IMPROVEMENT & SETBACK

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Worried Guy

I have been treated for peyronies by both private and NHS doctors.  The treatment I received under the NHS was far better.  When I visited my local private hospital I was told that I should take Vit E and wait 12 months.  I was told that my plaques would not get smaller and that if I needed an operation my penis would be small and look horrible.  Those were his exact words and he basically sent me into a state of depression where I did not feel like eating and had trouble sleeping because of worry.  I travelled down to London to an NHS hospital where I was told the facts, put on Pentox and explained how to use a VED device.  He told me about the operations they do and how many they carry out each year.  He also told me that you can get an implant on the NHS!!  Not that I need one.  My plaques have shrunk and I am fairly straight but have a large dent which I'm hoping will still decrease.  I would rather a dent than a severe curvature and I consider myself lucky at the moment. I believe you can receive good and bad treatment from both private and NHS hospitals.  You just have to do your research and pick your doctors wisely.  I would not change the British system for any other.  It is not perfect but has provided successful cancer treatment, heart bypasses and many more procedures for family members.  Peyronies is a diffcult thing to treat and knowledge is lacking so don't be surprised if the treatment does not match your expectations.

I took pentox for 7 months and undertook a VED routine everyday for 5 months.  I'm planning on starting VED again but am in a little pain at the moment.  I have 2 plaques.  One is causing a dent on the right and the other is causing a slight curvature to the left.  The curvature is worse whilst flaccid and fairly straight whilst erect.  It was 20 degrees at its worst and now about 5 which I consider normal.

I've now got a bit of a problem.  I went to my urologist about a week and a half a go.  I've not had pain now for 6 months but before this I was in terrible pain whilst flaccid.  After he examined my plaque, which has shrunk, I walked out of his office and felt a little uncomfortable.  I went and examined it myself which made it feel a little worse.  The next day I started to panic with stress from work and the whole peyronies thing.  Each time I went to the toilet I found myself examining it without even really thinking.  Probing around to see if I could feel for something.  I did this for 2 days and then realised I should stop.  Since then I've had a very uncomfortable sensation bordering on pain.  I just hope I've not done more damage probing about.  I'm so paranoid now that in a month another plaque will appear and it will all be my stupid fault.  I've not really enjoyed the holidays because of this uncomfortable feeling and worry at the back of my mind.  I've had to stop using the VED because of this.  I was so close to being on the mend.  My uro said my next 6 month appointment would be my last.  f**K this S**T.

Post edited by the Administrator to combine 2 posts and moved from the Accounts of Improvement Board where it was posted as a replay.  Accounts of improvements is a board for men to post accounts or a log of significant improvement.  It is NOT a discussion board.

Hawk

I wanted to address worried guys post and also why I moved it from the accounts of improvement board.  

It is my understanding that two things are typical in the natural progression of Peyronies Disease.  One is the decrease of pain.  The second is plaque reducing in size as they mature.  Not much can be read into either of these since both are typical even without treatment. There is also a third thing which this forum has seemed to establish concerning the typical progression of Peyronies Disease.  That is that Peyronies Disease often subsides and flares up repeatedly at least as often as it runs the course of going from the acute stage to a "stable" stage. This often quoted 2 stage scenario for Peyronies Disease seems to be a bit of over simplification of the condition.  

Since Worried Guys post dealt with these issues and not significant improvement of deformity or erection (the 2 real functional problems of Peyronies Disease) I moved the post here.  An even bigger reason for moving the post is that it was posted as a reply and part of a discussion.  That board is one of our 3 NON-discussion boards.  

If in fact Worried Guy or anyone else thinks their deformity (bend, dent, size, ect) or there erectile functioning has improved an amount that they consider significant, I encourage you to post on the improvement board where we will have a record of that improvement and the treatment you think resulted in the improvement.

Thanks

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

onlyone

Hello again, I posted some while back saying I had peyronies, about 30 degrees to the left,  and after about a year there was some improvement. Well the bend has decreased even more to only a few degrees. For those sufferers , I can offer the fact that it sometimes does get better. However I now have fibrosis throughout the organ. with pain if it  is nearly up and  progressively  a lot more pain as it goes fully stiff.  Ouch.  Lost several inches, but that isn't a big issue as I don't have to perform and it eventually just goes flop for the pain anyway.   I read on the forum that,  'ahem', er,  exercising the thing helps a lot, (but they don't offer that on the NHS) , so I had to do-it-myself, -purely in the course of medical research of course. but he fibers don't let it stretch properly, but it is straighter than it was. The psychological effect of it looking better has been very big. (experts please note).   The health service seems to have a lot of people working there and attending to things like  peyronies but offer little in the way of solutions.  I  would like to say  that er.. exercise , with some pain killers to hand, my have helped things straighten out or straighten things out if you see what I mean.. I am saying that perhaps there is nothing to loose in trying.  Regards to everyone.

justo

Hi folks ...well....i think i made a terrible mistake. I rode my mountain bike 2 days in a row for exercise....My condition right away got worse! Numbness...scare became bigger. Ahhhhhhhhh wow. What a major dissapointment.

I am a little better now after a few days of this incident but....my scar feels bigger. Totally depressing. I am in My 3rd month of being diagnosed.  

BrooksBro

For the past year, I have been riding a road bike 3 times/week: Two short rides (10-15 miles), and one long ride (20-40 miles).  My longest was a 50-miler last October.  I had some groin numbness until I put on a "split" saddle, which is one with about a 1/2 inch wide gap in the middle.  That takes a lot of pressure off the arteries, veins, and nerves.  I nearly always wear padded bicycle shorts.  Bicycle riding - even on the road where I sit most of the time - has not seemed to effect my peyronies.  

james1947

Worried Guy

Do you mind to give us an update? Your post from almost 6 months ago give me big hope.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum