Young Man with Peyronie’s Disease

[j-dude]

Hello,

I'm a young man who suffers from Peyronie's Disease. I first noticed signs of this condition in my teens, and it gradually worsened throughout my college years. I believe that I suffer from what's known as the "bottleneck" deformity, in which the circumference of my penis narrows towards the end.

I've become extremely despondent over this condition. At a time when most of my friends are dating, I have deliberately avoided relationships due to my embarrassment over this condition. I've seen two urologists so far -- one at a world-class hospital -- but neither seem to think that there is anything they can do to treat my deformity. I've come to this forum because I don't know where else to turn. Obviously, this condition is not something that I can talk about with others easily.

There is no way for me to accurately describe in words the shame this condition has caused me.  It has utterly emasculated me.  I do not feel comfortable around family or friends anymore.  The humiliation this condition brings, my helplessness to treat it, the fear that I will never have a significant other -- all of this weighs heavily on my mind.  Like everyone, I want to have a significant other someday in my life, and I deeply fear that this condition will prevent that from ever happening.

Sorry for the long-winded rant; I've been bottling these feelings up for a long time. I offer my highest sympathy to everyone suffering from this condition, particularly to the young people on this forum.

Sincerely,

j-dude

[james1947]

j-dude

Welcome to the forum. I know you was preferring not to be here, but if you have already Peyronies this is the place to be, to get information and to learn the possible solutions that fit your specific case (everyones case is a "specific case").

Regarding the urologists you have seen, they don't seems to be Peyronies specialists if they don't have what to say regarding treatment.

Different treatments has helped different people, so you have to begin to be proactive:
* Read much as you can on the forum to see how other people are dealing with this disease
* Find a Peyronies expert that can help you with prescriptions and guidance
* Begin to treat this disease.

In my opinion, a good start treatment will be:
Pentox 2 or 3*400mg daily. Needs doctor prescription, can buy from the Internet without prescription.
Cialis low dose of 5mg daily. I am using 4mg daily because I am cutting the pill of 20mg in 5 pcs.
L-Arginine 1000mg daily.
Ubiquinol 2 or 3*100mg daily.
I am also strongly recommending the usage of VED.
Don't expect overnight results. Except surgery that is a last instance, all Peyronies treatments are a marathon, not sprint.

Regarding

the fear that I will never have a significant other

I will say that if you will be proactive, you will find the way to fight this disease and it will not be an obstacle.

James

[reynell]

J dude

Welcome to the forum. I know it must be difficult to have this and being so young. But, SHAME? I know you are just blowing off steam but there is nothing Tobe ashamed of or embarrassed about, nothing.  You have an illness and you need help.  When a Dr says "There is nothing I can do" believe them because they don't know how to treat this illness. But there is always someone else that can help. DONT buy into that statement.  Find a specialist in peyronies/male sexual function specialist.

My fear was that the Dr was going to give the "take these pills and see me in a year or two"
Which wasn't the truth. He said he could help me and he did.  My point is this, Your are going through alot (all of us have) don't let this get you down there is hope out there even if its surgery (as a last resort).

Believe it or not the worst embarrassment i had was telling my wife. Yes my wife. After that i had very little embarrassment. Now i can talk about it to any one who wants to hear.

Most important;
don't give up!
get a specialist not a GP or Gen Uro!
It will get better!

[j-dude]

Maybe "shame" was too strong of a word -- it's more that I'm terrified of having to reveal this to a woman I care about, when and if that time comes. Like you said, the toughest part was discussing this with your significant other. It's the fear of rejection, essentially.

For what it's worth, the doctor I saw at the hospital performed a penile ultrasound test.  The tests showed no plaque (which I'm told is a good sign), but it did show a thickening of the penile tissue.  The doc didn't seem overly concerned by the results, so maybe it's not as bad as I'm making it out to be (it always looks worse when it's your penis).  He even said that Viagra might be an option to help fill out my "bottleneck".  If I could meet a girl that could overlook this, then I wouldn't feel nearly as embarrassed of it.  I guess for now, I'll have to work more on the psychological aspect of this condition, perhaps with a therapist or something.  

[james1947]

The treatment should be to prevent the "thickening of the penile tissue" to become a plaque.
In my opinion, Viagra alone will not do the job.
Maybe low dose daily Cialis will do something, many forum members have changed the Viagra to Cialis in the famous PAV cocktail (Pentox, Arginine, Viagra)

James

[LWillisjr]

j-dude,
I think one day you will find that many women don't care what our penis looks like. No two are the same. If you reasonably straight and functional.... be proud of it. We are often harder on ourselves than our significant others will ever be.

Les

[reynell]

J dude

I couldn't agree with you more.  I know and understand about your use of the word shame.  I just wanted to make a point that you yourself brought up, Mental distress.... You are going through alot and need to get those feelings out.
Alittle advise, Ive been to some so called mental health professionals and it just cost me money and didn't really help.
I have a group of close friends that i can talk to and they give me a more common sense stand point that works better. I talk and all they do is listen. The goal is for YOU to see or yourself what is wrong and how to deal with it. If you have your mental and emotional situation undercontrol you can deal with the physical conditions. My opinion.

I agree with Les, that perfect girl will not care what your penis looks like. She will love you because of you uniqueness.
You seem like a smart guy, Hang in there!!