Gene Therapy in the Management of Erectile Dysfunction (ED)

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koolx

Check out maxi-k. this is a proven gene therapy for erectile dysfunction. its even hailed by many as a cure for ED:
Maxi-K Gene Transfer May Prove To Be Safe And Effective Erectile Dysfunction Treatment

Koolx
Sorry I had modified your post to be the first in the subject
James

james1947

Koolx

Thanks for the link. Very interesting and encouraging.
The main question is When it will be available
I mean, trials, approvals by FDA etc'. It may take a life time.
Sorry being so "optimistic"

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

koolx

james,

dont apologize for being too optimistic. i dont know when maxi-k will be available. i read its undergoing trials for female bladder issues. so far its passed safety for male ED with excellent results in erectile function, duration, erectile quality and satisfaction. i dont know what theyre waiting for. its possible theyre waiting to pass safety for this other condition before releasing it to the public.

if u want to contact the doc responsible for creating this therapy, heres the link:
http://www.drarnoldmelman.com/contact-us/

the link to the company that holds the property rights to the therapy is:
Ion Channel - Gene Transfer Therapy

i think if we all make a concerted effort to push this therapy, they could release it sooner than planned. its worth a shot.

james1947

koolx

Thanks for the links.
Unfortunately living now in the other side of the world, can't make an appointment with Dr. Melman.
Here is the link to the Gene Therapy in the Management of Erectile Dysfunction (ED). Impressing results!!!
http://www.drarnoldmelman.com/category/learning-center/

Regarding
Ion Channel - Gene Transfer Therapy
You can see that from 2009 they didn't had any newses until 2012.
Then:
QuoteThe trial is expected to begin in April, 2013.
it is for women with urinary urgency frequency and incontinence.
I have also problems with urinary urgency frequency but I am not a woman.
Market Forecasts to 2019.
Not mentioned for ED.

I will split the subject to a new topic, I think is a very important new treatment for ED.
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

C_lab34

Believe me guys, I would love for this to be a practicable, inexpensive treatment. Nevertheless, I have to say that we shouldn't get our hopes up over it. I don't see this coming out and being affordable in any of our lifetimes. There simply isn't the funding for it, and maybe there won't ever be sufficient funding. Frankly, we're lucky that we have oral medication and 3 piece implants. The medical world does not regard penis issues as a top priority.  

james1947

QuoteThe medical world simply does not regard penis issues as a top priority.
You are right C_lab and it is very sad, for us in any case.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

C_lab34

My thinking has shifted recently. When I first started investigating ED and treatments on the web, I was offended by the lack of research and progress. Stem cells and gene therapy seemed promising, and just around the corner, if only the medical profession could get its act together. I spent months trying to read everything I could about stem cells, scouring obscure journals and foreign publications, daydreaming most of the day about that miracle cure that could give me the penis of my dreams. At some point, I came to my senses. There will never be a miracle cure. The callous attitude of most doctors/urologists suddenly made much more sense. Use what you have. If you can't use it, get corrective surgery/implant. Rather then bemoan the indifference of doctors, be grateful that we have do have specialists that have dedicated their lives to improving our condition. Worst case scenario is that you get an implant that gives you an erection whenever you want one. You could say we deserve better, but think of where we'd be if we didn't even have that option! In a world with so much suffering, with children dying everyday, with cancer, war, and aids, the fact that we have trained doctors that can give us on demand erections is pretty remarkable.  

james1947

The problem is that we have not too much doctors that they really dedicate themselves for oral, VED, tracking treatments and not too meny reliable doctors that make Peyronies surgeries and implant surgeries.
Not easy to find those doctors that have hundreds of surgeries per year under they belt.
Many doctors that are writing Peyronies as they expertise are giving you vitamin E and telling you to come back after 6 months or so.
And last, so many ripoff websites that are promoting "Silver bullets" for Peyronies.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

C_lab34

I agree with you James that many doctors who should know more about peyronies and ED don't, and still prescribe outmoded treatments. That does need to change. I guess my post was more of a therapy for myself and maybe some others who have fallen into the trap of endless research and daydreaming about all of these pipe dream stem cell advances. I think it's fine to see what's going on, but at least for me, I reached a point where I was spending too much time reading old, obscure articles and wondering how long it would be before I could get my fully rejuvenated penis. It isn't going to happen. We have to find ways of making life worthwhile outside of obsessing over this condition.  

james1947

I agree also with your last post C_lab, except that I think have some light in the end of the tunnel.
Xiaflex is new, helps many, PRP has good results with some people, stem cells also.
But yes, the most important thing is:
QuoteWe have to find ways of making life worthwhile outside of obsessing over this condition.
:)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

priapism

Quote from: james1947 on July 09, 2014, 07:52:47 PM

Can you please give more info about Xiaflex and PRP. What are their differences from Trimix, Papaverine and such?

And also sorry to bump this thread but it's been 3 years, are they any improvements on stem cell and gene therapy? I'm 27. I can get %100 successful erections with Papaverine injection but I'm afraid to lose it someday also lastly I had a painful priapism over it and I'm sick of applying it secretly everytime before I have sex.

Best regards to everyone. This is a positive thread.

james1947

priapism

Trimix, Papaverine and such are substances injected to the penis to cause an erection for people suffering from ED
Xiaflex is a substance injected to the penis to correct deformations caused by Peyronies
Xiaflex - Trials and Treatment results - PDS - Peyronies Society Forums
Regarding PRP, better read the topics bellow, you may get an idea:
Priapus shot - Peyronies Society Forums
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum