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Author Topic: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements  (Read 930223 times)

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skunkworks

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4000 on: July 10, 2010, 01:13:58 AM »

Sorry, skunkworks. You can be as snarky as you want about my theory, which I find funny as there really isn't a consensus reason as to the cause of Peyronie's Disease, but I'm entitled to my opinion. I'm sure people mocked the first questions about Vioxx, but it stayed on the market for years and many people took it with no problem.

Propecia inhibits the presence of dihydrotestosterone, a hormone that is necessary for the development and maintenance of the penis.

If I start a medicine and have an unintended consequence that seems to be in line with that medicine's method of action, it's not wrong to assume that the medicine played some role. I don't need a fact statement to be released by the FDA about what I felt my body go through. I'm not trying to rail on the drug, it's just my opinion that - for me - the lack of 5AR in my blood somehow triggered Peyronies Disease.

I'd have a lot more time for a theory like this if it didn't involve a drug that has been on the market for decades.

DHT is involved in the development of the penis most definitely, but do you have any evidence to show that it is involved in the maintenance?

The only way I could see finasteride being involved in a heightened risk of Peyronie's would be that it can lower libido and erection strength, and it has been suggested before that having sex with a less than fully erect penis can heighten the risk of injury.

My opinion obviously.

George999

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Re: Fish Oil Contaminants and Purity Issues
« Reply #4001 on: July 10, 2010, 03:35:02 PM »

Raw fish oil tends to harbor a sea of contaminants.  They range from various heavy metals to things like PCBs and dioxins.  Various vendors use a range of techniques to deal with this.  Some are highly successful and result in an ultra safe product, others are less so, and some fall on their face and result in a seriously unsafe product.  Best ways to tell are Consumer Labs or to order from a vendor KNOWN to take these issues seriously like Nordic Naturals or The Life Extension Foundation.  Remember, Fish Oil supplements are highly concentrated, so if the ingredient is contaminated, the resulting product can be bad news if those contaminants are not removed in the manufacturing process.  Beware of inexpensive fish oil products.  - George

For George999 & Despise
Just scanning the January suppliments postings and saw Despise asking about a good fish oil . I use , for heart health , Ascenta NutraSea. I have spoken to them several times and am confident that it is as pure as pure can be.
It is pure fish oil ,sardines /anchovies /mackerel - bottled in Nova Scotia. I use the EPA 1500 MG / DHA 500 MG. They also offer a higher Omega 3 content product. Mine is $47.00 cdn. for 500 ml at Nutrition House. Dose is 1 tsp/5 ml daily.
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ocelot556

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4002 on: July 14, 2010, 01:13:46 PM »

I'm not a medical professional and neither are most of the men on this Forum. I wasn't aware that we had to post only medically sound and proven theorems in the "Oral Treatments" section.

Skunkworks: I understand your point about finasteride being on the market for a long time, but there ARE many anecdotal reports of adverse effects. Maybe it's a reaction in .1% of the population -- I know that from the reaction my body had to propecia, I stopped taking it within 2 weeks. When you go from a relatively normal young man to someone who doesn't leave his bed and contemplates suicide (something I have never done before, or since) and feeling that rain cloud clear when the course of medicine left my system... I know it had an affect on me beyond the inhibition of DHT. We often don't know why or how the body reacts to the things we put in it.

Here's a study I was able to Google very quickly about DHT inhibition in rats: http://www.asiaandro.com/archive/1008-682X/5/33.htm -- And there's a forum (albeit not as well maintained as this one) that I won't plug here, but is filled with people who have taken propecia and have had it wreck their hormonal balance and cause other physiological damage. A small percentage of the population that is taking Finasteride, yeah, but they're out there.

I don't really care to convince anyone, because I know what happened, and it's way off topic for this thread anyway. It just really makes me bristle when I'm belittled for sharing my opinions (which are just that). Thanks, George, for your well reasoned answer. I agree -- I don't think it was propecia itself, but rather the drug interacting with the specific chemical makeup of my body at the time.


