for maintenance but not enough as treatment.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

jackp

It will take at least 2 months to start seeing results from taking Saw Palmetto.  After 6 weeks I threw all the other meds out and have been fine for over 20 years.

Jackp
http://jackp-penileimplant.blogspot.com

NeoV

Saw Palmetto is a very strong supplement, while recent studies deem it safe there are numerous reports of young men permanently ruining their hormone balance with it, and have to go through some serious therapy to try to reverse it.

I do not agree with the claims, but nevertheless they exist. I hate to hijack this thread but I'm definitely still too afraid to take it! Wait isn't it in my multivitamin? lol.

james1947

NeoV

Can you post the:
Quotenumerous reports of young men permanently ruining their hormone balance with it, and have to go through some serious therapy to try to reverse it.
I am interested to see them even I am not young :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

MattFoley

Ahem. I'm thinking that discussing Saw Palmetto in this topic is considered hi-jacking from the original topic. I'm actually OK with it but I'm thinking a moderator might get upset.  ;)
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Hawk

Just a note of clarification to new members.  Saw Palmetto has nothing whatsoever to do with the treatment of Peyronies Disease.  For that reason I hesitate to comment on it especially under this topic.  I also share James' concern for the the statement that it causes hormonal imbalance.  I am very skeptical of that statement and unless some solid documentation comes forth, I would consider it an unsubstantiated claim that has little following and little or no support.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Mentos

I agree with mattfoley that talking about saw palemeto or whatever it's called should be removed from this post which is about discussions dfurmans protocol and use sharing research, resources etc related to new supplements he introduced us to such as propolis, bilberry ect (atlesst to me he did).

Thanks hawk for clarify.  

Jonbinspain

I have also been trying Bee Propolis for the last 2-3 months. So far, no change whatsoever!  Good luck to anybody that it has worked for.