Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

                                            Visit Our Revised, & Expanded, Erectile Dysfunction Forum - Please Read. New Erectile Dysfunction Forum - Peyronies Society Forums

Pages: [1]   Go Down

Author Topic: 24 yo, help me please  (Read 2427 times)

0 Members and 1 Guest are viewing this topic.

Thomas

  • PDS Newbie
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 3
24 yo, help me please
« on: April 13, 2012, 09:05:20 PM »

Hello there. I've been diagnosed with la peyronie a couple of months ago.
Very sadly i went immediatly to the doctors once i felt pain, nearly a year ago. I went through some medical care, but i was assured it was nothing. Then the penis start to bend, a couple of months ago, and i went back to see the andrologyst, which confirmed the IPP. He gave me L-Propyonil carnitine 500mg, to take 20 days on, 20 off, 20 on. I'm going through the 2nd cycle. I then went to an urologyst to reassure my parents, which tried to reassure me back,  and suggested me to take vitamin E and to try laser therapy. i'm on the vitamin, but i've still not gone into the laser therapy, since i got no money of my own (i'm a student), and don't want to ask for more money to my parents. I talked him a month ago, he said calcification wasn't still started.

Pain is slowly diminishing, but my bending process is slowly going on. Sometimes it looks better, sometimes worse. My libido is dramatically decreased. My guess is that it's not going to deteriorate too much from now on. It's bent down, with a 20\30% degree. I have problems mantaining erection, and i'm not able to perform a complete one. Not sure if it's a matter of anxiety, pressure or what so ever. The ulceration is only 2.5mm, the urologyst said it was unlikely the DE was caused by it, but still i can't be sure aboud that. I have problems expecially when standing, the erection is going away very quickly, in about seconds. Having problems mantaining erection i couldn't even shoot photos of my penis.

The very sad part is that i'm not dating anyone. I used to think that sex was not important, that i had still time to have fun with it. I wanted intimacy, but felt not ready for that. I never really committed into any relationship, so i had very very few sex in my life. And now i probably won't have a satisfactory sex life anymore.

I can't date any girl, how can i knowing that i probably can't make love with her? With a medium, bent, penis with a probable DE, how can i feel secure about my manliness again?
I see no future like this. I'm too young, i can't immagine me starting a relationship in pity. I HATE the idea of pity, of being weak. I could endure it with someone i'm deeply involved to, but how to start a relationship like this? How to engage someone, knowing that it's not naturally flowing it to the end? I mean, usually these things go like they are ment to go, you meet someone, you spend time with her, you become intimate, you make love. At what point am i supposed to say "oh, dear, anyway, i have a pent penis and i'm probably impotent" ? it's like cheating, these things just HAVE to pass through sexual tension, i mean it's natural. And i believe i already had fear of rejection, now it's almost certain to happen. i can't deal with this idea. I can't make it. I can't just open with a person that i feel attracted or i love, like this. Feeling weak, ashamed. i can't make this to a person that i like. I can't be seen like that, i just can't.

Life is dark now. I've been lonely till now, knowing i at least could once feel loved in my life, someday. I've never felt being loved in my life. I have never experienced someone looking in my eyes knowing that she could find in them everything she needs. I've never felt really desired, not in those very few occasions i had sex in my youth. Now i'm hurt, i'm dying deep inside of myself. I feel broken, weak, and lonely. I feel cursed to be alone forever. I can't think but i won't ever again get from life what life's all about. I know that nothing keeps me from being if not hoptimistical at least hopeful... but i feel something it's on the way to happyness.

