Hybrid H-100

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TonySa

I've been on it one month now in addition to Xiaflex, and no changes yet
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

JasperTJ

I dont know if this is the real deal or not, but seems promising.
It's not available in my state (NJ)...does anyone have ideas how to get this? PM me if needed.
Any other results to speak of on here?

P1992

Hi jasperTJ,

                 Enter the hibryid medical website that has guidelines on how to get the drug, since you live in New Jersey that is a state that does not have coverage for h-100. A urologist must prescribe the drug and send it to the RX Custom pharmacy in Wchita, Kansas. The figure looks like it costs $ 290 a tube for a month. Hybrid Medical recommends using it for at least 6 months to have some effect. I am from Brazil and I have a friend who lives in your state in the city of Milltown and he was willing to help me if I wanted to go there to get the H-100 since only a urologist from the United States can prescribe, as I am already in the chronic phase, I do not know if it would be worth doing this. In addition I would have to go to NY city to consult with some urologist since this state has coverage for H-100. As you live nearby, you could do the same.
54 years, self-induced peyronie
Upward curvature ~40º-50º, narrowing and retraction in flaccid and erect. Multiple plaques, loss of sensitivity, pain sometimes in a flaccid state and always on erection, axial instability and erectile dysfunction

LWillisjr

Whatever you do like this you do at your own risk. The forum is not responsible in any way.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

WhatNext81

The product is already very expensive. Sounds like a lot of money to invest in something that isn't yielding much, if any results, by the members on this site.  
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TonySa

I'm trying it but wouldn't recommend going to such great lengths when one will probably have as good if not better results from treatments that have been around such as xiaflex, VED, traction, low dose daily cialis and anti-oxidants.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

WhatNext81

Agreed. I didn't mean to come across as negitive. I really hope that after 3 months we start to hear positive results. I just don't know how to separate the results as traction is strongly encouraged in conjunction with its use.  

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SF99

Would anyone who was perscribed H100 mind giving the name of the doctor who helped them? I have been unable to recieve a script from any of the uros I saw. I live in the Northeast US, but any names would be appreciated  :)
21 y/o. Indent and pain on lower left part of shaft.

Pancreata


SF99

Quote from: Pancreata on July 25, 2018, 08:13:16 AM
A reliable source for peyronie's specialists by state.

Peyronies | Peyronie's Disease, Syndrome Cure, Treatment, Surgery | ADPA

Yes I have seen a specialist on this list. He did not recommend H100
21 y/o. Indent and pain on lower left part of shaft.

diehardpatriot

Okay. So I'm like 2 months into H100. Ive only been using 1 click each application (directly to the injured area) and it made 1 of my bottles last two months instead of one. It actually dulled my pain right away. I'm gonna go put an a limbxand say that I can only see H100 being effective once he active phase. Chronic phase maybe not.  
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

SF99

[Full quote removed, please read rules regarding quoting - Admin]

That's great news! The pain has been killing me. Could you give the name of the doctor who perscribed you?
21 y/o. Indent and pain on lower left part of shaft.

diehardpatriot

Hey Sam. His name is DR Goldstein in San Diego. I honestly don't recommend him. Not that he's bad but he's not a skilled surgeon and he doesn't even prescribe pentox.  and if you know you may need surgery down the line I recommend another doctor. If surgery is out of the question Goldstein does xiaflex.  I know dr Levine in Chicago prescribes and advocates for it and maybe dr Lue in San Fran will prescribe it.
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

TonySa

Dr Lue prescribed pentox for me until he could get the Xiaflex approved and started.  But since my primary doc was prescribing it as well it wasn't an issue.  I'd just ask your primary for it if the uro won't prescribe.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pancreata

Hi,

I have been applying H-100 2x/day for 4 weeks and have developed a noticeable drop in the rigidity of my erections.  

Am on 5mg of Cialis daily so before H-100 had no issue with ED or rigidity.

One of the components nicarpidine is a calcium channel blocker and can cause loss of erectile rigidity by lowering blood pressure.  

Has anyone experienced this?

I know Peyronies Disease also can cause ED, so this might be difficult to ascertain in some men, but any relative change might still be noticeable

Thanks!

diehardpatriot

Pancreata: hey I haven't noticed a drop in my erection quality due to H100

UPDATE: all I can attribute H100 to is a reduction in pain. I do not have a normal case of Peyronie's like everyone else here so do not take my testimonial as something that'll apply to everyone. I have an injury that re occurs over and over... I believe that H100 keeps my mind off the pain for the most part.  
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

TonySa

It's very expensive if only addressing the pain.  Diclofenac sodium gel is generic and inexpensive.  Low dose available over the counter, and higher dose w prescription.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

diehardpatriot

Tsanchez. Thank you, I might benefit from using that once my H100 expires
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

pey ron

After 4-5 months since starting the H-100 I have had some sudden progress. Not a 100% sure it's the H-100 though, given there are a lot of things I have been trying in parallel.

First I suddenly could no longer feel a large and hard plaque right below the glans, then my septum started feeling softer.
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diehardpatriot

I have some leftover expired h100. Should I still use it?
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

Bent Ding Dong

With the lack of excitement in this thread about H100, is it safe to assume that it's not very effective in treating peyronie's? I'd love to give it a go but they only sell to certain US states and no other countries which is really limiting their sales reach and they only prescribe it to peyronie's in the acute phase so that rules me out completely.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

TonySa

I'm not excited about it, haven't heard any great outcomes and I think they are way to greedy in their pricing as it is a simply generic compounded medication made in the pharmacy.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bent Ding Dong

Yes and they state that it's only for the acute stages as they probably know it has no effect on the chronic stage.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

taller

I've been using it for a couple months and it's almost entirely washed away any pain I was dealing with. Felt like I'd bedded a blow torch one day and pain was gone in 30 minutes. It seems like it's slowed down progression of Peyronies Disease, at least, or maybe even stopped it. But I could be wrong. I have been only using the H-100 for treatment of my Peyronies Disease and my main dent is still minor 2 months later, while dents in areas that can't really be reached by the topical have appeared and nearly overtaken its severity. I'm no scientist, but I figure if the pain meds are getting that deep then the nicardipine must be too, which would be excellent.

But sometimes soon after application I get a cold tingly sensation that's pretty minor, but still concerned me a bit, seeing how this is a medication that has an impact on the vascular system I had concerns that it was doing something bad to the veins. I contacted the drug's developer and he said they'd never had this side effect reported before. Said to report any changes, and might have to stop if it gets much worse. But it hasn't really. This is prescribed for bends, but I only have dents and the scar isn't really that palpable so maybe that's resulting in too much absorption into regular tissue? One of their primary selling points is that it's totally safe, and you'd think that makes sense since this is probably a lower dose than having this all injected and I haven't read of many bad outcomes to that not having to do with the needle itself.

The first week I started it, I would get an erection every time I rolled onto my side to sleep, and still have one when I woke up. Must have been the veins opening up. The urologist who prescribed it for me didn't seem very knowledgeable about peyronies at all, and was pretty much just prescribing me whatever I asked for. Had to go to a specialist two hours away just to get it diagnosed so he would listen.

By the way.. I think it's making my nails softer too from handling it. My thumb nails are almost a centimeter now, and they haven't frayed or chipped yet like they usually would. But maybe it's just a diet change or something. Anyways...
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

Christopher1

Very interesting. Thank you for sharing.
Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

Gabriel

Yep, thanks a lot Taller, that's pretty good news!

