I'm new, had to self diagnosis myself to doc

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Jed

33 years old, started with pain near the top head and I thought I hurt myself and didn't remember. Then after two visits to the doctor and him telling me I must have bent it, I told him what I thought I had and he felt one more time and said yeah I think you do have Peyronies Disease, and said I should get a second opinion. $80 and two hour drive and I had to tell him what I had.

So, now have three pea sized hard feeling things if I press a little firm on top middle and base of penis. Only dose the top one near the head give any pain and only when Erect. I had a naturally curved down penis and since the Peyronies Disease is on the top I have a straighter one now, however I think I lost half an inch over all. Had pain really bad for 2 months now about 2 months of pain 40% of the time, I will say that if I get erect fast it is much worse than when it happen slowly.  Have been on vitamin E and  acetyl- carnitine plus saw palmetto for two weeks and other than the smell of E in my urine I have not noticed much. Plan to start gotu kola , bromelain, custol oil, and oregan grape root.

James    

goodluck

"Plan to start gotu kola , bromelain, custol oil, and oregan grape root."

Just wondering what is moving you to try these?

I know that castor oil has been suggested by many in the past but no one here has every reported any success with it. (I am happy to be corrected if I am wrong)

I am not sure of the other herbs you have mentioned.  Let us know what your have heard about them and from where the info comes.
Thanks,

Good Luck

Jed

When I realized I had peyronies I looked up every web page i could find and one of them had those listed,  all under $10

another thing I might note is I had sex and stuff all the time, up  until last year when it didn't happen that much at all and I stopped the other stuff all together not sure if that had anything to do with it. Maybe if you don't use it you do lose it.


Hawk

Quote from: Jed on September 15, 2012, 06:06:12 PM
vitamin E and  acetyl- carnitine plus saw palmetto for two weeks and other than the smell of E in my urine I have not noticed much. Plan to start gotu kola , bromelain, custol oil, and oregan grape root.

Welcome.  The things I underlined are the only things you are taking that I would spend my money on.  Not saying the rest is useless but there is better use of money and effort like the PAV cocktail.

I not sure I followed your post.  Did you get a second opinion?  I am in a crunch for time, so for now I would read the highlights in the top of each board.  Especially Oral treatments, and VED, and Traction, boards.  I am sure other will speak up and I wi be back tomorrow afternoon.

Good Luck
PS: Not sure what this meant
Quote from: Jed on September 15, 2012, 09:19:58 PM
I stopped the other stuff all together not sure if that had anything to do with it.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Jed

By other stuff I ment masturbation. I have not went for a second opinion.

james1947

Jed

You are not the only one that encounters incompetent doctors. Many of us, maybe most of us had the same experience as you had.
Regarding treatment, I was proposing a daily treatment as bellow:
3*400mg Pentox (Trental), if too much side effects 2*400mg.
2.5 to 5mg Cialis
2*500mg L-Carnitine
2*1000mg L-Arginine
As you are younger than 40, 3*100mg CoQ10, much cheaper than Ubiquinol
VED, 20 minutes
You can expect improvements after six months or more, some people have faster improvement. Consistency is the key of this treatment.
I will advise you also to read the forum to understand what and how the above medications/supplements are helping with Peyronies.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Jed

Thx, I also want to try heat and deep tissue massage. Too bad there are not more people on here that have beat this and tell how they did it.  

james1947

Jed

You may read some improvements on the link bellow:
Improvement - Accounts of improvements in deformity or erection. - PDS - Peyronies Society Forums
Unfortunately, many (maybe most) of our members that had a solution for they Peyronies are not active anymore.
Like one post that says:
"Thank you for the help, I am cured from Peyronies, never see you again"
Makes me angry, but what can I do?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Jed

Up date, went to the VA this time and was told the drug that was recommended  to me here was not carried by the VA due to no proof that it works for any thing, he said it was made to shape the red blood cells to get deeper into tissue for healing but was proved not to work. He did however give me a really nice VED and some viagra, the viagra made my face flushed and and I really felt like I was going to pass out, that was only a small piece of a whole pill. The VED works great only one size tho. Stopped taking all the pills and supplements . As of now I feel all most no pain and no dents ,more hardness on the middle shaft tho.