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Author Topic: Erectile Dysfunction  (Read 86509 times)
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snowydreams
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« Reply #627 on: March 08, 2010, 03:16:37 PM »

Does DHEA help Peyronie's and the erectile dysfunction associated with it and is it safe to take as I have read that it has serious side effects?
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jpl
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« Reply #626 on: March 04, 2010, 10:33:10 AM »

6 weeks ago I had excision and grafting surgery.
Since then.
Things are getting better.
All bruising is gone.
Most all soreness is gone.
Still some minor soreness at graft area.
And slight soreness at circumcise area.
Erections are regular.
But not ridgit and fully firm.

My question is, for those who have had this surgery.
Did anyone experience the same situation?
Just wondering, if that's the norm?

I am overall happy with the results of this surgery.
And, was informed that it would take awhile, for a full recovery.
Maybe I'm being a little anxious.
But, I can't help but wonder.
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JPL
Tim468
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« Reply #625 on: March 02, 2010, 06:38:19 AM »

Very interesting link - and very useful information! Thanks!

Tim
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52, Peyronies Disease for 30 years, upward curve and some new lesions.
BrooksBro
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« Reply #624 on: February 28, 2010, 07:03:41 AM »

My initial excitement with improved testosterone level (Testim topical gel) lasted less than a week.  At my 30-day follow up this week, my urologist ordered blood work looking specifically at my estrogen levels. 

This article was an eye opener for me (emphasis added).  I do not yet know if this is my situation, but increasing my testosterone level may have resulted in increased estrogen, negating the desired effects on erections from raising my testosterone level.  Most of the aromatase inhibitors are banned materials in Olympic athletes, so I guess that dream is gone, if the doc prescribes such for me.  LOL 

While awaiting my test results, I am considering grape seed extract drops (resveratrol), a potent botanical aromatase inhibitor with a lot fewer calories than red wine, and much lower cost than the Rx meds. 

http://www.sandiegosexualmedicine.com/index.php?page=male/sexual-medicine-treatments/aromatase-inhibitor-therapy

Aromatase Inhibitor Therapy for Erectile Dysfunction

Aromatase inhibitor therapy may be helpful for some men with erectile dysfunction (ED). Aromatase is an enzyme, especially found in the liver, ovary and adipose tissue, required for the conversion of androgens to estrogens. Specifically, aromatase is responsible for the conversion of the androgens androstenedione and testosterone into the estrogens estrone (E1) and estradiol (E2), respectively. In women, the great majority of testosterone is converted to estradiol and estrone, whereas in men, most of the testosterone stays as testosterone, and only a small percentage is converted to estradiol and estrone.

Aromatase inhibitors prevent the action of the enzyme aromatase. Thus, in the presence of an aromatase inhibitor, the body produces less estradiol (E2) and estrone (E1) and maintains a higher level of testosterone. Aromatase inhibitors have been traditionally used as second-line therapy (after tamoxifen) for the treatment of breast cancer, tumors that usually depend on estrogen for growth.

In men, the effect of 2.5 mg of the aromatase inhibior letrozole suppressed plasma estradiol to concentrations less than 50% of pretreatment values after 2 days, with recovery to approximately pretreatment values after 6 days. These decreases were accompanied by increased gonadotrophin (luteininzing hormone - LH and follicle stimulating hormone - FSH) concentrations, with resultant increases of approximately 50% in plasma testosterone.

In men, aromatase activity appears to increase with age. This is particularly so in men with a high body mass index. Increased aromatase activity in men results in conversion of testosterone into higher levels of estradiol. This is especially a problem if men are taking exogenous testosterone (intramuscular testosterone enanthate or cypionate, or topical 1% testosterone as a hydroalcolic gel) for treatment of hypogonadism. Under such conditions, raising the testosterone in a man with a high aromatase level will elevate the serum estradiol. It is controversial but several investigators believe that elevated estradiol values in men are responsible, in part, for causing persistence of many of the symptoms of "androgen insufficiency", despite receiving testosterone treatment. Some investigators also believe that higher estradiol values are associated with prostate enlargement and there is increasing discussion of the role of estrogen in abnormal prostate tissue growth. High levels of estrogen are also thought to result in male hair loss.

Thus there appears to be a role ("off-label" as it concerns FDA government indications) in the use of aromatase inhibitors in some men with sexual dysfunction and elevated estradiol values.
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cowboyfood
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« Reply #623 on: February 16, 2010, 11:17:59 AM »

are you an affiliate of the pharmacy?
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VED, Pentox(1200mg), Viagra(25mg every other night), L-Arginine(3g), ALC(2g), D3
mischelstraus
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« Reply #622 on: February 16, 2010, 02:37:49 AM »

Erectile dysfunction, sometimes called "impotence," is the repeated inability to get or keep an erection firm enough for sexual intercourse.
Generic Cialis is an ED treatment which contains the same active ingredient as Cialis brand. Generic Cialis is a very popular ed treatment, used to assist men achieve an erection. Erectile dysfunction, is a medical condition that interrupts achieving an erection or having sex. With Cialis, or generic Cialis, men can enjoy a healthy sex life.


Hyperlink removed by moderator as per forum rules.
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jackp
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« Reply #621 on: January 30, 2010, 02:10:10 PM »

Noway

The VED board has lots of information on using the VED (penis pump). Those of us that use that will be glad to assist you. Old Man is the best on this subject.

Jackp
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chiguy
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« Reply #620 on: January 30, 2010, 11:42:56 AM »

Did you ever have a penile doppler ultrasound? That's really the only way to determine scarring and/or venous leakage.
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Noway
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« Reply #619 on: January 29, 2010, 11:20:26 PM »

So i went to see this new urologist in town and he seems to better than my past ones and he sais he doesnt feel any scarring on my penis that my penis has a problem of trapping the blood and getting erections so hes letting me try penile pump which im kinda sketchy on.
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Noway
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« Reply #618 on: December 13, 2009, 02:54:10 AM »

I'm not sure of the mechanics, but for an indentation, they usually do a grafting. If there is no plaque, I'm not really sure how it works. Some of the forum members have had plication surgery for the same problem. They can explain it most likely.

  Yeah but is there anything besides surgery that would help?
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chiguy
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« Reply #617 on: December 12, 2009, 05:05:14 PM »

I'm not sure of the mechanics, but for an indentation, they usually do a grafting. If there is no plaque, I'm not really sure how it works. Some of the forum members have had plication surgery for the same problem. They can explain it most likely.
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Noway
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« Reply #616 on: December 12, 2009, 03:19:33 PM »

If your penis curves to the left like the bottom theres an indent how can you straighten out the shorter side to equal the longer side?
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jackp
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« Reply #615 on: December 11, 2009, 01:45:44 PM »

Noway

At your age the 5mg daily Cialis should help. Your urologist should have a coupon for a free months trial if not go to www.cialis.com and download the coupon.

As for the veins I do not have any clue, talk to your doctor.

Jackp
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Noway
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« Reply #614 on: December 11, 2009, 11:05:40 AM »

Noway

What kinds of meds are you on? Medication for high blood pressure, heart problems, antidepressants and others can case your problem.

It could also be from back surgery or back problems with the nerves.

If the problem is with the nerves in the glans sometimes daily 5mg of Cialis will help. Blood thinners also help but you do not want to go there unless you have a heart condition that requires blood thinner.

Jackp

 Im 23 years old im not on any medication right now. I do get a sore back sometimes but Its because of the kind of work I do. Im in really good shape but my erections are just not good its very depressing. I could ask to try cialis when I go see the next urologist that sais my problem is all in my head. Is there a way to straighten out the shorter side of my penis to deminish plague? I also have 2 hard veins on my penis im wondering what that could be...
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jackp
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« Reply #613 on: December 11, 2009, 08:02:01 AM »

Noway

What kinds of meds are you on? Medication for high blood pressure, heart problems, antidepressants and others can case your problem.

It could also be from back surgery or back problems with the nerves.

If the problem is with the nerves in the glans sometimes daily 5mg of Cialis will help. Blood thinners also help but you do not want to go there unless you have a heart condition that requires blood thinner.

Jackp
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Noway
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« Reply #612 on: December 11, 2009, 01:01:14 AM »

Well I still have the same problems but no lesions. My problems are as follows lump on the left side of my penis, indentation on my urethra, when I masterbated I lose my erection lenth, bend downwards and looking down at my erection sorta looks like a S curve. Im not sure what to do now Ive went back to my family doctor hes sending me to another urologist but it seems like they dont know much and cant really help me what should I do?

A lump may be a Peyronie's lesion. Pain, indentation and penile shortening may be signs of Peyronie's Disease. Go see a urologist or a male sexual health specialist physician. Ask them about starting pentoxifylline. If you are having erectile problems, ask about trying medications for ED.

One thing you can do for yourself is to read up on the information found in the forums. The "Highlights" areas are good places to start. Those areas may have already answered your questions. If you don't find an answer there, ask away.

-Skjald



            Ive tried levitra and viagra bothed worked but I have trouble ejaculating  which I think it has to do with lump. I got tested for lesions and it came up negative. I can get good erections sometimes but then I cant finish.
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Skjaldborg
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« Reply #611 on: December 10, 2009, 11:04:46 PM »

Well I still have the same problems but no lesions. My problems are as follows lump on the left side of my penis, indentation on my urethra, when I masterbated I lose my erection lenth, bend downwards and looking down at my erection sorta looks like a S curve. Im not sure what to do now Ive went back to my family doctor hes sending me to another urologist but it seems like they dont know much and cant really help me what should I do?

A lump may be a Peyronie's lesion. Pain, indentation and penile shortening may be signs of Peyronie's Disease. Go see a urologist or a male sexual health specialist physician. Ask them about starting pentoxifylline. If you are having erectile problems, ask about trying medications for ED.

One thing you can do for yourself is to read up on the information found in the forums. The "Highlights" areas are good places to start. Those areas may have already answered your questions. If you don't find an answer there, ask away.

-Skjald
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Skjaldborg
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« Reply #610 on: December 10, 2009, 10:59:30 PM »

Are there foods or liquids which can improve erectile dysfunction or act as vasodilators?  Since the ED associated with Peyronies is tissue-related, can the oral-treatments, which are also used to treat Peyronies, help with the ED?

L-Arginine and Pentoxifylline were once used as conservative treatments for ED. Conservative means they didn't always work well to treat ED. L-arginine may have some benefit in encouraging morning erections, pentox maybe, but that's not what pentox was designed to do. If you are having ED problems, go see a urologist. Prescription medications may or may not be necessary. It may be mental rather than physical. Go see a urologist to find out for sure.

-Skjald
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Noway
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« Reply #609 on: December 10, 2009, 10:58:34 PM »

I forgot to add I have burning sensation on the side of the penis where the lump is off and on.
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chiguy
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« Reply #608 on: December 10, 2009, 10:53:06 PM »

Several weeks ago, I began to worry about potential ED. Part of it may have been mental. I began taking 1 500 mg pill of l-arginine in the morning and 1 500 mg pill of l-arginine in the evening. I also drink one glass of pure pomegranate juice per day as it is an anti oxidant.

In my case, any vestage of ED has been cured. I often wake up with an erection and the erections I do have are superb. Of course, this hasn't done anything to really help the curavture or plaque, but it has alleviated the mental part of the problem.

My suggestion is to use a lot of anti oxidants such as pomegranate juice, cucumber, peanut butter and start taking l-arginine supplements.