I never told this to anybody except from a person, a friend, which (my guess) couldn't handle it. The story of my life, in summary:
I've been molested in my childhood, by two different people, working at my house, in two distinct periods and occasions.
I lived my whole childhood with a secret, heavily conditioning me. My mother, depressed for her own issues, was never able to support me. She's not guilty, but i can't help but to feel angry with her. I've always been angry with her. I grew feeling alone.  I've gone through a very hard childhood, probably acting aggrehessive trying to defend me, and conseguently being bullyed all the time. I never felt protected about that, nobody actually could help me. My parents sometimes i feel tried to do something, but i rejected their help, feeling that untrue. Well, very sad part, i've grown up, dealing lonely on my problems, and i feel i managed to overcome them. Really, before my Peyronies Disease life was just beginning. I felt strong, mature, full of resources. Lots of friends, being probably loved and esteemd by them. And i back could find myself able to be part of life. I felt a hero, proud of myself, in contact with my emotions, in control of my life, not worried about change, not worried about loosing control, but capable. I felt reliable of anything, since i had overcome the hell to become what i was. I felt an accomplished person. All i needed was to make the acquaintance with love. I was ready to start to live. I went all my life through the darkness of the ocean, without breathing, the sky was there, i could grasp it, i made it.

Then this.

Life is absurd. Life is unjust.

Now i spend most of my time in my room, in the dark. I keep on small university duties, i keep on going out with friends every occasion i have (which are less and less, every day, since friends are graduating and leaving town, or in a more serious and private relationship). I have depression, i know. I'm asking for help in the next days, to a therapyst. I can't be hoptimistic about that. I'm late on my studies, i can't handle them anymore. I fear i won't be able to complete them. I just can't do that. if it's for me, i don't care. I don't have anybody to live for.
I can't neither work, if i think about strugglying to survive, i just can't. I'm on my parents, which rightfully wait for my degree, and my life to start. i feel ashamed, lonely... Now i have to ask for money for therapy. They know about the Peyronies Disease, but i think the whole situation is hugely bigger than that, and that they can't know that. I'm not letting them worry more about that. They are old, they don't deserve that.

People around me are going through their life, with common problems. I feel so far from them, i envy their worries. I could handle them with so little effort. I feel strong, and i feel weakened, cursed. I feel i can overcome anything, but this, wich can't be beaten at all. it's just too much, i can't get from life what i needed to start to live for the first time.

Help me please. I'm not suicidal at all, but i already feel dead somehow.

thank you.
Logged

swolf

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 158
Re: 24 yo, help me please
« Reply #1 on: April 14, 2012, 10:10:56 AM »

I think the most important thing at this time is to get out of your room and get out of the dark. It may seem like both a big step and not much of a step at all, but it will make things better. Where you go or what you do can be anything - I'm starting qigong classes, and it's nice to be around others in a quiet setting, not to mention it is at the same time benefiting my health. The benefit of getting out won't be immediately apparent at first, but the more you do it the more I think these feelings will lift. They won't go away, but they will lift. By staying in your room you are effectively staying inside your mind - by getting out and doing things you are engaging in the world again. A world that might be painful, but you already seem immensely capable of handling that, and out there is where the answers lie, not in your head. If you felt strong before, you can get back to that.

I think you will find increasing your erection strength is one of the easier problems to take care of, but others might be better than me at recommending what you should try at first. As far as the condition as a whole, there are many avenues to treat it and there is no situation that is hopeless. Even with limited funds there are things you can do that will have a big impact on your physical and mental health.
Logged

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6549
  • Age 70. Peyronies from January 2009
Re: 24 yo, help me please
« Reply #2 on: April 14, 2012, 10:40:34 AM »

First I would like to say you get to the forum that have many long time members with experience in this disease and ready to help each other.
It is maybe the only forum of this kind. Myself didn't find an other one.

Regarding your doctors, my private opinion is that they knowledge in Peyronie's is not too much. Most of us facing or faced doctors that damaged more than helped. For example we know that vitamin E have no benefits for Peyronie's. Regarding laser therapy, which kind of laser therapy is talking about?

