19 years old, have Peyronie's or similar condition, need advice

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beechcott

About 6 months ago, I accidentally injured my penis on the left side in a rough masturbation accident. Since then, I have have what I assumed was Peyronie's disease. But recently, I have begun to wonder if what I have is a different condition. Apparently, when you have Peyronie's disease, your penis becomes more bent the more erect it becomes. However, while my penis bends quite badly to the left, about 2/3 of the way up while I get an erection, once I get fully hard, it is only slightly bent (and I think that may be due to a congenital curve, as I've always has a slightly left congenital curve). Basically, as long as there is any softness left, it's bent, but once I get fully hard, it straightens out.

On the left side of my penis, about 2/3 of the way up (right where the injury occured), there is an area that I assume is a plaque. It's not a bump, but it does feel different from the (flexible, rubbery/spongy-feeling) surrounding tissue, in that is is slightly hard, rather unpliable, and ever-so-slightly indented. Even when I am mostly flaccid, the area looks slightly indented (although I'm not quite sure that indented is the right word, it's just slightly "lower-lying" than the surrounding tissue), and my penis curves slightly to the left above it.

I am not in a sexual relationship, but I often masturbate. Honestly, I think I have an addiction, because once I got this problem, I have tried to stop over and over again for six months, in hopes that abstaining from masturbation would help me heal, but have always given in and wanked anyway. I'm never rough anymore, but whenever I finish masturbating, my penis hurts right where the plaque is. Even after a full erection with no masturbation, it usually hurts a little. Lately, the pain after masturbating has gotten worse, and sometimes lasts a whole day. I am somewhat conflicted over the issue. On the one hand, there is a theory that erections speed healing, on the other hand, the pain I experience after a full erection and the even worse pain after even the gentlest masturbation convinces me that I should lay off of it (although at times I wonder if by "stretching" the area, I am actually helping, despite the pain), though I have unfortunately been unable to kick the habit.

I can not afford to see a doctor or urologist, nor can I afford much in the way of medicine. I can afford enough vitamin E to take about 800 mg a day, enough acetyl l-carnitine to take about 1,000 mg a day, and enough l-arginine to take about 1,800 mg a day, so that's what I've been taking.

I really don't have many treatment options, but I would appreciate any advice or information you could give me.


damian

Almost the same as by me. Just mine seem to be worse, as I have a lump on the other side too. I'm 8 months in this now, I had a sex injury.

Find a way, go to a doctor.  

Obsie

I agree with Ushtipack.

You write "I can not afford to see a doctor or urologist"

The real question is, can you afford not to see one ?

And live with a chronic problem that could have been solved years ago?

LWillisjr

beechcott,
We aren't doctors, and we always suggest you see a professional.

But what you have described is not a congenital curve. A congenital curve is present when you have a full erection. It is the natural stretched shape of your Tunica once fully expanded.

What you have described also does not sound like peyronies disease. Even though peyronies symptoms vary great from one person to the next.

It does sound like you might have some slight inflammation in the area you are describing on your penis. The Tunica is the tough sheath of organ tissue that surrounds your penis. As an erection occurs this obviously expands to a point where it is tight and won't expand any further (full erection).

In your case you have a spot that is not expanding at the same rate or level of flexibility. This is why you may have a curve while you are getting an erection. But as more blood flows into your penis this area eventually does expand and in your case is still expanding to its full capability.

In the case of full peyronies, you have a similar area that doesn't expand at all. So when you achieve an erection you have a sharp bend in the direction of this tissue because this area hasn't expanded.

Obviously you need to back off from any rough masturbation.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

beechcott

Quote from: lwillisjr on May 30, 2013, 09:17:08 PM
beechcott,
We aren't doctors, and we always suggest you see a professional.

But what you have described is not a congenital curve. A congenital curve is present when you have a full erection. It is the natural stretched shape of your Tunica once fully expanded.
What I meant is that I had a congenital curve before I had this problem, and that when my penis is fully erect, it is only curved about as much as it naturally was from the congenital curve. I already knew that the recent problem with the large bend that forms during the erection then goes away when I get hard is not a congenital curve.

QuoteWhat you have described also does not sound like peyronies disease. Even though peyronies symptoms vary great from one person to the next.

It does sound like you might have some slight inflammation in the area you are describing on your penis. The Tunica is the tough sheath of organ tissue that surrounds your penis. As an erection occurs this obviously expands to a point where it is tight and won't expand any further (full erection).

In your case you have a spot that is not expanding at the same rate or level of flexibility. This is why you may have a curve while you are getting an erection. But as more blood flows into your penis this area eventually does expand and in your case is still expanding to its full capability.

In the case of full peyronies, you have a similar area that doesn't expand at all. So when you achieve an erection you have a sharp bend in the direction of this tissue because this area hasn't expanded.

Obviously you need to back off from any rough masturbation.
Could the pain after even gentle masturbation be a sign that erections and/or masturbation are making the inflammation worse? Do you think that there's any chance that laying off (even gentle) masturbation altogether and/or having as few erections as possible could be beneficial?

Obsie


You need medical advice, not forum advice. For instance, where the pain is located matters, it could be an urethral problem, a muscular problem, a prostate problem or something totally different. A doctor can make a diagnosis in 20 minutes and if he is good the chances of being wrong are low.  On a forum, it is impossible to tell without asking you five hundred questions. We do not have time for this, and in the end we could be wrong. Get diagnosed first and come back, we will help you as much as we can then.

On a side note, could you describe the "rough masturbation" when that occurred ? Did you use any tool, vacuum cleaner, or device that exerted strong mechanical pressure ?

beechcott

Quote from: Obsie on May 31, 2013, 01:50:25 AM
Quote edited by moderator
The pain is definitely not in my urethra or prostate, and I doubt that it could be a muscle problem. I'm quite sure that's it's in my left side of my tunica albuginea or my left corpus Cavernosum.

Seeing a doctor really isn't an option for me. I wish it was. I don't have enough money to pay the bill, can't get transportation to the nearest urologist (a long distance away), and certainly can't pay the money for any prescription medicine.

QuoteOn a side note, could you describe the "rough masturbation" when that occurred ? Did you use any tool, vacuum cleaner, or device that exerted strong mechanical pressure ?
I (unsuccessfully) attempted autoanal masturbation. To avoid injury while doing that, one must be partly flaccid, and even then, it's still a dumb thing to do (I wish I had realized it then). I got hard somehow while my penis was bent backwards between my legs. I finally gave up, and thought nothing of it. The next day, I had an erection, and my penis was bent at about a 120% angle from about 2/3 of the way up.

Ohgmah

your physical description of the stages of errection, and the "plauque" or rough tissue is near identical to my situation

reducing masturbation reduces the curve, whith a noticeable reduction of flaccid deformity
if you masterbate, it will return, and it takes about a week for the curve to become less
(in my experience) the pain symptom is unique to eachindividual. pain occurs for me randomly. with or without recent masturbation. I know your quandary though, and I would recommend reducing masturbation frequency, or duration, or reducing the strength at which you flex your pelvic floor muscle while orgasm occurs, as I have notice "soft" orgasms reduce the curve after..

also, is your flaccid penis always curved? mine does not, but tends to "spasm" at times and the curve becomes evident. I would link this too blood flow(ie semi chub) but it is not present more than 50pct of the time.

I think we have a unique, un-identified version of Peyronies Disease, and I hope that it will resolve itself, or stabilize for us within a year.

I also keep my congenital curve while erect, even though it is on the opposite side of my Peyronies Disease curve...

I kind of want to go to a researcher and name this specific form of Peyronies Disease, as I have come across too many others with the same symptoms.

damian

Maybe you don't have peyronie's. I think you have hard-flaccid, or better cpps which is causing hard-flaccid.

Hard Flaccid Data

click on "other" in the symptom section.

Ohgmah

holy crap.. some of the symptoms n such are right on. I think I may have cpps. as it is "harder" when flaccid that it used to be, it corrects mostly when laying down and ALWAYS when urinating.... and all the doc's ive seen (2uros and a GP) all say there is no plaque/they don't think its peryonies. should I go back to my non-specialist uro and get "checked" for cpps?

Ohgmah


damian

It's hard to diagnose cpps. You should visit the Hard-flaccid forum and gather some information about treatments. Many guys there cured cpps and HF with trigger point therapy and PT.

