Newlywed dealing with Peyronie's

[Michele]

My husband and I were just married a few months ago.  We did not have intercourse prior to getting married, but did lots of other fooling around.  So now we are married, and it turns out he has Peyronie's (probably caused from an injury in our fooling around stage).  It's been really hard on us in our first few months of marriage.  We've only had sex twice since the wedding, and even then it was very difficult for him.  Lots of tears over the past few months, and he is extremely embarrassed.  I love him unconditionally, and we are hoping that we can find a way to either resolve the problem, or work around it.  We want to start having kids as soon as possible, and the Peyronie's is throwing lots of questions in the air.  Can we still have kids?  Will it always be like this?  What are our options?

I guess I'm just looking for some support and some words of wisdom.

[reynell]

First i want to say good for you for supporting your husband.  He is going through a lot and needs your support and understanding.  Thank goodness for the support of my wife she is great.  First of all how old are you two? Is he in early stages? You need to read everything you can from the people on this site, they have gave me so much support and answered so many questions. There are guys here at every stage of this so be informed and give you husband allot of support!
Rey

[james1947]

Hi Michele1234

Sorry to read about your problems, but I think you have to go out from the panic you are in and work together with your husband to find a solution.

The forum have also a women only board that male members or guests can't even see it. You may post on "Women Speak Out about Peyronies Disease - PUBLIC Forum" and ask Christine (the moderator of the boards I have mentioned) how to join the board.

First thing you should do is to go with your husband to an uro, better to a Male Sexual Function specialist to check out and see what your husband have and to begin some treatment. He may go alone also if he feel not comfortable.
He may have Peyronie's or he may not and just the doctor will be able to tell that 100%.
Ones you know for sure it is Peyronie's, forum members will be able to give you advices from they own experience

I would like to state also that don't have any connection between having kids and having Peyronie's. Peyronie's not causing fertility issues.

Keep strong and go forward to solve this problem, many people fought successfully this disease with different approaches. Regarding treatments, you may read the forum boards to understand more.

James

[Michele]

Thank you all so much.  He is in his early 40s and I am in my late 30s.  He is in the early stages, and we are crossing fingers that it will just reverse itself.  But preparing for alternatives if it doesn't.

[LWillisjr]

Has he been to a doctor and diagnosed with Peyronies, or does he think he has peyronies based on what he has read about?

[reynell]

michele
its good that both of you are young enough that you shouldn't have too many other problems. And you are right it might reverse its self, but be prepaired. Get your questions together for the Dr and do your home work.  I have several pages of questions for my Dr next week and even info on what other Dr's are doing across the nation.  I know its difficult be stay positive.
reynell

[Michele]

He has been diagnosed by both his family physician and a urologist.  He goes for his third follow up appointment with the urologist next week.

[reynell]

Michele
Hope everything goes good for both of you, Keep up informed.
Rey

[GS]

Michele and Husband,

I got Peyronies almost 4 years ago and thought it was the end of the world.  But, with the help of supplements, Pentox and the VED, now Peyronies is not a big deal to me or my wife.  It's just something we have learned to live with.

When it first started my curve was around 45 degrees and there was quite a bit of pain with erections and intercourse.  Now my curve is more like 35 degrees and there is no pain or discomfort with erections and sex.

Maybe I'm one of the lucky ones, but I think you will just need some time to get over the shock of it all and some time for the Peyronies Disease to go from the acute stage to the stable stage.  At least that's how it worked for us.  You didn't mention his degree of curve, but that's obviously one of the the most important parts of the equation.  If it's 50 degrees or less, you should be fine after he gets over the acute stage.

I wish you the best.

GS

[reynell]

I think it depends allot on many different things, How long you've had it, is it stable etc. Everything Ive read has said that early stages can be controlled by Rx's. But every person Ive spoke with said that at a certain stage like mine alternate treatments are not going to work.  

I think its GREAT that you have it controlled with meds. But if the pain is so bad that you cant function and you get sick to your stomach, you shouldn't have to try pills and WAIT AND SEE.  I'm so happy for both of you!