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burnoutz

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4003 on: February 22, 2011, 01:47:14 AM »

hello everyone.

i have peyronies for quite a long time, 10 years ago, and i am 28 years old now.The fibrosis plaque has stablizie and my penis is not flexibile. I can still masturebate but sex is quite difficult and uncomfortable. I wonder whether treatments like pentox will still be effective for me at this stage? I have been taking vitamin E but it has shown no positive effects so far. I will not consider surgery at this moment because i am waiting and hoping that Xiaflex will help me soften the fibrosis in the near future.

thanks.
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newguy

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4004 on: February 22, 2011, 09:53:08 AM »

hello everyone.

i have peyronies for quite a long time, 10 years ago, and i am 28 years old now.The fibrosis plaque has stablizie and my penis is not flexibile. I can still masturebate but sex is quite difficult and uncomfortable. I wonder whether treatments like pentox will still be effective for me at this stage? I have been taking vitamin E but it has shown no positive effects so far. I will not consider surgery at this moment because i am waiting and hoping that Xiaflex will help me soften the fibrosis in the near future.

thanks.

I started taking pentox many years after developing peyronie's, and believe that it was been of help to me. It's hard to know what specifically is the source of improvement, but it has been an aspect of my treatment that I've stuck with for a significant length of time. It's definitely worth a shot, though be sure to take it for six months + before drawing any conclusions as to its effectiveness.
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rd

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4005 on: February 22, 2011, 11:22:37 AM »

How does Pentox help Peyronie's and can it improve erectile function?

In multiple ways.  For example, it blocks TFG-beta1, an immune system cytokine known to play a role in aggravating Peyronie's.  TGF-beta1 is normally utilized by the body in the process of breaking down scar tissue.  In the case of Peyronie's it becomes overactive and damages adjacent healthy tissue in the process, thus adding to, rather than reducing scar tissue.  Pentox subdues TGF-beta1 activity.  Additionally, Pentox makes red blood cells more flexible so they can better oxygenate damaged tissues.  Pentox likely has other ways of benefiting guys with Peyronie's, but these are the two best known benefits.  I took Pentox for a couple of years and made sure I took it only with meals.  It was extremely helpful to me and I had almost no side effects.  At this point I am off it since my supply ran out and Dr Lue did not renew my prescription.  I have been off it for over a month now and my Peyronie's has not become active again and shows no signs of doing so at this point.  I am very grateful to Dr Lue for prescribing it for me and am convinced that it has saved me a lot of pain and further damage.  I highly recommend it.

Are there any major side effects associated with it and have any of the board members who have used it experienced side effects, especially cardiovascular ones?

Each patient, of course, reacts differently.  But most of the reported side effects are gastro intestinal or sleep issues and none are serious.  Most people tolerate Pentox well and it has a very long track record of safe use.

I have been taking Vitamin E 800 IU for quite some time and have experienced some mild pain in my sinuses and noticed blood in my phlegm several times in the last few months.  Is it true that excessive use of Vitamin E can cause hemorrhagic stroke and what is the recommended dosage?  Should I get tested for Vitamin E in my blood?

Vitamin E tends to cause bleeding because it counteracts the effects of Vitamin K.  If you are not taking a prescription blood thinner, you will probably find that taking a little bit of Vitamin K on a regular basis will stop any Vitamin E bleeding effect you might be experiencing.

DISCLAIMER:  I am just trying to provide you with information.  I am not a doctor and would suggest you discuss these issues with your doctor before proceeding further.  Your pharmacist might also be able to give you expert advice on these issues.  - George

George,

I'm curious now as to the benefit of pentox. You mention how pentox blocks TGFBeta-1 which is used by the body to break down scar tissue and in the case of peyronies it is over expressed. Is this true with all cases of peyronies?

