Meeting with a surgeon

[egghead]

I've had peyronies for several years. 5 plaques in all different areas. Hour glassing. All the fun stuff. No problems getting erect. But I have hinging and I'm not able to penetrate well..
I've tried several of the suggestions on this site, but to no avail..

I'm meeting with a surgeon that I'd read about on FT and want to ask him for a procedure I'd read about on this site: remove plaques, cut suspensory ligament, lengthen to the limit of neurovascular structures, reconstruct tunica, malleable semi rigid implant along the periphy of the corpora cavernosa..

What do you think of my plan? Are there different types of semi rigid implants?  

[Old Man]

egghead:

WOW! Can't even imagine your considering having the suspensory ligaments cut. You had best read up on this surgery and realize that you would be losing more control of your penile shaft.

These ligaments hold the corpora in place without ''flopping'' around when erect.

There are some posts about this subject located in the archives of this forum, so do some research. In addition, the FT forum has in the past been in favor of several thoughts about ED, Peyronies Disease with no actual proof of their claims. SO, CAVEAT PREMPTOR!!! (Let the buyer beware!)

The above carries my usual caveat, just my own interpretation of the subject and my personal thoughts on it.

Now a word about implants. There is much information about implants on this forum so do some searching in that area also. JackP is the resident guru on implants, so check out his blog too. There are at least three different style/types of implant all the way from rigid to the three piece units.

Old  Man

[egghead]

Old man:

Thanks for the advice. The rigid implant replaces the suspensory ligaments connection. I'll do more research on this.  

[Old Man]

egghead:

I may be wrong, but as I have been told and seen research on the rigid implant, they are not what they are ''cracked'' up to be. They are difficult to conceal as they remain rigid all the time and the wearer has to be able to bend it in such a manner that it does not ''show'' in public.

The self contained pump up model implant is much better that the rigid in that it does deflate enough to be worn without much visible size, etc. It inflates by simply ''pumping'' the head portion of the implant. It does not inflate the glans portion of the penis though.

The three piece AMS LGX 700 model is the best overall, but is costly if one does not have insurance that will at least pay part of the procedure cost. It has been called the Cadillac model of the implants. JackP can fill in all the details of the LGX, all you have to do is send him a PM with your questions.

You can check out the differences between the three models by doing a Google/Bing search for the AMS models.

Hope that you can decide which one is best for your individual case. Good luck to you in your decision.

Regards, Old Man

[egghead]

Old Man:

Thanks for the model details. Will look into it. I'm sure there are pros and cons with both options. Having my unit out there all the time, for all the world to see sounds more like a pro.  Well maybe not at work. Or church..

[Old Man]

egghead:

I really don't think you would be very well satisfied with the malleable one piece implants based on my experience counseling with guys on and off the forum with ED as well as Peyronies Disease problems. These units go bad very quickly if abused and  not given good care, etc.

Just my opinion though.

Old Man

[Fastalker]

meeting with Dr. Ethan Grober in Toronto July 16th.. reading all these posts.. what a F^@$!ng mess. Cannot bring myself to become a champion of positivity for Peyronies Disease.. I'm F^@$!ng devasted. my penis is a disaster now.. 2 years of active phase. I dont give a damn. If the doc tells me I'll be left with 3 inches of straight I'm going for it.

thank God for all you guys on this forum.. if nothing else, at least I know I'm not alone. Still, we all know how lonely it is dont we. I'm tired of this fight.. Tired, yet just getting started. 2 years in, just seeing my surgeon now.. tells me minimum 2 months wait for surgery if in fact I'm even a good candidate.. sounds like Peyronies Disease's gonna be a long battle.. tired. So exhausted from the psychological battle... tired of this.

[Old Man]

Fastalker:

I just want to give you the benefit of my experiences, yes multiple ones, about Peyronies Disease, ED and how it has affected my sexual life. There are way too many posts by me to even quote any here, so will just use a short explanation. Just want to say that I went into deep depression over the loss of my sexual prowess at the age of 24 when I thought nothing could cause a sexual failure!! Wrong, and now you have the same problem, so I do know how you are feeling. There is help for you, just have to find it!!!

My first ''battle'' with Peyronies Disease came way back in the 1950s as a result of a sexual encounter gone bad! It took many years to recover from that experience. Then there were no ''cure'' or even remedies known by any doctor that I went to for help. Since that first episode, the mess has come and gone several times with therapy that I developed to at least arrest the mess. I know the feeling you have at the moment, but somehow, someway you must get a better attitude about yourself and seek at least one form of relief for your case. There is light at the end of the tunnel with Peyronies Disease, you just have to find what works for you. You have to get out of the feeling sorry for yourself mode and get more positive.

Finding a form of relief for your Peyronies Disease case has to be your own. Keep trying things until you find something that helps. There is a vast amount of experience on this forum, so take advantage of us old guys in the business so to speak and seek good advice for yourself.

