New member with Peyronies Disease

[phoenix1647]

Hello folks,

I am Tom. A 65 yr old male who just found out I have Peyronies Disease about 6 months ago.  Have seen my URO and currently we are on the
wait and see method.

I started reading this forum yesterday, 4/14/2012 and am finding it VERY helpful and confusing at the same time.

I am a type 2 diabetic, with high blood pressure, and am on a lot of pills including some listed here. I blew a tendon while on
CIPRO so can't take that anymore. I do not think my condition has anything to do with the CIPRO.

I would like to consider this problem a CONDITION rather than a DISEASE.

Thanks for having this forum and for all the inputs from men who suffer from the same condition.  

[james1947]

phoenix1647

Welcome to the forum if you have Peyronie's disease, you get to the right place.

You didn't write too much regarding your situation but when you are writing:

Have seen my URO and currently we are on thewait and see method.

I have to say that you have to change uro as soon as possible. The "wait and see method" is the worst thing you can do to yourself. Sadly most of the uro's don't have any knowledge in this disease.
Don't consider this problem as a condition because it is not. It is a disease!!!

You have to act NOW as soon as possible because you are in the acute face of the disease and in the acute stage the chances to stop the disease to progress and even revers it.
Get as soon as possible (with the consultation of your general doctor) on:
Pentox
L-Arginine
Low dose Viagra or Cialis
VED therapy

Regarding the forum, invest time in reading as much as possible. I short time you will learn to navigate and to find what you want to learn.
Do not hesitate to ask or discuse any subject. We are here to help each other.

James  

[Skjaldborg]

I second james1947 here: get another uro who will prescribe pentox. When a uro says "wait and see," they actually mean "I'm a urologist who doesn't know anything about this disease and I am not up to date on the latest treatments." Frankly, uros like this should be ashamed of themselves. This is one of those situations where you have to take charge of your own health. The earlier you start these treatments the better. Good luck and we'll be glad to answer additional questions if you have them.

-Skjaldborg

[phoenix1647]

Thanks for your response. I do not intend to just sit and wait on this....I have copies some of the posts from this forum which I will hand to my doctors and give them the URL for this website. I think they will find it intresting and helpful.

OK...a little more about me.  I first noticed the curve in Dec of 2011. I do not know just how long I have had this disease as I  have had pains for over 5 years now but never a curve until now. I had prostate surgery in 2001 (T.U.N.A.). I did have some problems with erections after that but it has seemd to clear up more now. I do not get erections during the day...just at night.
I would say that most of the erections are moderate with a few rated as extremely good, as well as a few rated as poor.
My sex life is very poor....usually 2 or 3 times a year. I do masturbate about twice a month on average.

This is a list of all the meds I take now. I do not think any are the cause of my Peyronies Disease but one can never know for sure.
Benicar 20 mg for high blood pressure
Effexor 150 mg
Gemfibrozil 600 mg
Lunesta 3 mg
Metformin 500 mg
Metoprolol 25 mg
Omepraxole 500 mg
Jantoven 5 mg.  (warfarin)
Naproxen 500 mg
Synthroid .025 mg.

I am a type 2 diabetic, quit smoking in 1990 and quit drinking in 1985.  I do try to watch my heallth very closely and do not
hesitate to go see a doctor if I need to.
My memory does not serve me as well as it used to years ago, but I can only recall maybe 4 times I had the "penis pop" trauma.
Never had it swell up or anything like that.

I am doing as much research as I can on this subject so I can be better informed and make better decisions. Surgery is not high
on my list of options at this time. My pain levels are very low and not very often now days.

I will stay active on this subject and learn as much as I can. It realy helps to read posts from men who have the same disease
and are so willing to talk about it.  I think my doctors will learn much from this site as well.

Thanks again for having this site available. Sharing information like this site does will make a big difference in many lives.

Glad to be a part of this site.

Tom

[james1947]

phoenix1647

I hope you are right regarding your doctors

I think my doctors will learn much from this site as well.

most of them are not so positive.

My Peyronie's begin after (T.U.N.A.) and so the ED.