I'm wondering if pentox could preserve the scar tissue. If the body uses TGFBeta-1 to break down scar tissue and pentox blocks that wouldn't this be the case? From everything I've been told by the doctors I have seen and from what I have read, a small percentage of peyronies cases have spontaneous regression. It makes sense that if someone were to get a injury to the penis scar tissue could form and from reading about scar tissue it has the life cycle of 12-18 months and the body uses this to fortify the wound until it can be healed, then as time goes on the scar tissue reduces or fades I'm assuming due to TGFBeta-1. But if this is blocked would it rule out any spontaneous regression assuming your in that small percentage of men? It makes sense to use pentox in men where peyronies is progressing but what if one has never had progression since first noticing it?
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George999

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4006 on: February 22, 2011, 11:52:42 AM »

The general observation has been that with Pentoxifylline things get better.  That has been the case until recently.  Now there is a research study comparing the outcomes of those who receive Pentoxifylline with those who don't.  Those who received Pentoxifylline did markedly better than those who didn't.  It is certainly possible that a small percentage would have done better without it, but overall it greatly improves outcomes.  If you ignore this information, you are playing against the odds.  Such is the case with all established medications.  One has to weigh the risk benefit ratio.  In the case of Pentoxifylline for Peyronie's, the benefits greatly outweigh the risks, since Pentoxifylline is very benign in terms of interactions and side effects.  And you have to realize that it doesn't block TGF-beta1 entirely, it just throttles it back.  - George
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rd

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4007 on: February 22, 2011, 11:56:47 AM »

Oh ok I thought it blocked it entirely. I am currently taking pentox and was just curious when I read your comment. Thanks for the info though.
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ComeBacKid

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Vitamin D Study
« Reply #4008 on: May 22, 2011, 12:57:37 AM »

Thought this was interesting guys, have a read:

http://www.healthscout.com/news/1/642360/main.html
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newguy

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Re: Vitamin D Study
« Reply #4009 on: May 22, 2011, 05:20:46 AM »

Thought this was interesting guys, have a read:

http://www.healthscout.com/news/1/642360/main.html

I think I read this before, but it's a great article. For years I'm pretty sure that I had a vitamin D deficiency. I'm not really one to go out in the sun and few foods here are fortified with vitamin D.
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ppain

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oral combos
« Reply #4010 on: October 08, 2011, 09:30:14 AM »

As my Peyronie's approaches 1 year, the pain is mostly gone, but the deformation is progressing.  It might still be early enough that oral therapies might help.

I have access to Potaba, Pentox, and CoQ10.  Each has support from a single recent double blind study, respectively: Weidner et al. (2005); Safarinejad et al. (2009); Safarinejad (2010).  They each seem to provide some help to some men. 

What is known, or predicted, about taking two, or all three of them?  Safarinejad has stated (personal communication) that there isn't any negative interaction between Pentox and CoQ10.  Synergisms aside, it's good news if Pentox + CoQ10 on a particular patient is at least as effective as Pentox alone or CoQ10 alone on that patient. 

Are there any reports on interactions between Potaba and the other two?  Do the physiological mechanisms suggest any negative interactions?  It would be a pity to achieve less with more.



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George999

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Re: oral combos
« Reply #4011 on: October 08, 2011, 10:59:23 AM »

I, personally, was on Pentox for many months when the Safarinejad CoQ10 study came out.  I immediately started Ubiquinol 100mg 3X per day in addition to continuing Pentox 400mg 3X per day.  At that point I obtained obvious additional efficacy to the point that a long running issue was solved.  In effect, Pentox was protecting me from chronic inflammatory pain, but not acute pain caused by any minor trauma.  With the addition  of Ubiquinol, I suddenly became bullet proof in terms of pain.  The effect was dramatic and obvious.  At this point I am off Pentox for some time now, but continue with Ubiquinol.  Peyronie's pain has never returned and physical deformity issue is gradually improving.
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ppain

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Re: oral combos
« Reply #4012 on: October 08, 2011, 10:28:18 PM »

George999: That's encouraging info.  May I ask why you discontinued Pentox?

I'm now taking Potaba 4g 3x per day + Pentox 400mg 2x per day + CoQ10 100mg 2x per day (+ vitamin E 1200IU + Tadalafil 2.5mg + L-Arginine 1500mg, but these are generally regarded as secondary). The high Potaba dose is tough on the gut.  Every Potaba study from 1970 to 2005 has used that same dose.  Does anyone here know why?  And the main question, whether adding Potaba to the known compatible combo of Pentox and CoQ10 is counterproductive, remains.  
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rd

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Re: oral combos
« Reply #4013 on: October 09, 2011, 08:46:27 AM »

George999: That's encouraging info.  May I ask why you discontinued Pentox?

