my experience with congenital curvature, pre op and post op.

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notanymore

Ive been on here from time to time. I'm the percentage that never reported a curvature. So its likely peyronies and congenital is a lot more likely than reported. Ive had a 65 degree downward curvature my entire life. I always got excited easily, and thought the curve was due to repeated erections and being constricted in my pants. I've been told that didn't have anything to do with it and it just developed that way. At 30 yrs old i was dumped by my fiance because of it. Previous to our breakup she would claim it was an issue in certain positions. Never did she say it was that much of an issue, until the day she said she was done. I'm still not convinced to this day that the curvature was really the reason. Ive had multiple partners and only a very few complained. The break up with her(the love of my life) was however the catalyst for me to have it taken care of.

So at 30yrs old i finally went to a urologist to be examined. The stress was incredible. I was referred to Dr. Carrion at UofM. While he may of been one of the pioneers for implants 25 yrs ago, the experience was terrifying. i underwent a penile doppler, waited 45 minutes for him to come back in the room, then he took a photo with an iphone. Never did he actually use a sonar machine to look for plac. It completely added to the stress of the break up and the stress of the curvature. he sold me some useless supplements(actually his non-dr son did), a vacuum, and Cialis. he claimed it was peyronies. After some reading, and knowing i had the curve from childhood i knew it was congenital. I tried the pills and vacuum, but it was terribly stressful and was not a quick fix at all. furthermore, it would likely do nothing because Ive had the curve my entire life and those methods are only useful for men with early signs of peyronies. If this didn't work, he said the nesbit procedure would be needed, but there was a 1/10 chance of complete impotence. I was not willing to risk that. so i attempted the crap pills and vacuum. The stress continued to build.

Finally, i confessed to a family member who is a well respected MD, PHD. She immediately started researching and found Dr. Khera in Houston. He knew without looking it was congenital. He was confident, well spoken, and very clear that the curvature would be fixed. I was much more at ease after his consultation. Looking back, I'm severely disappointed that Dr. Carrion still consults patients. I underwent a few exams at the Scott department of urology at Baylor. the whole staff was a HUGE step above anything i experienced at Dr. carrion's office. So i waited a month and underwent surgery with Dr. khera. he recommended plication as there is a much lesser chance of impotence.

Surgery went well and i was out that day. The first night was excruciating because of my nocturnal erections. The Valium that was prescribed did little to nothing to calm down my erection during sleep. He decided to up the dose for 14 days, which helped. However, the medicine made me feel really low during the day when i was coming down from it. Healing went well. I went from 65, to a slight curve at maybe 5-10 degrees. i have always been unable to control my erections, so a few times before the 6 week period, i was very uncomfortable. one day i felt a slight pop with slight pain. the stress added and i thought surely a stitch had popped. I'm not 100%, and it might be the anxiety, but i feel like some of the curve has returned. Anyone who has had this surgery notice this or am i just being neurotic? maybe it is 10-15 down left now. I'm not sure if this will be a problem for most women, but now I'm really concerned about it just because of my previous relationship. Id like to get it 100% straight so if anyone can recommend further treatment please let me know.

Ive had intercourse twice since. its been a bit uncomfortable for me, mainly where he de-gloving was done, but i assume that will reside over time. I have not heard a complaint from a girl, but i also havent been with someone that i trust to talk about it to yet. Hopefully as time goes on, the pain will go down a bit and my anxiety will reside.  anyone have any experience with placation surgery and can confirm this?

again, if anyone can recommend further treatment, please let me know.

Hawk

I read all through that post and and cannot find any mention of when you had your surgery
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

notanymore


LWillisjr

First off, I think it highly unlikely that anyone could achieve and erection to the point of 'popping a stitch'. But if you have any doubt then I would schedule a follow up with your surgeon, or at least a phone call/consult. I can tell you that healing is a long slow process. I too had soreness and sensitivity around the degloving scar. But this eventually subsided. It just takes some time and patience. I can't even tell that I've had the surgery now.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

notanymore

well after speaking with the doctor and sending pictures, it does seem as if one of the sutures did pop or pull out. We concluded that maybe due to my active amounts of nocturnal erections the tissue never healed during the 6 week period. i use to have a pretty continual curve, and theres now only one area that is bent. im debating now if i want to try traction or go back in for surgery. Honestly, the surgery was very easy so im considering that.

What are peoples opinions of traction devices such as the fastsize? i opted for surgery right away so i never gave traction a chance the first time.