If you will spend time and read the forum you will find out that people have tried many kind of treatments and I think the most usefull things are:
Pentox - increases the blood flow to the penis and diminishes the pain and reverses or at least stopping the disease progress.
L-Arginine - helping increasing the libido.
VED - forcing blood flow into the penis and maintaining it healthy.
Low dose Viagra or Cialis that helps with night erections that are also important to keep a healthy penis.

erectile dysfunction definitely have a psychological aspect and so as Peyronie's. Your doctor is wrong telling you that is unlikely that your Peyronie's is the cause or a factor in your erectile dysfunction. Can be venal lickage also that can be tested by the doctor. You have tried Viagra for your erectile dysfunction? It helped and helping me.

Regarding the psychological aspects of this disease, is affected and affecting almost all of us. But most of us are not giving up.
You must to get to conclusion that have solutions for your problem and by the end have surgeries options and even implant that will make you to be better than any man regarding your sex capability.
Don't be ashamed because of this disease. You are not the fault you get it. And we have many other young people on the forum that have this disease.

You must to make yourself busy to concentrate less in the subject and you must to begin a treatment that fit you.
Invest in your studies as much as you can even that is difficult. Graduating it will make you more self confident and will help you to find a job and to sustain yourself.

Regarding girls, I am sure you will find the one (or she will find you) that you will feel with here much intimate and relax. You are still very young. I have friends that they didn't get in serious relation ship with a woman before the age of 40 because they say that before they are ready to stuck with the cry of the kids they want to have an exiting life without responsibilities. I am not saying that this is what you should do. I am just saying that you have time, you don't need to hurry.

Regarding friends? Yes, during our life time they are coming and going, for many reasons. You will find others, I am sure about it if you will you will not stay in your room.
Try to be strong as you was before the Peyronie's. I am proposing you to reach for a psychologist. It will help in the subject.

Last I am proposing you to begin treatment as soon as possible to stop and maybe reverse the disease. Don't wait!

Best wishes
James
    
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe erectile dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Thomas

  • PDS Newbie
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 3
Re: 24 yo, help me please
« Reply #3 on: April 14, 2012, 01:21:11 PM »

thank you for your kind support.
The doctor didn't specify which laser therapy. On the prescription he wrote "physical therapy through Iontophoresis and laser".
Where to find L-Arginine?
about Cianis and viagra i found this peyronies-disease-help.com/peyronies-treatment-cialis/
about pentox this peyronies-disease-help.com/tag/pentox/
About VED, i'm skeptical, since i can't see how a physical stress could help the situation... I mean, the scarr it's not something which is likely to stretch, isn't it? so isn't that only stretching everything except from the scar? isn't this going to enworse the situation?
Logged

LWillisjr

  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2800
  • 62 y/o - 10 yrs Peyronies free
    • My Peyronie's Story
Re: 24 yo, help me please
« Reply #4 on: April 14, 2012, 01:46:17 PM »

Thomas,
I just sent you a Private Message.

I know this is mantally devastating to men. But you CAN do something about it.

You asked a question about stretching the scar tissue. That is EXACTLY what you want to try to do. That is why many on the forum have had success using traction devices and VEDs. So you DO want to investigate and think about starting this therapy. And you want to do this while the Peyronies is in the "active" state. You want to minimize the amount of deformity and curvature at this point.

Also, your lack of ability to get an erection could be mostly mental at this point. Your mental attitude has much to do with your ability to achieve and erection. Some men use low doses of Viagra or Cialis to help. And then eventually their mental state becomes more positive, erections are better, and the Viagra/Cialis aren't necessary any longer.

Also, men have been very successful at intercourse with curves up to 40 degrees. It is beyond 40 degrees that intercourse seems to become very difficult. So you should be able to successfully ahve intercourse with a 20-30 degree curve at this point. And few men have an absolutely straight erection anyway. So don't be embarrassed about what you have currently and don't hesitate to date and seek a loving relationship with someone.