I'm now taking Potaba 4g 3x per day + Pentox 400mg 2x per day + CoQ10 100mg 2x per day (+ vitamin E 1200IU + Tadalafil 2.5mg + L-Arginine 1500mg, but these are generally regarded as secondary). The high Potaba dose is tough on the gut.  Every Potaba study from 1970 to 2005 has used that same dose.  Does anyone here know why?  And the main question, whether adding Potaba to the known compatible combo of Pentox and CoQ10 is counterproductive, remains.  

ppain,

I did the potaba, pentox, and coq10 as you are. I had no troubles with my gut but my liver emzymes came up high on blood tests after being on the potaba for about 5-6 months. I discontinued the potaba after that test and a month later had another blood test that showed my emzyme levels to be normal again. I also just had another blood test done to confirm it is still normal just waiting to hear back about the results.  
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George999

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Re: oral combos
« Reply #4014 on: October 09, 2011, 11:33:22 AM »

I discontinued Pentoxifylline because I was finally able to discontinue it without having a flareup as a result.  I prefer not to take Pentox if I don't have to because it does have minor side effects AND because it does have the potential to interact with some other drugs.  AND it is one less pill I have to take and I don't want to have to take any more pills than necessary.  I am continuing the Ubiquinol, on the other hand, because it is easier on the body and has other benefits besides just Peyronie's.  In any case, at this point the "fire" seems to gone out of my Peyronie's problem and it is in retreat.

I really don't see why Potaba would interact negatively with any of the others, but who knows?  As rd points out, Potaba, like other Vitamin B family members, DOES carry a liver risk at mega dosages and Potaba is typically prescribed in HUGE dosages for Peyronie's.  ANY patient on Potaba should be getting REGULAR liver enzyme tests done.  All the things typical of Potaba are why I have never been willing to take Potaba even though my uro was pushing on me to take it.  At this point I think I have pretty much convinced him that Pentox is better and he is now recommending Pentox to his patients.

  - George
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ppain

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Re: oral combos
« Reply #4015 on: October 09, 2011, 06:41:36 PM »

rd: thank you for the warning.  "All patients taking POTABA-GLENWOOD powder should undergo liver functioning testing at least every 4 weeks" printed on the package insert was missed by me, my urologist, and my GP.  I'll get tested fast.

I've been taking Potaba for 11 months almost since onset.  I cut the daily dose from 12g to 4g about 3 months ago and new deformity developed about 1 month ago.  Perhaps coincidence, perhaps not. 

I'm curious whether your Potaba+Pentox+CoQ10 regimen was purely your own or from a doctor. 

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rd

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Re: oral combos
« Reply #4016 on: October 10, 2011, 09:24:18 AM »

rd: thank you for the warning.  "All patients taking POTABA-GLENWOOD powder should undergo liver functioning testing at least every 4 weeks" printed on the package insert was missed by me, my urologist, and my GP.  I'll get tested fast.

I've been taking Potaba for 11 months almost since onset.  I cut the daily dose from 12g to 4g about 3 months ago and new deformity developed about 1 month ago.  Perhaps coincidence, perhaps not. 

I'm curious whether your Potaba+Pentox+CoQ10 regimen was purely your own or from a doctor. 



I just figured anything that had any shred of evidence I would use. I could only get a rx for Potaba, then found a place online where I could get the pentox, and of course I didn't need one for COQ10. My uro wanted me to try the Potaba so I did. He said he didn't feel comfortable giving me Pentox even though he was familiar with doctor Lue and his methods. So when I found a sorce for it I added it to my treatments. I figured I'd throw everything but the kitchen sink at it. Right now I have stopped everything but the coq10 because I had the stem cell treatment and am still waiting to see what results come from it with out anything else in the mix.
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George999

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Re: oral combos
« Reply #4017 on: October 10, 2011, 10:34:34 AM »

rd,  I wish you all the best on the stem cell treatment.  I know they are receiving some remarkable results with that for some issues, perhaps not so good for others.  Hopefully we get some positive surprises with Peyronie's.  That would be wonderful for all of us.  I had not seen your comments on the stem cell stuff before, but just now caught it with your previous comment and went back and reviewed your previous comments as a result.  Thanks for sharing all of this.  But sure to keep us updated as things (hopefully) progress.  - George
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Luciano

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Re: oral combos
« Reply #4018 on: November 06, 2011, 02:55:43 AM »

Sorry George to be indiscrete, but specially you who have been a great Pentox advocate (I actually started Pentox after reading your posts) getting off pentox, It would be interesting for me to get a little supplement of information.

I discontinued Pentoxifylline because I was finally able to discontinue it without having a flareup as a result.  I prefer not to take Pentox if I don't have to because it does have minor side effects
with "flareup" do you meen pain or curvature?
did you experience the common side effects (stomach etc...) or did it have specific ones for you?

AND because it does have the potential to interact with some other drugs. 
Did you experience some interaction? I meen with supplements or other drugs we take against Peyronies Disease? Or with other drugs outside the common Peyronies Disease medication?

AND it is one less pill I have to take and I don't want to have to take any more pills than necessary.
100% agree with that one...

Sorry again if the questions are indiscrete, but i was just very curious.

Luc
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George999

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Re: oral combos
« Reply #4019 on: November 06, 2011, 09:43:29 AM »

Well, the unfortunate news is that after over six months off of Pentox and no problems I have finally had a minor flareup.  By flareup, I mean either pain or deformity, anything that would indicate Peyronie's activity.  In my case it is a sudden onset of low level pain.  So ... as of last night, I am now back on Pentox.  I have never had any problem myself with drug interaction with Pentox, but it does mean you have to be more careful with blood thinners and that sort of thing and the potential for interactions is always there which is just another reason why I would rather be off of it.  I also suspect it might be raising my BP just a bit.  So hope that is a good enough answer.  I have always been determined that if I ever had a recurrence of the problem, I would get back on Pentox right away.  Unfortunately, that point in time has arrived, but it has been a nice break in the mean time.  What I am noticing from lab tests is that my immune system seems to be recovering in that my white cell counts are headed higher than they have been for a long time.  In fact, the last time I had neutrophil counts this high was back in November of 2007.  That very well could have something to do with this.  I took some Astragulus to deal with a low neutrophil count recently and also have been taking large amounts of DHEA to try to improve my hormone levels.  Either or both could be altering my metabolic environment enough to cause a hopefully temporary recurrence of Peyronie's inflammation.  - George
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Iceman

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Re: oral combos
« Reply #4020 on: November 06, 2011, 07:04:32 PM »

george - should you increase the ubiquinol then??
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George999

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Re: oral combos
« Reply #4021 on: November 06, 2011, 11:16:39 PM »

Restarting Pentoxifylline stopped the pain in no time.  It looks like I will have to spend another year or so on it and see how it goes.  If things stay better for a while, I will probably try stopping it again later on.  In the mean time, I really see no need to increase Ubiquinol.  Its very expensive and there is no evidence at this point that more than 300mg/day is of any benefit.  - George
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Iceman

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Re: oral combos
« Reply #4022 on: November 07, 2011, 01:31:22 AM »

ive just been email comeback kid and he swears by pentox - ive just got an extra 12 months supply and im going to really take more than i have been - i was only taking 1 tab in the morning and thats it - from now on its x 3 per day.

also ive noticed that glyocarn kind of makes my flaccid state seem normal - anyone tried this stuff
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james1947

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Re: Oral Treatments - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4023 on: April 04, 2012, 10:48:56 PM »

I will not merge this topic with others because it contains almost everything that oral treatments can be.
It has also 81 pages and I don't want to add more.

James
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George999

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James, this was the original catchall thread for Oral Treatments before more diversity was introduced via sub topics.  This WAS originally the only "Oral Treatments for Peyronie's Disease" thread.  - George
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Willfly

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Second day on here, lots of questions
« Reply #4025 on: April 11, 2012, 08:57:27 PM »

This is my second day on here, feel very lucky finding this site yesterday.  I only wish I could access all of this at work, but you know net nannies.   

I have seen many comments of guys taking Viagra or cialis in small doses on a regular basis to ensure daily erections.  Is that to combat ED?  I have not experienced ED, other than my psyching myself out.  I still wake up with morning wood, jerk off at night, is that all sufficient?  Also, I bought a bottle of 1000mg L-Arginine, is that a good start?  Can't get in to see my GP until June, so no Pentox.  I don't want to start that until I speak with her as it is a thinner.  So for now I think I'll stick with the supplement/nonprescription route. 

Pumps - I also saw a lot of talk about pumps, is that more for the individual who has a curve?  I have no curve, only a slight hourglass behind the glans above and below.  I can actually feel the corpora cavernosa sort of cinched at the end, which is why my glans doesn't fully engorge.  When flaccid I feel a little oblong nodule behind the glans just left of center.

Is there anyone else in Southern California/Long Beach area that can recommend another urologist?  One that will do more than confirm my condition, tell me there‚Äôs nothing that can be done with it, and then come back in 6 months?  I got some good advice on 2 doctors, a Dr Boyd at USC, and Wilson in Indio, unfortunately they don't show on my coverage list. 

Thanks in advance,

Rob
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james1947

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Re: Second day on here, lots of questions
« Reply #4026 on: April 12, 2012, 03:37:27 AM »

In my opinion L-Arginine is a good start.

The VED is not just to correct curvature, is also to maintain healthy blood flow into your penis.

Regarding doctor I will quot Skjaldborg:
Quote
Also, since you are in California, get a referral from your GP or urologist to see specialist urologist Dr. Tom F. Lue at UCSF. He is one of the premier urologists on Peyronie's and my appointment with him and his staff was a turning point for me.

James
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LWillisjr

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Re: Second day on here, lots of questions
« Reply #4027 on: April 12, 2012, 09:57:49 PM »

Willfly,
Many guys have Peyronies without any ED issues. But there are some who have blood flow issues to the point that ED can be a problem. So yes some are taking Viagra or Cialis in small doses to help with this or to improve blood flow.
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Les - 8 yrs Peyronies Disease free
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Skjaldborg

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Re: Second day on here, lots of questions
« Reply #4028 on: April 12, 2012, 10:31:04 PM »

Cialis and Viagra also stop TGF-Beta, a protein associated with inflammation and scar tissue formation in addition to ED help.

-Skjaldborg
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another_one

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on the stomach protection against POTABA and PENTOX
« Reply #4029 on: April 15, 2012, 10:38:17 AM »

Hi everyone,
I am the Peyronies Disease and I begun the oral treatment just a month ago. I met several specialists and some of the them suggested to me to simply take POTABA plus the VIT E: others also told to me to take the PENTOX. Also in light to the outcomes of this forum this is my current prescription:

POTABA 6000mg/day
PENTOX 800mg/day
VIT E 800mg/day (alpha form)

I have a question: since it was pointed out that POTABA can produce many side effects on the stomach, I have never read about the possibility to use a stomach protector like PANTOPAN (PANTOPRAZOLE SODIUM SESQUIHYDRATE). Is there anyone using it? Is there any side effect using it as a stomach protector?

Thanks a lot and may God bless us

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Luciano

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Re: on the stomach protection against POTABA and PENTOX
« Reply #4030 on: April 15, 2012, 02:21:07 PM »

Yes I read that about potaba also. And there are no studies saying potaba gives any results (maybe with pain, but certainly not for the rest)
As to pentox, the effects on stomach exist also, but are much less strong (at least thats what I read)
Taking pentox with food seems to be good enough for most of us.
Usually most people here take 3x400 mg pentox, (so one more than you do) and have no side effects. The few that do have side effects, usually take 800mg and with food acceptance is good.
But no one I know is taking pentox AND Potaba.
I would start pentox immediately, with no stomach protector, during meals. but take 3x 400mg.
And if you tolerate it well, add the Potaba. If you get problems, then you can either stop potaba or add a stomach protector.

If I had the choice between potaba and pentox, I would go for the pentox only!!!

Luc
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another_one

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Re: on the stomach protection against POTABA and PENTOX
« Reply #4031 on: April 15, 2012, 02:49:36 PM »

Hi Luciano,
so are you telling me that you have never heard about the combined use of potaba and pentox? I have met three different specialists and practically two of them suggested to combine it. The first two told me to take 800mg/day vit E plus 600mg potaba and 800 pentox. The third one only prescribed me a massive dose of potaba (6000mg) and vit E (800mg). What I want to do is to combine the potaba with 800 or 1200 mg of pentox. I will inform the last specialist of this but if there are no problems to combine them, I would like to do it. I will let you know the answer of the last specialist. What do you think?

Thanks

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james1947

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Re: on the stomach protection against POTABA and PENTOX
« Reply #4032 on: April 15, 2012, 04:03:47 PM »

another_one

I would like to reinforce Luciano opinion that not too many people are using Potaba today.
To get a good picture regarding Potaba read the board of Oral Treatments for Peyronie's Disease, POTABA - effectiveness, interaction & questions topic. It will help you deciding what to do.

I will quote newguy post
Quote
POTABA - effectiveness, interaction & questions
on November 06, 2009.

Quote
I doubt this thread will see much action, as potaba is an old treatment and one of the most difficult to tolerate. However, it's useful for it to have its own area for discussion, to stop is clogging up other threads.


I have to mention also the have one guy (from reading the above mentioned topic) that Potaba & Pentox combination helped him.

James
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another_one

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Re: on the stomach protection against POTABA and PENTOX
« Reply #4033 on: April 15, 2012, 04:17:45 PM »


Hi James,
the reason because I don't want to stop potaba is that all the specialists suggested to me to use it: depending on the specialist, it just change the amount of prescribed potaba. On the other hand, the papers/contribution read in the forum, plus also the suggestions of many specialists would suggest to take pentox. That is why I would like to follow all advices and take both, minimizing the side effects for my stomach. Consequently in order to save my stomach I wanted to know if there were side effects to combine a stomach protector with the potaba and pentox.

Thanks everybody
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james1947

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Re: on the stomach protection against POTABA and PENTOX
« Reply #4034 on: April 15, 2012, 04:29:30 PM »

OK, I understand your approach.

Maybe because my age or bad experience I am "over" carefull mixing things. Maybe you  should begin with small doses.

Myself, even with Pentox I begin one daily and stopping 100mg Aspirin for one week.

Wish you success with your treatment, don't forget to update us how is going.

James
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another_one

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Re: on the stomach protection against POTABA and PENTOX
« Reply #4035 on: April 15, 2012, 04:35:49 PM »



Sure, I will do it!

I wish you the best!
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Norm

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Re: ORAL - Acetyl L Carnitine
« Reply #4036 on: September 21, 2012, 03:44:33 PM »

I read on the Peyronies Disease website that ALC has some benefit, yet I seldom see any mention of it here in the forums. Am I just missing it or is ALC just old news?
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Plication Surgery Dec. 2013. Straight Again!

swolf

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4037 on: September 21, 2012, 07:07:14 PM »

No, Acetyl L-Carnitine is indeed one of the recommended supplements and one of the few that have solid research backing them. CoQ10/Ubiquinol is another, and Pentox of course is the preferred medication.
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SP

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4038 on: November 20, 2012, 03:37:45 AM »

Although I am a woman, I still want to comment. My husband showed the symptoms of Peyronie's suddenly at the age of 64 (since 2 years, that is). What I want to know of you men is a) does it hurt? and b) does it affect your sex life? In our case, it doesn't hurt our sex life once he had overcome the stage of "hey, I don't want her to see this." I don't know about any pain or discomfort. His urologist prescribed him Cyalis and Vit.E and after one year of treatment there is a small improvement. Take care: some medication used for this illness may also lower general bloodpressure.
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GS

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4039 on: November 20, 2012, 09:32:44 AM »

IMHO, the answers to your questions are; yes and yes, but also no and no.  It all depends on where you are with Peyronies Disease.

At first, in the acute stage it was painful; but now, in the chronic phase of the disease, it is not painful.  If your husband has had Peyronies Disease for 2 years, there is a good chance he is past the painful stage.  But, there are men of this forum that will probably feel differently.

Peyronies Disease is a very strange disease and as the old saying goes, "results may vary."

GS
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LWillisjr

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4040 on: November 22, 2012, 09:30:29 AM »

What GS said is true. This affects every man differently. I had no pain at all and ended up with a 70 degree curve. So to answer your questions.
1. Everyone is different. Some men had no pain at all with this while others experience pain even from early onset.
2. Depends on the degree of severity. Many men have to face the emotional and mental impact of "Why did this happen to me". But the reality is that men with less than moderate curves or deformity are able to perofrm sexually without any problem. While others have such curvature that intercourse can be impossible or painful.
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Les - 8 yrs Peyronies Disease free
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james1947

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4041 on: September 20, 2014, 07:24:39 PM »

I don't know if it can help with Peyronies, but for inflammation for sure, so it may be connected.
A small fall with my motorbike a few days ago, I had a small hit at my feet. After a few days, all my left feet was inflamed, very swollen, very painful, yesterday I was not able to walk. After taking 2 capsules of a local herbal medication noon and night, wake up today with almost no pain and almost not swollen feet.
The name is "Montalin". I am continuing to take it, hope all will gone shortly. 
On the box is written that will help with stiff joints, uric acid deposits and many other inflammation related problems.

James   
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MiniMe

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4042 on: September 21, 2014, 08:53:48 AM »

James,

Just read a little about the product "Montalin" on the net and it had a warning so I would be careful with that. I don't know if it's the one, but anyway here is one of the links with the warnings: Foreign Product Alert: MONTALIN Jamu Pegal Linu Dan Asam Urat - Recalls & alerts - Healthy Canadians Website
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james1947

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4043 on: September 21, 2014, 09:17:21 AM »

MiniMe

Thanks for the alert. I was not aware of it.
On the pack have a list of the ingredients that are 95% and "Lain lain" that mean "others" is 5 %.
In the Singaporean alert is written that this "Jamu" includes Piroxicam and Paracetamol. So in any case is in a very small quantity.
Also I will take it not for more than 3 days, twice a day. In the past I use it twice, each time just one capsule that helped immediately and the local people are saying not to take it if the inflammation passed.

Thanks again for the alert, I will take it in consideration.
James

 
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Dias

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Hi guys. Although, everyone has a different progress in Peryronies and supplements, can someone that is been cured,  share with us his way of doing it?
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james1947

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Dias

I doubt if you will get some clear answers  to your question.
The only way to find out is to start reading the forum and to understand what others have done and the level of they success.
I would like to say one more thing:
If some treatment works on someone, is not a guaranty that it will work on all. This is Peyronies!!!

James
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Nemo

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Dias, welcome to the forum.

Unfortunately, I'm afraid your question is deceptively simply, but virtually unanswerable. I doubt you will find one person who claims to have been "cured" of Peyronie's and can prove this by testing that shows complete disappearance/healing of scar tissue. What you will find, however, are guys who have seen improvements to the point that Peyronies Disease no longer causes them any real problems, and even guys who have seen their curvature or distortion improve to an almost to pre-Peyronies Disease state.

However, as you might expect, guys who truly have no problem with their Peyronies Disease anymore don't frequent the forum much, and who can blame them, right?  They're back to living their lives free of this monkey on their back, so why occupy your time with it online.

Additionally, amongst guys who have seen such improvement, you probably won't find two who practiced the same course of treatment. Some took this supplement, some took that, some used a VED, some didn't, Pentox, etc., etc., etc.  And some, I'd wager, improved by doing absolutely nothing.

It's a mysterious disease with ten million different stories, each unique in their own way. I'm afraid your well-intentioned question will find no ready answer here, or at least no actionable answer, for even if a guy feels he's been "cured" of Peyronies Disease, he can only believe it was because of what he was treating himself with - he could never prove it. 

Bottom line - you have to invest the time in reading what's available on this forum, choosing your own course, and setting about your own journey. And on that journey, I wish you the best!

Regards,
Nemo
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Dias

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Thanks a lot Nemo and James, I knew this answer was coming. I am just hoping whoever from this site gets cured, not to forget us and come back at least one last time and write in bold letters his success medicine.

We need each other

Cheers guys.
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Blake247

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Re: ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements
« Reply #4048 on: August 24, 2017, 12:53:29 AM »

I read on a different topic that nsaids such  as ibuprofen can worsen peyronies because it stops inflammation and that's how the body heals itself. Does anybody have any info on this and whether I should take it or not.
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