ED - Erectile Dysfunction (Started August 2005)

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BrooksBro

The medical diagosis is hypogonadism.

Three years ago, I was obese (body fat >30%), had high blood pressure and high cholesterol.  Through diet and exercise, I now have normal blood pressure (120/70) without medication, outstanding cholesterol values, weight of 168 (lost 60 lbs), and body fat of 17%.  I am on a low dose oral med for hypothyroidism, started about two years before the hypogonadism was diagnosed.  Unfortunately, the exercise led to "adult onset athleticism" for which there is no cure, only treatment, which is to keep on running.  

HAWK: I saw similar results to you with the gel, a decline in erection frequency and strength after the first few weeks, both at 50 mg and 100 mg doses, even though my measured testosterone went way up.  I just want to feel "normal."  Right now, mentally and physically, I feel better than I can ever remember when on the gel.  The weekly shots are a lot less nuisance than the daily gel applications.  

Quote from: skunkworks on March 21, 2011, 02:55:01 AM
What is the cause of your low testosterone levels in the first place?

What is your general health and weight like?

Ammyidm

Yes, Sildenafil Citrate does works well. It is even available in the forms of oral chews, gel and particular Sildenafil Citrate Pink 100MG (For Females). You can get sildenafil pills from XXXXXXXXXXXX. This medication relaxes muscles in the penis and increases blood flow in it. Achieve longer.

Tim468

52, Peyronies Disease for 30 years, upward curve and some new lesions.

snowydreams

Is  the erectile dysfunction associated with Peyronie's worse than "regular" ED, especially considering that Peyronie's tends to be a progressive disease?

LWillisjr

Quote from: snowydreams on July 11, 2011, 05:35:40 PM
Is  the erectile dysfunction associated with Peyronie's worse than "regular" ED, especially considering that Peyronie's tends to be a progressive disease?

Interesting question.
It almost requires some dialog on a definition of ED, as strange as that may seem. I've spoken to some men who think ED means the total inability to achieve an erection. In fact ED refers to ANYTHING that is less then a 100% firm erection. So this means that men can actually have some symptoms of ED, but refuse to acknowledge this as they think as long as they can get it up pretty well that this is still OK.

Some guys get ED from Peyronies, some don't. So I think ED by any means is ED. And it isn't any better or worse if caused by Peyronies, prostate cancer, or anything else. ED is ED and you need to treat it as such.

Just my .02
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Old Man

Les:

I totally agree with your position on ED. It is what it is and makes no matter what caused it. It can be a medical problem or a mechanical problem caused by an injury.

Diabetes is one of the worst problems that causes ED. Venour leakage comes in my books as second place and so on down the line of problems associated with causes of ED.

Just my 2 cents also.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

fubar

Snowy

I developed Ed prior to Peyronie's from medication.Then after it does seem to be worse.Cialis seems to mask the problem.Therapy ie ved and traction do seem to help the situation.

Probably changing diet and exercising will help the condition.Looking at your medications may be in order.Me I'm stuck with the medications because of health issuses.You would not know it by looking at me because I am fit.

I have to say the beginning with Ed was the worst and then came the monster.You have to do what ever you can to maintain an erection.I know it is not fun especially with Peyronie's. This whole thing takes work and feels like a second job.

Hang in there: fubar

Noway

Im on cialis once a day and pentox too..... I took viagra and levitra and cialis works better then both of them by far.

john100

My ed began about 3 years ago. I was smoking mini cigars and inhaling them(i think this is what caused my ed). After a few months I felt some sharp pains in my penis, some days (not all the time). Then after a few weeks It looked like my penis twisted a little bit. Then about 1 month later I could not keep an erection. I can get an erection easily, but I cannot keep it up. I am looking for a solution but do not want to take viagra or any of the relating pills. Do you know why I have this problem? Please do not say stress or anything, im not stressed, I have money and I work from home in a lucrative field. This may be venous leak or something. I need help this is really hurting me.

Im in my mid 20s
had ed for 3 years now

Should I c someone who specializes in endocrinology? Hormone treatment? I am so sick and tired of urologist, I was going to c a "big time" uro in san diego and they said that they charge $500 for a consultation(not covered by insurance) and I had to put my card on file in case I cancel, they will charge me $75! Is this a business? I cannot believe this, I am so FED UP!


sgtnick

John  -  Man, I was stationed in Camp Pendleton and I know about all the glamour in CA.  I suggest that you fly to Chicago or Nashville and see A Urologist that specializes in ED and/or Peyronies Disease, as well as Sexual Functional Diseases.

I'm not sure the mini cigars caused the problem.  I have been reading about Peyronies Disease for four years and and you are the first one that I have come across with a cigar problem.  Sounds like you could be in the early stages of Peyronies Disease, if so, you need to see a "good" doctor ASAP.  If you do not treat this disease, a slight twist will most likely be a minor problem.  I had a slight bend to begin with and by the time I was implanted, when I looked down at my dick it was in the shape of a 7.  Vaginas don't accommodate that kind of nonsense :o  My German Shepherd, Rocky, was making out  better with his mate, Reba,  than I was with my wife of 23 years.

This Forum has enough, solid, factual, and reliable information to keep you reading for a long time. Read everyday and read every thread posted.  Somehow, some way, find a Doctor who will prescribe Pentoxifylline (Trental, Pentox) immediately.  You could also begin taking OTC L-Arginine and Ubiquinol. I don't know  a doctor in CA, however, someone  will give you the name of someone out there.  There are some Peyronies Disease pros that are members of this forum and they can help you.  You are not in this by yourself and you will not go unnoticed!

Whatever you do, DON'T DO NOTHING,  Move out!

Semper Fi  

SSmithe

john100
Hey I saw that 'big time' Uro in San Diego.  His practice is part of the testing for Ziaflex, but I wouldn't recommend him for Peyronies.  He just told me mine was stable, and said there was nothing I could do.  Not worth the $ really.

You mentioned you work from home.  If you sit behind a computer all day, perhaps look into sitting as a possible cause of your problem.  I noticed I have worse ED when I have been sitting at a desk for days than when I am out walking around and out of the office...  Just a thought.  
SSMithe
32 years old.  Peyronies since 22. Stabilized peyronies plaque.  ED.  Trying to stay positive.

snowydreams

QuoteInteresting question.
It almost requires some dialog on a definition of ED, as strange as that may seem. I've spoken to some men who think ED means the total inability to achieve an erection. In fact ED refers to ANYTHING that is less then a 100% firm erection. So this means that men can actually have some symptoms of ED, but refuse to acknowledge this as they think as long as they can get it up pretty well that this is still OK.

Some guys get ED from Peyronies, some don't. So I think ED by any means is ED. And it isn't any better or worse if caused by Peyronies, prostate cancer, or anything else. ED is ED and you need to treat it as such.

Just my .02

But isn't the ED associated with Peyronie's worse because Peyronie's tends to be a degenerative condition and there is sometimes, irreversible structural changes in the penis which can affect rigidity and strength of erection, while ED for example, which is caused by vascular insufficiency without Peyronie's, is much more likely to be stable and respond to PDE5 meds, and some of the members have mentioned that even PDE5's aren't as effective as they should be.

LWillisjr

Quote from: snowydreams on July 17, 2011, 03:23:40 PM
But isn't the ED associated with Peyronie's worse because Peyronie's tends to be a degenerative condition and there is sometimes, irreversible structural changes in the penis which can affect rigidity and strength of erection, while ED for example, which is caused by vascular insufficiency without Peyronie's, is much more likely to be stable and respond to PDE5 meds, and some of the members have mentioned that even PDE5's aren't as effective as they should be.

No, I disagree. ED is not directly associated with Peyronies. I've stated many times that men can start to develop ED due to other reasons. And this "weakened" erection makes one more prone to trauma, which can trigger Peyronies. Also, the scaring or plaque caused by Peyronies Disease forms on the Tunica. And the blood vessels for an erection come directly from the pelvis into the corpora chambers. I've read where some on the forum believe that plaque on the Tunica "blocks" blood flow for an erection. And this just isn't the case.

I think any ED associated with Peyronies is just as likely to respond to PDE5 inhibitors. It is the ED caused by other mechanisms that is much more difficult to treat. e.g. penile fracture, venous leakage, prostate cancer, etc.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Old Man

Note to all:

Adding to les' post below with regard to ED and the tunica. Plaque forms inside the tunica "shell" as well as on the outside. When it forms the effect is like this example: Take a fairly large balloon and before it is blown up, place a piece of tape on one side of the main portion. Blow it up by whatever means, gas from a cylinder or by mouth and when it is inflated, the tape keeps that portion from expanding at same rate along with the other portions. Thus the balloon draws a different shape due to the restriction of the tape.

