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Author Topic: I think that there are not solutions to this disease  (Read 3138 times)

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dioporcolorisolvo

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I think that there are not solutions to this disease
« on: March 25, 2012, 06:52:52 PM »

In this forum i know only Old Man that is got well from disease and George99.

I'm thinking that they are exceptions.
Personally, after 16 months, disease goes on and every tratment is useless and i've read a lot of experiences like me.

Are there others that are got well?

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Skjaldborg

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Re: I think that there are not solutions to this disease
« Reply #1 on: March 25, 2012, 08:30:51 PM »

I have had improvements and no disease progression after 3 years since diagnosis. I used pentox in the acute phase and have no other health problems so that may be why. It's different for everyone.

-skjald
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james1947

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Re: I think that there are not solutions to this disease
« Reply #2 on: March 25, 2012, 09:05:55 PM »

dioporcolorisolvo

You have stated in one of your posts:
Quote
I'm not taking pentox.....also if i haven't understund reason, pentox worsened situation, as infiltrations, traction and ved.
I'm taking ALC and ubiquinol. I've erections very very strong, but until now i've noticed a small improvment on peyronie's symptoms (deformation, curvature) only when i eliminate all sugars and refined carbo from diet. This is not simple, but it's obligatory for me.
I think the only possibility to improve is to eat only fruit, A LOT OF vegetables, meat and fish. Stop.
Whitout sugars i feel more depressed, especially without chocolate, but the only road to do is that.
It seems to me you have positive results. I understand your frustration and also trouble being patient at the age of 27. From the other side, you are in a marathon and not sprint with this disease. Try to be more positive.  Pentox is making the Peyronie's not to progress. You should try it.
Regarding cure, don't forget that the really active people on the forum are not too much, so we don't know how many people were cured.
If you take in consideration surgery that is a cure, you will find many.

James
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LWillisjr

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Re: I think that there are not solutions to this disease
« Reply #3 on: March 25, 2012, 09:27:31 PM »

dioporcolorisolvo,

There are many on the forum who have seen improvment. I know of several inclusing myself who decided to ahve surgery and this also was the solution for improvment. There is also a board dedicated to this.

http://www.peyroniesforum.net/index.php/board,43.0.html
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Les - 8 yrs Peyronies Disease free
My History

cowboyfood

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Re: I think that there are not solutions to this disease
« Reply #4 on: March 26, 2012, 09:53:28 AM »

The "cause and effect" issue has been debated by many informed members over the years on this forum.

IMO, based on these discussions, the cause of the worsening was Peyronies Disease, not the treatment; meaning it's possible that the condition would have been even more worse without the treatment.

I do not recall a situation which made it clear that the most likely cause of worsening was the treatment, anectdotally and certainly not under any form of a medically sound research.

I think it's certainly possible for a treatment to worsen a situation, but, IMO, none of us have seen any reliable data which suggests that pentox or the VED will probably worsen the condition.

In fact, pentox seems to help many men, shown anectdotally and via research.  Many men claim the VED helped.

Of course, in cases where men have seen improvement, the frustrating thing is that, IMO, it's difficult to conclusively state what helped;  In the end, our bodies may have improved because of naturally occurring processes even though various treatments were used.

All that being said, there seems to be, at the very least, some correlations between improvement and use of the VED and Pentox.

CF
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Currently:  L-Arginine (2g), Vit D3)

George999

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Re: I think that there are not solutions to this disease
« Reply #5 on: March 26, 2012, 10:36:18 AM »

In terms of both cause and effect AND effective treatments I ONLY pay attention to research results, not speculation.  For me the research findings are clear.  Those substances that effectively treat Peyronie's have their effectiveness clearly documented elsewhere in this forum by unbiased and well designed clinical studies.  Everything else is just subjective thinking and speculative and will not lead to a solution but only to confusion.

As for cause, there is also significant research pointing to the causes behind Peyronie's.  Here is but one example:


Quote

BJU Int. 2007 Feb;99(2):383-6.
Diabetes mellitus is associated with severe Peyronie's disease.
Kendirci M, Trost L, Sikka SC, Hellstrom WJ.
Source

Tulane University, Urology, New Orleans, LA, USA.
Abstract
OBJECTIVES:

To evaluate the severity of penile deformity and penile blood flow variables in men with Peyronie's disease (Peyronies Disease) and diabetes mellitus (DM), and those with no risk factors.
PATIENTS AND METHODS:

Men with Peyronies Disease and DM (59 men, group 1) and those with no risk factors (109, group 2) were compared for penile blood flow variables, severity of penile deformity, patient's age, duration of Peyronies Disease, the presence of pain on erection, and the degree of erectile dysfunction (ED). The men were evaluated with penile duplex Doppler ultrasonography and were categorized into specific vascular groups, using established criteria. Penile curvature was objectively measured and stratified according to the Kelâmi classification. Results were compared using Student's t-test.
RESULTS:

Men with Peyronies Disease and DM (group 1) were significantly older than those in group 2. The duration of disease was significantly longer in group 1 than in group 2 (median 24 vs 12 months). The mean degree of penile deformity in group 1 was significantly higher than in group 2 (45.2 degrees vs 30.2 degrees). The rate of severe penile curvature (>60 degrees ) was more frequent in group 1 (27.1% vs 5.5%). Pain on erection was significantly higher in group 2 (39.7% vs 25.5%), whereas the rate of ED was more common in group 1 (81% vs 47%). Group 1 had poorer peak-systolic velocity values and significantly higher rates of arterial insufficiency and mixed vascular disease. Nonvascular causes were twice as common in group 2 than in group 1.
CONCLUSIONS:

This comparative clinical study suggests that the presence of DM as the only risk factor significantly increases the severity of Peyronies Disease. Furthermore, DM as a risk factor is associated with significantly worse vascular status, as shown by penile duplex Doppler ultrasonography, in men with Peyronies Disease.