A lot of forum members take 2000 mgs of l-arginine daily, but 1000 has proven just fine for me.
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Noway
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« Reply #607 on: December 10, 2009, 10:32:56 PM »

Well I still have the same problems but no lesions. My problems are as follows lump on the left side of my penis, indentation on my urethra, when I masterbated I lose my erection lenth, bend downwards and looking down at my erection sorta looks like a S curve. Im not sure what to do now Ive went back to my family doctor hes sending me to another urologist but it seems like they dont know much and cant really help me what should I do?
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snowydreams
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« Reply #606 on: December 10, 2009, 07:43:16 PM »

Are there foods or liquids which can improve erectile dysfunction or act as vasodilators?  Since the ED associated with Peyronies is tissue-related, can the oral-treatments, which are also used to treat Peyronies, help with the ED?
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chiguy
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« Reply #605 on: November 24, 2009, 06:10:16 PM »

On my end, both good news and bad news. The good news is the pain has relatively subsided for good. On some days, there is no pain, and other days, maybe a 1 or 2 out of 10.

The bad news is I think I am beginning to develop some type of erectile dysfunction. I can get an erection only thru constant stimulation and everything is normal. If I am not stimulated, I cannot maintain an erection. I don't have my appointment with Dr. Levine for 3 weeks so if there are any suggestions, let me know.

I'm wondering if anyone else has experienced a reduction in pain coinciding with the inability to maintain an erection. Like I said, I can get an erection, just have to stimulate constantly or it will go away.

Thanks!
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Tim468
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« Reply #604 on: November 18, 2009, 09:22:40 PM »

The traumatic masturbation syndrome is a made up thing by a whack job (so to speak) with unique theories. It has not been verified in any independent manner. It MAY apply (validly) to virginal males with little sexual experience who masturbate facedown with the penis facing south instead of north. The problems they suffer, though, may be due to their limited sexuality, psychological issues, or emotional immaturity - instead of the position they use to masturbate. The TMS simply does not satnd up as a "real" disorder and is no so llisted in any DSM manual.

Take what you find or read on any of those sites that talk about it with a grain of salt.

Wayne posted about this a year ago and some digging by others here cleared that up.

Just FYI.

Tim

For a balanced discussion of this try: http://www.soc.ucsb.edu/sexinfo/question/traumatic-masturbatory-syndrome-information
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52, Peyronies Disease for 30 years, upward curve and some new lesions.
Noway
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« Reply #603 on: November 13, 2009, 12:08:11 AM »

 I read this site about tms Traumatic Masturbatory Syndrome. www.healthystrokes.com is the website it talks about masterbating prone in the wrong fashion. So if your having trouble ejaculating or even soft erections you should check out the site maybe you have a little bit of this.
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skunkworks
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« Reply #602 on: November 12, 2009, 03:27:18 AM »

So I was just wondering if you guys with peyronies get bad erections all the time or if sometimes there good.

I had bad erections for awhile, but they are really quite good now. I'd say better than before injury, if I disregard the dent.

Meds etc will help, but go do some weight and interval training. Get your fitness up and you will find the quality of your erections increases ten fold.
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lwillisjr
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« Reply #601 on: November 11, 2009, 10:52:07 PM »

So I was just wondering if you guys with peyronies get bad erections all the time or if sometimes there good.

noway,
Many of us with Peyronies Disease can get good erections. Having Peyronies Disease doesn't necessarily your erections will be bad. But because the Peyronies Disease scarring causes bends or deformities, then the ability to achieve an erection can become a very mental game. If one isn't happy with or doesn't like the look of their erection, then this can be a bigger mental factor.
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Les - Straight again
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Noway
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« Reply #600 on: November 11, 2009, 02:59:54 AM »

Also my family doctor got me too do two blood tests one was for hormones and something else which I wasnt too sure of that came back good and the other one was for lesions which was like 4 weeks ago and he never called back so it must of came back good. But for the lumps he told me you want to remove those and you could have other problems because sometimes I do have decent erections. I dont know what to do im calling him again Its still really bad. I still get painful erections and really half ass erections.
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Noway
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« Reply #599 on: November 11, 2009, 02:53:18 AM »

So I was just wondering if you guys with peyronies get bad erections all the time or if sometimes there good.
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jackp
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« Reply #598 on: October 21, 2009, 09:04:40 AM »

CBF

Some of us have been discussing blood flow to the penis (off forum) and how it effects the nerves in the glans and nerve bundle at the base of the penis.