Ohgmah

im having problems understanding the symptoms of hard flaccid. my flaccid penis is noticeably harder than it used to be, but generally this does not cause pain. when flaccid a slight bend to the left can be observed 50pct of the time or so. when urinating my penis returns "back to normal"
when gaining an erection my penis appears to react normaly, but when the blood in my erection starts to drain, the curve in my penis is revealed, either with slight bend, 5-10pct, or a heavy bend, 10-40 pct. when erect my penis holds its congenital curve which is opposite of the new damage curve. there seems to be an indentation where the pain is on the area under the foreskin(I am circumsized) about the length and width of a cigarette butt. it is slightly discoloured(blue-ish) no pain on touché(when erect)

sense this problem, I have not had rock hard morning erections, but more like semi-chubs were the bend can be 10-30degreese bent.

if I have hard flaccid, it seems my symptoms aren't that "bad" as I don't think I have any pain in my perenium area, but I do occasionaly have pain on where the "indent" is on my penis. i'm hoping this is not peyronies, three doctors have told me it isn't and they cant feel any plaque.
but something is DEFFINATELY wrong down there. my penis tip feels cool to the touch most of the day, even on Pentox.

does this sound like hard flaccid?(sorry I cant post in the HF forums as it is invite only)

(I was teased by my girlfriend for a weekend where she would sleep naked with me but not give me any kind of pleasure, resulting in what I think was an overnight errection, I went to sleep with a boner and woke up with a boner, this was on Saturday night, on Monday morning I woke up with a 25-30 degree curve on the side of my penis, the point of curvature was where the "indent" can be seen now.1

funnyfarm

I am not a doctor but usually guys with peyronies do not have the curve changing as much as you from day to day.  On the plus side, if you did have peyronies there are a few good doctors that can help, not to mention pentox and other things discussed here.  Hard flaccid, on the other hand, is not even recognized by the medical community and the HF forum seems to be disorganized and tough to navigate in terms of finding treatment that will help you..  Maybe if more of the guys posted here that would change ?
When you are in tune with the unknown, the known is peaceful.

beechcott

Quote deleted by moderator
I'm sorry I took so long to respond. I didn't know there were any new responses in the thread.

That sounds almost identical to me, except that while I do randomly feel pain at other times, the pain is almost always much worse after masturbation.

Quotealso, is your flaccid penis always curved? mine does not, but tends to "spasm" at times and the curve becomes evident. I would link this too blood flow(ie semi chub) but it is not present more than 50pct of the time.

Mine does just like you described. Sometimes, it will be straight while flaccid, other times curved, and often will sort of spasm (for lack of a better term) a little and become curved while straight and flaccid.

phatcat

Hey guys i seem to have hard flacid like some of the guys on this thread do.   I'll try to shed some light on the problem from what I've gathered.  First I'll start off with the hard flacid forum.  the forum is not a forum anymore.  the guys figured out what their problem was and fixed it and closed the forum.  The site is still up but you can't join and no one posts anymore.  If you read the thread titled epohs guide it should tell you everything you need to know.   epoh seems like a real  d$%k but it seems he figured out his problem.  


To beechcott: i have the spasms too. It's a muscular problem with your pelvic floor muscles. Only muscles can spasm. that's your first clue that you have a MUSCULAR problem.   It is said that you need a doctor to diagnose this and it's true you should see a doctor, but honestly 99.999% of them will diagnose you incorrectly. You could spend a lifetime searching for the proper diagnosis so my opinion is f&^k them I diagnosed myself after of the Ushtipak pointed me in the right direction. I haven't found a doctor who gave a f%^k about me or listened to me past the mention of painful erection and curvature despite the fact that I never had any palpable plaque.  Upon seeing doctors who specialized in pelvic floor disorders my suspicions were confirmed.  Muscles surrounding (attached to the pelvic floor muscles) could contribute to the problem too.  My symptoms presented themselves as SEVERE peyronies  and scared me half to death (literally if you count the suicidal thoughts).  Now i know i have CPPS and possibly a mild peyronies. Your penis returns to normal when you pee because the muscles of the pelvic floor relax when peeing.  Your penis is hard because the muscles are tense.  Mine get more tense when standing.  Squatting down and deep breathing should help the floor relax as well.    Usually laying down helps although not always.  Physical therapy can help with this, although time and not aggravating the muscles any more (stop masturbating so much) seems to be the best course of treatment. Masturbation flexes the pelvic floor and orgasm causes even more contractions. I'm not saying masturbation is bad but you can definitely overdo it. I did.