Regarding your medications, high blood pressure medications do make ED, I don't know the specific one you are taking. Have some people on the forum with much more knowledge than mine, hope they will jump in.

Wish you start treatment soon

James  

[ThisWontWork]

@phoenix1647

WARNING!  Metoprolol has a very rare side effect - Peyronies - 1/10000 can develop Peyronies. Stay away from that stuff.

This is a list of all the meds I take now. I do not think any are the cause of my Peyronies Disease but one can never know for sure.
Benicar 20 mg for high blood pressure
Effexor 150 mg
Gemfibrozil 600 mg
Lunesta 3 mg
Metformin 500 mg
Metoprolol 25 mg
Omepraxole 500 mg
Jantoven 5 mg.  (warfarin)
Naproxen 500 mg
Synthroid .025 mg.

.......

[jackp]

phoenix1647

Any beta blocker for can cause peyronies!

A lot of high blood pressure medicine can also cause ED. Talk to your doctor about changing to one where ED is less of a side effect.

I also see you are on the anti depressant Effexor. This can also cause ED problems. Wellbutrin is well known for not causing sexual side effects. The problem a lot of people can not take it. Viibryd is a new anti depressant that does not cause sexual side effects.

Jackp
http://jackp-penileimplant.blogspot.com/  

[phoenix1647]

OK....just got my VED ordered today. It is a Soma StF, 3 tube. Won't be getting it for a month or so as I have to head out of town. My mother-in-las has 2 cancerous brain tumors and they can not operate on her.  She has about 3 month left they think.

So when I get back home I will start on the VED and vitamin E. Sure hope it works good for me.

Will keep this forum updated when I can.

Thanks for the support and words of advice. It is all appreciated.

Tom

[jackp]

Tom

My prayers are with you. My mother died from a brain tumor.

Gods Speed

Jackp  

[james1947]

phoenix1647

Just a small remark regarding Vitamin E. Most forum members are in the opinion that Vitamin E is not helping for nothing, it may also make some damage.
I am proposing you in parallel of taking it read the topics/posts regarding Vitamin E.

James

[jackp]

James

I disagree about Vitiamin E. When I was first diagnosed with peyronies, over 20 years ago, my urologist at the time put me on Vitiamin E and Potaba.

I took 400IU of Vitiamin E for many years. My peyronies curve straightened in about 18 months. I understand this will heppen in about 1/3 of the men with peyronies.

Don't knock something that does help. It like Pentox takes time to work.

Jackp
http://jackp-penileimplant.blogspot.com/  

[james1947]

Jack

I never used Vitamin E, but most of the remarks on our forum are like:
"Waste of time"

Maybe I just don't remember the positive posts in the subject, I will read more to get to conclusions.
I have done the same (I mean reading all the related posts) regarding Pentox to get an opinion. I have also posted it as PDF and Word files.

James

[Old Man]

James:

I used large dosages of Vitamin E along with the VED therapy. The E gave me thinner blood that was able to penetrate the tissues better.

Old Man

[phoenix1647]

When my uro said I was to start using the VED, she also said vit. e also helps.  I was thinking about using the vitamin E as a topical agent.  I am already on a blood thinner (warfarin) and really don't want to add more to my system.

Might have to check into some of the old time remedies for softening the plaque. Who knows, the ancients ones might have known about this disease....just a thought.

Tom

[Old Man]

Tom:

If you can locate some liquid vitamin E, you can massage the plaque areas with it. Takes time for any results though.

You can also puncture the E capsules and apply the liquid to the affected area as well. I know your problem with taking warfarin.

Old Man

[jackp]

Tom

I was on Vitiamin E long before I had heart problems and put on blood thinner.

Do Not take Vitamin E, Pentox or other blood thinner as long as you are on warfarin or other prescription blood thinner. Always ask your doctor is it OK to take any thing off label if you have any heart problem.

My heart doctor has changed me to Pradaxa and that has less side effects and is doing a good job for me.

Jackp
http://jackp-penileimplant.blogspot.com.