Failed penile implant surgery after peyronies diagnosis

[sunshine]

This is my first post. After 2 years of coping with peyronies, reading everything I could find, and seeing a fantastic urologist with specific peyronies experience, we decided on a penile implant. The implant failed initially due to bleeding and then infection. My husband underwent a 'salvage' procedure which is a nice name for taking the whole thing out and starting over again. This implant also got infected and failed. The third surgery was to remove it all. The whole process from first operation to recovery from the last one took 6 long painful months. Now, we are trying to figure out life after failed implant. The implant destroys the erectile tissue which is really depressing because of course that was intact at least! But now, it is, as I understand it, completely destroyed. I am searching for solutions and how to maintain a sex life after this terrible disappointment. I have looked for books on this and related topics but have not found much satisfactory.  Any comments or support welcome.  

[james1947]

Sunshine

Sorry reading your and your husband ordeal.
As I read on the forum, have some doctors that are more specialized and some less, even in they resume sounds that they are from the first line in the subject.
It is also worrying for me and others on the forum that are planning to make an implant.
Can you tell us more details regarding the urologist that made the implants?
Some on the forum have more knowledge than me in the subject, hope they will jump in.

James

[jackp]

Sunshine

You need a very competent Male Sexual Function / Urodynamic Specialist. I don't know who the doctor was but something went wrong.

Dr. Douglas Milam at Vanderbilt in Nashville TN is the best in the world at revisions for men that have had problems. I would recommend a consultation as soon as possible.

After my first failed implant attempt, by a local urologist, I was told that I had a less than 50% chance of successfully getting an implant and should not try again. That was the Head of the Department of Urology at The University of TN Medical School, Memphis. October 23, 2008 Dr. Milam did a successful implant for me. I asked my new local urologist why did Dr. Milam do so may revisions and he told me that about 80% of doctors that do implant get it wrong.

Send me an email and I will get you in touch with Dr. Milam's PA, Todd Doran, and let you two exchange messages.

There is hope and help. Just never - ever / never - ever / ever give up.

Any thing I can do to help let me know.

Jackp
http://jackp-penileimplant.blogspot.com/  

[DoraAU]

my husband had an implant in july and is still having problems his body rejected stitches 5 times he ended up with infections and is now having it removed on thursday we were not told that he would not be able to get an erection again he sufferts from ptsd i have not told him about this niether did his dr after reading about this i am worried how he is going to take it all in it is very distressng and i wish he had never had it done the dr said it would fix his peyronies disease hm dont think so 6 operations later and he is still in hospital 4 weeks this time with bad infection pumping antibiotics into him dont know when it will all be over it is such a worry and i live so far away from the hospital i cant even be there every day i wish drs would give patients more information before they do these things its not cheap and it is dangerous as far as i can see, i hope something will sort it all out looks like that is the end of our sex life now so i know how you feel

[skunkworks]

Dora, Jackp (the poster before you) is the one to ask about these things.

Best to make a thread with a descriptive title in the appropriate forum and/or send him a personal message.

[Hawk]

Jack has not logged into the forum for about 2 months.  You may reach him by private message if he gets email notifications or you might make contact through his blog.

A note to Dora:

You should be aware that we are here to help.  You will find this the best source on the internet for information and support on Peyronies Disease.  It is important however that you you not post what is basically the same post multiple times in different topics.  We understand your concern but that does not help you, the forum, or those that have to maintain the forum.

Regards

Hawk