One of the group is a health care provider with peyronies and other problems. I have peyronies and heart problems with coronary artery disease (CAD). This affects the blood flow to the nerves in the glans.

My implant solved many problems. Now my glans engorges pretty well but the feeling were not there. While I was on blood thinners I had more feeling in the glans but have been off the blood thinner for a year. I was discussing this with my doctors at Vanderbilt and they concured that the blood thinner helped stimulate the nerves in the glans. I did not want to go back on blood thinner unless my heart doctor recommended. There recommendation was 5mg Cialis daily.

I started the daily Cialis and can say it has worked. Glans stimulation is much better and there the difficulty I was having with ejaculation is much better.

At your young age CAD may not be the problem but anxiety could be. I'm not sure but the daily Cialis might be worth a try. You can get a coupon for a free months supply at www.cialis.com.

Hope it helps.

Jackp
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cowboyfood
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« Reply #597 on: October 20, 2009, 08:28:18 PM »

One of the toughest challenges I've faced over the past 10 months is overcoming the psychological harm caused by this condition.  Earlier in my life, I dealt with some minor forms of hypochondria.  So, researching this condition tested my ability to deal with reading about others' experiences.

What scared me senseless last spring was the fact that I might have some form of ED.  Being single, I did not look forward to this situation, and honestly I was a total wimp about this possibility last spring.  I was down, physically and mentally.

But, with the help of "time", others here (old man, tim468, jackieO, angus, george999, hawk, nemo, and others), the VED, viagra & pentox, plus supplements, my erections apearred again, and then became very good.

The idea of venous leakage concerned me.  I did a "test" today to see how long I could sustain an erection.  Man, this was awkward because it's a clash of becoming sexually aroused with data gathering. 

I thought I'd use a 25mg dose of Viagra for support. 

So, with some minor stimulation here and there, I sustained an erection for about 17 minutes before I said that seems good enough. 

I guess that's okay...I could have gone longer but I'm busy. 

The leakage issue has been a concern because I'm not sexually active right now with another.  And, self-service can be only "so" stimulating.  I'd been noticing that I was having trouble maintaining an erection for very long which led to some minor anxiety; which, of course, only subdues the erection even more.

I know I might sound crazy, but I can get this way sometimes.  Actually, I'm mentally ready to begin dating again (I think I reached the point of being "over" stressing about the condition and had to relax). 

I'm still carrying some baggage, but it seems to continually diminish.  Oh, I just had a uro appointment last week and I think I can get a little weird mentally after an appointment. 

I'm looking forward to providing a detailed update later in the year, maybe december when finals are done.  But, my condition seems to have been stable for a couple of months....December is my one-year anniversary.

CF

 
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VED, Pentox(1200mg), Viagra(25mg every other night), L-Arginine(3g), ALC(2g), D3
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« Reply #596 on: September 22, 2009, 06:44:33 AM »

NoWay,

You have said
I disagree with your post hawk. Also I think saying im going to punch you in the face is humerous Smiley.
You are entitled to disagree with me, many have and many will. You are NOT entitled to violate forum rules because you find violating a rule humorous.  There are consequences for violating forum rules that you may or may not find humorous.

In addition to blatant violation of forum rules you have demonstrated immaturity with your announced refusal to listen to anything more than one Major Contributor(s) to this forum have to say (Jackp, Tim246 etc).  You reject use of the VED as recommended by Old Mad, Angus, and a score of others. This leads one to ask why you come here. You have made no attempt to teach us about superior methods of treatment.  You refuse advice, you insult members, and you violate forum rules.

It is time to modify your actions on this forum or consider finding some other source for whatever it is you come here for (certainly not advice or input).

Hawk
PS: It is easy for this to turn around.  It can go either way, you decide!
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« Reply #595 on: September 22, 2009, 01:07:21 AM »

My glans penis does not become engorged and firm when I am aroused and have an erection but remains flaccid and mushy.  This began about 1.5 years ago and as you can imagine causes severe problems with intromission as the glans head is soft and floppy and bends upwards or downwards at a 90 degree angle when axial pressure is applied.  Does anybody know anything about this, experienced it or any general suggestions would be greatly appreciated.
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George999
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« Reply #594 on: September 21, 2009, 09:41:29 AM »

what would a Male Sexual Function Specialist do differently then a urologist?

Urology = focus on the urinary tract
Sexual Function = focus on sexual function

Which one are you having a problem with?  The answer to that question should answer your own question.  - George
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Tim468
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« Reply #593 on: September 21, 2009, 09:14:12 AM »

Noway: "I never said "cord like lessions""

Um, yeah, you did. These things ("...") are called quotation marks. I do not use them for emphasis - I use them to quote others (as in, they said it). So, I quoted you. That means that you said it.

Here is the link. Go back and read it.

http://www.peyroniesforum.net/index.php/topic,35.msg20736.html#msg20736

See? You said that.

You don't know how my brain works? I am here to "hate on" you?

Here are some of my favorite quotes by you:

"Is dr.levine the best? or would it be a waste of time going to see him?"
    (this in response to a thread mentioning Dr. Levine and suggesting that you go see him).

"Your penis isnt made to be "stretched out" it will damage the erection process. So maybe your penis will be longer but you might tear it more or make yourself completely limp. Myself I wouldnt use this method."
    (this in response to a lengthy thread about the use of the VED (suggesting that you try it) and why it has helped more men here than any single other modality of treatment)

"For curve wise I got a downward curve sometimes and sometimes its straight or goes up. "
      (this is inconsistent with a fixed lesion.)(that means something that is 'fixed in place', not corrected or repaired)

IOW, you have been consistently given good advice here and ignored it, or challenged it (that's OK, when the challenge makes sense and has not been debated for an eternity already - something that you would know if you actually READ the threads here instead of simply posting your inchoate thoughts ad nauseum).

It is really time for you to take the cotton out of your ears and place it in your mouth. Listening to what others have to say instead of ignoring it will HELP YOU. Do you not get that?

No, I am not being particularly "nice" to you. Deal with it. You have been rude and offensive to others here and it is tiresome. Try listening and learning.

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52, Peyronies Disease for 30 years, upward curve and some new lesions.
skunkworks
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« Reply #592 on: September 21, 2009, 06:45:45 AM »

what would a Male Sexual Function Specialist do differently then a urologist?

He would be able to diagnose and or rule out any and every other possible cause of erectile dysfunction. From your posts you seem to have quite atypical symptoms, so it would definitely be a good idea to make sure of your diagnosis.

You would not want to waste a hell of a lot of time on Peyronie's treatments only to find out later on that it was not Peyronie's at all.

Everyone is here to help everyone else. I know how frustrated and angry these kinds of problems can make you feel, especially at a young age, but you've got to stop taking offense at everything. This is probably the one place where everyone can understand where you are coming from. I am 28, I should not be having erection issues at this age.
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Noway
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« Reply #591 on: September 21, 2009, 01:30:09 AM »

what would a Male Sexual Function Specialist do differently then a urologist?
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« Reply #590 on: September 21, 2009, 12:00:00 AM »

OK noway,  listen to me then.  Find a Male Sexual Function Specialist and make an appointment as I suggested in my previous post.  Your posts DO make sense to me and you need to get help for yourself and that is not going to happen by just reacting to people.  You have to take charge of your life and not let the surrounding static confuse you into a state of inaction.  I can't MAKE you see a doctor who can help you, I can only suggest it.  YOU have to follow through.  Talk to either your regular doctor or one of your urologists and tell them "I want a referral to a Male Sexual Function Specialist".  Don't be hostile about it but do be assertive.  They should know of someone in your region to refer you to and you have the right to request a referral for, if nothing else, a second opinion.  - George
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Noway
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« Reply #589 on: September 20, 2009, 11:31:39 PM »