Les
Logged
Les - 10 yrs Peyronies Disease free
My History

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6549
  • Age 70. Peyronies from January 2009
Re: 24 yo, help me please
« Reply #5 on: April 14, 2012, 04:01:08 PM »

Thomas

L-Arginine is a food supplement, you can find usually in food supplement stores, you may find also gym places are sailing it. Many body builders using it, up to 5000mg per day. For Peyronie's 1000mg per day will be sufficient.
For more information go to Oral Treatments for Peyronie's Disease>SUPLEMENTS - Arginine & Carnitine « 1 2 3 4 »

Regarding Pentox go to "Oral Treatments for Peyronie's Disease" topics:
PENTOX effect on Peyronie’s « 1 2 »
PENTOX - Supply and prices « 1 2 »
& other PENTOX related topics
In some countries you need a doctor prescription, some not.

You may want to read Xiaflex topics under  the Developmental Drugs & Treatments board.
Your Peyronie's satage will most benefit from this drug. Just keep your penis healthy until Xiaflex will be available, suppose end of 2012.

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe erectile dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Thomas

  • PDS Newbie
  • *
  • Offline Offline
  • Gender: Male
  • Posts: 3
Re: 24 yo, help me please
« Reply #6 on: April 14, 2012, 06:44:30 PM »

thank you Les, thank you James. Tomorrow i'm going to buy the L-Arginine, maybe for the pentox too (since my guess it's not going to have bad side effects). For the VED i don't know what to think... Which one would i use? should i ask to the andrologyst? to the urologyst? Thank you

p.s.
i'm reading the xiaflex topic right now!
Logged

Hawk

  • 22cm Bionic Penis - Dr. Eid 8/7/18
  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 3519
    • Peyronie's Disease
Re: 24 yo, help me please
« Reply #7 on: April 14, 2012, 10:04:57 PM »

Thomas,

So much to say but Swolf made a great start.  I am deeply touched by your post.  Rather than a lot of treatment advice, I want to say that you will be fine. In the words of a remarkable Multiple Sclerosis patient, "life does not have to be perfect to be wonderful".  Like holding a small object close to your face, it can block your view of the whole world.  Sometimes we are so close, and so wrapped up in a problem it seems far bigger than it is.  For starters, you are young.  It is not an exaggeration to say that in your life time they will be able to regrow a severed penis.  Your body is more likely to respond to care and treatment.  Maybe not being able to rely on a super penis for a time will cause you to learn to rely on intimacy and understanding that most women value far more because it is far more rare.  I do not know the twists and turns ( no pun intended) but I know you will get past this as a stronger, better man.

Tonight, I think you make everyone that puts effort into making this forum work, glad for what they do and glad that it is here. Take your time, relax, you are in good hands.  There is a world of information and support here.

Cheers,

Hawk
PS: Do not dismiss traction or the VED.  I have no experience with the cheep traction device but someone posted here about one they bought for only about  $50.00.  Scar tissue is the limiting factor in a stretch, therefore the force is exerted against the scar tissue not the healthy tissue. Stretching scar tissue is a well established concept not only in Peyronies Disease but in burn patients.  Read the highlights of traction and of VED (there are even plans for a good home made VED.)  Also read the highlights of Erectile Dysfunction.  

Logged
Prostatectomy 2004, radiation 2009, currently 68 yrs old - After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

justo

  • Voting Member
  • **
  • Country: de
  • Offline Offline
  • Gender: Male
  • Posts: 46
Re: 24 yo, help me please
« Reply #8 on: April 15, 2012, 09:07:01 PM »

I just want to add that I know what you are feeling. I am feeling the same way BUT....We CAN do something about this. I am older then you....I can say to you....that there is much much muuuuch more to live for then relationships with women. And that women...you will be surpassed what they can handle.
Also...use this time...that you are alone...To work on yourself. I mean deep inside. You can imagine that ALL of us here that are older have dealt with pains. Tragedies, deep sadness....but we are still here.