Hawk

I am pro-traction but I am bewildered about traction post-Nesbit.  If an erection could pop a suture, what about 2 or 3 lbs of tension ???.  Please ask your surgeon.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

notanymore


Hawk

Well that last statement broke out into an interesting discussion that pulled this topic off course.  Those interested in that topic can find it posted here. Exactly What is the Difference Between Nesbit, Plication, Excision, and Graft? - Peyronies Society Forums  I would like to see a continuation to clarify this issue.
_____________________________________________________________________________________________________
Back to the topic:
Regardless of what flavor or plication, tuck, Nesbit, surgery you had, my point is that your curve was straightened by having sutures restrain the long side.  It was you that said one popped from an erection and resulted in some returning curve.  If you in fact have the long side of your penis restrained by non-absorbable sutures, or even by excised and healed tissue, my concern is that the tension will stretch, tear, or release, the retaining structures on that long side of your penis.

I would follow my surgeon's advice on this matter.  He knows what he did and if it is likely to hold up to traction.  We are simply guessing about your only penis.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

notanymore

Spoke with the surgeon, and after sending him some photos, he agreed the sutures broke, pulled out, or something happened. he said i could try traction and he usually offers that to his younger patients with CC. he said it will never be perfect though, and honestly ive alays felt that process to be a little humiliating, so i decided that the surgery wasnt that bad the first time around and im going to try it again. hopefully i will have it scheduled sometime around june/july. This time hes going to put me on a stronger medication to reduce erection during the healing period. We both agreed that i likely never healed fully before the 6 week period, especially after i explained that it was hard to control nocturnal erections and day-to-day excitement. I was never sexually active before the 6 week period, but was courting a girl at the time. This time ill just have to stay away from women for 2 months. lol.  :-\


notanymore

post-post update. The pain from the degloving subsided and was completely gone 6 months after the surgery. The curve did slight return though. I decided to schedule a second surgery as im confident the suture broke while i was fooling around within 8 weeks after the surgery. Although the curve returned to about 30 degrees from 65, pain was gone completely and erections were strong.

I just had my second surgery two days ago. The doctor confirmed one of the sutures broke. It was likely due to an erection before i was fully healed. he put in an extra suture this time for security. its been two days and the pain has subsided almost completely. It is now just uncomfortable when moving around and during sleep. Im going to lock myself in my house this time for three months and build model airplanes and watch baseball.

I will let you know how the recovery goes.

I will say one thing. Dr. Khera at Baylor college of medicine in Houston is a tremendous person to talk to. If anyone is looking into surgery or wants to speak to a knowledgable urologists. he is the one to go to if you are in the area. If you are in Miami or South Florida please stay away from Dr. Carrion. his office and staff are a disaster.

james1947

notanymore

Wish you fast recovery.
Thank you for the opinion regarding the two doctors.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

notanymore

Healing has went really well. most of the swelling has gone. just a little swelling on the underside at the end. There is relatively no pain now a week after surgery. the stitches at the degloving are uncomfortable when walking around, but other than that it feels normal. slight discoloration where the sutures are on the top, but thats really it.

the one problem i have had is nocturnal erections. ive been prescribed valium, but it has done almost nothing to stop the REM sleep erections which can be painful, and i worry that maybe the internal sutures will break, pull out, or maybe stretch. Im on 5 mg of valium, but have had to take up to 3 a night. i still wake up in the middle of the night several times(5-6) and it takes 5-10 minutes for it to calm down. i figured the pain would keep it from getting fully erect, but it doesnt at all.  im scared they might be slowly tearing out or stretching. anyone know of anything i can do to keep it completely flaccid at night? i was thinking about maybe using marijuana(i remember back in high school that kept my libido pretty low.) The doctor said that as long as i don't have anything restricting it from going straight out, it should be structurally strong enough that the sutures wont pull out. So far it hasnt, but its still very worry-some. Ive resorted to sleeping on the couch away from my girlfriend and doing anything i can to keep it calm. It seems to be much more active than in the past. Is this a natural reaction for my body to send more blood there for the healing process?

Even though the nocturnal erections worry me, i can tell you one thing, not to be too explicit, but after having a curve for 30 years... its kinda awesome to wake up in pain, look down and see it standing straight. Im a presentable man and never had too much trouble finding girls, but i can already feel my confidence getting better :-)

james1947

notanymore

Good to read your post :)
The nocturnal erections are very encouraging, it means no damage to nerves.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

notanymore

everything seems to be going well. nocturnal erections still hurt, but other than that, im ok.

i will say one thing. i was dumped by the love of my life(or so i thought she was) because of this. it was embarrassing. im a handsome man, but lacked a bit of confidence because of this and never really dated till 25. i was first telling people i had hernia surgery right before and after, but then just decided to be truthful to an extent. You know what? everyone has been understanding, they have all disowned her, and am very happy for me. they dont pity me at all, they just say how shallow she was and then try and find someone for me. its actually helped to talk about it. its helped my confidence incredibly.

james1947

notanymore

Good the hear recovery is going fine.
Regarding:
Quotethey just say how shallow she was
I am saying the same and better for you without her. :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum