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philip64

Hi. I was 39 when I was diagnosed with Peyronies. I am 49 now. The injury resulted in an S curved penis. For the next four years, I continued a pretty much normal sexual relationship with my wife without seeing a doctor. However sadly we were divorced. I had a girlfriend for several months after that and began to notice some problems with ED and flaccidity. It did not however affect our sex life too much. We broke up and for over four years I was celibate. Recently though I have found a new girlfriend but my ED is so bad that it makes sex impossible. I am also much more self-conscious about the condition that I used to be. It also seems (though I may be imagining it) that my penis is not capable of achieving stiff enough erections for intercourse anymore (all in my head or progressive condition?). In any case I believe that it is various fears and worries that make me lose my erection. Another example is that I fear damaging my penis even further. I'd like to get remarried someday and I'm optimistic that I can work out these problems. Nice to join the forum.

jackp

philip64

Welcome to the forum. There is a lot of information here.

From what you describe besides peyronies you have venous leakage. It is not a mental condition. Have you tried any of the ED drugs?

I have posted in on the surgery board a topic called Healing Broken Hearts. It tell what procedures can be done for different stages of peyronies.  

I have lived with peyronies and all the problems it can cause for over 20 years. Old Man has for many more years than I. I suggest you start on the VED exercise ASAP. I have posted a exercise for the single cylinder model that Old Man (the expert here) helped me develop. It takes time but does help. You can also use a constriction ring that comes with the VED for sex.

With proper treatment for the ED you can have a excellent sex life.

Jackp
http://jackp-penileimplant.blogspot.com

Norm

Philip,
Additionally, I would suggest you try Cialis Daily. It really helps with firmer erections. Many of us here use it and like the results. It has few side effects so there is little to lose and much to gain by trying it. I assume it, or something like it, is available in your country. Good luck.  
Plication Surgery Dec. 2013. Straight Again!

philip64

I haven't tried any of the ED drugs yet, and I'm no longer seeing my girlfriend. i'm anxious though on achieving firmer erections on my own, which I have had some success at recently. i would like to start VED, and continue with daily Cialis, though I'll have to find a way to get it mailed to me here as it's quite expensive.
If I do have venous leakage, I don't what I can do about it as there's no way I could afford surgery. I hope other methods work.
I do know that I can maintain an erection easily during masturbation so it should stand to reason that with practice (and a partner!) that I should be able to maintain an erection during intercourse. I think because I haven't had sex for so long it will require practice and will be hit and miss.
I have read however that almost all men with ED can successfully masturbate but not so with intercourse. I can see I'll need a lot of patience. Sorry for babbling.

Norm

So much of the problem can be mental. That would explain why one could maintain an erection for masturbation but not for intercourse. There is no pressure in masturbating, but performance anxiety can play a big part when faced with a woman. I don't have an answer to that. Maybe one of the others here can offer advice.  
Plication Surgery Dec. 2013. Straight Again!

Jonbinspain

Norm is right. Anxiety about performing can cause all kinds of E.D. problems.  What you need is an understanding lady who you can tell about your problem. If she really cares, she will understand and reassure you that it doesn't matter if the first or even second attempt are failures, this will, in turn, give you the self confidence that you clearly lack at the moment.

It really is a matter of finding the right lady, opening up and telling her what the potential problem is beforehand. Trust me on this, it can be made to work with the right kind of help and understanding.

Good luck to you.  

basketweave

There is discussion that Cialis (or any of the ED drugs) increases the risk/can cause Peyronie's. This was confirmed to me today by a doctor. The reasons given were any or all of over-pressure, erection for too long, insufficient oxygenated blood due to time blood stays in the peinis.

james1947

basketweave

I would like to see the discussion regarding:
QuoteCialis (or any of the ED drugs) increases the risk/can cause Peyronie's
Also most forum members and doctors we know have other opinion on the subject.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

inkhorn

Phillip- you have to find a way to get VED-this will take care of both the erection duration and the venous leak. I also agree the pressure to perform can cause a limpness, but not with the VED. Regards Inkhorn  

jackp

James1947

I agree that erections are good for a man with peyronies. I never heard, or have read, anywhere that the ED drugs will cause or make peyronies worse. The only ED meds that cause or make peyronies worse is the injections into the corpus Cavernosum. PGE1 say so right on the label.

I have sent a email to Todd Doran and Dr. Douglas Milam at Vanderbilt and asked if they know anything about this.  If so where is it in the medical literature. I will post there response.

Jackp
http://jackp-penileimplant.blogspot.com

philip64

Quote from: inkhorn on August 23, 2013, 09:07:44 PM
Phillip- you have to find a way to get VED-this will take care of both the erection duration and the venous leak. I also agree the pressure to perform can cause a limpness, but not with the VED. Regards Inkhorn

Not just the pressure, but I am far more ashamed of my condition than I was five years ago. I feel 'deformed' now whereas it didn't bother me much at all before. Funny how we change as we grow older. I also experienced 'buckling' during (very short) intercourse with a somewhat soft erection which scared me which in turn led to an immediate loss of erection. Any sort of fear is an erection killer (I'm sure that's nature's self-protective response). I also could not use condoms but did not know my partner well enough to not have safe sex. I was about to try viagra, but as I've said we've parted ways. I hope that was on good terms, but to be honest I'm looking to remarry and not being able to perform was a real downer for me, although she was supportive.

I just bought a VED that looks to conform to the general specs I've seen here. I'll keep reading up on use and safety and get started. Thanks for the support.  :)