This same effect is caused in or on ones penis/tunica due to the restriction caused by the plaque or scar tissue. This condition may or may not effect ones libido based on their ability to deal with adverse conditions of how their penis looks and sexual sexual prowess. However, the main cause of ED effected by Peyronies Disease is due to the anxiety or depression caused by the malfunction of ones penis structure. The looks of it being bent, hourglass effect and other defects brought on by Peyronies Disease greatly affects ones feeling about the condition. This is one of the main causes of ED in men with Peyronies Disease rather than other causes.

Many medical conditions can and will cause temporary as well as chronic ED. Some of these are diabetes, venous leakage, heart medications, respiratory disease medications and others.

So, bottom line, ED has to be investigated to determine the actual cause and apply any corrective measures that are indicated based on the findings, etc.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

snowydreams

QuoteNo, I disagree. ED is not directly associated with Peyronies. I've stated many times that men can start to develop ED due to other reasons. And this "weakened" erection makes one more prone to trauma, which can trigger Peyronies. Also, the scaring or plaque caused by Peyronies Disease forms on the Tunica. And the blood vessels for an erection come directly from the pelvis into the corpora chambers. I've read where some on the forum believe that plaque on the Tunica "blocks" blood flow for an erection. And this just isn't the case.

I think any ED associated with Peyronies is just as likely to respond to PDE5 inhibitors. It is the ED caused by other mechanisms that is much more difficult to treat. e.g. penile fracture, venous leakage, prostate cancer, etc.

In Dr. Lue's and other doctors overview of Peyronie's, they mentioned several vascular causes of ED associated with Peyronie's related to the structural changes and defects.  This in addition that Peyronie's in alot of men, isn't a stable condition. The conditions other than venous leakage, which I see no reason why it won't generally respond to PDE5's, such as penile fracture which has some similarity to Peyronies Disease or the ED associated with prostrate cancer which has a neurological basis. I presume most men would rather have venous leakage than Peyronies Disease which is much worse and unstable.

QuoteNote to all:

Adding to les' post below with regard to ED and the tunica. Plaque forms inside the tunica "shell" as well as on the outside. When it forms the effect is like this example: Take a fairly large balloon and before it is blown up, place a piece of tape on one side of the main portion. Blow it up by whatever means, gas from a cylinder or by mouth and when it is inflated, the tape keeps that portion from expanding at same rate along with the other portions. Thus the balloon draws a different shape due to the restriction of the tape.

This same effect is caused in or on ones penis/tunica due to the restriction caused by the plaque or scar tissue. This condition may or may not effect ones libido based on their ability to deal with adverse conditions of how their penis looks and sexual sexual prowess. However, the main cause of ED effected by Peyronies Disease is due to the anxiety or depression caused by the malfunction of ones penis structure. The looks of it being bent, hourglass effect and other defects brought on by Peyronies Disease greatly affects ones feeling about the condition. This is one of the main causes of ED in men with Peyronies Disease rather than other causes.

Many medical conditions can and will cause temporary as well as chronic ED. Some of these are diabetes, venous leakage, heart medications, respiratory disease medications and others.

So, bottom line, ED has to be investigated to determine the actual cause and apply any corrective measures that are indicated based on the findings, etc.

The psychological role in ED with Peyronie's is relevant, but Dr. Lue mentioned several vascular causes of ED related to Peyronie's in his overview, and he mentions the physiological causes of ED before the psychological causes.

swolf

I'm not sure if this is the best place to stick this post, but: I think a lot of my current problems revolve around low to moderate ED, so I have been trying to treat that. I have started a few things, L-Arginine and Pycnogenol seem to be helping. I added Horny Goat Weed and that seems to really help too (not sure if it is specifically the HGW... I have been taking some L-Arginine for a short while but added in the Pycnogenol at the same time as the HGW... whether it's 1,2, or all of them, things are pretty good at the moment).