We all are here to help one another,so start asking any questions you have and I am sure that you get many posts and PMs offering help.

Best regards to you and hope that you find a source of help soon.

Old Man

[Fastalker]

Thanks Old Man. You've been in my corner since I started on the forum and I appreciate it tremendously. I'll update on the 16th after my consult with Dr. Grober and go from there.

Thanks again,

FT

[GS]

FT,

I've had Peyronies Disease for 5 years now...sometimes it feels like 50 instead of 5.  But, with the help of this forum,supplements and a VED, I now have no pain and can't really feel the scar tissue anymore.  I still have the curvature, but it's not nearly as severe and I enjoy my sexual relationship with my wife as much, or more, than ever.

My point is...there is light at the end of the tunnel.  If I knew 5 years ago what I know now, I would not have obsessed about Peyronies Disease like I did.  Having Peyronies Disease is definitely no fun and it requires daily treatment, but it IS treatable and where there's a will, there's a way.

BTW, I didn't really notice much improvement for the first 4 years...Peyronies Disease can take a long time to improve and you have to be patient.

All the best, GS.

[Forester]

@ Fastalker

What a coincidence I am seeing Doctor Grober on the 16th of July as well and it appears that we are the same age and have been dealing with the disease for the exact same period of time.

[tommarkey]

Old Man, the malleable ones are the best in terms of mechanical failure.
Well, i have one.... They become more malleable with the time, i feel like i have nothing, just a big penis swinging at my pants.
I don't have any troubles concealing it at my routine. The truth is that you don't give a damn about this after the time (people that i have talked about agree with me). My doctor said that he has a patient that goes to the swimming pool (a situation that the implant is noted in lateral vision) and he don't give a damn. I didn't go yet but don't think i will have any problem.  This man is married for ten years now and his wife (a medical doctor) does not know about the implant!
Women that i had sex did not noticed the implant until this moment.

[Old Man]

tommarkey:

To each his own - whatever strikes their fancy.

Old Man

[tommarkey]

Old Man:

First, my respect. To each his own, but my opinion is that your opinion below about malleable ones doesn't encounter any support. It's well know that inflatable ones are less mechanical reliable.
To choice the model, each one has its indication. Is not for everyone that inflatable will be better.

Tommarkey

[Old Man]

tommarkey:

I repeat my post below, not everyone is a candidate for the one piece implant either. I have been involved with many guys who had to face the implant question and most elected for at least the implant that could be pumped up in the head portion of the device. Some who had good insurance coverage went for the three piece implant.

BTW, I have been a member on this forum since just about day one. And, was given the title of senior member by the administrator because I have extensive experience with ED, Peyronies Disease and a lot other men's health problems. ((My personal Peyronies Disease experience goes way back to the 1950s!!) In addition, I have the pleasure of being called a major contributor.

Lastly I agree that the three piece implant may not be the choice of everyone, but again it is the individual choice as I said below.

Old Man

[tommarkey]

Dear Old Man, I know your history, I know your protocol for vacuum therapy (I used), and I respect this, as I said.

I had this disease for almost ten years, I'm an old member of this forum too, I spoke with a great specialist in Peyronies Disease and I did a surgery that most people don't did, I'm a recently graduated medical doctor and I studied this disease for several years.
I'm just here now trying to help by my experience who still have this depressing disease... I'm cured and well again.

Tom

[Old Man]

Tom:

Since you are now a medical doctor, how long have you had experience with ED, Peyronies Disease and other men's health problem?

It is rather surprising to a lot of us older guys on the forum that a goodly number of urologists and most GPs are not very well versed in Peyronies Disease and its treatment. Also surprising to me is the fact that this malady has been around in the world since way back in the 1700s with no known working therapy much less a ''cure''.

Why in all those centuries that some medical doctor or research pharmacy has not come up with some sort of a solution. In my personal case, the one cylinder VED therapy done daily over a period of just over a year finally got rid of my Peyronies Disease symptoms. My first bout with the mess came as the age of 24 and many avenues of so called help from MDs, uros and even radiologists did absolutely nothing toward getting any good help.

Anyway, those on the forum who have implants have not come back on the forum with their success stories. JackP is the only one that has devoted much time and effort to help educate members about implants, which one to get, how to make sure it works right and any other desired information to be able to have good success, etc. Any member who has implant surgery surely should come back on the forum and give their entire story of their surgery and its outcome.

Looking forward to someone doing just that - report what their history with implants developed.