PMID:
    17313425
    [PubMed - indexed for MEDLINE]



- George
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dioporcolorisolvo

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Re: I think that there are not solutions to this disease
« Reply #6 on: March 26, 2012, 11:27:57 AM »

@james1947: there are days where i notice some improvments, but other days where i notice that improvments are not true, because disease goes up and down.....this fact is unnerving.
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james1947

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Re: I think that there are not solutions to this disease
« Reply #7 on: March 26, 2012, 02:21:40 PM »

I am attaching a file that is a collection of the forum statements regarding Pentox, just from members personal experience.
I had given points for each post and the average come out 62.6% of satisfaction.
Other people may give other points for the different sentenses.

I am posting as PDF because I don't know how to change extension .docx to .doc. My computer is giving extension .docx
If the attaching options will include .docx also, I can post the Word document. I can also email it if someone want it in Word.

I hope it is helping
James
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dioporcolorisolvo

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Re: I think that there are not solutions to this disease
« Reply #8 on: March 26, 2012, 07:17:05 PM »

thanks for the work made.
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Hawk

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Re: I think that there are not solutions to this disease
« Reply #9 on: March 26, 2012, 07:54:20 PM »

As already stated.  There is NO cure for this disease but MANY men have improved significantly. Many have improved and left the forum because Peyronies Disease seems to no longer be a priority in their lives.  Also, keep in mind that 80% of the people that view this forum are not even registered member.  Out of the those that register, 80% do not post or post less than a half a dozen times.

To James:  James, that was a significant product that I know took a big effort on your part, and it deserves an STANDING APPLAUSE !!!
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james1947

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Re: I think that there are not solutions to this disease
« Reply #10 on: March 26, 2012, 10:35:25 PM »

Thanks Hawk but don't need
Quote
STANDING APPLAUSE !!!
I was doing it in any case for myself.

James
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George999

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Re: I think that there are not solutions to this disease
« Reply #11 on: March 27, 2012, 12:12:15 AM »

Hawk,  I think it is just amazing all the good things that are happening around here because of James' housekeeping efforts.  He has been a real blessing in getting things in order that the rest of us haven't had the time to deal with and it is really appreciated by me and I know by many others as well.  - George

PS - And Hawk is absolutely correct.  There is NO cure at this point, but there sure are a lot of things guys can do to make their situation better all the way from healthy diet and exercise to oral supplements and meds to mechanical devices to and including surgical solutions, all of which have become a lot more effective with a lot more options than even some of us Johnny come latelys around here had at our disposal in the past.  And old timers with this disease had basically zero resources to deal with it.  No excuse for whining guys!  And it won't help you to get better.  You have to be willing to try different approaches and not expect instant success.  Those with patience and tenacity well usually get better eventually and just doing your best will help the psychological side IMMENSELY.  If you just sit around and complain, you'll be consigned to a miserable depressed life and you WON'T get any better this way physically OR emotionally.  - George
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Luciano

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Re: I think that there are not solutions to this disease
« Reply #12 on: March 27, 2012, 02:18:12 PM »

James! I agree with hawk and not with you!
YOU DO DESERVE A STANDING APPLAUSE!
And a big thank you from me..
Not only for the paper but for what you are doing in this forum

If I may, a small remark... (just concerning the paper you posted)
You are giving 0 points to those that say: no effect
AND
You are giving 0 points to those that say negative effect...
I would give a negative value to those (the one or two) with negative effect. (Like -50 or - 25)
("in my case Pentox has worsened situation")
Thats just a suggestion ( And seeing the figures it wont make a big difference)

Luc
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james1947

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Re: I think that there are not solutions to this disease
« Reply #13 on: March 28, 2012, 12:16:32 AM »

Luciano

Thank you for your appreciation.
Regarding the pointing remark, I have converted the .docx to .doc as Hawk guided me and posted it in "Oral Treatments for Peyronie Diseases" in .doc format. I will be happy if you and other members will make your own "pointing", it will make things more precise.

Sorry for posting the same post again there, but removing it from here it will make all the other posts not related to nothing.

James
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onlyone

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Re: I think that there are not solutions to this disease
« Reply #14 on: April 13, 2012, 02:47:29 PM »

Hello all, yes after about 2 years, it did get better, posted details on improvement section as onlyone. There isn't any noticable bend and lump.  The downside is that I have now got fibrosis all the way along, which is very restrcitive and painfull on getting it erect. - never had any damage or accident, so I don't know what started it. However, the fact that it looks better has made a huge difference to me. really important.  regards to all.
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