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Author Topic: Verapamil vs xiaflex  (Read 6601 times)

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Turin099

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Verapamil vs xiaflex
« on: July 12, 2013, 09:43:42 PM »

I am new to forum. 40 yr old just diagnosed with peyronies. My doctor want to start VI. But I am thinking of just waiting for the release of xiaflex. Any opinions would be helpful.
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funnyfarm

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Re: Verapamil vs xiaflex
« Reply #1 on: July 12, 2013, 09:46:16 PM »

Did you discuss pentox with him ?
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Turin099

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Re: Verapamil vs xiaflex
« Reply #2 on: July 13, 2013, 12:25:26 AM »

I did after reading about it on forum. He rejected the idea out of hand as a worthless option. The only option he offered was xiaflex but when he realized the clinical a were over he wanted to use VI. I just figured I might as well go through the pain of injections once and wait for xiaflex. After reading different forums th outcome seems more promising than VI. He was fine with my decision. He said it was a quality of life issue. IDK. I'm also worried that if I did VI cycle then I wouldn't be eligible for the xiaflex when it's supposed to be released in September.
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funnyfarm

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Re: Verapamil vs xiaflex
« Reply #3 on: July 13, 2013, 12:49:54 AM »

You might want to reconsider your decision, quite a few guys have been helped by pentox. If your doctor is not on board, you can can replace him. The downside risk to taking pentox is not that high, but I would be hesitant to become an early patient of xiaflex.  We have seen some bad outcomes already, and it may take a few years for them to get the technique / dosage correct.  A few guys have been helped with VI, but not many..There is tons of info on the forum so do research ask questions,  and you will feel better about your decisions.
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Craig

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Re: Verapamil vs xiaflex
« Reply #4 on: July 14, 2013, 03:41:12 AM »

I think there's overwhelming evidence for Pentox helping Peyronies and its probably the most important thing you need to be taking. I too was the victim of an ignorant urologist and didn't get on Pentox to stop the progression until almost a year into it. It seems like you haven't had the disease for too long, so you're still in the acute/inflammation phase. What you do know will determine how the plaques form and how you'll end up (in the static chronic phase where its much harder to treat).

Right now the most important things for you to take are:

Pentox, l-arginine, colchicine, and cialis.

Other things you should probably take:

Multivitamin, fish oil, vitamin E, vitamin D3, magnesium, vitamin K2 MK7, astaxathin.

Things you may want to take every now and then:

Acetyl-l-carnitine, advil, protein powder, bromelain/anti-inflammation enzymes.

And there's many other things you can try, but the key right now is to get the inflammation down and not cause further trauma, while still achieving regular erections to assure adequate bloodflow.
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Turin099

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Re: Verapamil vs xiaflex
« Reply #5 on: July 16, 2013, 01:06:54 PM »

You've pretty much nailed my biggest fear. Inaction in the early stage. I feel like I might have a chance to limit the damage if I can act now. The forum is an incredible resource but has an enormous amount of content to digest. I've already scheduled an appt with another doctor to try and acquire some pentox. Are VI shots most effective in early stages?  And would you do VED early on. Your feedback was terrific. Any thing you can add would be helpful.
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MattFoley

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Re: Verapamil vs xiaflex
« Reply #6 on: July 16, 2013, 02:48:35 PM »

My urologist told me that the best opportunity you have with verapamil is if it is applied via iontophoresis. Otherwise, the results are sketchy. I'm currently looking for a doctor in my area that can do that.

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foreveryoung

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Re: Verapamil vs xiaflex
« Reply #7 on: October 22, 2014, 04:01:08 PM »

The posts on this seem old esp with the FDA approving Xiaflex for Peyronies Disease in December of 2013.  So, any current dialogue/input on the efficacy of Xiaflex vs Verapamil injections?
Thanx all
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james1947

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Re: Verapamil vs xiaflex
« Reply #8 on: October 22, 2014, 08:21:12 PM »

foreveryoung

Proposing you to read this board.
Results from Verapamil as reported on the forum are close to zero.
The reports on Xiaflex are mainly positive.

James
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csm101

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Re: Verapamil vs xiaflex
« Reply #9 on: May 05, 2016, 08:24:12 AM »

So James are you saying there's a chance? Everyone needs hope perhaps VER will help some people. Im hoping that as well. There is also a huge cost difference between the two depending in what country you live and what your insurance will pay etc.

Hope everyone has a pain free day :)
 
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james1947

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Re: Verapamil vs xiaflex
« Reply #10 on: May 16, 2016, 08:46:10 AM »

There is a chance if you have a good insurance or money. I don't have both, but I hope will have.
Many people got results with different treatments, unfortunately nothing worked for me until now except Pentox, low dose Cialis and VED. Xiaflex price is forbidding for me.
Verapamil helped not many, but still helped some, so you have nothing to lose :)

James
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csm101

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Re: Verapamil vs xiaflex
« Reply #11 on: May 16, 2016, 03:36:06 PM »

My Ins. will not cover VER but my wifes will. Just waiting the the good Dr. to answer 4 questions. (Point form is fine according to the Ins. form) I start my first round the Friday. i will post results. Also I find it odd that my Ins will not pay for VER and will consider Xiaflex on a case by case basis. There's some hope left I guess. :)
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Pey-penis

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Re: Verapamil vs xiaflex
« Reply #12 on: May 17, 2016, 07:08:35 AM »

Xiaflex is used in the so-called. Dupuytren contracture in such a way that a doctor does in place of the union injection and then stretch diseased shrunken tendon. So the same shots without manual stretching and modeling of the penis may can not give anything.
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bucfan

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Re: Verapamil vs xiaflex
« Reply #13 on: August 23, 2016, 09:10:19 PM »

Hi, I finished 4 rounds of Xiaflex during August of 2015. I went from an 85 degree bend to the left down to ~ a 45 degree bend. I have used traction for the past year, no noticeable reduction to the bend but some increased length and significantly better erection quality. I have started seeing a different Doctor recently...he suggested I start Verapamil shots (6 rounds, 2 weeks apart). My first round begins this Friday. I have not found many positive posts on this forum regarding Verapamil injections unfortunately, but I am hoping for the best. I will update this post after I complete the first few rounds, hopefully I will have something good to report out.
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james1947

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Re: Verapamil vs xiaflex
« Reply #14 on: August 26, 2016, 06:49:32 AM »

From bucfan:
Quote
....I have not found many positive posts on this forum regarding Verapamil injections unfortunately, but I am hoping for the best....
You will not find no one, but wish you all the best.
I suppose your new doctor is in my age (69) or maybe over 80 if he is proposing Verapamil.
By the way, why not continue with Xiaflex if you had so positive results?
Just thinking :(

James
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bucfan

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Re: Verapamil vs xiaflex
« Reply #15 on: August 27, 2016, 08:11:38 PM »

Hi James. I finished the 4 rounds of Xiaflex, the insurance companies do not cover a 5th round. I suggested that I would consider paying for it but my previous doctor said he did not think it would help any more. The new doctor stated that he has seen positive results in roughly 50% of his patients with Verapamil after finishing with Xiaflex.
Anyhow, I had the first of 6 rounds yesterday (as well as an ultra sound). The shot was much less painful than Xiaflex...and significantly less bruising.
I hope that I can report some positive news back to this forum soon regarding Verapamil after Xiaflex.
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james1947

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Re: Verapamil vs xiaflex
« Reply #16 on: August 29, 2016, 08:47:57 AM »

Strange that they are not ready to pay for Xiaflex after your good results :(
Wish you successful outcome from Verapamil
It was a main stream treatment in the past, the results were very poor, but some had big success.
Please update us how is your progress

James
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bucfan

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Re: Verapamil vs xiaflex
« Reply #17 on: September 11, 2016, 08:40:45 PM »

This  is an update after my first 2 verapamil injections:
So far no change to my curve. The injections are much easier than xiaflex, the healing takes only a few days. I go back to light traction 3 days after the injections.
I have 4 more shots to go...I am praying that something good happens...I will let you all know in a month or 2.
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bucfan

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Re: Verapamil vs xiaflex
« Reply #18 on: October 16, 2016, 08:49:10 PM »

I have now finished my first 4 verapamil injections, the 5th is later this week. I believe I have seen some positive results, the curve may be a bit more under 40 degrees now (down from ~45). My wife and I had sex last night and she stated that she thought was curve was less noticeable...of course the erection was not as good as I had hoped for, but that is a different story. I will update this post after I complete the final 2 injections. I wanted to get some positive news out there, even if it is a slight improvement.
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bucfan

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Re: Verapamil vs xiaflex
« Reply #19 on: December 08, 2016, 04:29:12 PM »

Hello all. I thought it would give a final update on my verapamil course of treatment. I finished all 6 injections, the results seemed to yield no improvement, originally I thought I had a 5 degree improvement but it i was wrong. So after 2 1/2 years I have tried pentox and coq10, 4 rounds of xiaflex 1 1/2 years of traction (everyday for 2 hours) and 6 rounds of verapmil. Curve to the left improved from 85 degrees to 45 degrees, I lost about one inch of length and some girth.
The next step is to go back for another ultra sound, both flacid and erect to measure blood flow in and out and to see if the verapamil helped with the calcification of the plaque at all.
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LWillisjr

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Re: Verapamil vs xiaflex
« Reply #20 on: December 08, 2016, 07:59:26 PM »

What is your current degree of curvature? Just trying to understand what your next steps might be.
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Les - 10 yrs Peyronies Disease free
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bucfan

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Re: Verapamil vs xiaflex
« Reply #21 on: December 12, 2016, 04:33:54 PM »

Hello. My curve is ~45 degrees to the left and 10 degrees upward.
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LWillisjr

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Re: Verapamil vs xiaflex
« Reply #22 on: December 13, 2016, 06:28:50 PM »

If 6 injections didn't improve anything, then it doesn't make any sense to do more Varapamil treatments. I suppose you could try Xiaflex But I believe you would be lucky to get a 10-15 degree improvement which still leaves you with a 30-35 degree curve which I don't think you would be satisfied with.
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Les - 10 yrs Peyronies Disease free
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bucfan

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Re: Verapamil vs xiaflex
« Reply #23 on: December 13, 2016, 08:55:45 PM »

I have already been through 4 rounds of Xiaflex. My 40 degree improvement came from Xiaflex, virtually all of the improvement from the second round of shots. So I have tried Xiaflex, Verapamil, oral meds and traction. The only other option being offered appears to be surgery. 
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