I'm currently seeing a physical therapist.  If anyone wants to talk about this feel free to pm me and maybe we can start a new thread on here for this.  Hard flaccid can definitely cause or rather trigger peyronies as it can be damaging to the penis.  In my case it cutoff blood flow to my penis and that's what I was freaking out about if you read my earlier posts (where i seemed to be losing my mind...I was).

Sorry for the long post.  I hope this helps somebody.

The ushtipak if you read this, clear your inbox so I can send you a message dude.

NeoV

Phatcat,

I am suprised to see someone else describe my very symptoms. I have had a gradual onset of peyronies that is from what I can tell, 100% linked to masturbation and pelvic floor clenching. I don't know what else to say. My penis is also quite hard in it's flaccid state, but appears quite large when flaccid as well. I have been having peyronies flareups after orgasms for years. It finally has left a permanent mark on me and almost always accompanies pelvic pain.  

funnyfarm

Hello  phatcat, you can also add me to the group of guys with pelvic floor issues (mine is cpps/prostatitis with mild peyronies).  You are correct the hard flaccid forum which was never very useful, is now completely obsolete.  These issues are even less understood than Peyronies Disease, and modern medicine offers us no answers.  Perhaps the moderators here could  dedicate a section/folder here to male pelvic problems, as there is no other helpful web forum ?

I am also having the spasms, which I was told can be the root cause of the inflammation in the pelvic floor and urethra.  I am trying a diet, herb approach, but also started hydrotherapy recently at the advice of my alternative medicine doctors. I am not convinced yet my issues are all muscular since I don't have trigger points, but certainly  localized tension is a component.  I think this holds true with other guys, especially the younger ones, many who do not recognize it yet, since it can be tough to determine exactly where the pain/inflammation is coming from. Mine has been going on since late teens.  Personally I think when pain is the predominant problem it is much worse than Peyronies Disease (physically and mentally), but maybe that is just because I have been struggling for a long time.

For me it is worst sitting, but gets better laying down, and standing varies from day to day.   I do not have hard flaccid, but certainly all these syndromes are related and possibly share the same route cause.  And like Neo and yourself, ejaculation can cause problems if I am not careful to relax down there while taking care of business.  Easier said than done.

Guys you are welcome to PM me, but I also am happy to reply publicly, so others can read and contribute.  
When you are in tune with the unknown, the known is peaceful.

damian


beechcott

I'd like to clarify about the "spasms". Those that I have are basically just times when my flaccid penis sort of "un-relaxes" and becomes bent. I'm not 100% sure that spasm is the right word. It's just that there are times when my penis is flaccid that it becomes bent, and other times when it is fairly straight. It is always bent when in a semi-erect state, but straightens out when my erection gets full and hard.

I don't think that the problem I have could be entirely caused by CPPS. As I mentioned before, the problem started when I injured an area on the left side of my penis by bending my penis while in a semi-erect state for an extreme form of masturbation. Since then, there has been an area on the left side, about 2/3 of the way toward the tip, that feels slightly "indented". The best I can explain it is that it feels as if like someone took a knife and made a small notch. The "notch" and surrounding area feel flat and and solid, unlike the rest of my penis, which feels spongy. I'm not sure if it is a "plaque" in the true sense, but it does feel like some sort of damaged or scarred tissue. Also, after I masturbate (or even get an erection, but it's much more extreme after masturbation) I feel a dull, sore pain in and around the area of the penis where the injury/notch is, (about 2/3 of the way toward the tip) not elsewhere.

Could CPPS and/or hard-flaccid have any bearing whatsoever on this?

funnyfarm

The cpps/spasming can cause me to curve in flacid only.  I do not consider the peyronies though, but rather pelvic tightening that is not symetric and hence the flacid bend.  How long ago did you hurt it ?
When you are in tune with the unknown, the known is peaceful.

beechcott


phatcat

I don't think we could give you an answer about whether or not what happened to you is simply cpps.  That sounds like an injury to the penis.  Cpps is a muscular dysfunction when the pelvic muscles are hyperactive.  That is the muscles connected to the penis but not the penis itself.  It could however cause damage to the penis itself.  Have you had an ultrasound of your penis?  I'd say you need to see a doctor and have a ultrasound of your penis to see what's going on.

To clarify what my spasm is:  there are a few points on my pelvic muscles that I can press on and it causes my penis to jerk out and in rapidly.   Those are trigger points.  The muscles will spasm  by themselves sometimes too but i can cause it to happen by pressing on certain spots on my muscles.

I have had bends on my penis come and go in a short period of time (hours sometimes days sometimes a little longer).  It's happened a few times, so the cpps can definitely cause bends but you sound like you need to see a doctor and have an ultrasound done.

I had an indentation on each side of my penis, but it was where the bulbocavernosus muscle meets the base of my penis.  It went away within couple of months by itself.

Funnyfarm i think your absence of hard flaccid is not uncommon.  HF is just one symptom of cpps from my understanding.  when you press on your pelvic floor muscles (in between your penis and anus) can you feel where the pain is?? Like, is it sore when you press on certain areas or are you saying you don't really know where the pain is coming from?

Also, women have problem with the pelvic floor and it's pretty well documented and there are treatments for it.  Men have pelvic floor muscles too so of course we can have problems also.  So this isn't completely unheard of, it's just that men get much less attention.  

phatcat

The first part is directed at you beechcott.  Sorry I didn't specify.

phatcat

beechcott sorry, I overlooked the part where you said you couldn't afford a doctor.  Am i understanding correctly that when totally hard your penis straightens out??  If that's the case I don't think you should be too concerned.  

I know the symptoms are disturbing but if it's straight when hard i think you should consider yourself lucky, as that kind of masturbation sounds pretty dangerous.

funnyfarm

BC it is possible you have a penis injury that is also now provoking cpps. Basically it hurts, so you get tense, which causes spasms/ temporary deformity.  

Phat, I occasionally get the pelvic muscle spasms in the anus/perennial area, and these are relieved with hot/cold therapy and relaxation. These spasms can distort the shape of the penis, but it is always temporary in my case.

Much worse are the spasms I get in the penis itself. There is a muscle that wraps around the entire length of the urethra/prostate.  I find when this spasms, the pain is bad, and difficult to stop.  It does not cause deformity of the penis, but lots of inflammation, esp at the tip of the penis.  This is not classic cpps, and also not peyronies,  hence the difficulty finding a solution.  

It labeled as "chronic abacterial prostatitis" by allopathic MD's, but really there is nothing wrong with the prostate.
When you are in tune with the unknown, the known is peaceful.

beechcott

Quote from: phatcat on July 25, 2013, 04:03:44 AM
Am i understanding correctly that when totally hard your penis straightens out??  If that's the case I don't think you should be too concerned.
Yes, it straightens out when I get hard. However, after I get hard, I have some pain right where the "notch" is. If the erection didn't last long or get fully hard/unbent, the pain usually goes away after a while. If the erection lasts a while (especially if fully hard) or I masturbate, the pain is much worse, and can last for a day or more.

phatcat

funnyfarm those sound like the usual trigger points/problem areas for pelvic floor hyperactive muscles. I don't really understand what part of that is unique.  It is probably considered unique when speaking to doctors, because many of them aren't aware of the possible muscular problems men can get.  Physical therapists would be more knowledgeable/helpful but of course you have to find one willing/able to treat male pelvic floor disorders.

Those are areas worked on by my pt whenever i go into see him.  Your case sounds pretty typical to me, maybe i'm not understanding. Prostatitis is the most common diagnosis (misdiagnosis) by MD's when the problem is really a muscular disorder.  I was also diagnosed with prostatitis by a peyronies specialist.  I don't have pain at the tip but my pt says that's a common symptom of the pelvic floor hyperactivity.  It sounds clearly like you have pelvic floor hyperactivity and it doesn't sound all that unique to me, which I would consider a good thing.

funnyfarm

As I mentioned I have some classic pelvic floor tension, but the spasms of the muscle around the urethra (not part of the pelvic floor) are my main source of pain.  I have do not have trigger points.  Since the muscle is in the center of my penis it can not be manipulated with physically therapy.  
When you are in tune with the unknown, the known is peaceful.

funnyfarm

Beech you may want to reconsider visiting a doctor.  9mo is quite a bit of time for healing so you may need to do more than just wait it out.  
When you are in tune with the unknown, the known is peaceful.