Its a miracle that any of us are here....healthy or not considering the odds of life. DONT squander it...dont think that ...that is the way it will be....alone with no relationships.....because NOBODY can predict the future! If anyone could....they would change the course of history and so far as long as man has been around....this has not happened this way so try to stay...in the now.... to be proactive and above all....BELIEVE strongly that things will improve!!!
Just had to respond.
J
Logged

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
6 years later
« Reply #9 on: June 22, 2018, 03:27:15 PM »

Hello there, after 6 years i got back here. I opened my thread on april 2012, and since i could not log in back into that account and since i could not answer to that thread, i will simply quote myself so, if you gently will and i hope so, you could follow up my story. You can skip the quote if you want, i will summary that up after it.

Quote deleted after merging the topics

So i had an injury, i got prescribed carnitine, i did not go for laser therapy... what happened afterwards? I went to a psychologist. I stayed in therapy for one year, but almost immediatly after starting it (approximately the very next months i think, i don't remember), the therapist demanded that i had another talk with another urologist. So i went there, and he made a manual exam, and he excluded peyronies. Great right? He even told me that he suxpected my previous andrologist made me think that. He told me that it could be a nerve damage, or something. The bending and the pain was there, but i prefered to go by this hypotesis. I think i made up my on mind about it, i started believeing the lye. Even if i suxpected immediatly that he was trying to reassure me rather than tellling me the thruth, maybe evaluating the damage very little and not worth the worrying... Maybe that urologist really believed it was nothing, but pain\disconfort perdured, at least disconfort\pain while erection laster through the years. My erections decreased in quality through the years i think.

I stopped therapy after one year, i was thinking that my penis had bent, but mostly i was convincind myself it was nothing. In that year we stopped talking the matter at some point. So i illuded myself i had not this problem.

Fast forward, 8 years later. I am 30 now. Till now the penis stayed i think roughly the same angle (20?) but i can not tell since i had never a full erection since then. Most importantly, i had not a relationship in there 8 years. I did not realize how much time passed... How long i stayed basically alone... No wonder that at 30, a couple of months ago, i broke down, and went to a psychiatris.

I actually proposed a different problem, since i think i have add, but i ended up on antidepressants anyway... I'm 25th day on wellbutrin now (bupropion).
So what's the matter?
After a few days, one night, i felt pain. Unsettling pain that made sleeping harder.
My mind still avoided the bad scenario, i thought... oh well, this seams like a prostatitis... I realized that wellbutrin was dehydrating me. I realized it after realizing that i was not peeing enough. At start i even thought about the kidneys. My blood analisis one month earlier showed some serius crap about my liver, appearently i drank and ate wrongly these years and i did some damage to myself. So i thought, ok, i am not peeing, maybe is prostatitis or maybe some kind of inflamation to the uretra. I started to drink more, and apperantly the pain\disconfort did not last.

My libido that went gradually down in the years, apperantly went slightly up with this drug. For a few days recently i touched myself a few times, let's say. Then at last, last time, i could not have a decent erection. I stimulated myself and i got to the end withouth achieving an erection, at that point i ended it.
Not that i beat my little buddy up, at all. i just didn't work. And then....

And then it started all over again. That pain... and i could not get an erection after it. The head rushed to the worse. I remembered how the first few days last time did go... This seams like the same. Pain on the left side. I went to bathroom, the penis seams more irrorated somehow, but still can't get it up. it seams it is going sideway on the left, a little. This is new.

The monster in myself awoke. I tried not to think about the issue for 8 years, but this afternoon has been a well known nightmare.

I went on the internet, i saw that research had made some little progress... I booked an exam with an andro\urologist tomorrow morning.

The disconfort is made much more clear when i'm seated, so this is something that could make me think of a prostatitis... But would that be prefereable? And plus maybe i think more about it when i am alone with it. Maybe it's more psychology than anything else... Maybe is bupropion making inflamations much more felt by the brain (i hear many people lamenting pains after sport, at joints and muscles)....
I can't trust my mind at this stage of the antidepressant, so i did say nothing to the new psychiatrist, nor the new psychologist that he placed me in cure with... I don't plan to tell anyone until i get an answer... hopefully tomorrow morning i will know something more....

But tonight... tonight is the f'^+'ing horror night. it is the night of the living dead, it is the night of the confrontation with a sneaky and forgotten horrible monster.

I won't sleep tonight, i really hope someone here is going to answer me, because i am deadly alone in this and i don't know if i will handle it all over again.
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

swiss

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 447
  • 30yr old with stable Peyronies Disease, 31° to 26° and counting
Re: 8 years later
« Reply #10 on: June 22, 2018, 03:41:21 PM »

My brother. My thoughts are with you. I am 30 as well. I've been through my share of pain with this. We cant let Peyronies Disease rule us. We must redefine our masculinity outside of the penis if at all possible. You will get through this. PM me if you want to chat.
Logged

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 6 years later
« Reply #11 on: June 22, 2018, 03:52:55 PM »

Let's have some laugh on this, I actually named the thread "8 years later" by April 2012 and I counted 8 years... Either I can't make math anymore or my mind is really messed right now... Sad lols.
I corrected it btw but it made me laugh a little maybe the first time today.
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 1932
Re: 6 years later
« Reply #12 on: June 22, 2018, 05:55:03 PM »

Good to laugh during such a difficult time.  Keep us posted what the urologist says and recommends.
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

hope794

  • Solid Contributor
  • ***
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 249
Re: 6 years later
« Reply #13 on: June 22, 2018, 06:02:09 PM »

Thomas, thank you really much for sharing your story. If you want, you can provide further details about your situation. You're not alone
Logged
24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate erectile dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 6 years later
« Reply #14 on: June 23, 2018, 08:46:46 AM »



Thank you Hope.

I went to see the andrologist today. Long story short: he need photos of my situation, which i can't provide since i feel pain and i am not certain if i can have one in the current situation. What he said is, basically, that i have a prostatitis. The prostatitis basically reinflamated my shaft's ulceration, which being in the internal shaft he can't evaluate on hand and at rest. So i have basically a double situation here, and he provided me with anti inflamatory drugs, a lot! Being myself dealing with liver damage, on an antidepressant drug already, i am afraid as F^@% that i might enworse this liver situation aswell.

He provided me with 3 different drugs for the prostatitis, being mobic permixon and cernilen.

To get a furter analysis on my peyronie situation i will need to go through this whole lot of treatment lasting 40 days. So my life is basically hung by a lot of intricated and convoluted crap.

I am really afraid and anxious, and luckily i am just in time for the wellbutrin (antidepressant) to impede me with horrific feelings. I also have an economic kind of struggle, having to deal with a whole lot of payments recently, medical and non medical.

I will need to try to work as much as i can, while hoping that my liver won't fail from this whole situation.

And i can't see the therapyist anymore, in this money issue...

i have nothing to do but have some serious laugh. There's basically nothing else to do for me. Please leave a comment anyone reading this, i really need some motivation here since i am alone as a constipated butthole. Which wellbutrin gave me as a side effect btw, lol.
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

hope794

  • Solid Contributor
  • ***
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 249
Re: 6 years later
« Reply #15 on: June 23, 2018, 08:50:18 AM »

Thomas, as i said, you're not alone. We are all in this sh!^^y situation but the only way to improve is to help each other, to be 'positive' and try to share as much informations as we can; i'm sure that, even if we can't find a "CURE", we can certainly find ways to get better; with 'get better', i mean improve erectile dysfunction, improve our bend, and so on. This would be something good, and i'm sure we can do it if we all cooperate.
Logged
24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate erectile dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 6 years later
« Reply #16 on: June 23, 2018, 08:54:22 AM »


Yes we should and we can.
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6549
  • Age 70. Peyronies from January 2009
Re: 6 years later
« Reply #17 on: July 10, 2018, 02:48:45 AM »

Thomas

Can you tell me what was your previous user name?
I can try to access your previous account

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe erectile dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 6 years later
« Reply #18 on: July 10, 2018, 06:59:46 AM »

Hi James, it was simply Thomas. It had only a couple of messages i think, imho it's not worth the bother to restore it? Thank you anyway!
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6549
  • Age 70. Peyronies from January 2009
Re: 24 yo, help me please
« Reply #19 on: July 14, 2018, 05:12:18 AM »

Hi Thomas

I found your previous topic and merged it with the new topics.
Moved it here as in the introduction board topics are locked after 10 posts.