 Jack p dont tell me to calm down when tim468 puts up a post to hate on me. I never asked for his help and if tim doesnt understand my posts he can ask me questions. Also Jack p im not listening to anything you put up here now.
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« Reply #588 on: September 20, 2009, 11:05:00 PM »

Noway,

You said, on July 22, "My lump is on the left side in the middle of my shaft and the cord like lessions go to the bottom of my penis"

Today you said "I dont know what cords look like."

Do you see how it is confusing?

You took pictures of your bent penis to the doctor and he said "It's straight" - did you not try to take the pictures when it was bent? You have said more than once that it is bent to the left sometimes and straight other times.

The "Go to" (your words) urologist said it doesn't make sense - and it doesn't.

I do wish you the best. If you don't like my posts, skip them. I shall do the same of yours - and now you will know why at least one member does not "answer you".

Tim

   I never said "cord like lessions" I said it feels like the 2 lumps connect and the "go to urologist" is the one guy I seen because the first urologist sent me there. What doesnt make sense to him is that I get different erections like I was saying. Tim how does your brain work?
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« Reply #587 on: September 20, 2009, 10:16:25 PM »

Noway

I agree with Tim your post are confusing and contradictory. The one thing I do not doubt is you are having a problem.
No back or prostate problems. That is a beginning on ruling out what problem you have.
A Male Sexual Function Specialist is now your best bet. General Practice Urologist are not good at this. These doctors are difficult to find because there are not many good ones.
I try to keep a list of good doctors. You can reply to this message with your general location or send me a PM and I will try to find a doctor for you. Do not be offended by this but you may need a sex therapist also. You also may need to travel to get a good doctor.
I and others will try to help you. Just calm down the bad attitude is no help.
Have you started the VED exercise. If not what are you waiting on it is the one thing you can do for yourself to improve things.
You are a young man, I am much older when I was your age I was also much like you, but life and my beautiful wife of 41 years have mellowed me to a gentleman. You can be also.
Jackp
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« Reply #586 on: September 20, 2009, 09:35:30 PM »

Noway,

You said, on July 22, "My lump is on the left side in the middle of my shaft and the cord like lessions go to the bottom of my penis"

Today you said "I dont know what cords look like."

Do you see how it is confusing?

You took pictures of your bent penis to the doctor and he said "It's straight" - did you not try to take the pictures when it was bent? You have said more than once that it is bent to the left sometimes and straight other times.

The "Go to" (your words) urologist said it doesn't make sense - and it doesn't.

I do wish you the best. If you don't like my posts, skip them. I shall do the same of yours - and now you will know why at least one member does not "answer you".

Tim
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52, Peyronies Disease for 30 years, upward curve and some new lesions.
George999
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« Reply #585 on: September 20, 2009, 05:20:00 PM »

noway,  I do think that what you are experiencing could be a rare expression of Peyronie's which could be at the root of your problem.  My recommendation would be that you try to see a sexual function specialist.  I think that your case really cries out for that.  I think that a sexual function specialist might be able to help you sort this out and steer you in the right direction.  I would take the pictures with you and also take the Pentox research papers in the resource library on this website with you when you visit the sexual function specialist.  I think that because of your age and the type of problem you are experiencing, the other doctors are just brushing you off.  jackp might have more thoughts on this since he seems to know more about this area of medicine.  In my experience Peyronie's inflammation can cause temporary penile disfigurement and can also cause erection killing pain.  All of this leads me to believe that a sexual function expert would be the best alternative for you at this point.  They would likely be a whole lot more sympathetic than a urologist and might even be willing to prescribe you Pentox if you provide them with the documentation.  You should also be ready to sign whatever releases the previous docs require so that any previous records can be forwarded to the sexual function specialist so that he or she won't have to reinvent the wheel on this.