My question is whether Horny Goat Weed remains effective when taken over a period of time, or does the effect drop off? Is it something that you should/can take continually, or is it more of a take-as-needed kind of thing? I think I read George999 say the effects are cumulative (in the Highlights of Oral Treatments sticky) but haven't found much else about that. Does anyone take it indefinitely? Apologies if this has been answered, it's just hard to find the answer.

I have the 500 mg (with 300 mg Maca) capsules from Puritan's Pride and was planning on taking two a day but the directions on the bottle say take two twice a day, so that is what I have been doing the past few days. I may drop the dosage down to two a day to make my supply last a little longer.

EDIT: After searching on this forum I starting searching elsewhere on the net and haven't found satisfactory info yet. I have found a few places that cautioned against using the herb alone without others to balance the side effects (these comments were mostly from a Chinese medical standpoint and mentioned irritability, the body heating up, etc - not sure what other herbs in particular can be that balance) and against using it long-term. I'm liking the benefits at the moment but will probably drop my dosage down and find out more about taking it long-term.

Skjaldborg

Swolf,

I am a skeptic when it comes to Chinese medicine and certain herbs/supplements can interact with other medications. If you are having ED problems, I suggest getting a prescription for low-dose cialis. In addition to helping ED, drugs in the viagra and cialis family help stop TGF-Beta, a chemical involved with creating scar tissue and inflammation. Best of luck.

-Skjaldborg

swolf

Quote from: Skjaldborg on April 02, 2012, 10:43:01 PM
I am a skeptic when it comes to Chinese medicine

I'm not a skeptic at all, but I'm also refraining from referring to it too much because I realize others are.

Quote from: Skjaldborg on April 02, 2012, 10:43:01 PMIf you are having ED problems, I suggest getting a prescription for low-dose cialis.

I've been put off by the cost, being fairly cash-strapped at the moment, but I will look into it. For the time being I have a supply of HGW/Maca and will see how that goes, but I have a feeling it's not something you can take for a super long time. I'm definitely not going to keep up the dosage recommended on the bottle at least.

james1947

I will jump in because I am living now in the Far East, the source of allmost all those herbal remedies (Maca is from Peru, not from here).
I am coming across those male (and women) sex drive, penis enlargement and who know what else herbal enhancement products almost every day.
I will give a small example:
The Pasak Bumi is sold word wide as a "proved male sex drive enhancer and penis enlargement" products. You supposed to consume them for a long period to be effective (and spend $$$ on them).
I try to find a source to buy it here. I didn't find. Maybe the product is just for reach western man that have a "lot of money"? I don't know.

From my own experience, there are herbal remedies that does work on me and others I know. For example a Chinese tea that eliminated completely my migraines that I was suffering from the age of 12 (I am 64) or other Chinese herbs that dissolved my kidney and bladder stones (tested with ultrasound before and after).

But again, I used them after I had testimonies of people I know personally and not testimonies from a marketing site.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Davea

My ED started before I knew I had Peyronie's - or at least before I KNEW it was Peyronie's. I discovered 2 lumps one morning and that night I couldn't get a proper erection. It took me a couple of weeks research before I realised that it was possibly Peyronie's that I had. What confused me was that I had no bending at all (that didn't appear until almost a year later. This was 3 years ago BTW.  I've never had any pain.

What suprises me is that I get a firmer night erection than any other time. I realise that there is a phsycological component to Peyronie's and sex in general but this seems odd to me.

Any ideas anyone?

Noway

So an update im on Cialis and pentox still which its up in the air I still have ed but Cialis is far better than Viagra and Levitra and I like the convience of the 5mg once a day instead of taking it and waiting. I will be seeing the doctor around a month from now which I will probably be starting some verapamil injections.

Hawk

If you still have ED how is Cialis better?

I could not take the stuff.  It felt like a mule kicked me in the kidneys the day after a large dose.  I much prefer Levitra because fat and food in general does not interfere with absorption.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Noway

I still had ed with Viagra and with Cialis my erections are better and firmer. Also I take the 5 mg once a day which I like better than taking something before sex its ready when you are with Cialis. I haven't had any side effects with Cialis except my nose gets stuffy which it isn't a big deal.

shrunken_dick

29 year old. I was taking 400 Mg spironolactone to treat hair loss. Xanax withdrawal in combination with spironolactone shrunk my penis from 6" to 4".
I am seeking information about the sliding technique.