Hope it helps
James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe erectile dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 24 yo, help me please
« Reply #20 on: July 14, 2018, 05:45:25 AM »

thank you james!
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 24 yo, help me please
« Reply #21 on: July 22, 2018, 01:27:15 PM »

so, these last days have been really hard. Pain is sometimes unbearable, if it weren't for the sleeping pills i have been taking, i would not be able to sleep either. Tonight i will have to do without, since i happened to finish them.

Basically i couldn't make it to the first ESWT schedule, i broke my car. The doctor that should have been the one under whom i had to do it (but appearently i would have been managed by someone else, like some physio on his account) managed me very badly when i went him for the eco color doppler. He didn't send me back a recepit either. My urologist (who btw sent me to this person for the eco) first told me he could lend me a iontophoresis machine, but then he said he couldn't find anyone working with this drug, then he sent me the number of another collegue of him doing both the ionto and the eswt. He won't be back in my city before the 4th of august, so now i am basically alone with nothing to do about this.

He made me buy a VED last time i saw him. one week ago, As i stopped bupropion, pain went down, then i tried a couple of very very careful sessions with the VED and then i started taking bupropion back. Next days pain got worse appearently.

I have to say, frenulum and foresking kind of strangle my penis a little on erection, also the lump is clearly under the glans. The lump is internal and ventral, near the urethra they say, so xiaflex won't ever be an option. It's getting bigger, now i cant touch the upper left part of the glans, as i immediatrly trigger pain.

All these reasons make me think i will never be able to do stretch. Plus VED kind of only make blood flow to the glans, without affecting the scar. They told me to use it on a erection or quasi erection. I have not tried, i don't know what to do.

Hourglass on soft is now plateal.


I don't f'^+'ing know what to think nor what to do. I have read that ESWT and iontophoresis kind of stress the penis, and as for now if i touch the part, i make it worse. Today i noticed that the bend, even if still not very pronounced (if you read me before, it kind of compensated recently), is getting more noticeable in a more-close-than-before stage to the erection.

I have regular erections every morning, i kind of think that every erection is kind of tearing the tissue and keeping alive the inflamation.

Inflamation is terrible, i kind of feel like a tearing pain all the time.

don't know what to think, can't think clearly right now. I don't know what to do... should i try to schedule eswt and ionto tomorrow? Should i try to speak to someone else alltogether?

Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

hope794

  • Solid Contributor
  • ***
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 249
Re: 24 yo, help me please
« Reply #22 on: July 22, 2018, 02:23:03 PM »

Hello Thomas,
i'm really sad to hear that you're passing through bad days. I already told you in Private Messaged the doctor who was good for me.. He's in Rome. He does iontophoresis with verapamil, and it's good in inflammatory phase. You can ask him to give you pentox + peironimev plus. Since you're in inflammatory phase, avoid any erection if possible, any sex and VED. I don't really think this would be good for you to cause more inflammation there.

The only thing i can do for you is that i strongly recommend you to go to the doctor i suggested; he's good, honest prices and stopped my inflammations. He will not do miracles, no one can, but he did good with me.
Furthermore, i don't really agree with ESWT while in inflammatory phase. But, of course, you have to follow your doctor's instruction.