I also recommend that you try to get your general health in as good shape as possible.  Your overall health can make your problem better or worse.  I very much recommend Real Age and Dr Oz for tips on how to improve your diet and lifestyle.

  Also please try to be patient.  Everyone here is trying to help you with this, but many of us are as frustrated in trying to figure it out as you are.  I wish you the best.  - George
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« Reply #584 on: September 20, 2009, 01:06:54 PM »

For curve wise I got a downward curve sometimes and sometimes its straight or goes up.

I really have no idea what would result in a curve to sometimes point in one direction, and at other times another. Are we talking about a slight or significant bend here? As you're experiencing pain, something certainly demands attention, but it's struggling to understand this situation fully. Maybe you mean that when you are partially erect is points out way, but when you are fully erect it tends to straighten out?

  My bend is pretty bad sometimes. I cant say exactly the degree of the bend because it varies. You got my other question right on the nose when its not fully erect theres more of a bend and looks more deformed but when its fully erect it straightens out alot but I still cant reach orgasm. Also the pain seems to be more on the top of my penis and on the left side I get like tingling and numbness sensations.
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« Reply #583 on: September 20, 2009, 12:55:13 PM »

Tim468

 1)I dont care if you log on at all.


 2)I did describe my bend which is a downward bend and sometimes to the left side of my penis sometimes pushes more out to the left. It looks more like an S shape but its not fully erect when this happens. I dont know what cords look like. You really need to read my posts tim it explains it all I did a vascular test which said I have lumps and if you would actually take the time to read my posts it would answer your questions.

 3)Also my posts are the way I express myself and people do express themselves differently. This forum is to help people talk about there feelings expecially being young and having this disease. If you dont have something nice to say dont say anything at all.

 4) If it doesnt make sense to you dont say anything. Also I dont really care about your information.
 
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« Reply #582 on: September 20, 2009, 12:25:36 PM »

Noway,

I usually don't answer your questions for several reasons:

1) I do not log on that often right now.

2) Your posts don't make a lot of sense to me. You have described lumps, cords and bends to the shape of your penis that are different at different times or on different days - none of which sounds like Peyronie's to me.

3) Your posts are wildly erratic in nature with "flames" of others alternating with self-pity, despite efforts to help you deal with your feelings.

All of these tend to make me not engage in a dialog with you. When someone doesn't make sense to me, it doesn't make sense (to me) to spend time talking to them. Still, I do hope that my and others posts are of help to you and that you can find help here.

Tim
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52, Peyronies Disease for 30 years, upward curve and some new lesions.
Noway
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« Reply #581 on: September 18, 2009, 07:44:32 PM »

Noway

Have you ever had any type of prostate surgery, TURP etc. Do you have back problems or ever had back surgery?

Prostate and back problems and/or  surgery can lead to some nerve damage. That can cause ejaculation problems.

Jackp

    No surgery for prostate no back surgery or back problems im 23 years old in the best shape of my life.
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George999
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« Reply #580 on: September 18, 2009, 06:55:41 PM »

Quote
FRIDAY, Sept. 18 (HealthDay News) -- A topical cream for erectile dysfunction shows promise in animal testing and could become an alternative for men who can't tolerate the pill form of the drugs, U.S. researchers report.
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« Reply #579 on: September 18, 2009, 11:01:49 AM »

For curve wise I got a downward curve sometimes and sometimes its straight or goes up.

I really have no idea what would result in a curve to sometimes point in one direction, and at other times another. Are we talking about a slight or significant bend here? As you're experiencing pain, something certainly demands attention, but it's struggling to understand this situation fully. Maybe you mean that when you are partially erect is points out way, but when you are fully erect it tends to straighten out?
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« Reply #578 on: September 18, 2009, 10:49:23 AM »

Noway

Have you ever had any type of prostate surgery, TURP etc. Do you have back problems or ever had back surgery?

Prostate and back problems and/or  surgery can lead to some nerve damage. That can cause ejaculation problems.

Jackp
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