Old Man

[tommarkey]

   Old Man, as i am recently graduated, my practical experience with other men ED and peyronie's is poor, I just have experience from my practice in college.  It's difficult for most men to looking for a doctor and when they do this is generally an specialized professional, the urologist. In our public system i never received a patient complaining ED or curved penis.
  I think that nowadays when we talk about cure in peyronie's disease for most men is more a sense of spirit, not the cure in fact. My cure was a new way of life with the implant. Very few men have a tendence to involute their fibrotic tissues
  Fibrotic disorders, not only peyronie, are relativelly well understood but we still don't have treatment for most of them, especially in which the cells of original tissue are well specialized and does not divide or does not divide frequently (like cells from corpora cavernosa, neurones (gliosis) and heart). Esclerodermia represents very well this situation.
      We don't know how exactly most of antifibrotic drugs act, including pentoxyfiline, a vasodilator too. Collagenases (like xiaflex) are enzymes and its mechanism of action is well understood, but we don't know why they don't demonstrate therapeutic effect in certain cases. In the case of Peyronies Disease, it looks that more blood in penis contributes to prevent fibrosis (the natural reason for morning erections). This is maybe, at least in part, the reason of therapeutic effects of pentox and vacuum therapy.
There is much research around this subject. I think that until the end of this century we will could talk in cure for most of them, including Peyronies Disease
  You're right, there are many physician that does not have knowledge about Peyronies Disease. When I was at my first urologist, with 15 years, he gave me an endoscopy and has not diagnosed me. I was in other two that said me that the disease was mental. Only when i looked for an specialist in Peyronies Disease i had my diagnosis.
  We usually say that when a disease has a lot of different treatment, is because none of them works well. Peyronies Disease does not have a standard therapy, i think that maybe this is the reason for many physicians don't be well versed in its therapy.
  Jackp is the only user of inflatable implant that i know here, apparently very well satisfied, like me. With malleable i know jean claude, who helped me with the first months... it's a very good solution, but takes time to accustom with the new life. My only objective now is help other men who are looking too for a surgical definitive solution... it's not easy to face the scalpel. I will not abandon the forum just because I'm well again.


Tom

[Old Man]

Tom:

OK, sounds like you are on the right track with your Peyronies Disease therapy. Yes, each member that has Peyronies Disease must arrive at his own decision about what therapy he wants to use. There are so many things guys on the forum has done to find a solution that it takes quite a bit of research to know what is best.

Continue to do what you can on the forum as a help for others.

Old Man

[jackp]

Tom

I have been off the forum for several weeks because of an accident that hurt my back, then some heart problems and V Tach 2/1.  

It is good to see a doctor posting his story.  With your experience what would you suggest to make more doctors aware of peyronies. That was a major point I made when filming my story.

As men we are reluctant to tell our doctors about our penile problems. Sure you can tell the doctor you are having erection problems and they write you a prescription for Viagra and never do a penile exam. As the case of my first urologist he did a DRE to check my prostate and never looked at my penis until I told him my penis had recently curved.  

You mention peyronies to men and they have never heard of it. We men still have our heads in the clouds when it comes to penile health. Women know 1000 times about there body than we do.

Men need to be more aware of there penile health an peyronies. The sooner they are aware and get to the right doctors hopefully they will not have to go through what most of us do.

Yes an implant is a decision that does not come without a lot of soul searching. I can tell you now I look and feel very normal not only to me but my wife. Works any time she and/I desire as long a we want.  

What ever we can do to improve peyronies awareness will benefit all men.

Jackp
http://jackp-penileimplant.blogspot.com  

[voulezvous]

First. I want to say a big "welcome back" to JackP.
I have wondered how you have been doing but lost your email in the process of switching computers. Hope your recovery is complete.

Old Man is right in noting that few of us who have had positive results from implant surgery continue to participate in this forum. I apologize for that oversight because it was the encouragement of everyone here that led me to make my decision. Now its my turn to hopefully encourage others.

I had my AMS LGX implanted in Aug. of 2009 so I'm approaching the 4 year anniversary. It is truly a date to celebrate because my life turned around in ways I could never have imagined. Of course, not everything was a direct result of my surgery but, at 67 years old in 2009, I really doubted any chance of a healthy and active sex life with or without the implant. Nonetheless, in 2010 I found a new partner & we have enjoyed incredible sexual and personal compatibility for 3 years now. I believe that our love would have developed regardless of Peyronies Disease but how wonderful it is to express it physically.
I learned from my disappointment and despair during the 2004-2008 period when I was diagnosed with Peyronies Disease that very few women care about a man strictly for his penis. I made my decision to try surgery as much as anything because I could have Medicare cover the expense. I never would have predicted the outcome. In many ways I see my situation as a demonstration in the power of "never, never give up." Through no understandable power that I am aware of, I was blessed to have a textbook case of recovery and rejuvenation. I take no credit. All I know is that all of us have to remain available to whatever resources are possible and do their best to fight off negativity.  

[jackp]

voulezvous

Glad to hear from you. Drop me an email.

Jackp
jwp104@att.net
http://jackp-penileimplant.blogspot.com