I wish you the best, bro.
Logged
24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate erectile dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 1932
Re: 24 yo, help me please
« Reply #23 on: July 22, 2018, 07:48:17 PM »

I just flinch everyone I hear “follow your doctors advice”...maybe if you trust them.  Unfortunately, there are doctors out there who are uninformed regarding Perrone’s treatment, doctors who will give bad treatment to make extra money, and doctors who will give treatment that although not hurtful may not be helpful for to just make money.
Unfortunately, for this disease we all have to become very educated ourselves and then work with a doctor as knowledgeable as we can find. In the  acute early stage, it seems many guys have found pentox Helps decrease or alleviate the pain. Also, for some diclofenac sodium Gel is helpful for the pain. Several medical studies have also shown traction to be helpful in the early phases if you can tolerate the pain you are currently experiencing.  Same for VED.
Daily low dose cialis also helpful to break down the plaque.
One study has shown H-100 helpful in the acute phase, available in US but expensive.
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Thomas2

  • Voting Member
  • **
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 70
Re: 24 yo, help me please
« Reply #24 on: July 30, 2018, 10:45:20 PM »

Dear everybody, I want to give an update on my situation.

The days of my previous post has been a living nightmare. As soon as I updated you I had already stopped bupropion a few days before, I also did fresh water (simply on the bidet, for around a minute each time) a couple to three times a day for two or three days. I stopped diclofenac and applied it three times a day.

As today, pain has almost completely stopped. I have been taking peronimev each day also.

A few days ago hourglassing and bent were worse, I am pretty Shure. If the situation regressed with the improvement of inflammation I don't know.
I consider likely that the bending on those days were a "preview" of what will come in the future months, but o can't be Shure. I measured my rare erections and I am Shure that I have lost almost 2cm since Peyronie start 6 years ago, I think the most very recently. Downwards bending came back, but it is still in the 30 degrees I thin
I have to say, something stopped again to reach and start eswt or ionto . Still since this cold+didlofenac pain decreased exponentially on only four days. Now i can barely feel a discomfort in bed at night, when the lack of any other stimulation made it me more clear and unbearable.

It might be the effect of bupropion leaving system, it might be the normal disease course, or most probably it is that I stopped the inflammatuin with those few fresh water sessions and constant diclofenac application. Diclofenac each day without water, kept steadily in making it better day by day. As for now, I can't not give huge credits to this in the drastic improvement of pain.

I today have started bupropiom again, so I will know, that if I don't change habits and pain comes back, it is related. How I don't know. While taking bupropion and increasing libido, no fap regime  will be very hard to mantain. But I have to keep it for comprehension sake of my situation.

What I think is that phisical stimulation with hand is directly affecting the scar, and that anti-inflammatory diclofenac+cold made a huge difference.

If situation will be stable, will confirm my hipotesis that are very logic I think.
I also say that I only did fresh but not cold water and I did it only for a few times to quickly help to stop inflammation, but even if it ahirely is unreasonable, something tell me that making the penis shrink while on Peyronie is not a good idea since the new tissue should grow in a way that don't impede with extension... A small session of fresh but not really cold water helped in this and did not bring my penis to a very noticeable Shrinking (even if it small die every Timex each time).

This is basically my situation: I am dealing with inflammation with strategies that seem to work. I still plan on starting ved, Cialis and eswt ad soon that the situation is stable on nopain mode. Mood has improved, seeing the pain diminishing so fast in the time of a few days brought my hopes high even if erectile dysfunction slightly got worse, penis got slightly shorter, bent came back... I am confident because I know that if I can deal with pain, I can start ved and other therapies without doubting that they do more harm than good, and live in the doubts and regrets.

I send all of you a huge hug, and I want to give testament that apart from the horrible now we time to time fall for, time it not heals definitely Changes everything. As we change we might always adapt. I really wish to send you back the good emetions that I won in this battle through your help in the time of need.

See you soon,
Thomas, your brother.
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 1932
Re: 24 yo, help me please
« Reply #25 on: July 30, 2018, 11:28:49 PM »

I think the diclofenac gel is reducing the pain.  I’m sure you’ll be fine starting back on the bupropion. Good luck and keep up the proactive treatment!
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte
Pages: [1]   Go Up