Do we finally know when the stuff will be available to Europe?? Two years now and I'm still in pain, I'd try everything...
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

Bent Ding Dong

I would like to try it too and have emailed them previously but they are not interested in selling to anyone who is not a US citizen. Also, they require a prescription now and only prescribe it to those who have peyronie's in the acute stage so it is impossible to use a parcel forwarding service to try it.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

TonySa

For pain, you can purchase the diclofenac sodium gel.  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

taller

An update. It seems like my condition may be starting to settle down. I've been fapping once a day for three days now, and not suffered the usual excruciating pain I would otherwise be dealing with. No noticeable increase of pain at all, actually. Gonna back off anyways to play it safe. Still feeling almost bruised between my legs, where it feels like there's a dent over half centimeter deep, but the pain isn't as bad as it had been the previous couple weeks. Tough getting the lotion down there, so not sure there's much I can do about it. The widest dent hasn't gotten worse than 3mm deep, so the size has been pretty much consistent despite the past month of excruciating pain and occasionally more severe sensations of tightness, which would eventually fade. I had even been wearing pajamas out everywhere because anything remotely constricting would cause more pain, and had been forced to jog indoors because I needed to hold my junk to keep it from bobbing around. Car rides.... hell. The pain relief of H-100 goes a long way, but sometimes I'm not sure there's a pain reliever in the world strong enough for certain cases.

My primary treatment up to this point has primarily involved the H-100, and maintaining an erection for between 30 minutes and a couple hours most days as a substitute for stretching and traction, which had grown too painful to do.

Hard to say how much H-100 has actually been helping my case though, after over two months of use which I started on my 5th month. It seemed to be slow-progressing to begin with, but then I'm not really sure how my progression compares to the average case. I went to see the same urologist a week ago who diagnosed me before I started H-100 treatment and he said that he couldn't find the plaque this time, but maybe it'd be easy to miss since my deformity was never that bad to begin with.

So in conclusion, I want to believe that it's been helping, but my inner skeptic doesn't want to convince people to buy this expensive product if it actually hasn't and maybe my case would've turned out minor anyways (not that I'm out of the water yet). I'm sitting on two extra months of doses right now, and depending on how things go from here I'm not sure what I'll do with them at $290 a pop. Though if I remember correctly, active phase can continue for a while after the pain has resolved right?
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

taller

Fresh update. I can see why H-100 stresses the importance of daily stretching now. Went a week without getting an erection and when I tried to again, it was excruciatingly painful. The scar tissue had mostly built up in the latter half of the crease between my urethra and shaft, where the lotion has a hard time getting to. Took a week of forcing myself to get erections through the pain (of which the H-100 was unable to directly help with, unfortunately) before it went away. But it did go away. Things feel a bit tighter now, but I get the feeling that will resolve. I think the dent developed a bit more around the bottom around that time, but my fear of this disease and any long-term consequences from it are still at an all-time low. My dents have not gotten smaller, but seem to be otherwise stable for the most part.

That must have been the painful erections that other people have, where the scar tissue feels like it's ripping flesh from the tension. If that's the case, then it's a miracle that I was able to just make it go away like that. If anything, the H-100 was actually doing what it was supposed to do and made the scar tissue softer and more stretchy. I've been using the H-100 for about 3 months now I think. I'm at the point now where I feel like I can recommend this to people, particularly those earlier in the acute phase since I'm unable to testify to its ability to pierce through a thicker layer of scar tissue. I'd like to see more of what other people have to say about it. I've been the primary poster in this thread for a while now.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

Bent Ding Dong

I'd like to give it a try and post about it here but don't have access to it unfortunately.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

diehardpatriot

Taller. Glad to hear it worked for you, it did absolutely nothing for me in the pain department. But then again my diet was horrible, I was massively stressed out, and I was very acute.  
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

Alibaba

Quote from: TonySa on October 13, 2018, 11:10:35 AM
It's very expensive if only addressing the pain.  Diclofenac sodium gel is generic and inexpensive.  

Good information to know. I have it in tablet form but had no idea it cam in a get. Might be helpful to have around. Thanks Tony.  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

taller

Diet could have something to do with it. I'm usually pretty strict with mine.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

diehardpatriot

What does "strict mean" strict so some people can mean whole wheat bread, oatmeal, and low fat foods. What kind of diet do you eat  
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

taller

I mean I eat a fruits and salad kinda diet..  eggs, tuna, oatmeal, stuff. occasionally slip underweight from it. But I've been pretty far off it lately.

Also short term update: my urethra appears to be sinking into my shaft fairly quickly now, and it feels mega weird. It's been freaking me out to the point of causing some Erectile Dysfunction, which is exacerbating the issue. Never thought I'd find myself viewing porn as a medical necessity.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

diehardpatriot

Dude you should consider cutting carbs and sugar completely, or living a fasting focused lifestyle (OMAD, 48 hours, ect)
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

taller

Started keto. There has still been noticable, but trivial hourglassing over the past month. I'd say I'm still in the green, overall. This is probably the fastest its progressed. I'm half way through my last tube, and I'm not sure I'll buy another. Budget is pretty tight. I've been using a half dose on concentrated areas, and stretching it with regular emu oil (hopefully to some effect) when it dries up.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

taller

I thought I'd noticed the H-100 getting dryer over time as I used it, and I was right. It seems some of the emu oil has been leaking out of the bottom of my last bottle excessively as it separates from the rest of the lotion. It's been getting on my hands for a while now when I picked it up and I had no idea where it was coming from, but I put my hand on the bottom and it was pretty wet. I checked the bottom of my second to last bottle and sure enough there was some there too, but not nearly as much. Seems that it happens over time, hence why my last bottle is the worst since I ordered 3 month supply all at once. I'm concerned that the medication has had a reduced effectiveness as a result of the slightly noticeable dryness of it, and I'll be contacting Custom Rx about it soon. It's too expensive not to. I'll be buying some high quality emu oil from amazon to mix it myself as I apply it, and scraping some of it off the bottom. For a while I was under the impression that I was becoming immune to its pain-reducing effects, but maybe it's because there was less of the ingredient required for absorption.

Just set it on its side hoping to keep more from leaking and it left a small puddle on my table. Big oof. I mixed the lotion with the emu oil and was surprised to watch the white lotion disappear and leave just the oil behind as it completely absorbed into the skin, rather than eventually drying up on the surface. I forgot that was even supposed to happen since it's been so long.

Update: Custom Rx is replacing a full month supply for me, and having me ship back the old ointment. Wouldn't recommend getting more than 2 months at a time, despite the discount.  
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

taller

Uh... don't leave your H100 on the floor. Woke up to ants swarming it, same as they did my regular emu oil bottle a while back. Guess I know now why I keep finding lone ants in my bed. Can't imagine waking up to a couple dozen ants on my dick. YIKES. Luckily I haven't had any bites yet. Think I'm going to be elevating my bed again...
Age 23, symptoms started almost a year, only treating with topical H-100 for obvious yet hard-to-quantify benefits, as well as WoundVite. Extremely sensitive to further injury/irritation, but progression of hourglassing is extremely slow.

diehardpatriot

Taller, ahaha ants on dick. Good call. Love the updates  
Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

james1947

QuoteThink I'm going to be elevating my bed again...
Just put anti ants powder around the bed legs.
A more serious solution, flood your room 8)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

pey ron

They quit issuing rebates. Now it's gonna be even more expensive :'(
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

drew67

has this worked for anyone?

TonySa

I haven't heard any positive outcomes yet.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Anbil

this is so stupid, it's 2021 and these moronic manufacturers still have not figured out a way to deliver medications into the tunica

if million dollar companies end up making such essentially useless products

then what hope do patients have of compounding an effective cream themselves
Onset of pain in March 2021
Progressed to loss of girth to dent under the glans left side

Been doing daily heat,traction,pentox,ved,cialis since initial onset of pain

Currently still experiencing pain and dent unchanged